Review of the National Care Standards Consultation on the Draft Overarching Principles December 2015 Scottish Care Response We are: a provider and/or an organisation representing providers. Scottish Care is the representative body for independent sector social care services in Scotland. This encompasses private and voluntary sector providers of care home, care at home and housing support services across the country. Scottish Care counts over 400 organisations as members, which totals over 830 individual services. Scottish Care is committed to supporting a quality orientated, independent sector that offers real choice and value for money. Our aim is to create an environment in which care providers can continue to deliver and develop the high quality care that communities require and deserve. In relation to older people’s care, this sector provides 88% of the care home places in Scotland and up to 55% of home care hours. There are more older people in care homes any night of the week than in hospitals - as at 31st March 2015 there were 892 care homes for older people providing 38,164 beds to 32,771 residents any night of the year, with 89% of these residents located within the independent sector. We are responding to this consultation on behalf of the Scottish Care membership. Members have also been encouraged to submit their own responses to the consultation. We are happy to be contacted again as part of the National Care Standards Review process. Contact details: Becca Gatherum Policy & Communications Officer Scottish Care becca.gatherum@scottishcare.org 01292 270240 General Points Scottish Care welcomes this opportunity to respond to the consultation on the draft overarching principles of the new National Care Standards. We look forward to being a key partner in the ongoing review of the Standards and to contributing constructively at every stage of the process. 1 Scottish Care welcomes the overarching principles and sees them as an important cornerstone for the provision, inspection and regulation of services in the future. We approve of the overarching principles being rooted in human rights. By adopting a human rights-based approach to all aspects of social care, Scottish Care believes there is an opportunity to establish more positive relationships between service users, providers, commissioners and regulators based on respect and mutuality, whereby each partner is empowered to promote and protect the rights of the individual. Scottish Care is interested to see how the overarching principles will connect to the subsequent development of general and specific standards. We believe it will be important that there is a commonality of language in all three components of the new National Care Standards, and therefore the wording of the principles as the first step in this process needs to be clear and concise. We would hope to see the terminology used in these principles reflected in the standards themselves so that they can be embedded most effectively in practice, given that the standards will be what services are inspected on. It is only by clearly linking the standards to the principles that there will be a decisive shift in understanding ‘how’ human rights can galvanise a new approach to inspection and service delivery, rather than them being an abstract and, at times, aspirational concept. The inclusion of mini case study examples to accompany each principle may serve to bring them to life and enhance understanding of how to apply them to practice. Alternatively, these examples could be included in a separate guidance note which elaborates each principle further or could be linked to the development of general and specific standards for different care settings. Either way, Scottish Care believes it is important to ensure that those who will need to apply the principles to their practice have a comprehensive understanding of them and case studies would be an effective way to support this. In order that human rights are truly placed at the centre of the National Care Standards, understood correctly and utilised effectively, Scottish Care believes that the wording of the principles needs to be changed from ‘I am entitled to’ to ‘I have the right to’. It is important that the overarching principles are as strong as they can possibly be. Otherwise, there is a danger that they will be diluted or not stand up to challenge when applied to specific instances where someone believes their rights are at risk. ‘Entitlement’ can have negative connotations and can imply a ‘claim’ to something which an individual or organisation has a responsibility to uphold, without clarity of who this is. On the other hand, ‘I have a right to’ can be more empowering and implies a mutual responsibility to promote and protect these rights. We believe this is the correct approach, given that all parties involved in an individual’s care journey must commit to maximising that person’s rights in their decisionmaking and approaches. If the National Care Standards Review is to truly embrace a human rights approach, there must be a willingness to use the language of human rights. In a similar vein, Scottish Care believes that the overall wording of the overarching principles needs to be as clear and simple as possible in order that all whom the National Care Standards will apply to have a robust understanding of the principles, which need to be at the heart of their practice. To this end, there are two specific points that Scottish Care would wish to raise: Given that the overarching principles will be submitted to Ministers for approval following the consultation and revision period, we are unclear as to whether Ministers will only be approving the specific wording of the principles or whether they will also be approving the definitions of these principles, as outlined in the consultation. If the ‘This means…’ sections will be central components of the overarching principles and the understanding of them, it is important that they are defined as effectively as possible. Scottish Care feels that it is therefore problematic to use the wording of the principles in their definitions (e.g. by defining the ‘I am treated fairly’ principle as ‘I am valued as an individual and I am treated fairly’). The Care Inspectorate must take additional steps to resolve these issues, which can be found in almost all of the current principle definitions. It is essential that the overarching are as clear and easily understood as possible. Finally, it is important that the review of the National Care Standards and the overarching principles in particular reflect a ‘whole systems’ approach to protecting and promoting human rights in an individual’s care journey. As part of this, the Review must recognise the range of scrutiny, compliance and improvement powers and how these can be utilised. Whilst providers very much welcome a human rights-based approach they remain concerned that, given it will be their services which are inspected and graded upon these principles and standards, they will be held solely accountable for protecting and promoting human rights. Scottish Care believes this should not be the case and indeed, we don’t believe this is how the Review envisages the development and implementation of the new care standards. Providers are absolutely committed to playing their important part in upholding the rights of the people they support, but the very nature of social care and the complexity of human rights means there will often be difficult issues to balance. This can include instances whereby care staff must make an unwanted intervention in an individual’s life in order to protect their human rights or the rights of others, or whereby a barrier such as resources or commissioning decisions limit the extent to which providers can fully uphold all of the principles. It will therefore be important for the principles to reflect the mutual responsibility for protecting and promoting human rights across all partners involved in an individual’s care pathway, and to effectively recognise the need for positive communication and risk-sharing at all stages. Scottish Care strongly agrees with the outlined overarching principles. However, we believe a number of them need to be slightly amended and have outlined our suggestions as to how this should be done below: Respected Scottish Care believes respect is an essential principle. Every individual has the right to be treated with dignity, respect, civility and courtesy, as Scottish Care outlined in its recent launch of the Convention on the Rights of Adults and Older People in Care Homes. The care someone receives must support and promote this principle, but it also applies to the treatment of staff and the relationship between service providers and others. It should be noted that relationship-based, respectful care is best provided when sufficient resources (including time) are provided to do so. Compassion Again, Scottish Care welcomes compassion being prioritised through the overarching principles. In the creation of the Scottish Care Convention on Rights, care home residents were very keen to see compassion included as a central component of how care is delivered. It is an important element of high quality care, alongside kindness and valuing interactions with individuals. It may be more difficult to measure compassion but, if defined effectively, it represents the shift towards a more holistic approach to regulation and inspection which providers see as positive. Included Scottish Care believes this to be one of the most problematic principles in its current form. Firstly, ‘included’ could be seen to be too weak and vague a principle in that ‘including’ someone does not necessarily imply meaningful involvement and understanding. As afore stated, Scottish Care feels that the creation of overarching principles presents an opportunity to outline essential human rights as robustly as possible and therefore the strongest possible terminology should be used to minimise the risk of misuse or misinterpretation. By the definition provided, it is clear that this principle tries to incorporate too much and, whilst all aspects outlined are equally important, it would be better to break this down into separate principles. Otherwise, there is a danger that this principle is weakened by its attempt to be all-encompassing and therefore loses meaning and value. We feel that the right to a key role in information-sharing, decision-making and feedback processes relating to an individual’s care can be detailed as one principle relating to meaningful involvement as opposed to inclusion. However, community life is an entirely different yet no less important concept and should therefore feature as a separate principle relating to equal access, community life and cultural and social activity. Individuals who access care and support services have the right to play an active part in community life in the same way that those unconnected to services do. They also have the right to be involved in the full civic and political life of their local community and nation, and to be supported to take as much part as they might wish in being able to exercise their rights as citizens both locally and nationally. This also demonstrates where a whole-systems commitment to the overarching principles is essential, as there may be instances where a care service is not commissioned or resourced in a way that enables them to fully uphold this principle. The Care Inspectorate must be able to recognise these instances and challenge them where appropriate. Treated fairly Whilst we generally agree with this principle, the current definition is both unhelpful and pointless in that it does not add anything to the principle other than to reiterate the term. It is also not clearly distinguishable from the principle of being respected. Some further thought must therefore be given to what this right means and how this is described. From a Scottish Care perspective, it should relate to non-discrimination, individuality and choice. Those who access care and support services should not be restricted by their characteristics, lifestyle choices or personal preferences, or by unnecessary risk aversion. They should be valued as individuals and be able to exercise choice and control, rather than have a ‘one size fits all’ approach imposed on their care and support. Again, this principle applies to the commissioning of services as well as the delivery of them. A responsive service Again, Scottish Care supports this principle but in the development of general and specific standards below it, further consideration must be given to how this might apply to the inspection of care services. It is absolutely true that services must be flexible and accommodating wherever possible to an individual’s requirements and outcomes. Where changes may not be possible, services still need to be responsive in their communication with individuals to reach a balance between an individual’s rights and those of others, as well as in balancing what can practically be achieved. Where this would be problematic would be if it was applied solely to service providers rather than as a shared responsibility across all partners, including commissioners. Scottish Care suggests that this could be overcome by including an overarching statement for the principles, detailing that ‘all of these rights need to be appropriately resourced/ funded/ supported at all levels in order to be enjoyed by the individual’. This would effectively re-emphasise the fact that this principle, and the others, are a mutual responsibility and that all the rights are inter-related. Safe Scottish Care welcomes this principle, especially its recognition of the need for care not to become risk averse. We strongly believe that safety should be a positive consideration rather than a restrictive factor in care and support provision. Any restrictions on the grounds of safety should be personal and proportionate and should always seek to avoid infringing on other rights relating to choice and involvement. The inclusion of this principle needs to reflect a move towards supporting models of care delivery and inspection which evidence positive risk-taking and a more holistic approach to decision-making. Personal wellbeing Whilst this is certainly not a negative principle to include, Scottish Care believes it could be more meaningfully framed in terms of enjoyment and achievement of potential. Personal wellbeing refers to much more than health and safety, but to a more holistic sense of wellness which should always be realisable for people accessing care and support. What’s more, the current terminology of this principle does not seem grounded in everyday language and understanding in the way that the other principles are. Therefore an adaptation to focus on enjoyment and achievement or ‘living well’ could potentially be more empowering and relatable for those not au fait with the language of health and social care (e.g. outcomes). Other principles As outlined above, Scottish Care believes that the principle around being included should be split into two separate principles. Other than this, we don’t feel there is a need for additional principles. In fact, to keep these concise in terms of numbers and definitions would be more effective in ensuring understanding and implementation of them through the Standards and in everyday practice. However, we do feel it would be important to add two overarching statements to the principles: “All of these rights need to be appropriately resourced/ funded/ supported at all levels in order to be enjoyed by the individual”. This would reflect a whole-system, shared obligation to promote and protect human rights as outlined in the principles. “Each right must be upheld in so far as the promotion of the right doesn’t take away/negatively affect the rights of others.” Emphasising that these rights (as with many human rights) are not absolute and must always be balanced is important, without implying that they can be diminished. By adding these slight caveats as overarching statements, they would be sufficiently recognised without diluting the absolute importance of each right. They simply serve to emphasise the importance of a whole-systems approach and the need for effective communication between all stakeholders to best promote and protect human rights. To summarise, Scottish Care very much welcomes the principles and the adoption of a human rights-based approach to the National Care Standards. If the amendments suggested in this response are made, particularly around strengthening language and clarifying definitions, they will go a long way towards transforming the overarching principles from a vague, abstract concept to something which has real practical use and meaning in an individual’s care journey.