National Disability Insurance Agency Response to the Joint Standing Committee on the NDIS Progress report on the implementation and administration of the National Disability Insurance Scheme. The National Disability Insurance Agency welcomes the Progress report on the implementation and administration of the National Disability Insurance Scheme by the Joint Standing Committee on the National Disability Insurance Scheme. The Agency appreciates the important work of the JSC in gathering information and reporting on how the Scheme is working in a practical sense for participants, their families and carers, along with providers and other stakeholders. The JSC Report highlights the early successes of the Scheme, outlines its enormous potential as an agent of positive change and refers to the significant challenges ahead which need to be managed in order to implement the Scheme in full. The JSC Report also identifies a number of areas where communication, implementation and delivery arrangements need to improve in order to deliver the Scheme more fairly, effectively and efficiently. The Agency supports these recommendations, many of which align with priorities already identified and being acted on within the organisation. The Agency is committed to building an organisation that is capable of learning as it grows. Early in 2014 the NDIS Board approved a formal process for continuous improvement and learning within the Agency. The continuous learning and improvement process identifies potential changes, prioritises them based on expected benefits and costs and seeks external advice from experts where it is needed. The process also engages with stakeholders and integrates the lessons learned back into the development of the Agency, our insurance model and governance arrangements. The JSC Report is an important element of this learning and improvement process. The Report will help ensure that the Agency remains well placed to actively manage the Scheme’s performance and costs, and to build the essential infrastructure, linkages and processes required to ensure the Scheme’s sustainability. Most importantly, it will assist to ensure that we continue to keep people with disability at the centre of the Scheme. The Agency has been working to collect robust qualitative and quantitative data on how the Scheme is performing. This will complement the JSC Report and other formal review processes. In addition, the Scheme Actuary has been working with the Agency to monitor and ensure the Scheme’s financial sustainability. The Agency has put in place a number of internal improvements to harness the experiences people with disability, their families and carers. Collectively, this information will inform the ongoing development and expansion of the Scheme. A key challenge for the Agency will be to carefully prioritise the many operational and design issues that have been have identified and manage these effectively as we roll out the full Scheme in the years ahead. Page 1 of 12 NDIA response to recommendations Recommendation 1 The committee is concerned about the number of NDIS plans that appear not to have been activated and recommends that independent work be undertaken to establish the veracity of the evidence that plans have not been activated and what the causes and consequences this may have on the Scheme. The Agency accepts this recommendation. The Agency will commence an independent review into these claims and build any necessary improvements resulting from the review into future work plans. The only action required for the Agency to consider a plan activated is for a participant to provide their chosen provider with their name, date of birth and individual NDIS number. Providers then link to the participant’s record in the system through the NDIA’s Provider Portal. This action creates a provider case record and is the point at which the participant’s plan is considered activated. The Agency can then view provider case details, including the date the provider linked to the participant, for funded supports in the plan. Although the NDIA collects data on when a participant and provider link based on Provider Portal action, it is acknowledged that the most reliable data collected by the Agency on plan activation is through claiming. NDIS actuarial data collates quarterly reports on activation based on the percentage of plans that have had claims. The Agency understands that the reliability of these results can be impacted by other matters such as in-kind arrangements and provider claiming delays. No data has been collected by the NDIA that would indicate plans have not been activated due to lack of services. However, a Service Gap Register has been adopted by the South Australian and Northern Territory trial sites to assist with the identification of services which may not be available to participants in remote locations. The Agency has a number of plan implementation strategies and local trial site procedures designed to assist in plan activation. These include comprehensive plan reviews, regular “follow-up” activity and providing participants with monthly plan statements to track plan spending and claims. The Agency has developed a number of resources to assist both participants and providers to activate plans and engage support services. The Agency offers participants and their carers the support of Local Area Coordinators (LACs) who can discuss available mainstream and community supports as well as assisting participants in the development of agreements with their chosen providers. Where required, LACs can also facilitate regular communication with both the provider and participant to ensure smooth plan implementation. For those who require additional support, the services of a Plan Management Provider may also be engaged to assist with choosing and engaging an appropriate service provider, manage support services and where applicable, provide assistance and guidance with the self-management of funds. The fee for the Plan Management Page 2 of 12 supports is written into the plan and so does not affect the quantum of the other funded supports. The NDIA proactively manages plan progress. As plans are monitored and reviewed, the NDIA can initiate discussions with participants where there may be non-activation of support items. Failure to activate a support item does not preclude it from being available in a participant’s subsequent plan but could lead to more assistance being provided to the participant in the engagement of a provider, or in choosing an alternative provider. The Agency will continue to closely monitor plan activations and to consider changes in processes that may contribute to better planning practices and collection of any service gaps or issues. Timeframe for action: Review to be completed by end December 2014 Recommendation 2 The committee heard evidence that 'gaps in service' have been identified in each of the trial sites. The committee recommends that further work be undertaken by the Independent Advisory Council which is well-placed to identify and inform the Agency about where there are gaps in service and possible options for addressing these shortfalls. The Agency accepts this recommendation. The NDIS Board will request that the Independent Advisory Council undertake this body of work. The Agency notes that the experience gained during the trial phase has demonstrated that the development of the market is a critical challenge. In order for the NDIS to operate as intended, it will need to be supported by a deep and diverse market that is responsive to the diverse needs of NDIS participants. Timeframe for action: Work to be completed by early 2015. Recommendation 3 As people transition to the NDIS, the committee is cognisant of the need to assist people develop the necessary skillsets to enable them to successfully move into the workplace environment and participate in the workforce, where possible. The committee recommends that work be conducted through the relevant Commonwealth departments of education and employment to assess what is and can be done to help participants make these choices. The committee also recommends working with employers to appraise issues concerning disability discrimination in the workplace, and remove barriers through education and reform to better integrate NDIS supports. The Agency accepts this recommendation and notes that the responsibility is largely with the Commonwealth Departments of Education and Employment. The Agency is committed to supporting people with disability move into education and employment. This clearly aligns with the Agency’s vision which is to “optimise social and economic independence and full participation for people with disability”. Page 3 of 12 The Agency is also engaging with the Department of Social Services to ensure the recent announcement about the expansion of Disability Employment Services (DES) aligns with and complements the Scheme. The expansion of DES aims to ensure that people with disability who have a capacity to work are able to participate in employment. Timeframe for action: Departments of Education and Employment to advise. Recommendation 4 The committee recommends that as part of the planning process, NDIA implement a process similar to normal insurance industry practices, where participants are provided with: clear disclosure documentation (about the planning process that includes reference to the 'no disadvantage test'); a written draft plan; incorporates a 'cooling-off' before a package is agreed; and requires participants to sign their final agreed plans. The committee believes that this is a fundamental element of the original intent of the policy to empower and provide choice to people with a disability in the National Disability Insurance Scheme. The Agency accepts this recommendation in principle. The Agency supports the idea that participants should be provided with a written plan. The development of plans is a shared responsibility between the Agency and participants. The plan is comprised of two parts—the first relates to a participant’s goals, and is prepared by the participant; the second is the provision of supports, which is prepared by the planner. Given the shared nature of planning, the Agency agrees provision of a written plan may better enable participants to understand their plan, and is important for transparency. The Agency will ensure that plans are provided in formats that best suit participants – for example, easy English or another appropriate format such as visual or storyboard. Given that the development of plans is a shared process, the Agency does not propose to require participants to sign their plans or introduce a cooling off period. The Agency is concerned that the introduction of a cooling off period suggests that there is a time limit on the participant changing their mind and, once that period is expired, the participant is locked in. This is not the case. Participants may take as long as they wish to finalise their goals and aspirations before a plan is finalised and can seek a review of their plan at any time – they are not constrained by any timeframe in seeking this review. They can also seek a review of the decision itself using the internal review mechanisms set out in the legislation and articulated in Agency communication material (this does have a time limit of 30 days of the plan being decided but each new plan review retriggers this timeframe). The Agency is committed to ensuring that participants’ rights are clearly articulated and understood. Timeframe for action: Ongoing Page 4 of 12 Recommendation 5 Based on the evidence received on transdisciplinary packages, the committee recommends that the Agency undertake a review of the current arrangements regarding transdisciplinary packages, in particular, the operational guidelines and advice and training it provides to its planners. This review should encompass and be informed not just by clinical experts and researchers, but it should also consult participants, carers and providers. The Agency accepts this recommendation. The Agency will undertake a review into transdisciplinary packages based on the evidence provided. The Agency is committed to building any necessary improvements resulting from the review into operational improvements, with a focus on training and guidance for planners. The Agency is also commissioning work to develop the guideline approach for autism. An internationally recognised specialist has been engaged to convene a group of experts to update the research evidence for the management of autism. This work will lead to the development of more specific guidelines for needs assessment and reasonable and necessary interventions for children with autism. Based on the feedback from the Committee, the Agency will commission a similar project for children with sensory disabilities (hearing and/or visual impairment). Timeframe for action: To be completed by mid-2015 (both projects) Recommendation 6 The committee notes the importance of the role of advocacy services in ensuring quality plans and supporting participants in the planning process. The committee recommends that certainty regarding the role and support for advocacy services in the NDIS be urgently resolved through the Ministerial Disability Reform Council. The Agency accepts this recommendation and notes this is on the work plan for the Ministerial Disability Reform Council. In line with the Productivity Commission report and recommendations, the Agency does not fund systemic advocacy. Any change in current arrangements would be a matter for government. There are three broad forms of individual advocacy which are available to Scheme participants. Support to access mainstream and community services The Agency provides information and referrals to participants to enable people with disability to engage in mainstream and community activities and develop selfadvocacy skills. Local Area Coordinators have a key role in supporting access to mainstream and community activity. Legal review and representation Page 5 of 12 This includes advocacy on Agency decisions, for example, an appeal against a decision not to allow a person access to the Scheme. Advocates will speak on behalf of a participant, or act for or represent them in processes. Systemic advocacy The Agency does not fund systemic advocacy. The Agency will work with the community to achieve positive change to inclusion for people with disability. This work will be a key focus for the Local Area Coordinators involved in the scheme at the local level. At the national level the Agency will work to influence national strategies and how they enable positive inclusion. Participants are also able to access case management support. The Agency will shortly be funding a number of Disability Support Organisations through the Sector Development Fund. Disability Support Organisations will work with people with disability and/or their families to build their capacity to exercise choice and control and make the most of opportunities presented by the NDIS. Timeframe for action: Ongoing in regard to current Agency activity. Recommendation 7 The committee recommends that the National Disability Insurance Agency implement a system whereby its website is renewed on a systematic basis, alerting the public to changes in its online documentation. The list of changes— with links to the documents—should be able to be accessed easily. Urgent changes—such as a change to price lists—should be communicated under a 'News Flash' item on the NDIA's website. The Agency accepts this recommendation. The Agency is aware of the need to improve our web presence. A process is currently in place to overhaul the current website. The new website will be fit for purpose, accessible and provide relevant and up to date information. As suggested by the Committee, the website will be regularly updated and include easily accessible important news items. The Agency will also undertake immediate action to ensure that urgent changes are given more prominence on the existing website. Timeframe for action: Immediate improvements to be implemented by September 2014. Total website redesign to be completed by early 2015. Recommendation 8 The committee recommends that the National Disability Insurance Agency publicise details about its internal systems for receiving and responding to feedback. The key performance indicators should be publicly listed and the Agency's performance against each indicator should be provided at regular intervals on the NDIA's website and in its Annual Report. The public should also be able to compare data sets over time. Page 6 of 12 The Agency accepts this recommendation. The Agency believes that feedback from participants and families is critical in giving us information about what we are doing well and where we need to improve. This recommendation will be built into the Agency’s National Quality Action Plan. The National Quality Action Plan includes a comprehensive participant feedback strategy which outlines the processes to gather qualitative and quantitative feedback, analyse this information to identify systemic issues, and then use this information to improve the performance of the Agency. The Agency is also refining our Service Charter to make sure we respond to people in a timely and appropriate way. This will include clear service standards and expectations. The Agency will ensure this information is made available through our Annual Report and online. Timeframe for action: National Quality Action Plan to be completed by end September 2014, Service Charter to be updated by end December 2014. Recommendation 9 The committee commends the National Disability Insurance Agency (NDIA) for the survey results it has achieved to date. To improve the transparency and integrity of future survey results, the committee recommends that the NDIA consults with the Australian Bureau of Statistics Statistical Clearing House about the design and methodology of surveys to ensure that they are fit for purpose and consistent with best practice survey design principles. The NDIA should publish the methodology of surveys on its website and in its Quarterly Reports to the Ministerial Disability Reform Council. The committee also recommends that the survey is extended to include carers and parents. The Agency accepts this recommendation. The current surveying of participant satisfaction is undertaken by surveying a sample of clients each month. This information will be provided in the next quarterly sustainability report. To improve analysis of outcomes the NDIS is currently developing an Outcomes Measurement Framework to measure progress towards achievement of the Scheme’s goals. The framework will include a new survey methodology, which will apply to carers and parents across a variety of indicators. The methodology will be made public when settled. Timeframe for action: Next quarterly sustainability report to include current survey methodology, work on the Outcomes Measurement Framework to be completed by early 2015. Page 7 of 12 Recommendation 10 The committee recommends that the National Disability Insurance Agency develop a systematic way of gathering qualitative feedback from National Disability Insurance Scheme (NDIS) participants and carers of NDIS participants. Careful thought should be given to ensuring a broad cross-section of feedback, encouraging views from people from non-English speaking backgrounds. The Agency accepts this recommendation. The Agency has been working to collect robust qualitative and quantitative data on how the Scheme is performing. The Agency is also committed to developing a strategy to ensure our communications and engagement activities meet the needs of people from culturally and linguistically diverse backgrounds. We already have a number of processes in train to improve the way we communicate and listen to the views of our stakeholders. These include: • • • Implementing a National Quality Action Plan, including a comprehensive participant feedback strategy. This outlines our processes to gather qualitative and quantitative feedback, analyse this information to identify systemic issues, and then use this information to improve the performance of the Agency. The CEO and Deputy CEO have scheduled visits to all trial sites to talk to participants, providers and staff about their views and ideas. This will continue to happen regularly. The Agency will also undertake a culture audit in late 2014 which will seek feedback from participants and stakeholders on whether the Agency is living up to its values. Timeframe for action: Work to be completed by end of October 2014. Recommendation 11 The committee recommends that the Agency continue to ensure greater representation of people with disability in its staffing profile, particularly in the planner role. The Agency accepts this recommendation. The Agency has developed an Accessibility Strategy which outlines our approach to increasing employment opportunities and accessibility for people with disability, including a target of 12 per cent of the workforce identifying with disability. As at 30 June 2014 the Agency has 10.94 per cent of staff identifying as having a disability, in comparison to the APS average - as reported in the State of the Service Survey Report - of 2.9 per cent. In addition, 53 per cent of staff in the Agency identify as having lived experience with disability. Current recruitment processes for both national office and trial site roles encourage people with disability, or a lived experience with disability, to apply. This is reinforced in the candidate packs and selection criteria for all roles. The Agency has a selfidentified benchmark that each selection panel includes a person with disability to reaffirm our commitment to employment of people with disability. Page 8 of 12 The Agency is participating in the Australian Public Service pilot of the RecruitAbility scheme - an initiative to support the employment of people with disability where a candidate whose skills, experience and knowledge meet the minimum criteria and identify as a person with disability will automatically progress to the interview stage of a selection process. The Agency is working with APSC in the development of special measures to allow the targeted recruitment of people with disability for key roles within the Agency, such as the Planner and Local Area Co-ordinator roles where peer support is expected to provide positive benefits to participants and the NDIS. Timeframe for action: Ongoing Recommendation 12 The committee recommends that the National Disability Insurance Agency develop and implement an information campaign to inform and assist young people living in residential nursing homes in the trial sites of the process for applying to become a participant with the NDIS. The Agency accepts this recommendation. The Agency believes that is it extremely important to ensure that young people living in residential care arrangements understand what the NDIS means for them. The Agency will continue to work closely with peak organisations, other organisations with an interest in this area like the Summer Foundation and young people in residential nursing homes to ensure that we provide clear and fulsome information on the options available to them as the Scheme continues to expand. While the Agency has received no evidence to date that there is a communication gap or issue for young people in nursing homes, the Agency will work with peak organisations and other stakeholders to ensure equity of access and support for this group. Timeframe for action: Consultation with peaks and stakeholders to be undertaken by end September 2014, and a framework for improvements to be implemented by end December 2014. Recommendation 13 The committee recommends that all future bilateral negotiations and amendments to transitional arrangements are finalised and publicised well in advance of commencement dates to ensure and provide confidence and certainty for all stakeholders. The Agency accepts this recommendation and notes that bilateral negotiations are led by the Commonwealth Department of Social Services. Timeline for action: To be advised by the Department of Social Services. Page 9 of 12 Recommendation 14 In accordance, with the progressive roll-out of the NDIS to remote Indigenous communities, the committee recommends that governments work together through the Ministerial Disability Reform Council to consider adopting an approach, in consultation with the appropriate Indigenous organisations, to phase in all NDISeligible persons at the same time in each community. The Agency accepts this recommendation and notes than an Indigenous Strategy is on the work plan for the Ministerial Disability Reform Council. The Agency will commence a body of work with DSS and the First People’s Disability Network, to ensure that the operationalisation of phasing arrangements best meets local need. Phasing arrangements are agreed within bi-lateral agreements between the Commonwealth and the relevant State or Territory to which the Agency is not a party. The Agency will also consider this recommendation in terms of planning for transition to full scheme. Timeline for action: The Agency will incorporate this recommendation into planning for full scheme transition over the coming months. Recommendation 15 The committee recommends that the Ministerial Disability Reform Council expedite roles and responsibilities and any funding arrangements for Tier 2 services. The committee commends the attitude and direction that the South Australian Government is taking in its involvement with Tier 2 and the sector, and recommends that states and territories adopt this approach. The Agency accepts this recommendation and notes this is on the work plan for the Ministerial Disability Reform Council. The Agency is aware of the need to prioritise supports for those in the Tier 2 category most likely to become Scheme participants and for those people who have episodic needs. The development of Tier 2 supports will serve as a form of preventative intervention, ensuring that individuals can be supported in the community without unnecessarily formal individualised support from the Scheme. The purchasing of bulk community support under preventative intervention arrangements may also be more suitable for participants with episodic needs, who may be better supported by robust community supports rather than through the provision of a formal individualised reasonable and necessary support plan. Timeframe for action: ongoing and to be considered as the Agency prepares for full scheme transition Page 10 of 12 Recommendation 16 The committee is aware that there is currently a shortfall in the number of workers in the disability sector, particularly in professional roles. It is aware of research that the number of full time disability sector workers will need to increase substantially to meet demand by full Scheme in 2018. The committee recommends that a workforce strategy be developed under the auspices of the Ministerial Disability Reform Council that identifies the issues, challenges, options and recommendations to meet demand. The Agency accepts this recommendation and notes this is on the work plan for the Ministerial Disability Reform Council. The Agency also notes that there are valuable lessons that can be learned from the peer support worker model, which is operating in the mental health space. Timeframe for action: Ongoing Recommendation 17 The committee recommends that the National Disability Insurance Agency assist prospective and actual participants in building the necessary skills and knowledge to manage their own support package. Workshops should be available for participants who are seeking information on self-managing their plan. The committee believes that promoting self-management of plans will provide participants with choice and control which should in turn lead to greater innovation and responsiveness from service providers. The Agency accepts this recommendation. The Agency is aware of the barriers to self-management that exist at the moment, including the problem of ‘in-kind’ supports. It should be noted that the people who are accessing the Scheme during the trial period are transitioning from state funded programmes where the emphasis has been on attachment to a ‘programme’ provider rather than promoting individually tailored self-selection of supports. The Agency notes that participants who have the skills and interest in self-managing their packages, including supports and funding, are already assisted by the Agency’s support coordinators. Many participants nominate to self-manage some elements of their support packages and the Agency to manage other aspects. In the Agency’s Business Plan there is a commitment to a target of 5per cent of participants fully self-managing their plans and 40per cent of participants selfmanaging some elements of their plans. This target will be reported on in the ongoing quarterly report to the CDRC and the target will be reviewed annually. The Agency is also working to improve communication materials for selfmanagement. Following consultation with participants, carers and staff, the Agency is currently re-designing the Participant Portal on the NDIS website, making it easier to use when self-managing. This is due for release in December 2014. The Agency’s experience of the take-up of full self-management is similar to the levels in those state programmes where self-management was possible (approximately 2 per cent). However, the percentage of plans where the participant Page 11 of 12 has selected self-management for some but not all of the funded supports is 27 per cent. When benchmarked against international data, the combined figure of close to 30 per cent is at a level that mirrors the level in countries where selfmanagement has been a feature for over a decade. Timeframe for action: Ongoing and workshops to commence by end of 2014. Page 12 of 12