BC Hands & Voices White Paper Submission March 9th, 2014 BC Hands & Voices represents families with young children (birth to 5 years) who are deaf or hard of hearing. This is a diverse population – for example, the needs of a signing, profoundly deaf child with Auditory Neuropathy Spectrum Disorder are very different from a child with mild-to-moderate high frequency hearing loss. A child born prematurely with extensive medical needs, including hearing loss, may differ greatly from a child with unilateral hearing loss. While we emphasize the need for OPTIONS and FLEXIBILITY for families in this broad group (in terms of early intervention, education, and support), we also recognize that our families face many common barriers: Financial The federal Disability Tax Credit does not serve children and families equitably. The criteria exclude many families, even though a child may encounter communication barriers due to hearing loss. These families are expected to pay ongoing costs for hearing equipment, such as, hearing aids, cochlear implants, FM systems, alerting devices. In addition, they shoulder other everyday, incremental costs, such as a parent working less to support the needs of the child, and costs associated with attending appointments. Inadequate provincial funding for hearing equipment. The British Columbia government provides one of the country’s worst hearing aid subsidies*, covering only the first set of hearing equipment for a child. Parents are left to bear the cost of replacement or upgrades to equipment every few years. This can quickly run into many thousands of dollars. Inadequate funding for early intervention service providers. These support agencies should not need to fundraise to provide basic intervention services for families. Education Lack of legislation to enforce children’s rights to an individualized appropriate education. The Ministry of Education needs to construct a Learning Framework specifically tailored for children with Special Needs. This must recognize that every child is capable, and address the varying needs and learning capabilities of each unique child. Insufficient options for parents when transitioning their children into school. For example, the BC Provincial School for the Deaf does not accommodate all deaf and hard of hearing children, there is no provincial elementary school oral program, and the few existing District programs for deaf and hard of hearing children have restrictions and limitations. This forces some families into the mainstream without other options. Poor acoustics in preschool and school classrooms create poor listening and learning environments for all children, but especially those who are deaf or hard of hearing. Shortage of professionals to support deaf and hard of hearing children. Unqualified professionals are sometimes hired to fill these positions (e.g. Educational Assistants, Educational Interpreters, and Teachers of the Deaf and Hard of Hearing). Lack of consistency and a standard level of support and services across BC. This includes interpreter services and hearing resource teachers. (e.g. itinerant Teachers of the Deaf and Hard of Hearing are not required to have sign language competency and there is no centralized supervision system for those working with deaf and hard of hearing students in schools). Access Limited access to American Sign Language interpreters for extracurricular activities for children who use sign language. No access to Educational Audiologists in all but one District. Limited access to assistive listening devices (e.g. FM systems) in the preschool years. Even when they are provided for school age children, there is limited access outside of school hours. Inconsistent access to deaf and hard of hearing adult role models. Public Awareness Lack of public awareness about deafness, hearing loss, hearing equipment, and accommodations for people who are deaf or hard of hearing. In particular, the false assumption that early identification and intervention, and/or use of assistive hearing devices results in “normal” hearing for a child. We ask the provincial government to take these concerns seriously. Services and supports for families of young children who are deaf and hard of hearing are an investment in the future. Children who are well supported in their early years are more likely to become successful, financially independent adults who contribute to our community and economy. Given the diversity of this population of children, it is critical to provide options and flexibility in terms of services and educational opportunities. By doing so, we will allow our children every opportunity to achieve their full potential. Thank you for taking the time to read our submission. Teresa Kazemir President, BC Hands & Voices