Listening to Families (partial list) ANDREWS FAMILY Background Information Family Members Present Rita, mother Eddie, father (second half of video) Jeremy, son, 23 months Ethnic/Cultural Background: European-American Residence: Rita and Jeremy live in an apartment in a small rural town (Ames, IA); Eddie lives in a nearby town (Boone) Occupation/Income: Father provides family income; hourly wage worker Medical Information: Jeremy was diagnosed with DandyWalker Syndrome at 3 months. He is blind and has cerebral palsy with severe muscle flaccidity and developmental delays in many areas, including feeding. Special Needs: Jeremy is not sitting, crawling, or speaking. He has no vision and requires night feeding and a special diet. EI Services: Occupational therapy, physical therapy, speech therapy, and a home education visitor. Videotape setting: Mother’s home Family Consultant1: Eric McCollum, PhD 1This person conducts the interview. S/he will not be traveling to Iowa and there does not need to be a family consultant (like this individual). Their main role was to conduct the interviews for these professional development DVDs. I’ve modified the location for these families; students need to determine the services and supports that will help this family should they have just moved to Ames, IA (service coordination). The videos hail from Philadelphia – so we pretend they have recently moved to the Midwest. 2 2 http://www.childdevelopmentmedia.com/listening-to-families-building-a-family-partnership/ ($45.00) the videos are getting a little old but have some great examples of interviewing and diversity of families with young children with diverse abilities (0-8) Listening to Families (partial list) Family Members Present DUTTON FAMILY Background Information Pam, mother, 26 Pearl, grandmother (mother of Pam) Khadijah, son 4 years Jabril, son, 18 months Bachcil, son, 18 months Ethnic/Cultural Background: African-American Residence: Pam and her children have been living with her mother for a year in an apartment in a large East Coast city. They just moved to Ames, IA Occupations/Income: Pam worked as a grocery store cashier for 7 years now she is a full-time caregiver. Jabril receives Supplemental Security Income (SSI), and the children’s father provides child support. Pearl works full-time as a housekeeper and home healthcare aide. Medical Information: Jabril was born 2 ½ months premature and was in intensive care for 2 weeks. He was diagnosed with cerebral palsy at 3 weeks. Special Needs: Nearing 3, Jabril is not yet crawling, sitting independently, nor toilettrained. He also has language delays. EI Services: No services were provided until Jabril entered an Easter Seal program when he was 2. Not sure if we have “Easter Seals” programs here in Ames, IA Videotape Setting: Church Parlor Family Consultant1: Insoo Kim Berg, ACSW 1This person conducts the interview. S/he will not be traveling to Iowa and there does not need to be a family consultant (like this individual). Their main role was to conduct the interviews for these professional development DVDs. 2 http://www.childdevelopmentmedia.com/listening-to-families-building-a-family-partnership/ ($45.00) the videos are getting a little old but have some great examples of interviewing and diversity of families with young children with diverse abilities (0-8) Listening to Families (partial list) KING FAMILY Background Information Family Members Present: Rich and Peg, parents, 40 & 38 Richard, son, 4 Kate, daughter, 2 ½ Ethnic/Cultural Background: European-American Residence: Rented home in suburban area of a large East Coast city Occupation/Income: Rich works as a management consultant in the computer industry; his work requires weekly travel. Peg is full-time caregiver; formerly, a science journalist Medical Information: Kate was born prematurely (34 weeks) with CHARGE syndrome (acronym for multiple birth defects affecting the heart, hearing, nasal passages, vision, esophagus, renal functions, and physical or cognitive growth). She spent 4 weeks in neonatal intensive care unit and had surgery after bit for an incomplete esophagus; currently, she is awaiting major heart surgery Special Needs: Kate wears hearing aids, and her vision may be limited. She has delayed growth and development, low muscle tone, and is not sitting or crawling. Her language is also delayed. Early Intervention Services: Videotape Setting: Kate received home-based speech and hearing, physical and occupational therapy, and educational services for 2 years. New, center-based daily services provided by the county began 3 weeks before videotaping. Family home Family Consultant1: Lee Combrinck-Graham, MD 1This person conducts the interview. S/he will not be traveling to Iowa and there does not need to be a family consultant (like this individual). Their main role was to conduct the interviews for these professional development DVDs. 2 http://www.childdevelopmentmedia.com/listening-to-families-building-a-family-partnership/ ($45.00) the videos are getting a little old but have some great examples of interviewing and diversity of families with young children with diverse abilities (0-8) Listening to Families (partial list) COLTON FAMILY Background Information Family Members Present Ruth, mother James, father James McKinley, son, 11 John, son, 6 Carissa Noel, daughter, 13 months Ethnic/Cultural Background: African-American Residence: House in middle-class suburb of large metropolitan area in Philadelphia. Moving to Ames or Des Moines. Team chooses location. Occupations/Income: Middle-class; both parents are employed full time Medical Information: Carissa was born full-term with Down syndrome; she had open heart surgery at six months. Currently, she has some problems with ear infections Special Needs: Developmental Delays in language, crawling, and walking EI Services: In Philadelphia, Carissa is receiving physical therapy from an EI home visitor (educator) who is also a PT. The family is learning sign language to facilitate communication. Family wants early intervention services when they move to Iowa. Videotape Setting: Family home Family Consultant1: Jana Staton, PhD 1This person conducts the interview. S/he will not be traveling to Iowa and there does not need to be a family consultant (like this individual). Their main role was to conduct the interviews for these professional development DVDs. 2 http://www.childdevelopmentmedia.com/listening-to-families-building-a-family-partnership/ ($45.00) the videos are getting a little old but have some great examples of interviewing and diversity of families with young children with diverse abilities (0-8)