ASHA KA JHARNA Annual Activity Report April 2014 to March 2015 This is an annual activity report of Asha Ka Jharna (AKJ) special schools from April 2014 to March 2015. The report is aimed to depict, describe and list various activities that were performed by children, staff and community members during this period. The report also illustrates the various events organized by the organization, visits of prominent personalities, awards, honors and accreditations received etc. Annual Board Examinations (April 2014) 59 of our children took their annual board examinations under ‘National Institute of Open Schoolings’ and cleared their levels A, B and C (equivalent to grade 8) with good grades. Parents Teacher Meet (6th May) Greater parent engagement is an indispensable factor in any rehabilitation strategy. Child stays for 5-6 hours in the school and rest of the day she is in the family. Reinforcement (of the training being provided by us) must take place at home so that generalization of the IETP (Individualized Education & Training Program) Goals selected happen. This puts a greater role on the parents and siblings. Unfortunately, child does not receive desired concentration often at home due to a variety of reasons. Some are perceived and stereotyped like child being remained as a burden throughout life or non-acceptance of rehab methods or expecting a miracle overnight (like some medicine) while in some homes , increased family size or absence of key child care taker or economic constraints play the spoilsport. Most of our children are from lowest income strata; families of whom are more concerned about earning two square meals. Bringing these kids to any kind of education requires lot of persuasion and efforts on our part. Constant hammering through regular home visits, parent - teacher meet is one way. Another one is to show them tangible benefits not only in education, self-help skills, communication, social, cognitive domains but also linking the children to social security schemes and concessions available. Just before children summer vacations, on 6th May, Parents Teacher Meet was organized at Asha Ka Jharna Nawalgarh special school where lot of interaction was done. We stressed upon greater family participation and involvement with their kids. Importance of forming a parent group for realization of their rights and regularity in attendance was also communicated. Individual issues of parents like logistics & transportation from home to school, behavior problem at home etc were discussed and solutions found. This exercise was in addition to the monthly home visits of our special educators .Idea is to connect and instill a sense of commitment for their own special needs children. Total of 36 parents representing 44 children participated. National Championship: A group of 8 intellectually challenged children (4 Boys & 4 Girls) is also practicing BOCEE (a sporting team event) to take part in Patna (Bihar) Special Olympics National Games to be held during third week of July. On 18th May, six athletes participated in state games at Chirawa where they won gold medal in Badminton. Art Based Therapy Course: Art Based Therapy (ABT) is being practiced by our Sikar staff member Ms Suman Tailor. After returning from first contact programme in January, she made an assessment format with ABT focused tools as directed. She attended second contact programme at Pune during third week of April where this was discussed threadbare. After returning she was assigned to develop a practical project for her group of eight intellectually challenged kids with ABT sessions as inputs. This was done and validated by her faculty. Now she will be executing same during July to September when school reopens and will be mentored by her guide. Her goal is to develop social & expressive skills, speech and behavior modification through narratives, articulation and therapeutics. Staff Training Workshop: Our team of special educators, physiotherapists, assistant educators, caregivers, computer and vocational instructor and support/admin staff deserve all accolades for the progress witnessed because they provide the inputs very patiently. There being no structured common curriculum, one has to apply her mind and creativity while focusing on individual child learning areas. Special education is one such field where heart matters more than anything else. Connect to the child is the key. Fortunately we have got and developed such colleagues who work with the kids not only professionally but also empathetically. On 4th June, Capacity Building Training Workshop was organized at our Nawalgarh unit where 25 teaching staff members from three special schools assembled. Ms Suman Tailor, ABT practitioner explained the various techniques of using art, music, and dance, drama to improve upon cognitive, listening, expressive and motor skills of special needs children. Lot of interaction and doubts clearing was there with Senior Technical Adviser Ms Monalisa Mehta in attendance. Strategic & logistics issues were also addressed. Review of ongoing children identification survey and linking them with education was done. Planning & execution of multifaceted activities for the children was shared among all. Updation Survey: During the children summer vacations, staff at Nawalgarh, Sikar and Jhunjhunu schools was engaged in various tasks like making assessment reports, designing teaching & learning aids, doing home visits, disability database updating survey. We are pleased to observe that our continuous intense counselling and awareness campaign yielded results and we were able to identify more than 35 new special children in Nawalgarh and surrounding area. Youngest of these is about 3 year old. We are in process of making logistics, transport arrangement as well as assessment and section distribution of new enrolled children. Educable children database was updated similarly at other two units. Helping the Special Girl Getting Justice We periodically receive request from local Police and Judiciary to help in case any victim is child with special needs and is unable to express herself. Our special educators act as interpreter/counsellor/advisor whatever the situation demands. During July also, our staff translated the thoughts of a 10 year old girl in the court who was sexually assaulted. Participation at Junoon (6-7 September) Junoon is a unique sporting extravaganza for the specially-abled children organized by NSS and the Sports Council of BITS Pilani since last three years. Objective is to promote equality by encouraging participation and providing a platform for the specially-abled to showcase their talent to the more privileged section of the society. 'Junoon 2014' was a two day Sports event, It saw a participation of nearly 200 special needs children at 8 NGOs from Chirawa, Pilani, Delhi, Jaipur and our three units ,all fighting for sporting glory. There were various sporting events like Cricket, Volleyball, Basketball, Badminton, Bocce and Athletics. Besides, a cultural evening called 'Junoon Nite' was organized depicting their cultures and abilities in the form of dance or small acts. 25 children from Asha Ka Jharna excelled in all the events they participated and bagged 30 medals. Our team was also winner in ‘Unified Cricket Match’ played between special children and BITS Engineering students. National Award Felicitation (10th September) A moment of glory came when Asha Ka Jharna was awarded as The National Trust ‘Best Voluntary Organization’ (working for intellectually challenged in the country) which was conferred to us by Minister of Social Justice & Empowerment, Government of India, Sh Sudarshan Bhagat and other dignitaries at New Delhi MC Convention Hall. Function was attended by more than 400 organizations across the nation who all deeply appreciated our doing tireless services since last 17 years. Earlier in 2009, we were awarded as BEST NGO in the state (Disability Sector) by Rajasthan Government. Networking With Local Community We work closely in the community we serve. We interacted and invited Bharat Vikas Parishad members and students from MODI University. They spent time with our children and learnt fine prints. Cultural Performance at regional Games (15th September) A group of 12 hearing impaired children from our Sikar School gave a mesmerizing cultural performance at SMS Stadium, Jaipur during opening ceremony of Regional Games organized by Special Olympics India. They got a standing ovation from all those present on a patriotic dance skit. Observation of Mental Health Day (10th October) Mental Health Day was organized in association with District Legal Service Authority Jhunjhunu. District Judge Sh Rajkumar Bhagat , CJM Ms Manisha Singh , RJS Trainee Magistrates and Dr Jai Singh (Mental Physician) attended the program which saw the gathering of more than 100 parents and children. They enlightened the gathering about mental health act provisions and counselling services. We lectured about the child rights and Govt schemes & entitlements for the children available in the state. Children Health Check Up (11th October) A regular health checkup camp was organized at Nawalgarh where a team of medical professionals overviewed the health indicators (body weight, height, oral hygiene, ENT, eye sight and detection of any chronic disease) of all 60 children. Medicines were prescribed to few children for minor ailments like bed wetting, ear discharge, tooth decay and follow up was done in old cases. National Abylampics Competition (3rd – 5th November) National Abilympic Association of India formulates and implements policies to propagate Abilympics – The Olympics of Abilities aimed at creating public awareness and to nurture the productive talents of persons with disabilities by providing them opportunities to acquire and enhance their vocational skills to achieve economic independence. National meet and competitions in vocational and leisure and living skills were organized by NAAI in Chandigarh where winners from regional/zonal level competitions were invited. Master Murari Lal Soni, Hearing Impaired Youth from Asha Ka Jharna who was winner in Central Zone Regional held earlier at Gwalior, participated in the category ‘Poster Designing on Computer’. Contestants were given on the spot theme on which they had to draw poster on given software in allotted time period. Murari designed a good one on ‘Female Feticide’ and got appreciation certificate among 20 participants from India. ABT (Arts-Based Therapy) Completion (5th November) ABT Course Completion Ceremony was held at Pune. Thereafter, Ms Suman Tailor from Asha Ka Jharna, Sikar, whom we had sponsored for this course, joined the select group of 200 ABT practitioners working across 25 locations and more than 100 organizations in India. ABT is the evidencebased use of art forms to accomplish individualized goals within a therapeutic relationship. ABT is primarily an art form, practised scientifically, and based on the Subtle Energy Guide (SEG), using methods from music, drama and visual art. Suzok & Yoga Orientation Workshop (15th November) Capacity Building Training Workshop was organized at our Nawalgarh unit where renowned Suzok therapist Sh Pawan Jhunjhunwala from Surat trained our staff members about suzok, acupressure techniques and benefits to children by applying these. He also briefed about different asana to be practiced. Staff learnt a lot and has started using these in morning assembly which has evolved really well with multi-faceted activities being executed using tools in Physical Training, Yoga, Meditation, Art, Music and Dance & Drama to improve upon cognitive, listening, expressive and motor skills of special needs children. Hearing Aid Mold Measurement Camp (19th November) AKJ in partnership with ‘Starkey Hearing Foundation, USA’ organized another Ear Mold Measurement & Hearing Diagnostic Camp in which impressions of 135 children with speech & hearing impairment were taken for designing the mould. Senior audiologist Ms Neha Singh, Mr Vaibhav and Saurabh from Starkey along with AKJ staff members did the assessment. Apart from our three schools, children from other places were also called by us. Now, during March 2015, High Quality behind the Ear (BTE) Hearing Aids would be distributed at Jaipur to the screened children. After completion of this, during last five years , free distribution of BTE Aids along with ear mould (worth nearly 162 Lacs INR) to 595 children across the surrounding region would have been made thus gifting them Virtue of Sound leading to Speech. National Parents Meet (20th-23rd November) Being an Executive Committee Member of PARIVAAR ‘National Confederation of more than 240 Parent Associations of Persons with Intellectual & Developmental Disabilities’, we have been constantly hand holding the parents / siblings of special needs children. National Parents Meet was organized at Ranchi this year in which we participated and gained insights. It was a good networking platform with around 500 delegates gathered across the country deliberated on diverse issues concerning PWIDDs. We shared our views and put status report of Rajasthan which was widely lauded. World Day for Disabled (3rd December) On the occasion of ‘World Day for Disabled’, many activities were organized by us at Jhunjhunu and Sikar. 110 special needs children from AKJ Nawalgarh and Jhunjhunu along with 50 children from five regular schools participated in an awareness rally which was flagged off by Assistant Director, Department of Social Justice & Empowerment and President, Lions Club. In this rally which passed through main market and prominent parts of the town, children were carrying play cards and banners depicting rights of those with special needs. More than 2000 persons from local community on the way encouraged them simultaneously got sensitized themselves. Subsequently, at our special school campus, to promote inclusion among regular & special children, various sporting & cultural events were executed including 50/100 mtr race, spoon race, musical chair, three-legged race, sack race, long & high jump, tug-o-war etc. Drawing & Painting competition, solo and group dance were also planned. Each child was given a gift & lunch packet. On this day, nearly 50 parents were also present whom we briefed about rights and schemes available for their special wards. Similar event was organized at Sikar also. Local ward member & Director of a play school flagged off the awareness rally which was followed by activities between special and regular children. Total of 100 children participated there all of whom were provided gift and snacks. Regional Parents Meet (19th-21st December) Regional Parents Meet was held at Ajmer in which more than 180 parents from the states of MP, Rajasthan and Chattisgarh learnt various dimensions of need for building parents’ network, self-advocacy, skill development and vocational training, early intervention, self-help groups, legal capacity, improving quality of lives and such issues. Mr Sudeep Goyal, as a resource person took a session on importance of early intervention in which he explained nuances of EI. This session was highly interactive with many questions raised from the parents. Parents from AKJ also participated as delegates there. Skills Training & Employability Workshop (19th December) A workshop jointly organized by Youth4Jobs & Disha at Jaipur was attended by our technical advisor. Objective of this workshop was to make us aware of a novel program aimed at enhancing skills & ensure employment for special abled youth. This organization ties up with different corporates to identify job opportunities and then training the special youth between 18 – 30 years in skill sets needed to perform. They have just started operations in Rajasthan. We counseled the parents back home accordingly. Nature Study & Adventure Camp (18th – 23rd December) Ten Special Children (Five Mentally Challenged & Five Hearing Impaired) along with two special educators from Asha Ka Jharna Nawalgarh & Sikar units attended one week Nature Study & Adventure Camp at Darjeeling (West Bengal) at Murre forest. They did mountaineering, rock climbing, expedition of jungle and river, research on flora & fauna, ropeway & net maneuvering and many such adventurous tasks. More than 200 special needs children across the country participated in this annual camp organized by Himalayan Nature & Adventure Club, Siliguri. This year was their 24th affair and our fourth participation. This was a once in a life time opportunity for our kids who ventured first time in their lives out of their homes; experienced long train journey; saw river, mountains, tea gardens, hilly animals; met children from other states; shared their cultures & traditions. They were an enlightened lot and confident bunch after their return. Lions Club Members Sensitization On 13th January 2015, one day sensitization program was organized for Lions Club Members at both Nawalgarh & Sikar schools. Regional Chairperson, Club president and many members assembled, distributed sweets, blankets and kites to special children on the occasion of Makar Sankranti. We explained in details about various nuances of special education, therapeutic intervention, policies and schemes etc. We asked for their support in identifying and referring eligible children in their localities to our special schools. Supervision & Mentoring Visit By THF Ms Jagrity Sharan & Ms Shabina Bano ,Program Managers from ‘The Hans Foundation’ (Our Funding Partner) visited and stayed for three days from 15th to 17th January here at AKJ. They oversaw the school activities right from the morning assembly; interacted with children and staff members; reviewed our organization policies and documentation procedures. They held a brainstorming intensive session with all of our team at both schools. Some good productive suggestions were received from them which are being implemented. Review Meetings with District Officials Secretary, Asha Ka Jharna Mr Sudeep Goyal in the capacity of Member, State Child Rights Commission undertook two review meetings of district officials at Jhunjhunu on 12th February and Sikar on 19th February. Officials from SJE , Medical , Police , District Administration , CWC , WCD , Child Directorate & NGO members were called upon and asked to submit their reports. Focus was on aligning child rights of special needs children with various Govt policies and programs. Hearing Aid Distribution Camp (17th February) Another Gift of Hearing Mission By Starkey Hearing Foundation at Jaipur! Bigger & Better!! More than 2000 hearing impaired children across Rajasthan received good quality hearing aids along with tailor made ear molds & one year supplies of battery. 120 children from our three schools got these aids. Further 200 children from different NGOs in various places were facilitated by us to get the aids. We also connected Starkey with the additional chief secretary , department of women & child development , Govt of Rajasthan Ms Gurjot Kaur as well as Principal Secretary ,Medical & Principal Secretary, Education so that convergence can be attained and enhanced synergy may benefit maximum number of children in the state through public-private partnership enabling them hear crystal clear sound thereby fulfilling their lives. Since last five years, we have been instrumental in providing BTE hearing aids for close to 800 children with hearing & speech impairment here in Rajasthan. Workshop at Jaipur (25th February) A state level workshop organized by Directorate (Special Abled) Govt of Rajasthan was attended by us in which we shared our experiences and gave many valuable suggestions to Govt authorities including state minister & secretary for effective implementation of welfare schemes for children with special needs. More than 300 delegates participated. Visit by NIMH official (4th March) National Institute for Mentally Handicapped, Secunderabad (Apex body in the country) selected our five intellectually children from SC/ST category for Govt scheme of free laptop distribution. These will come with pre-loaded specialized software aimed at better & interactive learnings to the children. In this connection NIMH official visited AKJ and met children and parents who would be provided hands on training to use the laptops at homes. Prime Minister Clean India Drive (9th March) AKJ also lend our helping hands to local service issues such as sanitation, environment, linking of social security schemes, providing services to medical fraternity in various medical/diagnostic camps and Pulse-Polio campaigns. In this regard, we offered our support to district administration in ‘Clean India Campaign’ initiated by Hon. PM. National Trust Capacity Building Workshop (31st March 2015) One day workshop by National Trust SNAC at Jaipur was attended by AKJ. Technical knowledge session was highly interactive one. Besides, bottleneck issues in execution of central schemes in Rajasthan were discussed. Festivals ,Occasions & Special Days Celebrations: AKJ celebrates / observes all major festivals, functions, occasions and special days in the year wherein we also invite community members to motivate them. Following are some of the noteworthy days in the reported period that were celebrated with customary enthusiasm and vigor: 8th April – Shri Ram Navami celebration 28thJuly – Eid-ul- fitar celebrations with sweets & new cloths distribution 9th August – Raksha Bandhan celebrations with tying friendship band 15th August – Independence Day function in the presence of community and prominent persons 16thAugust– Shri Krishan Janamashtami celebration , Makhan Matki Act 25th September – Navratra Stapthana and Dandia Ras 2nd October – Vijayadashmi with burning of Ravan effigy 6th October – Eid- ul -Joha celebration 17th October – Before breaking for Deepawali vacations, children did Laxmi Puja, lit Diyas and candles and in the evening fired noiseless crackers. Schools were illuminated; lunch was served followed by sweets distribution 24th December – Christmas celebration with decoration of Christmas tree followed by Santa Claus distributing gifts to children 1st January – New Year Celebrations with dance ,music & lot of fun 13th January – Makar Sakranti with kites & blankets distribution 26th January – Republic Day Function with children performing patriotic dance sequences 17th February – Maha Shivratri 5th March – Holi - Festival of Water & Colours 28th March – Shri Ram Navami celebration Capacity Building / Networking / Policy Intervention at Rajasthan State Commission for Protection of Child Rights , Jaipur At RSCPCR, Sudeep Goyal , Secretary , Asha Ka Jharna was a member of three cells – Disability Right to Education and Nutrition & Health His objective and goal is to attain full life cycle needs, holistic development and access to enabling and empowering environment for all the children by actively monitoring various policies and programmes ; reviewing complaints & rights violation cases ; drafting new policies and advocating child rights in society. Following Initiatives of RSCPCR (Disability Cell) were taken : Meeting with specialists on Early Intervention to prevent/reduce disability Workshop on Social Inclusion of specially- able in RTE State Wide Consultation on Children with Disability Redressed the complaints received Took Cognizance of media reports on Rights Violation Field Visits of Institutions working for special children to assess on ground situation Review meeting of Working Group on Disability Framed Guidelines on prevention of Child Abuse with special focus on special children Monitored schemes and policies by regularly asking for status reports from concerned departments Meeting on Inclusive Education for Children with Multiple Disabilities Seminar with Parents on Exercising Rights & Entitlements of Intellectually Challenged Children