Language and Communication Pre-Assessment Pre-Assessment Individuals with autism always have significant language impairments. Select an answer for question 648 Individuals with autism always have speech problems. Select an answer for question 654 Individuals with autism always have communication problems. Select an answer for question 655 Echolalia is a term used to describe when an individual repeats something that he hears, either immediately or at a later time. Select an answer for question 649 Echolalia should be discouraged and stopped. Select an answer for question 650 Nonspeaking individuals with autism benefit from learning sign language or another augmentative communication system. Select an answer for question 651 Once an individual with autism learns to talk, he is a good communicator. Select an answer for question 652 Individuals with autism have difficulty communicating in a flexible way. Select an answer for question 656 Communication is a _________. Select an answer for question 653 Speech, language and communication are all synonymous. Select an answer for question 657 Overview Autism is a complex disorder characterized by three core symptoms: social impairments, communication impairments, and repetitive behaviors. Impairments in the development of social and communication skills profoundly impact every aspect of an individual's ability to learn and function. Our understanding of social and communication impairments is essential to learning how to help and teach individuals with autism. Repetitive behaviors, also referred to as ritualistic or stereotypic, are observed in the communication and social behaviors of individuals with autism. Their internal drive to repeat what they do contributes to their odd behavior patterns, and their repetitive speech patterns accentuate their atypical way of interacting with others Autism looks very different in each individual with the diagnosis. The term autism "spectrum" disorder (ASD) is used to describe this wide range of differences. Some individuals have odd ways of interacting, while others show a complete lack of initiating contact with others. Some individuals communicate in atypical ways, while others use limited ways to communicate basic needs. This broad spectrum of disorders exists for two reasons: (1) Autism is associated with other developmental disabilities, meaning a person may have autism as well as another disability. (2) Autism is characterized by ritualistic and repetitive behaviors, which makes it unique from other developmental disabilities. First, autism commonly occurs with other developmental disabilities, including a wide range of cognitive, language, and motor impairments. Language impairments in autism range from a total lack of speech to atypical patterns of developing language (Prizant, 1996). Most individuals with autism have motor impairments that range from motorplanning difficulties to severe dyspraxia (Hanschu, 1998). The cognitive, language, and motor impairments interface with the core social and communication impairments in very complex ways. The "pervasive" challenges faced by individuals with autism affect all aspects of their development. Second, autism is characterized by ritualistic and repetitive behaviors. Ritualistic behavior is repetitious, and the individual may become upset when his/her repetitive behavior is interrupted. The emotional reaction to the interruption distinguishes a ritualistic behavior from other repetitive behaviors. Frequently observed categories of ritualistic behavior include social and communication behavior, such as the following. Social behavior: o o Self-stimulatory object rituals: repeatedly performing an action using an object, such as spinning objects Play rituals: insistence on playing in the exact same way every time, such as using a toy in only one way or playing a game with others in only one way Communication behavior: o o Verbal rituals: repeatedly saying a sound, word, phrase or sentence, including selfstimulatory vocalizations, immediate echolalia, and delayed echolalia Conversation rituals: conversing in the same way, such as asking the same question repeatedly or talking about the same topic continuously In this module, we will discuss two aspects of autism: language and communication characteristics. The module will review the developmental language and communication characteristics of autism and the range of problems observed. Emphasis will be placed on understanding how communication in autism differs from communication development in other individuals, with and without disabilities. Because impaired communication development is a defining characteristic of autism, it is critical to understand communication issues in autism in order to meet the needs of individuals with this disorder. It is difficult for us to consider that someone does not understand how to relate and communicate with others. It is even more difficult to grasp that someone would be able to learn how to talk and still be unable to converse with others in a typical way. The ability to talk is different from the ability to communicate. Children with autism, with and without speech, struggle to learn how to communicate with others. Definitions of Language, Speech, and Communication It is important to understand the difference between the terms language, speech, and communication to better understand autism. The following pages will explain the differences. Language Language is a formal symbol system that has structural qualities, including morphology, semantics and syntax: o o o Morphology - rules for how words are structured in a sentence (for example, word endings to mark plural [book/books]) Semantics - rules for how meaning is created by words and sentences (that is, word and sentence meaning) Syntax - rules for the ordering of words in a sentence (that is, sentence grammar) Language can be (a) oral/speech, (b) sign language, or (c) written language. An individual learns the rules of a particular language to understand the meaning of another person's needs, feelings, and ideas. The development of this knowledge is referred to as receptive language. An individual learns to use the rules of his or her particular language to express wants, needs, feelings, and ideas. The development of these skills is referred to as expressive language. Speech Speech is one form to express language. It is the ability to use all the speech sounds in a particular language. The development of speech is an oral-motor skill that follows a particular motor sequence. Most children learn to use all the speech sounds of their particular language by age five. Communication Communication is an interactive exchange between two or more people to express needs, feelings, and ideas. It is a fundamental social skill. An effective communicator has an inherent motivation to interact with others, something to express, and a means of communication. Unlike language, which is symbolic and rule based, communication is social, constantly changing and requires flexibility. An effective communicator is constantly thinking about the multiple contextual, language, social and emotional aspects of the situation and making ongoing adjustments in response to the behavior of others. The development of communication begins in infancy with a simple smile. Communication can be expressed verbally (by means of spoken, signed, voice-output communication device, or written language) or nonverbally (by using pictures, gestures, emotion, and other behaviors). The social conventions of communication are learned and refined throughout development. Tips to Remember Tips to remember about the differences between language, speech, and communication: 1. You can communicate without language. You can communicate nonverbally through facial expression, gestures, and other behaviors. 2. You can use language without communicating. You can talk to yourself without communicating to others. You can write information to yourself without communicating with others. 3. You can use language without speech. You can use written language and sign language. 4. You can communicate without speech. You can communicate with others through written language, sign language, and nonverbal means, such as facial expression, gestures, and behavior. 5. You can use speech without communicating. You can talk to yourself without communicating to others. The ability to talk is different from the ability to communicate. Children with autism, with and without speech, struggle to learn how to communicate with others. Language and Communication Development in Typically Developing Children Gaining an understanding of how communication develops, how language develops, and how receptive and expressive language contribute to social language development is an important step in being able to assess and support the emergence of language for individuals with autism spectrum disorder. The following pages will help with that awareness. Communication in Younger Children Typically developing young children are very effective communicators before they learn to say their first word. The young child uses many nonverbal means of communication to express a wide range of functions. Eye gaze, gestures, facial expression, and vocalizations are all combined in many ways to interact with others. Without saying a word, the baby uses smiles and facial expressions to tell you what he wants and does not want. By age one, the baby uses gestures such as pointing to ask for things and to show others things of interest. By 18 months of age, children are using nonverbal means of communication to make others laugh, call attention to themselves, and comment on things around them. This complex level of communication occurs without a word! Consider this scenario: James is 12 months old and enjoying his first birthday party. The family puts the cake in front of him and begins to sing. James smiles and laughs, looks at everyone, sings by rocking his head back and forth, points to the cake, claps when everyone else claps, and vocalizes when everyone says, "Hurray!" James is socially engaged, communicating his excitement and participating with others. The foundation of early development centers around these social and communication milestones. Communication in Older Children As children grow older, their repertoire of communication skills becomes more complex with the emergence of language. Through language, children develop the ability to combine nonverbal and verbal means of communication to initiate, maintain, and repair reciprocal social interactions. For example, they can begin an interaction by combining words with a touch or facial expression; they maintain interactions through speech, eye contact, and other nonverbal means of communication; and they can use words and facial expressions to ask for clarification when unsure what another person means. With language, they communicate their needs, express their ideas, seek information, share experiences and express feelings. Over time, children develop the ability to understand that others have thoughts, ideas, and feelings that differ from their own (i.e., theory of mind). This ability to understand the perspective of others plays a significant role in communication interactions. For instance, in conversation, children need to continually monitor what the communication partner knows and expects in order to make information relevant. Only with this social perspective can children interpret the meaning and intent of what others are saying. Social perspective taking also allows children to continually adjust their own language and communication with others. With all of these essential skills, they can have a conversation about present, past, and future events. Throughout childhood, they develop the more complex aspects of conversation, such as maintaining appropriate topics, considering the listener's perspective, and interpreting the nonverbal communication behaviors of others. They acquire the ability to use nonverbal conversational skills, such as voice quality and eye contact, in more flexible ways. Refinement of these conversational skills across different social contexts and with different conversational partners continues into young adulthood. Charles automatically knows that he needs to express himself and interact differently when conversing with his parents versus his teachers versus his friends. His nonverbal communication behavior looks more or less formal depending on the social setting. An observer can see how he communicates the same message "I forgot my homework" to his parent (serious) as compared to his teacher (worry) or his peers (humor). Mastery of social-communication skills is intimately linked to social acceptance. Language in Younger Children Language is the understanding and use of conventional symbols, particularly speech. The development of language is motivated by both social and nonsocial factors. Typically developing children rapidly acquire an understanding of vocabulary (semantics) and language structures (syntax/grammar) and use them proficiently by the time they reach school age. By age 2, children have some words and understand what their parents say in familiar routines, relying on contextual cues to "guess" the meaning. The preschool years is the time when children rapidly acquire vocabulary and go through the process of using the language structures they hear (e.g., English, Spanish, French, Russian, Chinese). A key indicator of children's active role in learning language is seen in the "mistakes" that they say, such as using words like "goed" for "went" or "mouses" for "mice" and using sentences with creative errors such as "him jumped the higher" instead of "he jumped the highest"! Maria, four years old, comes home from preschool and tells her mother about her morning. "Carlos got a sticker. Mrs. Carey said that Janie should say 'sorry', but I didn't do the project today." Maria's mother needs to put the missing pieces of the story together to make sense of it. Language in Older Children Through the school years, vocabulary continues to grow, and children learn to use more complex sentence types. Increased language competence is linked to the child's ability to integrate his personal experiences, social experiences, and knowledge base in a flexible way. The school years are also associated with the acquisition of literacy skills; that is, reading and writing abilities. Here the child masters the ability to integrate knowledge of spoken and written language needed for academic and social success. Maria, nine years old, comes home from school and tells her mother about her day. "Mom, today in school, our class had to do a history project. Jamie, Carlos, and I worked together. Carlos and I did all the work, and Jamie didn't do anything. Carlos and I decided to tell Mrs. Carey. Jamie needed to apologize. But the best part is that Mrs. Carey really liked our work and ..." Maria's mom easily understood Maria's story. The rapid acquisition of language is linked to the child's cognitive, social, and emotional development. Language appears to develop effortlessly for the typical child, who is neurologically ready to master the language of any culture from birth. Receptive Language Receptive language is the ability to comprehend the meaning of what others say. It is a complex process. Consider the meaning of the following words and sentence: 1. 2. 3. 4. See Happy Friend Anne's friend was happy to see her. It is likely that you understand the meaning of the first three words and can infer the meaning of the sentence, but true comprehension of this sentence is more than an understanding of each of the words, or the relationship between the words. Rather, it is determined by the connection between the speaker, the sentence, and the context that determines the true meaning. Word and sentence meaning is intimately linked to social content and communication cues. If, for example, Anne had recently had an argument with her friend, then the meaning of the sentence would be dramatically different than you likely assumed. Similarly, if the speaker said the sentence with an exaggerated, surprised tone of voice, the meaning also changes. In order to comprehend language, we need to consider (a) who is talking (b) what they said, (c) how the speaker says the words, (d) how the words relate to what is happening, and (e) how the words relate to what we know about the topic. The social context contributes greatly to understanding the meaning of language. You may be familiar with this video clip that demonstrates how complicated language can be for all people. Expressive Language Expressive language is the ability to use oral and written language in a conventional way. It is a complex process, but develops rapidly and effortlessly in typically developing children. Consider when most typically developing children can say the following: 1. "Banana" - 18 months 2. "Look mama, it's a teddy bear!" - age 2-yrs 3. "Actually, I think Mickey would have more fun at the park." - age 4-yrs 4. "If you really want to go to the movies later, why don't you come over to my house after lunch?" - age 6-yrs Expressive language develops as a result of learning (a) vocabulary concepts, (b) sentence grammar (syntax), (c) how to use words and sentences that are related to what is happening, and (d) how to use words and sentences that will be understood by the listener. Cognitive, social, and emotional knowledge are linked to meaningful expressive language use. Communication Development in Individuals with Autism Spectrum Disorders Communication differences are one of the diagnostic characteristics of autism spectrum disorders (ASD). Becoming familiar with the communication traits an individual with ASD may exhibit can help those supporting them increase the ability to have meaningful interactions. Communication Characteristics A diagnosis of autism is largely driven by impaired social development and impaired communication. Communication features listed in the DSM criteria for autism (American Psychiatric Association, 2000) include: o o o o o o Impaired understanding and use of nonverbal communication, such as eye gaze, facial expression and gestures Impaired ability to understand and maintain reciprocal interaction (i.e., the give-andtake or turn-taking quality of interacting with another person) Lack of using verbal or nonverbal means to bring, show, or point out things of interest Impaired ability to communicate for a variety of different reasons Impaired ability to initiate and maintain a conversation Ritualized use of language when interacting with others The pervasive nature of these impairments cannot be overstated. Individuals with autism are profoundly impacted by their struggle to understand how to communicate with others. They do their best to interact with others, but it looks very different from typical interactions. Behaviors as Communication In the absence of understanding how to communicate in conventional ways, individuals with autism use a range of positive and negative behaviors to communicate their needs and feelings. All of their behaviors, positive and negative, are communication. Laughter is communication; a temper tantrum is communication; smiles are communication; running away is communication. Saying the same word repeatedly can be communication; asking the same question, even when the answer has been given a hundred times, is an attempt to communicate. The challenge is to figure out what the individual with autism is trying to communicate through his behaviors. This video clip shows a young child very upset when he has just woken up. Mom is trying to help him calm down and move on with his day. Then the same child is shown identifying shapes while in an extremely happy mood. He is trying to communicate something by his behavior when he awakens that his parents are trying to figure out. Routines and Rituals as Communication In the absence of understanding how to communicate in conventional ways, individuals with autism also seek to communicate with others in routine, ritualized ways. They are easily confused when interacting with others and, therefore, want to minimize change and maximize routines. They want you to say the same thing in specific situations, and/or they say the same thing in specific situations. They appear to experience comfort from familiar routines, including routine ways of interacting with others. This differs significantly from natural interactions that constantly change and are not predictable (for example, Do you know what I will say next?). In life, very few conversations are routine (such as the beginning of a conversation on the telephone or greeting someone in a public place), and most conversations require us to be "flexible" moment to moment. The ability to communicate in a flexible way is severely impaired in individuals with autism. They need to know what you will say next and derive comfort from the familiar routines. Case Study: Max Max is 10 years old. His conversations with others are always about where a person lives. Max has memorized the map of his city and always begins a conversation with another person with the question, "Where do you live?" When the person tells him, Max then gives her detailed directions from their house to his own. He then walks away and finds another person to repeat the same question/conversation. Max enjoys interacting with others about "directions," but his ritual is rarely mutually enjoyable, and his ability to engage in other topics of conversation is limited. Difficulty Understanding Nonverbal Communication Individuals with autism have difficulty understanding the meaning behind the social and emotional communication of others. They may only notice extreme expressions of emotion and miss subtle social and emotional messages. They easily misinterpret the meaning of these messages, making incorrect associations between a person's nonverbal communication behavior and the context. Sample nonverbal social behaviors: o o o "come here and show me" - facial expression "come play with me" - gesture "I don't understand" - body posture Sample nonverbal emotional behaviors: o o o angry voice sarcastic voice affectionate touch Case Study: Anne Anne likes to climb, and frequently climbs up on the furniture in school and home. At home, her father goes over to Anne and, using his pointer finger, sternly says, "get down," and then helps her down. Anne liked her dad's attention, and did not interpret his stern voice or finger point as discipline, but rather playful. As a result, Anne started to climb more often on the furniture at home and school for the attention, and got excited when an adult told her to "get down." Anne was not doing the behavior because she wanted to be naughty; rather, she was doing it to have a "fun" interaction (as she perceived it). Researchers are unsure of the exact reason, but studies suggest that children with autism have less understanding and ability to "read" facial expression and other emotional cues (Baron-Cohen, 1995) and may be highly sensitive and even averse to different social stimuli due to unusual sensitivities to sound, touch, and movement (Greenspan, 1995). The natural "curiosity" about people and social activity that you see in typically developing infants is either lacking or different in individuals with autism. Consider the following scenario: You go to another country and don't understand or speak the language. You need directions to a location and must rely on a nonverbal (not spoken or written language) interaction, using body language and gestures to get the information you need. Now imagine that you don't understand the nonverbal body language and gestures of the other person, and you need directions. This begins to resemble the social experiences and challenges of individuals with autism. The meaning of eye gaze, facial expressions, and emotional expressions is difficult for individuals with autism to understand. Difficulty with Reciprocal Interaction Reciprocal interaction, by definition, means "back-and-forth interaction," "taking turns" and "sharing experiences." Reciprocal interaction can occur with and without language. Whenever two or more people are communicating, they take turns initiating a new idea, responding to what another person says or does. The "dance of interaction" seems to happen effortlessly. When interacting with an individual with autism, you may have the feeling that you are working very hard to get the person's attention, get a response, and maintain the interaction. At other times, you may find that the person with autism seems to have a single agenda when interacting with you (have her needs met) and is not interested in what you say or do. Other children seem to respond well to you, but the interaction never seems to go beyond the first question and answer. At best, the "dance of interaction" between you and a person with autism often feels out-of-sync or different. Your personal experiences are real, and the person with autism is overwhelmed by the process of reciprocal interaction. Case Study: Zachary Zachary, age 13, had a lot of language skills but struggled to interact with others. He would typically begin talking without first getting someone's attention, so it looked like he was talking to himself. His teachers taught him to both (a) tap someone on the wrist and (b) say "excuse me" before talking. While Zachary was quick to learn this communication skill, unfortunately he could not understand when to use it and when not to use it. As a result, he was constantly tapping someone's wrist and saying "excuse me." One night at 3 am, Zachary needed to tell his mother something. To do so, he went over to her bed and pulled down the covers in search of her wrist. Once he found it, he tapped her on the wrist, said "excuse me," and then asked for help. His mom found him to have a fever. Although Zachary got his mom's attention, this is not the most effective way in this situation. The way he engaged with others, regardless of the social situation, was always done in precisely the same way. Difficulty Bringing, Showing, or Pointing One of the core symptoms defining social and communication impairments in autism is "a lack of spontaneous seeking to share enjoyment, interests or achievements with other people" (American Psychiatric Association, 1994, p. 70). The key terms are "spontaneous" and "sharing"; that is, individuals with autism are more able to request what they want or don't want and less able to initiate interactions with others to talk about what they are doing or what another person is doing. Similarly, there is a marked difference between their use of gestures to communicate what they want and sharing interests with others. For example, the individual may point to a book that he wants but is less likely to point to a picture in the book as a means of showing someone what he sees. The difference between communicating to request and communicating to share, or to have joint attention, is an important distinction in individuals with autism. Asking for something is a way to have a personal need met while sharing ideas is for social enjoyment. Case Study: Nicholas Nicolas, age 8, enjoys tickling games and swinging on the swing. He will use eye gaze, move another person's hands to his belly, point to the swing, tell an adult "tickle me again" or "push me higher" to continue an activity that he finds enjoyable. He uses communication to request what he wants. However, Nicolas never uses eye gaze, pointing, or words to talk about what he and others are doing or feeling. He does not point to things of interest to him while playing or swinging, or says something like "look at this," "thanks, Dad," or "this is fun." The following video clip shows a boy at a birthday party who definitely wants some food or cake, but is not directing his cues to anyone. He is having difficulty bringing items to a person to communicate his wants or showing his gestures to someone so they could help him meet his needs. Limited Range of Communicative Functions Communicative function is a key term used in any discussion about communication in autism. Communicative function refers to the many purposes or reasons to communicate a single message. Common communicative functions can be divided into several categories: o o o o o o Requesting to satisfy personal needs - such as asking for a preferred object Responding to others - such as answering a simple question Commenting - such as describing what he is doing Requesting information - such as asking who, what, where, why questions to obtain NEW information Expressing feelings - such as saying "I feel sick" Use prosocial statements - such as saying "thank you" or giving a compliment At all stages of language development, individuals with autism have a limited repertoire of reasons to communicate. At both the nonverbal stage (use of gestures, facial expression) and verbal stage (use of language), they are more likely to communicate for the purposes of having their needs met and less likely to communicate for social pleasure. Therefore, communicative functions are more commonly used to: o o o Request personal needs Respond to others Request information Communicative functions less commonly observed include: o o o o Comments to share interests Requests for new information Expressing feelings Using prosocial statements or verbal acts of kindness It is more common to hear "I want _______," "I don't want _______" (an object, an activity, or a topic of conversation) rather than "we have ________," "you can ________," "do you want ________?" (an object, an activity, a feeling, a shared experience). Communication that results in a concrete personal outcome is more likely than communication that results in a shared social experience. Case Study: Carlos Carlos, age 15, is verbal and able to speak in full sentences. In school, he is able to tell others what he wants, including asking for food, objects, toys, school materials, and help with his school work. He tries to interact with his peers but asks the same question every time. For example, he approaches a peer with the question "where do you live?" even when he knows the answer. He gets excited when the peer answers and frustrated when the peer ignores him. He uses communication to satisfy his need and get a clear and immediate result. Impaired Ability to Initiate and Maintain a Conversation Conversation skills involve all the features of communication discussed thus far, and much more. Conversation requires: o o o Listening to another person's spoken message Paying attention to another person's nonverbal message (such as facial expression and emotion conveyed in the words) Interpreting the meaning of another person's spoken and nonverbal message in relation to the social situation o o o o o Understanding the perspective of the other person - what he knows, feels - in order to keep the conversation relevant Expressing ideas related to the topic of conversation Taking turns Adjusting to the ongoing language, social, communicative and emotional changes of the other person Doing all of the above at the same time! Given that individuals with autism have difficulty with each of the separate features required for an effective conversation, the skill of pulling all the pieces together at the same time to have a reciprocal conversation with another person is extremely difficult for even the most able person with autism. Conversational turn-taking can be learned via "scripts" written for a communication device, but the partner's topics must stay within the confines of the script. While not a true, open-ended conversation, these can be a means to introduce the individual with ASD to the back and forth flow of real conversations. Consider how this man with Asperger Syndrome describes what it is like to try to carry on a conversation. Researchers have compared the development of conversational skills in children with autism to control groups of typically developing children and individuals with other disabilities. As language abilities increased in control groups, there was a parallel increase in conversational skills. That is, children added new information, introduced new topics and used effective nonverbal communication skills. In contrast, as language skills increased in children with autism, improvements in conversational skills did not occur. (Tager-Flusberg & Anderson, 1991). Regardless of the level of language ability, conversation skills were significantly impaired because of their limited ability to understand and use nonverbal communication such as eye gaze, facial expression and gestures, understand social perspectives, talk out things of interest, and communicate for a variety of social reasons. Case Study: Edward Edward is 5 years old and speaks in full sentences. He talks about what he wants and what he doesn't want. He asks peers to play but struggles to have a conversation with them. He is very motivated to talk about his movie interest with peers, but is unable to "read" their lack of interest in his topics. He repeatedly asks them questions about specific scenes of different movies and does not understand their frustration with his constant questions. Edward knows the answer to his questions, but asks because one of the only aspects of conversation that he understands is "take turns asking or answering a question." He understands that conversation requires partners to take turns, but lacks all the other features of conversation, especially perspective taking, needed to engage in a reciprocal, mutually enjoyable conversation. Ritualized Communicative Behaviors Using a ritualized style of interacting with others is how individuals with autism compensate for their social and communication impairments. These ritualized communicative behaviors include, but are not limited to: The nonspeaking child: o o Making communicative vocalizations Using the same behavior to get someone's attention The child with emerging spoken language: o Repeating the last word that someone has just said (one form of immediate o echolalia **) Saying the same word repeatedly (one form of delayed echolalia **) The child with spoken language o o o o Repeating the phrase of sentence that someone has just said (one form of immediate echolalia **) Saying the same phrase or sentence repeatedly (one form of delayed echolalia **) Asking the same questions repeatedly (spoken or on a communication device) Talking about the same topic repeatedly Listen as this three year old boy uses jargon with rhythm and changes in tone to attempt communication. All of these examples can be the child's attempt to communicate and interact. In addition, these examples can be used for nonsocial reasons; that is, the individual may repeat things to himself without any intent to interact with others. ** Echolalia is the most common form of communication rituals observed in autism. The two basic forms of echolalia, immediate and delayed echolalia, are discussed in more detail in the section on language characteristics in autism. Repetitive, ritualized behaviors are a dominant characteristic of all individuals with autism. Communication rituals can occur for a variety of reasons, including: 1. Communication rituals are social and the individual's best effort to interact with others. 2. Communication rituals are nonsocial and are used by the individual to express anxiety. 3. Communication rituals are nonsocial and are used by the individual to calm himself. 4. Communication rituals are nonsocial and are an expression of poor inhibition in the individual. Case Study: Kim Kim was a fifth-grade student whose communication intentions were often difficult for others to understand. She spoke in full sentences, but the purpose of many of her messages appeared unrelated to what was happening around her. Kim's favorite activity was watching movies. She often made unusual associations between people that she met and characters from a movie. For example, the first time she met her teacher, she repeatedly said "there's no place like home," a phrase from the movie Wizard of Oz. Kim's mother noticed that the teacher often wore a red pair of shoes, and this seemed to remind Kim of Dorothy's ruby slippers in the movie. During the entire school year, Kim would approach her teacher saying "there's no place like home" each time her teacher wore the red shoes to work. This message, an example of delayed echolalia, was Kim's unusual way of initiating communication with her teacher. Her words actually meant "Hi, you are wearing the red shoes today just like Dorothy in the Wizard of Oz who says 'there's no place like home' when she wants to go home. Do you want to go home now?" Kim's short message, once understood by the teacher, had a different meaning and the teacher could acknowledge and respond to her differently. Imagine You travel to a remote island in the middle of the pacific. You encounter people who speak a foreign language and have social conventions that you do not understand. What would you do during your visit? 1. Would you isolate yourself from the people because you are overwhelmed, anxious and confused? 2. Would you observe the people from afar and try to figure out patterns to their language, social and communication behaviors? 3. Would you try to use your language and social communication skills to interact with them even though they might not understand you? 4. Would you use the one or two communication patterns that you see most often in the people to interact with them? 5. Would you focus your attention on how to have your personal needs met (food, drinks, shelter, preferred activities)? Individuals with autism have sometimes been referred to as "anthropologists on Earth"; individuals whose neurological make-up is such that they struggle to learn the social and communication conventions that most of us take for granted. They perceive our communication and social skills as foreign and difficult to understand. Each individual with autism uses a somewhat different compensatory strategy - some isolate themselves, some are passive observers, some pick up patterns that they hear frequently in the environment to communicate with others (especially words heard most often spoken by adults, and TV, radio, movies), some learn a few fundamental social rules and use them continuously, and most learn the best means to have their personal needs met. The atypical communication patterns observed in individuals with autism are their best effort to get their needs met and to interact with others. Comparison to Typically Developing Individuals Important communication development milestones to consider: Age Sample Milestone #1 Sample Milestone #2 12 months Uses a variety of nonverbal means to Uses requests, comments, and other communicate basic communicative functions 24 months Combines gestures and words to communicate Asks questions, expresses feelings, uses prosocial functions 2-3 years Maintains a simple conversation exchange with adults Comments and describes ongoing events 4-5 years Maintains a simple conversation with peers Knows how to respond to other's feelings during interactions Takes into account the listeners' Adjusts conversation according to the 6+ years perspective to maintain a reciprocal listener's needs conversation (Quill, 2000, p. 46) When you remember these fundamental, yet critical communication characteristics that define autism, it will enhance your ability to understand the person's perspective and become more successful in your efforts to interact and teach individuals with autism. Important communication features in autism to consider: Individuals with autism want to interact, but don't understand how Communication is generally used for a specific outcome and is used Developmentally less for social pleasure Different Communication interactions look very different from typical interactions Communication rituals are the individual's means of compensating for social confusion Individuals with autism struggle to understand: reciprocity, nonverbal signals, how to share experiences, and other's perspectives Some final points about communication to consider: 1. The individual with autism may understand what you say but not what you mean. 2. The individual with autism uses ritualistic interactions when he does not know what else to do or say. 3. The individual with autism often uses challenging behaviors to express his social and communication frustrations. You are the competent communicator. Adjust your interaction style to the level of the person with autism. Language Development in Individuals with Autism Language develops as a result of learning (a) vocabulary concepts, (b) sentence grammar, and (c) how to link words and sentences what is happening in a meaningful way. Cognitive, social and emotional knowledge are linked to the development of meaningful language. A wide range of language impairments are observed in individuals with autism due to the diverse developmental disabilities associated with the disorder, including cognitive and motor impairments. As a result, some "high-functioning" individuals have minimal differences in how their language develops; individuals with cognitive or motor deficits have specific language impairments; and individuals with severe cognitive deficits have significant delays in their development of language. However, impairments in social and emotional understanding profoundly affect the quality of language understanding and use for all individuals with autism. On the following pages in this section, we will examine language characteristics that are most commonly associated with autism. These specific language differences are linked to the social and communication impairments and repetitive behavior patterns that define autism. Language characteristics commonly associated with autism for: Receptive language are Context-specific comprehension Poor comprehension of abstract social concepts Literal Expressive Language are Echolalia Verbal rituals AAC Receptive: Context-Specific Comprehension In order to comprehend language, we need to consider (a) who is talking, (b) what the person said, (c) how the speaker says the words, (d) how the words relate to what is happening, and (e) how the words relate to what we know about the topic. The social context contributes greatly to understanding the meaning of language. In autism, individuals have difficulty understanding the relationship between the words and the social context. As a result, they often make a concrete association between what they hear and what they see in the environment, which results in a constrained understanding of what is said. The following example shows how this problem is observed in a child with significant delays. Case Study: Sammy Sammy has a favorite yellow cup at home that he uses for his drinks. Whenever someone at home says, "Do you want a drink?" Sammy is shown his yellow cup or he goes and gets his yellow cup from the cabinet. When Sammy is in school and someone says, "Do you want a drink?" Sammy does not seem to understand. Why? Does Sammy understand the sentence, "Do you want a drink?" The answer is yes and no. He understands the meaning of the sentence within the narrow social context of his "yellow cup" at home but does not understand the meaning in other social contexts. As a result, Sammy's parents and his school team have different opinions about what he understands. Other factors that can influence an individual's language comprehension are: Language: The length or complexity of the sentence Context: The relationship between the sentence and the "here and now" Speaker: The use of gestures and other nonverbal cues Motivation: The individual's interest in the topic Routine: The individual's familiarity with the message It is common to observe an individual with autism who appears to understand what is said in one context or with one person and then shows confusion in another context or responding to another person. Poor generalization of language meaning is common due to a limited ability to consider all aspects of the social context and the speaker. It is easy for adults to misinterpret context-specific language comprehension as intentional noncompliance or "not paying attention" on the part of the individual with autism. This video clip shows Nicky, an extremely capable individual, struggling to understand what is being communicated in the conversation with his supervisor. Never assume that the individual with autism understands what you say! Receptive: Poor Comprehension of Abstract Social Concepts Individuals with autism tend to develop an understanding of concrete words and concepts, but may have difficulty understand more abstract language whose meaning is social and relationship-based. Compare the following vocabulary: Examples of Social concepts NOUNS Friend Teacher Aunt VERBS Share Pretend Remember ADJECTIVES Happy Pretty Frustrated Examples of Nonsocial concepts NOUNS Truck Book Shoe VERBS Build Read Go ADJECTIVES Red Empty Two Abstract social concepts are embedded in our language use, both spoken and written. The individual with autism struggles to understand the meaning of these words whose meaning is linked to social understanding and one's own social-emotional relationships and experiences. Case Study: Tasha Tasha, age 18, is trying to learn the meaning of abstract social concepts. Her teacher helps her by developing a social dictionary of social concepts. The definition for each of these words is a list of Tasha's experiences; for example, the word "change" is defined by a list of specific situations in which Tasha was told it was time for a change. As a result of developing this dictionary, Tasha is learning the narrow meaning of "change," is able to say "I don't like change," but continues to struggle to understand all the subtle factors that link all of these similar experiences. That is, the ability to generalize the meaning of abstract concepts, particularly social concepts, is very challenging for her. Receptive: Literal Literal is defined as comprehension that adheres strictly to the basic, concrete meaning of a word or text without interpretation; it is an unimaginative way of understanding the facts. Comprehension is literal when an individual does not consider the speaker's social cues and the relationship between what has been said and the social context. Individuals with autism are very literal. They do not understand social cues like the emotional quality of a speaker's voice or facial expression in relation to what is said. They rely on the words "out of context" or use concrete cues in the environment rather than social cues to determine what someone means. This results in constant misunderstandings and misinterpretations of what others are saying, resulting in confusion and frustration. Problems with literal understanding can occur in response to a single word, a sentence, a conversational exchange, and written language. Consider the multiple meaning of the following message: Mary likes John. This one simple sentence could mean five or more different things, depending on the speaker's intention; the emotion in the speaker's voice; the relation between the sentence and the ongoing topic; and many other factors. Imagine the impact of always interpreting a message like this in a literal way. It would complicate an already difficult social situation for the individual. Watch as this boy demonstrates his amazing memory and then is confused by the phrase, "Give yourself a big hand!" Be careful what you say to a person with autism, as their perspective may be different from your own. In the movie Rainman, which depicts an adult person with autism named Raymond, there is a scene when Raymond stops in the middle of a busy street when the traffic signal said "STOP." Without consideration of social consequences of standing among moving traffic, Raymond responded in the most literal way. Expressive: Echolalia in Individuals with Speech Echolalia refers to the repetition of others' speech that may occur immediately after hearing a message or significantly later. Immediate echolalia refers to repeating a word or phrase just spoken by another person, while delayed echolalia refers to repetition of a word or phrase that was previously heard and is used at a later time "out of context". Echolalia is observed in at least 85% of individuals with autism who acquire speech (Prizant et al, 1997). Due to the prevalence of echolalia in individuals with autism, it is essential to understand this aspect of their expressive language. Example of Immediate Echolalia: Adult: Do you want a drink? Child: Want a drink Adult: Do you want a drink? Child: Want a drink Adult: Do you want a drink, yes or no? Child: Yes or no? Adult: Do you want it, say yes. Child: Say yes In this example, the exact repetition of the adult's last few words was the child's attempt to communicate that he wanted a drink. He is still learning language syntax/grammar, and echolalia is one of the strategies that he uses to practice language structures and learn the meaning of phrases in various situations. In this situation, echolalia served as a means to learn the meaning of a phrase, maintain social interaction, and communicate what he wanted. Example of Delayed Echolalia: Adult: Do you want to go outside on the swing? Child: If you're happy and you know it Adult: You want to sing on the swing? Child: If you're happy and you know it Adult: We will sing "if you're happy and your know it" while I push you on the swing, ok? Child: Go outside? Adult: Yes, let's go. In this example, the child says a phrase from a song that he has heard in the past. It appears that the child's words are completely unrelated to the adult's question. However, the adult understands the child's intent and acknowledges his message as meaningful. The adult knows that the child likes to sing when on the swing. One of his favorite songs is "If you're happy and you know it." The child makes associations between words heard and specific situations and struggles to learn the meaning of these words. Here, delayed echolalia is one of the strategies he uses to communicate, although what he says and why he says it do not seem related. Function of Echolalia There has been extensive research into the function of echolalia for persons with autism. It is now understood that both immediate and delayed echolalia are not always rote or meaningless repetition, but are used for a variety of reasons. Both immediate and delayed echolalia can be either (a) language and communication strategies used by individuals with autism or (b) noninteractive ritualized speech. (Prizant et al, 1997) 1. Echolalia as a means to learn language and communication Both immediate and delayed echolalia can be used as a means of learning language (both syntax/grammar and semantics/meaning) and maintaining social-communication. Immediate and delayed echolalia should be viewed and encouraged as the person's way to: Learn syntax/grammar Learn language meaning Maintain social interaction Communicate with you Echolalia is not always meaningless repetition, but is often used in functional ways. Focus on the communicative intent, not the echoed words, to understand what the person means. 2. Echolalia as noninteractive ritualized speech Most individuals with autism also use immediate and delayed echolalia in noninteractive ways. The person may "talk to himself" in a highly repetitive way for a number of reasons, including: Remind oneself what to do (for example, "put it away, put it away, put it away") Calm oneself in a difficult situation (for example, recite the alphabet repetitively) Express anxiety in a difficult situation (for example, repeats phrase previously heard in a stressful situation) Withdraw from a particular situation Express some other emotion Several factors increase the likelihood of hearing noninteractive echolalia. For example, noninteractive echolalia is more likely to be used in unstructured or overwhelming situations, with new people or situations, during emotionally stressful situations, and when a person is experiencing language comprehension difficulties. The following video clip shows a young boy making every effort to understand what his mom is asking, including using echolalia to try to increase his comprehension. A person's use of echolalia sometimes signals the need to modify the environment, simplify what you say, and be mindful of the person's emotional state. Expressive: Verbal Rituals in Individuals with Speech Repetitive, ritualized behaviors are a dominant characteristic in autism. Verbal rituals are defined as any use of language that is repetitive, insistent, and often expressed with intense emotion. Verbal rituals include some forms of echolalia (previously discussed), as well as perseverative speech and incessant questioning. Perseverative speech is described as persistent repetition of a word, phrase, or topic with no clear communicative intent. Incessant questioning is repeatedly asking one or more questions and persisting even after the question has been answered multiple times. These verbal rituals, like other ritualistic behavior, can occur for a variety of reasons, including: An individual's best effort to interact with others The individual's expression of anxiety The individual's means calm himself An expression of poor inhibition Example of Perseverative Speech: Child: (child recites a few lines from a favorite story book continuously, without pause)... Situation 1: Riding in the car with his father Situation 2: Waiting to see the doctor with his father In the first situation, the perseverative speech appears to be an expression of poor inhibition and has no social or communicative value. In the second situation, the child's perseverative phrases are spoken with high emotion, and the father senses his son's anxiety about the doctor visit. Focus on the emotion and the context, not the perseverative words, to understand what the person means. Example of Incessant Questioning: Child: "Do we have chocolate milk for lunch?" Situation: Asked repeatedly every morning in school In this example, the school team determined that the reason for the incessant questioning was related to the child's fears. In this situation, the child is anxious about the school schedule, uncomfortable in the school lunch room, and the fact that the only food that is consistent at every lunch is chocolate milk. So, his intent is to express anxiety about school lunch and he uses incessant questioning in an attempt to cope with the situation. Verbal rituals for persons with autism can occur for a number of reasons, including: Calming oneself in a difficult situation Expressing anxiety in a difficult situation Withdrawing from a particular situation Expressing some emotion Several factors increase the likelihood of hearing verbal rituals. For example, they are more likely to be used in unstructured or overwhelming situations, with new people or situations, during emotionally stressful situations, and when a person is experiencing any learning difficulties. A person's use of echolalia sometimes signals the need to modify the environment, simplify what you say, and be mindful of the person's emotional state. Expressive: Benefits of Augmentative and Alternative Communication (AAC) for NonSpeaking Individuals Approximately 30% or more of individuals with autism remain nonspeaking, although this statistic is continuously changing due to advances in early diagnosis and treatment. A nonspeaking individual is either mute or, in some instances, says an occasional word inconsistently. Some nonspeaking individuals are unable to use speech as a means of communication, but are able to learn to use an alternative language such as sign language, a symbolbased language, or written language. Other nonspeaking individuals learn to use more basic symbols as a means of communication, such as photographs or other graphic icons. These alternatives to speech are called augmentative and alternative communication (AAC) systems and include voice-output communication devices. There are four examples of AAC usage on the next page. Benefits of using AAC systems with nonspeaking individuals include: 1. Increased communication competence 2. Increased rate of developing speech in comparison to those who do not use AAC systems 3. Decreased rate of problem behaviors associated with poor communication skills The ritualized nature of autism is observed in their language use. This is true for both the verbal individuals and the person with no speech. Regardless of what AAC system is taught to a nonspeaking individual, persons with autism may be driven to engage in repetitive, ritualized behaviors. Case Study: Ben Ben uses a voice output computer as his AAC system. While he uses the system to effectively communicate his wants and needs, he also uses the computer to repetitively touch his favorite phrase that is build into the system, "How are you today?" It seems he likes the sound of this phrase and listens to it (in a noncommunicative way) hundreds of times a day. So while a voice output system may or may not be the best choice of an AAC system for Ben, consideration needs to be given to his ritualized use of the system. His ritualized use of the AAC system interferes with his social acceptability. He also needs to be taught an alternative skill to replace this ritual in order to limit his noncommunicative use. Select an AAC system that increases the child's communicative competence! AAC Usage Examples There are four examples of AAC usage on this page. The third clip shows a person with autism utilizing a letter board for spelling. The other clips are individuals with a variety of disabilities, but are used here to show an assortment of device usage. Comparison to Typically Developing Individuals Important language development milestones to consider: Age Receptive Language Expressive Language 12 months Understands some words Uses babbling, jargon and word approximations 24 months Understands simple sentences in routine contexts Uses over 100 words and some phrases 2-3 years Understands simple conversations in natural contexts Uses simple sentences 4-5 years Understands complex sentences in routine and natural contexts Masters syntax/grammar and uses complex sentences 6+ years Understands abstract concepts and continues to build vocabulary Continues to build vocabulary When you remember these fundamental, yet critical language characteristics that are common in individuals with autism, it will enhance your ability to understand the person's perspective and become more successful in your efforts to interact and teach individuals with autism. Important language features in autism to consider: Developmentally Different Context-specific comprehension Receptive language Poor comprehension of abstract social concepts Literal AAC rituals Expressive language Echolalia Verbal rituals Some final points about language to consider: 1. The individual with autism may understand you in routine contexts but not novel situations. 2. The individual with autism is more likely to understand concrete, not abstract information 3. The individual with autism often uses echolalia as a means to learn language and interact with others. 4. The individual with autism exhibits ritualistic language use for a variety of reasons, one of which is anxiety. Do not assume language comprehension because an individual is verbal. Remember the important distinction between expressive language and communication. Frequently Asked Questions Question: What is language? Answer: Language is a formal symbol system that has structural qualities, including morphology, semantics, and syntax. o o o Morphology - rules for how words are structured in a sentence (for example, word endings to mark plural (book/books) Semantics - rules for how meaning is created by words and sentences (that is, word and sentence meaning) Syntax - rules for the ordering of words in a sentence (that is, sentence grammar) Language can be (a) oral/speech, (b) sign language, or (c) written language. An individual learns the rules of a particular language to understand the meaning of another person's needs, feelings, and ideas. The development of this knowledge is referred to as receptive language. An individual learns to use the rules of his or her particular language to express wants, needs, feelings, and ideas. The development of these skills is referred to as expressive language. Question: What is speech? Answer: Speech is one form of expressing language. It is the ability to use all the speech sounds in a particular language. The development of speech is an oral-motor skill that follows a particular motor sequence. Most children learn to use all the speech sounds of their particular language by age 5. Question: What is communication? Answer: Communication is an interactive exchange between two or more people to express needs, feelings, and ideas. It is a fundamental social skill. An effective communicator has an inherent motivation to interact with others, something to express, and a means of communication. An effective communicator is constantly thinking about the multiple contextual, language, social and emotional aspects of the situation and making ongoing adjustments in response to the behavior of others. Communication can be expressed verbally (by means of spoken, signed, or written language) or nonverbally (by using pictures, gestures, emotion, and other behaviors). The social conventions of communication are learned and refined throughout development. Question: What are the unique communication characteristics of individuals with autism? Answer: Difficulty understanding nonverbal communication Difficulty with reciprocal interaction Difficulty understanding how to point out things of interest Limited range of communicative functions Impaired ability to initiate and maintain conversation Ritualized communication Question: What are the unique language characteristics of individuals with autism? Answer: Receptive: Context-specific comprehension Poor comprehension of abstract social concepts Literal interpretation of what others say Expressive: AAC rituals Echolalia Verbal rituals Citation and References Citation If included in presentations or publications, credit should be given to the authors of this module. Please use the citation below to reference this content. Quill, K. (2011). Language and Communication (Columbus, OH: OCALI). 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Language in context: The acquisition of pragmatics. San Diego: Academic Press. Hart, B., & Risley, T. R. (1999). The social world of children learning to talk. Baltimore: Paul H. Brookes. Owens, R. (2000). Language development. Columbus, OH: Charles Merrill. Post-Assessment Post-Assessment Individuals with autism always have significant language impairments. Select an answer for question 658 Individuals with autism always have speech problems. Select an answer for question 659 Individuals with autism always have communication problems. Select an answer for question 660 Echolalia is a term used to describe when an individual repeats something that he hears, either immediately or at a later time. Select an answer for question 661 Echolalia should be discouraged and stopped. Select an answer for question 662 Nonspeaking individuals with autism benefit from learning sign language or another augmentative communication system. Select an answer for question 663 Once an individual with autism learns to talk, he is a good communicator. Select an answer for question 664 Individuals with autism have difficulty communicating in a flexible way. Select an answer for question 665 Communication is a _________. Select an answer for question 666 Speech, language and communication are all synonymous. Select an answer for question 667 Submit Post-Assessment Select your answ er