Appendix 4 – Improving cancer mortality rates in Rutland Introduction Cancer causes around a quarter of all deaths in Rutland. Reducing premature deaths from cancer will increase life expectancy and help to reduce health inequalities. The term ‘cancer mortality rate’ refers to the annual numbers of deaths from cancer relative to the size of the population. This is often expressed as the number of deaths from cancer per 100,000 population. These mortality rates (and indeed survival rates) are dependant upon many factors including: (1) the numbers of people who develop cancer (2) How many new cases of cancer are detected and how quickly they are detected (3) How effective treatment is for cancer patients The HWBB will be interested in what the local health and social care colleagues can do in partnership with local people and communities to reduce the burden of cancer in Rutland. We have access to a number of sources of data that tell us how well or otherwise we are doing in Rutland compared to national and ‘peer’ averages. Rutland is a relatively affluent place. In general terms we should aspire to have better than average outcomes- cancer outcomes are generally worse in areas of socio-economic deprivation due to greater levels of risk factors for cancer and later presentation of people with cancer. Improvements over the years mean more people are surviving cancer but cancer survival in the UK is still some way off the best in Europe, and rates vary even across the UK. Poorer survival in the UK is felt to be largely due to later diagnosis as a result of lower levels of awareness of cancer symptoms and signs amongst the public and also to certain barriers to presentation and onward referral of newly presenting cancer patients. By diagnosing cancer at an earlier stage, and ensuring access to optimum treatment, it is hoped that significant improvements in survival can be made We also recognise that although cancer services have improved for everyone nationally and in Rutland, the progress made in achieving better cancer outcomes has been uneven. We know that inequalities between different groups of people persist: in terms of lifestyle and social risk factors, incidence, access to services and treatment, patient experience and outcomes. This suggests there is a need to target resources towards our most vulnerable populations to address these factors. Please note: where data is not available for the area of Rutland, the figures for Leicestershire County and Rutland PCT have been used instead. Summary Around 200 people in Rutland are diagnosed with cancer each year and about 90 die of the disease, accounting for almost a quarter of all deaths in the area. The coverage of both the cervical and breast screening programmes in the Leicestershire County and Rutland area are significantly higher than the national average; breast screening coverage rates are the highest in the country. Adults in Rutland are among the most active in the East Midlands, with a significantly higher percentage of adults taking up physical activity than nationally. Overall, cancer incidence is similar to the national average. Rates are significantly lower for lung cancer due to the lower prevalence of smoking. However, the female incidence rate of colorectal cancer is significantly higher than the national average. Overall, mortality rates are significantly lower than the national average, particularly for females; leading to a lower number of years of life lost due to cancer than nationally. Male lung cancer mortality is significantly lower than the national average. The inequality gap in mortality rates is smaller than the national average. However, for lung cancer mortality, rates are 60% higher in the most deprived fifth of areas than in the least deprived fifth of areas in Rutland. Overall, female one and five-year relative survival rates are significantly higher than the national average. Males diagnosed with prostate cancer are less likely to survive for one year after diagnosis than they are nationally. However, interpretation of survival rates for prostate cancer is difficult due to widespread differences in PSA testing. Over a third of cancer patients die at home in the Rutland area, significantly higher than the national average. Commissioning of cancer services The Health and Social Care act has resulted in significant changes that will potentially impact on the cancer pathway from prevention through to specialist treatment and end of life care from April 2013: Commissioning of primary preventative services i.e. related to lifestyle and socio-economic risk factors remains to some extent a collective responsibility across health and social care partners. However local authorities and specifically public health departments will have a pivotal role Commissioning of basic secondary care cancer services will become the responsibility of Clinical Commissioning Groups More specialist (tertiary) treatments will be commissioned by the National Commissioning Board (NCB) Cancer screening programmes will be commissioned and co-ordinated by the NCB with support from Public Health England (PHE) and an ‘oversight’ role for the Director of Public Health Public Health England will host the National Cancer Intelligence Network whose role will be to collect and collate data across the cancer journey, providing a common national repository for cancer datasets and producing expert analyses to monitor patterns of cancer care to drive improvements in cancer care and clinical outcomes The East Midlands cancer network currently plays a pivotal role in guiding the strategic development of cancer services across the East Midlands. Its future role is unclear The Health and Wellbeing board will oversee the commissioning of local cancer services (including prevention) and bring key local stakeholders together to collectively tackle cancer in its broadest sense There are concerns about how the strategic planning and operational delivery of cancer services will function post April, 2013 given these shifting organisational roles and responsibilities. Recommendations: The HWBB is asked to: (1) Monitor and influence cancer outcomes by retaining a clear focus across the entire pathway from primary prevention to end of life care. In doing so the HWBB must also be assured that co-ordination of cancer services and care both locally and regionally remains robust despite the significant organisational changes across the system post April, 2013 (2) Facilitate and encourage partnership working across the health and social care systems to maximise collective efforts across the whole cancer pathway (3) Ensure that commissioners and partners target resources proportionally across the entire pathway, from primary prevention all the way through to specialist treatment and end of life care (4) Ensure that resources are targeted towards our most vulnerable populations to address the multiple factors that influence cancer mortality: from lifestyle through to access to services and service provision (5) Facilitate, promote and increase cancer symptom awareness amongst the public- including ensuring that commissioners work with patients and primary care providers particularly to improve early awareness and diagnosis of cancer (6) Influence providers, commissioners and wider partners to ensure prompt and full access to screening programmes (7) Influence providers, commissioners and wider partners to ensure timely and appropriate referral for people identified as potentially having cancer. (8) Ensure that commissioners and providers and other partners utilise accurate and timely cancer data as part of collective efforts to understand which cancers are killing local people disproportionately, how well people with cancer are being treated and whether the local situation is different from that in similar areas