Proposal for ROCR Approval
1. Record
Type?
New
2. Unique
Number
R01098
3. Title
National Audit of Pulmonary Hypertension
4. Collection
Type
National
5. Other
Reference
NAPH, NPHA, PH
6. Description
The National Audit of Pulmonary Hypertension is now in it's sixth yea
rates and patient outcomes of pulmonary hypertension services in ce
include: Pulmonary function tests, Six minute walk (distance in metr
ray - reduction in cardiothoracic ratio, Quality of life measures, Surv
to inform pulmonary hypertension services and is used by clinicians
improvement and commissioning activities. The data is collected via
entered manually or uploaded via csv file (csv file downloaded from
7. State
Submitted to ROCR
8. ROCR
Reference No
not known
9. Start Date
01/04/2009
10. End Date
31/03/2016
11. FT
Collection
Type
VOLUNTARY
12. Collection
Type
VOLUNTARY
Proposal for ROCR Approval
13. Owning
Organisation
Health and Social Care Information Centre
14. Owning
Department
Clinical Audit Support Unit
15. Owner
Name and
Contact
Details
Name: James Thatcher
Email: j.thatcher@hscic.gov.uk
Tel No: 0113 8665520
Location: Trevelyan Square, Leeds (2nd floor north west)
16. Senior
Supporting
Official Name
Kathy Blacker
17. Senior
Supporting
Official
Contact
Details
Title: Assistant Director of Clinical Strategy
Tel No: 0113 8254825
Email: kathy.blacker@nhs.net
Location: NHS England
18. Data
Provider Burden Days
499.2
18. Data
Provider Burden £
£ 198973.64
18.
Frequency
Annual
18. Source
Organisations
Acute Foundation Trust (7)
Proposal for ROCR Approval
(Number of
orgs)
19. Set Up
Costs
20. Other
Costs
£ 82705.0
21. Total
Costs
£ 281678.64
22. Please
explain the
reason for
any increase
or decrease
in burden and
provide
details of the
any other
costs figure
provided in
Q20
'other costs' include collection, analysis and publication.
23. Benefits
to Patients
and the NHS
Information from the audit is used by clinicians and commissioners t
commissioning activities. The audit helps to inform pulmonary hyper
Commissioning Group (NCG). All centres are required to meet the m
outcome measures, level of activity and case mix.
24. Financial
benefits to
running this
collection
Supports NHS commissioning policies for improving productivity, del
This helps in ensuring value for money, and reducing unnecessary p
have little impact on improved outcomes or improved quality of care
opportunities where a national procurement of drugs or devices mig
25.
Publication
methods
Published annually on HSCIC website. http://www.hscic.gov.uk/ph
Proposal for ROCR Approval
26.
Publication
Links
http://www.hscic.gov.uk/article/1165/searchcatalogue?q=%22Natio
27.
Requesting
Organisation
Health and Social Care Information Centre
28. Collection
Method
Web based collection, Input to Database
29. NHS
Mandate
Commitment
NHS England Clinical Commissioning Policy A11. http://www.englan
30. Changes
since last
assessment
31. Data in
operational
systems
Yes
32. Plans for
collecting this
data from
operational
systems
33. If the
data was not
collected,
what would
the
consequences
be
There may be a decrease in efficiency, resulting in poor value for mo
that are not cost effective, and have little impact on improved outco
34. Is there
an impact
Yes
Proposal for ROCR Approval
assessment
or business
case for this
collection? If
so please
attach
35. Process
required for
others to go
through to
obtain the
data
The audit has section 251 approval to collect patient identifiable dat
data from the audit. These DSAs detail how the data is to be used, h
transferred and the System Level Security Policies of those organisa
step being to complete an application form at http://www.hscic.gov.
36. Keywords
hypertension, heart disease, PH
37. National /
Official
statistic
NA
38. Method
used to store
the data
39. Why
sampling is
not used
N/A
40. Details of
any pilots
The Audit is in its sixth year.
41. Equalities
dimensions
used in the
collection
Age/Date of Birth, Gender, Disability
42. Policy
that the
collection
NHS England Clinical Commissioning Policy A11. http://www.england
Clinical Commissioning Policy A11/P/c - http://www.england.nhs.uk/
pulmnry-Hyptn-adlts.pdf Information from the audit is used by clinic
Proposal for ROCR Approval
supports
improvement and commissioning activities. The audit helps to inform
National Commissioning Group (NCG).
43. IG Data
type
Patient identifiable