DEATH CERTIFICATION NATIONAL ADVISORY GROUP – MEETING 15 17 March 2015, 10.00 am – 1:00 pm – St Andrews House, Regent Road, Edinburgh In Attendance Members/ Deputies Dr Iain Wallace Salah Beltagui Ephraim Borowski James Blackburn Rod Burns Jane Byrne Sarah Dillon Rick Powell Prof Stewart Fleming John Birrell Donald Henderson Medical Director, NHS Lanarkshire (Chair) Muslim Council Scotland (MCS) Scottish Council of Jewish Communities (SCoJC) National Association of Funeral Directors (NAFD) National Records of Scotland (NRS) Healthcare Improvement Scotland (HIS) Death Certification Implementation Team (DCIT) (Secretariat), Scottish Government Association of Registrars of Scotland (AROS) Shadow Senior Medical Reviewer (HIS) Death Certification Implementation Team (DCIT) Scottish Government Healthcare Improvement Scotland (HIS) Senior Medical Officer, Scottish Government BMA Scotland Institute of Cemetery and Crematorium Management (ICCM) Federation of Burial and Cremation Authorities (FBCA) Scottish Academy Scottish Bereavement Hub Deputy Director, Scottish Government Apologies Matthew Armstrong Jim Clark Dr Barry Parker Dr Jean Turner Dr Janice Turner Prof Hazel Scott Dan Wynn Tracey Gillies NHS Scotland Information Services Division National Records of Scotland (NRS) Medical and Dental Defence Union of Scotland (MDDUS) Scotland Patients Association NHS Education for Scotland NHS Education for Scotland (NES) General Medical Council Scottish Association of Medical Directors Cathy Dunlop Dr George Fernie Sarah Manson Caroline McGeachie Dr Mini Mishra Dr Charles Saunders Bill Stanley Gareth Brown David Best Graeme Brown David Crawford Carol Lawrence Head of Health Protection, Scottish Government– Deputy Chair Department of Health, Social Services & Public Safety Northern Ireland National Association of Funeral Directors (NAFD) Crown Office and Procurator Fiscal Service (COPFS) National Services Scotland (NSS) IT 1 Item 1: Welcome, Minutes of the last meeting and Matters Arising 1. The Chair extended a welcome to all, in particular Donald Henderson Deputy Director for Public Health in Scottish Government and James Blackburn, deputising for Graeme Brown. Apologies were noted by the group. 2. Following minor changes the group approved the minutes from the previous meeting for publication. Item 2 : Updates from UK Administrations Northern Ireland, England and Wales 3. The group noted the updates contained in paper 1. Sarah Manson confirmed that a letter on cross border arrangements has been issued to the other administrations. She added that SG would continue to work with the Funeral Industry Subgroup to refine practicalities for inclusion in Industry guidance. Item 3 : Health improvement Scotland 4. Sarah Manson noted that from an IT perspective the position was much more positive than the last meeting. She confirmed that UAT 2 had been signed off however functionality between HIS and NRS is not complete though resolutions are in place and will hopefully resolve this. Carol confirmed that there were no barriers to implementing the paper based MCCD process for 13 May 2015. 5. Jane Byrne updated that the MR training week ran last week and an additional 5 prospective MRs were to be interviewed at the end of the month. The majority of medical reviewer’s assistants have now been recruited and will take up post on 1 April 2015. HIS will undertake a further recruitment exercise to fill any remaining posts. Dr Mishra asked whether the recruitment and selection process for MRA’s had raised any gender equality issues. HIS confirmed that all the successful candidates competent for interview were female on this occasion. Caroline McGeachie confirmed that the whole death certification review team will meet on 21 April. 6. Jane Byrne confirmed that HIS have developed a standard operating procedure for the manual process, in the event of IT failure. 7. Caroline McGeachie noted that the outcomes chain work plan is in development. 8. On communications Jane Byrne noted that HIS were in the process of finalising the Interested Persons and Deaths Abroad leaflets and were keen to ensure that they mirrored the design developed by the SG. The HIS briefing noted had received 600 hits to date. It was also confirmed that questions on deaths abroad will be added to the Q & A document before 13 May 2015. 2 9. Caroline McGeachie confirmed that the procurement tender for a post mortem service will issue on Friday 20 March 2015. 5 providers have been asked if they wish to submit a bid. 10. George Fernie confirmed that there continues to be good communication with the LIGs. Dr Mishra added that it would be helpful for LIGs to outline that getting the MCCD immediately after death is not always possible and develop clear communication processes in each Board area for explaining this to the bereaved. 11. George Fernie noted that during a recent meeting with Imams in Glasgow the CMO position was reiterated and it was clearly explained that this was the best way to obtain quality public health information. 12. It was highlighted that in secondary care it may be possible for a member of the team to complete the certificate which would minimise any unnecessary delay. However it was highlighted that in primary care, weekends and bank holidays could cause delays of up to 5 days before the MCCD could be issued. It was agreed that this would cause an unacceptable delay for the bereaved from faith communities who require a burial as quickly as possible in order to allow the grieving process to begin. 13. The group discussed the issue of the provision of MCCDs in out of hours (weekends and public holidays). It was agreed that a short life working group should be formed to identify a solution as a matter of urgency – Action 14. Cathy Dunlop highlighted the issue of durations routinely being left blank or incorrectly completed. Mini Mishra confirmed that durations would be required wherever possible to assist accurate coding within NRS. Regarding small amendments, such as common abbreviations, it was agreed that registrars could make the change based on a discussion with the doctor or a member of the team with the confirmation email received after registration has completed. 15. Jane Byrne noted that RCGP had requested a one page on what the changes mean for doctors and highlighted concerns raised that some Doctors may not use the existing Q and A document to find what was relevant to them. George Fernie noted that local areas may develop their own document as a need had been identified. Sarah Manson highlighted that the request came from a point of no information and that better sign posting may be required. Sarah Manson agreed to discuss with Rob McPhail, HIS Communications officer outside the meeting. Item 4: National Records Scotland 16. Rod Burns stated his agreement with the earlier assessment of the progress made with IT. He acknowledged that there are a number of oustanding issues to be resolved. 17. Rod Burns confirmed that forms 6, 8 and 14 were finalised and acknowledged some issues in ensuring that the form 6 was WHO compliant. It is anticipated that the forms will be laid on 23 March and in to force on 13 May. It was understood 3 by the group that printing would begin prior to the conclusion of the parliamentary process. 18. Rod Burns announced that NRS resource had been made available and work has begun on the scoping , testing and development for digital signature pads. Testing has already begun with the Local Authorities who have pads in place. In addition 2 – 3 authorities have carried out testing and achieved functionality. Notwithstanding local configuration issues the group were provided with assurance that the pads would be in place for 13 May. 19. Rod Burns provided the group with reassurance that the majority of local authorities have now carried out assessments on the anticipated need for out of hours services. He confirmed that the majority consider what they have in place to be adequate and will monitor regularly. A letter from NRS and SG will be issued requesting that all authorities requesting a regular review of the out of service and requests made to it – Action 20. Rod Burns confirmed that 21 of 32 local authorities have supplied invoices for the IT equipment purchased. 21. Rod Burns informed the group that registrar training was on going and positive with secondees expected to assist with the development of the guidance. This was acknowledged as an on-going action. He added that planning for the manual process was underway. 22. Rod Burns acknowledged that the NRS Business Continuity Plan remains outstanding but will be available soon. 23. Dr Mishra noted that it would be helpful to have sight of registrar guidance as soon as possible in order to ensure that it is aligned with CMO and Funeral Industry Guidance. Rod Burns indicated that a first draft of guidance will be available week commencing 23 March. 24. Dr Mishra highlighted the issue with the spelling of still birth on NRS forms. Rod Burns agreed to check this with lawyers to see if it could be changed. 25. Rod Burns agreed to check with Jim Clark whether the randomisation function has been included in end to end testing. He also confirmed that plans to test on 19 April were still on track. 26. Rod Burns stated that a paper will be drafted outlining the process for the printing and distribution arrangements for the manual process, which will be shared with SG. 27. Sarah Manson sought clarity that registrars guidance included information for registrars on amendments required out with the review service. Rod Burns agreed to check and confirm. 4 Item 5: NHS Education for Scotland (NES) 28. The Chair noted apologies from NES and highlighted the importance of their attendance at the next meeting. 29. Charles Saunders noted that training for non-trainees had not yet been received. He also suggested that doctors in secondary care would not access the video resulting in a risk of doctors supervising juniors having little information on the changes. Dr Mishra confirmed that there would be a transcript of the video as well as a summary sheet available. She added that this could be made available as soon as possible. The Chair added that whilst people can’t be forced to read the summary there is an expectation around professional responsibility. 30. Following a query from John Birrell it was confirmed that the local implementation groups would continue to run after 13 May 2015 though they may need to adapt to include other aspects of bereavement. Item 6: Funeral Industry Subgroup and Item 7: Scottish Government Update and Communications 31. Sarah Manson noted that the Funeral Industry Subgroup have had productive discussions around cross border issues and a number of examples have been produced for the industry guidance. This will be circulated to the NAG for information when ready. 32. It was noted that the final 3 NAFD roadshows had been held, from these events the subgroup will develop a set of Q & A which will be available on the NAFD website. Sarah Manson also highlighted a very positive event held with a number of Imams and funeral facilitators in Glasgow arranged by NHS GG&C local implementation group. She added that Funeral Industry Subgroup member Khurram Mustaffa had also been doing a lot of engagement with other mosques to raise awareness of the new system. 33. John Birrell highlighted engagement with the legal profession, Sarah Manson noted she had contacted the law society but not received a response. John Birrell agreed to provide contacts. - Action 34. Sarah Manson confirmed that on the legislative side the remaining SSIs are scheduled to be laid on 23 March and will be in place for go live on 13 May 2015. Statutory guidance is currently being developed to support the legislation. 35. Sarah Manson thanked the group for their comments on the information leaflets, with the design for these being finalised. She confirmed that the public information leaflet , will be provided to the bereaved along with a copy of ‘when someone has died’ and would be available to Boards in mid April. Existing distribution channels would be used for this. 5 Procurator Fiscal E1 Form 36. Sarah Manson made the group aware of proposals made by the Crown office to change the arrangements from the current E1 authorisation to cremate form to an opt in system. The group discussed the proposal highlighting a number of areas of concern. Sarah Manson agreed to feedback the groups significant reservations to David Crawford. AOB 37. Ephraim Borowski raised concerns regarding the robustness of out of hours registrar services. A number of authorities confirmed they would provide a phone number but there would be no guarantees that the number would always be answered. He also noted that a small number of authorities were still to respond. Rod Burns offered some assurance that Chief registrars had assumed responsibility for the phones used in providing an out of service and added that the provisions would be reviewed. Ephraim Borowski emphasised that demand for out of hours services could not be based on the old process given that burial prior to registering was not required. 38. Sarah Manson confirmed that outstanding responses will need to be chased and noted that the term ‘emergency’ needs to be defined in order to ensure that it is in line with the requirements around advance registration. She agreed that in some areas there remains a concern with the understanding on how the new arrangements will impact registrar services. 39. The group discussed the possible impact local authorities with limited out of hours services will have on those better provided for. Rod Burns confirmed that while, NRS would have a list of all out of hours contacts, there is not a national service. Local authorities remain best placed to assess and address local needs. The Chair added that it would be helpful if all local authorities could have their out of hours numbers clearly displayed on their website. Date of Next Meeting 8. The date of the next meeting is 14 April 2015. 6