The Care Forum South Gloucestershire Health and Social Care Voluntary Sector Network Meeting Notes Wednesday 11 February 2015 Attendance and Apologies The meeting was attended by 22 people, plus three The Care Forum staff and nine people sent their apologies. The full attendance list is in the appendix. Caroline welcomed everyone to the meeting and invited them to introduce themselves. Summary of Key Meeting Points The Shared Lives Scheme is moving away from South Gloucestershire Council to become an independent organisation with a management committee and the opportunity to apply for funding. Sirona outlined their services and progress since April 2014. A South Gloucestershire healthy lifestyles booklet for adults with learning difficulties has been launched. Other presentations included an update on personal independence payments, a report from the learning difficulties partnership board and home share. Shared Lives Scheme Caryl Rundle, Shared Lives Scheme Manager, South Gloucestershire Council. View Caryl’s presentation at www.thecareforum.org/pagesouth-gloucestershireadults-events-archive.html Caryl talked through her power point presentation and explained that Shared Lives provides accommodation and support. It receives referrals for volunteers and matches them to service users. It is intended to be a mutual relationship in a family setting. It is regulated by the Care Quality Commission (CQC). The benefits are that it improves the quality of life for those involved with highly personalised care. Shared Lives responsibilities include: rigorous assessments clearly recorded outcomes policies and procedures regular monitoring 1 regular reviews. It is a high quality and safe service which has been operating for 11 years and has a top CQC rating. It supports people with mental health needs, dementia, young people in transition and people with physical disabilities. There are 19 carer households supporting 24 people. Caryl then gave case studies of Kay and Alex who were both helped by the scheme. Questions and Answers: Q: In whose home does this take place? A: The service users. Q: Is there support for the carer if e.g. the service user dies? A: Yes. Counselling etc. is offered to them. Q: Is there a waiting list of carers? A: Yes. Caryl is part time but the service is planning to grow. The matching also has to be done very carefully. Q: You will be a not for profit organisation, how is that different to being with the council? A: Carers and service users can be on the committee. The organisation cannot make money by being with the council e.g. Direct Payments, which it will be able to do when it goes out on its own. Q: Do the carers have an allowance? A: Yes. Q: Are there people with autism in the scheme? A: Yes. Five or six of the 24 being supported have it. Sirona’s Services in South Gloucestershire. Cathy Daffada, Rehabilitation Lead, South Gloucestershire, Sirona Care and Health. View Cathy’s presentation at www.thecareforum.org/pagesouth-gloucestershireadults-events-archive.html Cathy talked through her power point presentation ‘Taking it Personally’ and pointed out that Sirona shares the same ethos as the Shared Lives Scheme. It ensures that people feel: welcome valued 2 supported safe. Sirona focuses on the person and their goals. It is a not for profit organisation which started in October 2011 and serves 170,000 in B&NES and 250,000 in South Gloucestershire. There are 2,200 health and social care staff operating out of 150 locations providing more than £65m worth of care and support each year. There are five areas of provision: adult services specialist services children and young adults learning disability service health improvement service. Staff are: physiotherapists occupational therapists rehabilitation support workers speech and language therapists falls prevention lead mental health nurses. Sirona works: to deliver planned rehabilitation with GPs and other community health care providers to prevent admission to hospital with hospitals to support people to return home in a timely manner to provide input to 29 community rehabilitation beds located throughout South Gloucestershire with groups on falls prevention. Q: What services does the minor injuries unit in Yate provide? A: Small injuries to the hands and feet and small fractures are dealt with. Someone with e.g. chest pains would be blue lighted to Southmead Hospital. Q: Is there a hot line that people who use the Sirona can ring? A: Service users have a green folder which has contact details for them to use. There is a telephone number on the website that people can ring from 9 to 5, Monday to Friday and there is also a customer care line. T: 01225 831 400. Action: Cathy Healthy Lifestyles Booklet for Adults with Learning Difficulties 3 Dan Hull, Well Aware Outreach Officer, The Care Forum and Annie Owen, South Gloucestershire Council. Dan said that the booklet is a great guide on how to have a healthy lifestyle for people with learning difficulties. It also contains a list of groups and activities in South Gloucestershire. It is available on the website and 1,500 copies have been printed. Well Aware had worked on it with partners including Annie Owen at South Gloucestershire Council, South Gloucestershire Council being the lead partner. Annie said that a lot of people with learning difficulties and their carers had found it difficult to find information in one place. The topics in the booklet were decided by the steering group. It is planned to run focus groups in March to assess its usefulness etc. The learning difficulties development fund paid for the publication. Questions and Answers: Q: What flexibility is there to keep it up to date? A: It is not planned to have another leaflet but it is available on the Well Aware website which is updated regularly. The leaflets have been sent to: adults with learning difficulties known to South Gloucestershire adults with learning difficulties known to Sirona providers organisations e.g. the Carers Support Centre. Learning Difficulties Partnership Board, Diana Elliott, Branch Officer, National Autistic Society (Avon Branch) View Diana’s paper at http://www.thecareforum.org/pagereport-from-southgloucestershire-learning-difficulties-partnership-board.html Diana circulated her paper of the points covered at the Board’s meeting on 21 January. The board meets six times a year and she is happy to take issues to them if she is asked to. The learning difficulties development fund has money for projects in South Gloucestershire to help people with learning difficulties. The applications will be discussed on 16 March. The board has a good membership with a mix of statutory and non-statutory organisations as well as service users. Questions and Answers: Q: Is South Gloucestershire Council strict about who attends? A: It is only for South Gloucestershire residents and Mencap supports people who attend. Bristol has its own learning difficulties partnership board. Personal Independence Payment Michael Tipple, Welfare Officer, South Gloucestershire Council 4 Michael talked through his power point presentation and said that this is a relatively new benefit from the Department of Work and Pensions. It has only been around for two years and in South Gloucestershire for 18 months. There are conditions of entitlement and assessment criteria. Three assessment centres are used; one in Bristol and two in South Gloucestershire. Questions and Answers: Q: Can people take someone with them when they are assessed? A: Usually people can only take one person with them but this may be due to space issues. Flowers Hill allows more than one. The DWP is quite willing to relook at decisions on assessments. Q: Is everyone now called in for assessment? A: The majority of people are now seen (75%) and people can request to be seen face to face. Q: How would someone fare if they cannot use the bus alone but can use a car alone? A: A car could be classed as assistance. The overarching principle of the PIP is that they can do it safely, reliably and repeatedly. Reassessment is not yet taking place in South Gloucestershire but if someone’s DLA is coming up for renewal they will get PIP. Q: If needs have changed will the DLA still apply? A: Yes at the moment. People could, in theory, sign off from DLA and apply for PIP. It has taken months for people to be assessed but the timescale is reducing. There are 110,000 cases outstanding so it is about two to three months behind. Home Share, Elaine Jones, Home Share Coordinator Elaine said that Home Share has been operating in Bristol for 18 months and now there is funding for South Gloucestershire. People offer a spare room rent free in exchange for 10 hours per week of help and companionship. The support the householder receives depends on their needs, no two arrangements are the same. It could be that the house sharer e.g. helps and entertains a dementia sufferer so that their spouse/carer can have some time to themselves. House sharers are rigorously vetted with references taken up and a DBS check undertaken. There is a month’s trial and then a commitment for a minimum of six months, although it can last much longer. Each receives £60 per calendar month. Caroline thanked everyone for attending and contributing to the meeting. She announced that she is leaving The Care Forum and that Pat Foster will be facilitating until someone new is appointed. 5 Date of the next meeting Friday 13 March, from 10am to 12pm. The topic will be suicide prevention. Book via www.thecareforum.org Appendices Evaluation 1) What was the most significant outcome of the meeting for you? PIP update Information to share with my colleagues Meeting and developing relationships with multi agencies Increased awareness of other services and their provision Didn’t know about Sirona, so that was useful. Shared Lives, PIP, Home Share, Sirona. Enjoyed shemes info. Very useful. Hearing the presentations Networking To meet and hear about Sirona’s services. It is always good to hear and to network with other charities. Also wanted to hear about PIP. Understanding better shared lives scheme and possible future opportunities. 2) Please circle the appropriate number for each element of the network meeting: Knowledge at start: 2.7 Knowledge at end: 4 Pre-event information: 3.6 Facilitation: 4.2 Organisation on day: 4.2 Speakers before break: 4 Speakers after break: 3.9 Access: 4.2 6 Refreshments: 4 Standard of room: 4.1 3) Are there any particular topics you would like to see covered in future meetings? More feedback from service users Continue as offered. Value topics already provided. Advocacy. Have you considered Care Act? 4) Are there any other comments you would like to make? Really good session A really interesting and enriching meeting. Attendance Contact Michelle Bower Cathy Daffada Diana Elliott Katie Gebler Marion Gray Robert Griffin Kath Horne Dan Hull Elaine Jones Liz Lewington Caryl Rundle Gill Stephenson Michael Tipple Lauren Nash Michael Bell Dominic Box Steve Hickman Annie Owen Suzi Brooke-Davies Paul Frisby Tina Curtis Caroline Gerrard Keith Berryman Organisation Talking Money Sirona Care and Health National Autistic Society Second Step Housing Association Headway South Gloucestershire Council Sirona Care and Health The Care Forum We Care and Repair Jessie May Trust South Gloucestershire Council South Gloucestershire Parents and Carers South Gloucestershire Council Cintre Community South Gloucestershire Council Avon North Mencap South Gloucestershire Council Choices 4 U Alzheimer’s Society South Gloucestershire CCG Brandon Trust Brunelcare Second Step Apologies Contact Will Bee Derek Dominey Organisation South Gloucestershire Council Independent 7 Philippa Forsey Peter Hale Kathryn Mason Virginia McNab Lorna Robertson Ann Walker Dave Webb Creativity Works Supportive Parents The Care Forum Alzheimers Society South Gloucestershire Fibromyalgia Support Group Survivors Network 8