African-Caribbean Cancer Consortium – Cancer Registry Workshop 9:45am – 10:00am Welcome and Purpose of the African-Caribbean Cancer Consortium Camille Ragin, PhD, MPH – (PI AC3), Cancer Prevention and Control Program, Fox Chase Cancer Center, Philadelphia, USA Damali Martin PhD, MPH – (AC3 Liaison), Epidemiology and Genomics Research Program, Division of Cancer Control and Population Sciences National Cancer Institute, Bethesda, USA Introduction of the Workshop Objectives: Rishika Banydeen, MPH – Team on HIV, Cancer and Global Health, Inserm U897, Bordeaux Segalen University, Bordeaux, France Session 1: Applications and Utilization of Cancer Registry Data in Collaborative Research Timeframe: 10:00 am-12:30pm (20 min presentations + Q&A) To emphasize the value in establishing research-cancer registry collaborations Demonstrate how cancer registry data has been used in different kinds of studies o Examples of collaborative work between cancer registries and research teams Demonstrate how cancer registries have helped in moving research along o Towards optimization of cancer registries for scientific excellence in cancer research o Importance of a regional cancer network in the Caribbean to help promote collaborative research and for more effective/efficient cancer control 10:00am-10:30am Speaker: (Kimlin Ashing-Giwa PhD, Center of Community Alliance for Research and Education (CCARE), City of Hope, CA, USA) Title: Establishing and Using Cancer Registry Data: Ethical and Human Subject Protection Considerations 10:30am-11:00am Speaker: (Rishika Banydeen, MPH, Inserm U897, Bordeaux France) Title: TBD 11:00am-11:30am Speaker: (Camille Ragin, PhD, MPH, Fox Chase Cancer Center, PA, USA) Title: Research using cancer registry data: Advancing our ability to understand, prevent, detect, and treat cancer 11:30am-12:00pm Speaker: Danièle Luce, PhD, MPH - Medical Department, Fouillole Campus, Pointe-à-Pitre, Guadeloupe Title: TBD BREAK: 12:00pm-1:00pm (LUNCH, on your own) Session 2: Policy Decision-making and its Impact on National Cancer Registries and Cancer Control Timeframe: 1:00pm-3:30pm To highlight the potential impact of cancer registries on the development and the implementation of cancer control policies, effective cancer screening, treatment strategies, interventions and research To engage in an interactive panel discussion on the role of policymakers in the development of a supportive legal and social framework for operating successful cancer registries 1:00pm-1:30pm Speaker/Facilitator: Glennis Andall-Brereton, PhD, MPHCM, MPH, Caribbean Public Health Agency(CARPHA) Title: Insight on cancer registries in the Caribbean and what this should look like. 1:30pm-2:10pm Panel presentations: (10 min presentations each- hold Q&A for panel discussion) Veronica Roach - lessons learned from T&T cancer registry Angela Rose – Chronic Disease Registry, Barbados - Moving beyond cancer registries to NCD registries Dr. Owen Gabriel (St. Lucia) Mustapha Dieye (Martinique Cancer Registry) 2:10pm-3:30pm Panel Discussion, Q & A **Dr. Glennis Andall-Brereton (NCD coordinator, CARPHA) **Facilitator of Panel discussion Veronica Roach (Cancer Registry, Trinidad & Tobago) Angela Rose (Chronic Disease Registry, Barbados) TBN (Ministry of Health, Anguilla) Dr. Owen Gabriel (St. Lucia) Mustapha Dieye (Martinique Cancer Registry)