SISP 262: CULTURAL STUDIES OF HEALTH Sociology 259 Fall 2015 Tuesdays & Thursdays 10:30-11:50am PAC 136 Instructor: Office: Office Hours: Email: Phone: Professor Anthony (Tony) Hatch 214 Allbritton (up the “Veranda”) Thursdays 1:00-3:00pm and by appointment ahatch@wesleyan.edu 860-685-3991 COURSE DESCRIPTION Nothing is more fundamental to the human condition than our most basic right—the right to healthy life. Tragically, this right is inequitably distributed across human bodies and populations, especially along axes of race, gender, class, age, and nationality. In fact, persons residing in the United States do not have a right to healthy life. Issues of health and illness are, quite literally, matters of life and death that are shaped by broader political and economic institutions in human societies. In neoliberal nation states like the United States, the guardian of the right to live a healthy is a highly bureaucratic and technological form of corporate medicine. Medicine comprises a network of social institutions and technoscientific practices that people have created and use to diagnose and heal our bodily and psychic ills. While the practice of medicine has produced dramatic improvements in life expectancy and quality of life for billions of people, most people on the planet do not have access to basic medical care. Who thrives, who gets sick, who dies and why constitute core questions for social justice. This course investigates the complex embroidery of biosocial and cultural processes that shape the unequal experiences and meanings of health. Cultural studies of health document the role of medicine as a great instrument of power that both generates and alleviates suffering. As more and more areas of social life and parts of bodies are falling under the control of medicine (a process called medicalization), we must ask what are the dynamics and implications of medicalization for human societies and cultures? Drawing on provocative readings and media from diverse fields in sociology and cultural studies of science, technology, and medicine this course will investigate these questions and more with an emphasis on their answers might contribute to social justice and improve the conditions necessary for human thriving. COURSE OBJECTIVES Understand and utilize the core concepts and theories in cultural studies of health Describe how human health is shaped by social, economic, and political relationships. Demonstrate and apply knowledge of how the practice of medicine and use of medical technologies impact human health and society. 1 COURSE READINGS Most of our course readings are available in PDF format on Moodle. The readings are organized by week, the author’s last name, and by year of publication. A number of readings are available online for free through Wesleyan’s library. COURSE REQUIREMENTS AND GRADING This course uses both a lecture and a student directed format where we learn from and teach each other. You will be evaluated in part on your contributions to making the class successful for yourself and others. This is a reading intensive course where you will have to read a large quantity of complicated and abstract material in a relatively short period of time. This is also a course that values you as a person and respects your experience; share your brilliance and experience with everyone else! Based on these emphases, your grade in this class is calculated out of 500 points distributed across four elements: Class Participation Reading Quizzes Weekly Reflection Papers Final Research Paper 10 percent 20 percent 30 percent 40 percent 50 points 100 points 150 points 200 points Class Participation (10 percent of your grade @ 50 pts) I expect you to attend every class, on time, prepared to engage fully in your own education. This is a dialogic course where we will engage in substantive open group discussion with daily prompting and questioning from me. I expect for you to be an active participant in every moment of every class. If you have a recurring conflict that interferes with your ability to be here everyday, you should consider dropping this class. Beyond that: It’s your education. Show up for it. I will evaluate your participation according to the following criteria. Exemplary = up to 50 points. This means you have attended every class possible (with reasonable exceptions for illness, athletics, verifiable emergencies, etc.), openly demonstrate outstanding preparedness for each class, and make significant contributions to our collective learning. Good = up to 40 points. This means you have attended most classes, demonstrate consistent preparation for each class, and make substantive contributions to our collective leaning. Fair = up to 30 points. This means you have missed about 3-4 classes, are generally prepared for each class, and make marginal contributions to our collective learning. Poor = up to 20 points. This means you are chronically late and/or absent from class, are rarely prepared for each class, and either make minimal contributions to our learning or take away from our learning. 2 Ten (10) Reading Quizzes (20 percent of your grade @ 100 pts) In order to succeed in this class, it is essential that you complete the readings for each class as indicated on the course calendar and come to class prepared to discuss what you read. Ten (10) quizzes (10 points each) will count toward your final grade. However, we will take more than ten quizzes—I will include your ten best scores. The quizzes are based on the readings that are due that day as indicated on the course calendar. Quizzes will consist of multiple choice, fill-in-the-blank questions, true/false, and/or short answer questions. The best way to prepare for these quizzes is to read everything that is assigned and take reading notes that identify key terms, shifts, and content in the readings. Weekly Reflection Papers (30 percent of your grade @ 150 pts) You will write five (5) weekly reflection papers (30 points per paper) that discuss synchronies across course readings, lectures, and discussions. Reflections are synthetic thought statements that signal your understanding of course content by identifying and critically assessing patterns in the content, themes, and questions that cut across our course. Your job is to write reflection papers based on weeks you found especially compelling, problematic, or inspiring. Also, as you make decisions about what to reflect on, consider that you will have the option of incorporating selected text from your reflections into your final research paper. Aside from these considerations, each reflection must do the following: a) b) c) d) Reflect on material across any two (2) class periods Discuss at least one (1) reading from each class period Discuss at least one (1) of the lectures from either class period Discuss an element of our actual in-class discussion from either class period. Remember, you must cite specific ideas from the readings, lectures, and discussions to be eligible for full credit. You are also invited to introduce information or insights from outside the course materials into the reflections. Each paper needs to be 2 full pages long (double-spaced, 1-inch margins, 12-point font) with your name, course name, response number, and the date typed in the header space. I will deduct five (5) points for improperly formatted papers. Please include footnotes with complete citations. Due Dates: These papers are not due on any specific date, but they are due the class period following the most recent class period upon which you are reflecting. Please print out and turn in your response papers at the beginning of the class. Final Research Paper You will write one ten (10) page final research paper that uses at least one specific cultural theory of health to investigate and analyze a health-related topic of your choice. Upload your completed papers to Moodle. We will discuss the all of the instructions for the final research paper assignment in greater detail on Tuesday, October 13 in class. Do not miss this in-class presentation! Proposal Due Date: A one (1) page proposal for the paper is due on Tuesday, November 3 that 3 informs me of your provisional thinking. This proposal is worth 25 points out of 200 for the final research paper. I prefer clearly articulated and well conceived proposals to thin and muddled proposals. Bring your completed proposal to class with you. Paper Due Date: 12:00pm on Saturday, December 19th in Moodle (the day and time of the final) GRADING SCALE Percent 97-100 93-96 90-92 87-89 83-86 80-82 77-79 73-76 70-72 67-69 63-66 60-63 57-59 53-56 50-52 47-49 44-46 40-43 below 40 Points 485-500 465-484 450-464 435-449 415-434 400-414 385-399 365-384 350-364 335-349 315-334 300-314 285-299 265-284 250-264 235-249 220-234 200-219 below 200 Grade A+ A AB+ B BC+ C CD+ D DF+ F FE+ E EF OTHER VERY IMPORTANT COURSE INFORMATION This course requires a high level of student preparedness and endurance. I do not expect this to be an easy course, but I do expect it to be an engaging, enriching, and empowering one. Please review the following information, as it is essential to your success. You are responsible for all of the information that follows—please consult the syllabus before you email me with questions about course policies. HOW TO CONTACT ME Please feel free to email me with any questions or concerns about the class, but please note that I only read and respond to student emails during normal business hours (9-5, M-F) except in rare cases of actual emergency. Please allow 1-2 days for an email response from me for non-urgent issues. Be sure to review the syllabus carefully before emailing me about course policies. I would also love to see you during my office hours on Thursday 1:00-3:00pm and by appointment. Please have respect for the fact that I’m a writer and work in my office daily. If you come to my office unannounced, I will politely ask you to come on Thursday or to email me for an appointment. 4 DISCLAIMER This syllabus provides a general plan for the course: deviations may be necessary. EXTRA CREDIT I reserve the right to offer extra credit during the semester at my discretion. I also reserve the right not to offer extra credit. LATE WORK WE TAKE QUIZZES WITHIN THE FIRST 10-15 MINUTES OF CLASS—YOU WILL NOT BE ABLE TO MAKE UP QUIZZES IF YOU ARE LATE! READ THAT AGAIN. If you have an excused absence from class when we take a quiz, you can make up your quiz during my weekly office hours. You should not have any planned absences or any obvious scheduling problems. I will not hunt you down asking you to make up your work—it is your responsibility to email me to tell me when you are going to be absent (also tell me the reason for your absence). Repeat: I am not keeping track of whether or not you missed your work. You will not be able to make up weekly reflections. I retain the right to offer and/or deny make-ups based on my assessment of your situation and any relevant documentation. USING MOODLE Many of the required PDF readings for this course will be posted in Moodle. I will also make use of the “News” feature to communicate with the entire class. It is your responsibility to monitor Moodle on a daily basis for any announcements! TECHNOLOGY USE IN CLASS You are NOT permitted to use laptops, smart phones, or tablets during class without explicit permission from me. Explicit permission from me looks like you signing a written pledge to only use note-taking applications on a laptop or tablet. We are in class for 1 hour and 20 minutes each day— this is exceptionally valuable time in our lives and I’d rather not waste it with you being in two or more digital “places” while you are with us. Using devices during class is disruptive to the class and disrespectful to me personally. Be digitally unavailable to your people during class time (that’s what I do). Be on notice: I favor public humiliation if you violate this ethic. However, if you must make or take an EMERGENCY phone call during class, please step outside to do so. ACADEMIC DISHONESTY IS SERIOUS I treat all forms of academic honesty with the utmost seriousness and strongly encourage you to comply with Wesleyan’s Honor Code which you can review within the student handbook (http://www.wesleyan.edu/studentaffairs/studenthandbook/20152016studenthandbook.pdf) 5 Violations of the Honor Code may result in an F in the course and possible academic and disciplinary action. All violations will be reported without exception. DISABILITY RESOURCES Wesleyan University is committed to ensuring that all qualified students with disabilities are afforded an equal opportunity to participate in and benefit from its programs and services. To receive accommodations, a student must have a documented disability as defined by Section 504 of the Rehabilitation Act of 1973 and the ADA Amendments Act of 2008, and provide documentation of the disability. Since accommodations may require early planning and generally are not provided retroactively, please contact Disability Resources as soon as possible. If you believe that you might need accommodations for a disability, please contact Dean Patey in Disability Resources, located in North College, Room 021, or call 860/685-5581 for an appointment to discuss your needs and the process for requesting accommodations. COURSE EVALUATION Your honest and constructive assessment of this course plays an indispensable role in shaping the future of education at Wesleyan and my prospects for future employment here (for real). Upon completing this course, please take time to fill out the online course evaluation. COURSE CALENDAR 1. Tuesday, September 8: Introduction and Syllabus Part I: Framing Contexts and Institutions ______________________________________________________________________________ 2. Thursday, September 10: Health System of a Down T.R. Reid. 2009. “The Paradox,” pp. 28-45 in The Healing of America: A Global Quest for Better, Cheaper, and Fairer Health Care. New York: The Penguin Press. Paul Starr. 1982. “The Coming of the Corporation,” pp. 420-449 in The Social Transformation of American Medicine. New York: Basic Books. 3. Tuesday, September 15: Defining Cultural Studies Stuart Hall. 2013. “The Work of Representation,” pp. 1-47 in Representation (2nd edition), Stuart Hall, Jessica Evans, and Sean Nixon (eds). London: Sage Publications. Theodor Adorno. 1963 [2009]. “Culture Industry Reconsidered,” pp. 15-21 in Media Studies: A reader (3rd edition), (eds.) Sue Thornham, Caroline Bassett, and Paul Marris. New York: New York University Press. 4. Thursday, September 17: (Bio)medicalization Peter Conrad. “Medicalization: Context, Characteristics, and Changes,” pp. 3-19 in The Medicalization of Society. Baltimore: Johns Hopkins University Press. 6 Adele Clarke et al. 2003. "Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine." American Sociological Review 68(2): 161-194. 5. Tuesday, September 22: Class Inequality and Health John Mirowsky, Catherine Ross, and John Reynolds. 2000. “Links Between Social Status and Health Status,” pp. 47-60 in Handbook of Medical Sociology (5th). Upper Saddle River: Prentice-Hall Bruce Link and Jo Phelan. 1995. “Social Conditions as Fundamental Causes of Disease.” Journal of Health and Social Behavior, 35 (Special Issue), 80-94. 6. Thursday, September 24: Social Justice and Health Camara Jones, Anthony Ryan Hatch, Adewale Troutman. 2009. “Fostering a Social Justice Approach to Health: Health Equity, Human Rights, and an Antiracism Agenda,” pp. in RL Braithwaite, SE Taylor, H Treadwell (editors), Health Issues in the Black Community (3rd ed). San Francisco, CA: Jossey-Bass. Nelson, Alondra. 2012. “Origins of Black Panther Party Health Activism,” pp. 49-73 in Body and Soul: The Black Panther Party and the Fight Against Medical Discrimination. Minneapolis: University of Minnesota Press. Part II: Bodies, Technologies, Health ______________________________________________________________________________ 7. Tuesday, September 29: Medicine in Biohistory Michel Foucault. 1974. “The Birth of Social Medicine,” pp. 319-337 in The Essential Foucault. New York: The New Press. 8. Thursday, October 1: Bodies as Subjects Sarah Nettleton. 2010. “The Sociology of the Body,” pp. 47-68 in The New Blackwell Companion to Medical Sociology. New York: Wiley-Blackwell. Steven Epstein. 2007. “Histories of the Human Subject,” pp. 30-52 in Inclusion: The Politics of Difference in Medical Research. Chicago: University of Chicago Press. 9. Tuesday, October 6: Bodies as Objects Jean Baudrillard. “The Finest Consumer Object: The Body,” pp. 129-150 in The Consumer Society: Myths and Structures. London: Sage Publications. Michel Foucault. 1963 [1994] “Seeing and Knowing,” pp. 107-123 in The Birth of the Clinic: An Archeology of Medical Perception. New York: Vintage. 7 10. Thursday, October 8: Bodies Getting Older Shim, Janet K., Ann J. Russ, and Sharon R. Kaufman. 2006. "Risk, life extension and the pursuit of medical possibility." Sociology of health & illness 28.4 (2006): 479-502. Joyce, Kelly, and Meika Loe. "A sociological approach to ageing, technology and health." Sociology of Health & Illness 32.2 (2010): 171-180. 11. Tuesday, October 13: In-class Presentation of Final Research Paper Assignment 12. Thursday, October 15: Biotechnology Reconsidered Monica Casper and Daniel Morrison. 2010. “Medical Sociology and Technology: Critical Engagements.” Journal of Health and Social Behavior. 51(S): S120-S132. Harriet Washington. 2006. “The Machine Age: African American Martyrs to Surgical Technology,” pp. 347-358 in Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present. New York: Doubleday. 13. Tuesday, October 20: Commodifying Bodies I Nancy Scheper Hughes. 2011. “Commodity Fetishism in Organs Trafficking,” pp. 31-62 in Commodifying Bodies (Nancy Scheper-Hughes and Loic Wacquant, eds.). London: Sage Publications. Maria E. Epele. 2011. “Excess, Scarcity, and Desire among Drug-Using Sex Workers,” pp. 161-180 in Commodifying Bodies (Nancy Scheper-Hughes and Loic Wacquant, eds.). London: Sage Publications. 14. Thursday: October 22: Commodifying Bodies II Robert Mitchell and Catherine Waldby. 2010. “National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue.” Science, Technology, and Human Values 35(3): 330-355. Keith Wailoo. “The Commodification of Black Health,” pp. 107-136 in Dying in the City of the Blues: Sickle Cell Anemia and the Politics of Race and Health. Chapel Hill: University of North Carolina Press. Fall Break: Friday, October 23 through Wednesday, October 28 15. Thursday, October 29: Gendered Embodiment Monica Casper and Lisa Jean Moore. 2009. “It Takes Balls: Lance Armstrong and the Triumph of American Masculinity,” pp. 157-176 in Missing Bodies: The Politics of Visibility. New York: New York University Press. Nelly Oudshorn. 1994. “The birth of sex hormones,” pp. 15-41 in Beyond the Natural Body: an archeology of sex hormones. New York: Routledge. 16. Tuesday, November 3: Biomonitoring and the Environment *** Proposal due in class 8 Phil Brown. 2004. “Environment and Health,” pp. 143-158 in Handbook of Medical Sociology (5th), Upper Saddle River: Prentice-Hall. Monica Casper and Lisa Jean Moore. 2009. “Fluid Matters: Human Biomonitoring as Gendered Surveillance,” pp. 109-131 in Missing Bodies: The Politics of Visibility. New York: New York University Press. Part III: Transforming Categories and Materiality ______________________________________________________________________________ 17. Thursday, November 5: Fixing Sex Peter Conrad. 2000. “Continuity: Homosexuality and the Potential for Remedicalization,” pp. 97116 in The Medicalization of Society. Baltimore: Johns Hopkins University Press Laura Mamo and Jennifer R. Fishman. 2001. “Potency in All the Right Places: Viagra as a Technology of the Gendered Body.” Body & Society 7(4) 13-35. 18. Tuesday, November 10: Eugenics Harriet Washington. 2006. “The Black Stork: The Eugenic Control of African American Reproduction” pp. 189-215 in Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present. New York: Doubleday. Troy Duster. 2003. “Eugenics by the Back Door,” pp. 114-131 in Backdoor to Eugenics. New York: Routledge 19. Thursday, November 12: Racial Hierarchies and Genomics Kim Tallbear. 2014. “The Emergence, Politics, and Marketplace of Native American DNA,” pp. 21-37 in Routledge Handbook of Science, Technology, and Society. (eds.) Daniel Lee Kleinman and Kelly Moore. New York: Routledge. Alondra Nelson and Joan H. Robinson. 2014. “The Social Life of DTC Genetics: The case of 23andMe,” pp. 108-123 in Routledge Handbook of Science, Technology, and Society. (eds.) Daniel Lee Kleinman and Kelly Moore. New York: Routledge. 20. Tuesday, November 17: Side Effects I Harriet Washington. 2011. “Poison Pills: How Patent Profits Spur the Proliferation of Questionable Drugs,” pp. 128-179 in Deadly Monopolies: The Shocking Corporate Takeover of Life Itself—and the Consequences for Your Health and Our Medical Future. New York: Doubleday. Anne E. Figert and Susan E. Bell. 2014. “Big Pharma and Big Medicine in the Global Environment,” pp. 456-470 in Routledge Handbook of Science, Technology, and Society. (eds.) Daniel Lee Kleinman and Kelly Moore. New York: Routledge. 21. Thursday, November 19: Side Effects II 9 Jeremy Greene. 2007. “The Fall and Rise of a Risk Factor: Cholesterol and Its Remedies,” pp. 151181 in Prescribing by Numbers: Drugs and the Definition of Disease. Baltimore: Johns Hopkins. Carl Elliott. 2010. “Pharmaceutical Propaganda,” pp. 93-104 Against Health: How Health Became the New Morality. Edited by Jonathan Metzl and Anna Kirkland. New York, NY: New York University Press. 22. Tuesday, November 24: Manufacturing Mental Illness Lennard Davis. 2009. “Obsession: Against Mental Health,” pp. 121-132 in Against Health: How Health Became the New Morality. Edited by Jonathan Metzl and Anna Kirkland. New York, NY: New York University Press. Jonathan Metzl. 2009. “A Racialized Disease,” pp. 95-108 in The Protest Psychosis: How Schizophrenia Became A Black Disease. Boston: Beacon Press. “Thanks-Taking” Break: Wednesday, November 25 through Sunday, November 29 23. Tuesday, December 1: Food Politics Marion Nestle. 2002. “Working the System,” “Influencing Government,” and “Co-Opting Nutrition Professionals,” pp. 93-136 in Food Politics: How the Food Industry Influences Nutrition and Health. Berkeley: University of California Press. Christopher Cook. 2004. “Dying From Consumption,” pp. 44-74 in Diet for a Dead Planet: Big Business and the Coming Food Crisis. New York: The New Press. 24. Thursday, December 3: Nuclear Proliferation Joseph Masco. 2010. “Atomic Health, or How the Atomic Bomb Altered American Notions of Health,” pp. 133-153 in Against Health: How Health Became the New Morality. Edited by Jonathan Metzl and Anna Kirkland. New York, NY: New York University Press. Adriana Petryna. 2002. “Technical Error: Measures of Life and Risk,” pp. 34-62 in Life Exposed: Biological Citizens After Chernobyl. Princeton: Princeton University Press. 25. Tuesday, December 8: Embodied Citizenship Paul Farmer. 2003. “On Suffering and Structural Violence: Social and Economic Rights in the Global Era,” pp. 29-50 in Pathologies of Power: Health, Human Rights, and the New War on the Poor, Berkeley: University of California Press. Dorothy Roberts. 2012. “Race and the New Biocitizen,” pp. 202-225 in Fatal Invention: How Science, Politics, and Big Business Re-create Race in the Twenty First Century. New York: The New Press. 26. Thursday, December 10: Last Day of Class Saturday, December 19: Final Research Papers Due at 12:00pm in Moodle. 10