Royal College of Nursing Research Institute RCN Research Institute Staff Biographies Professor Kate Seers, Director I am Director of the Royal College of Nursing Research Institute, which forms an exciting strategic alliance between the Royal College of Nursing and The University of Warwick. Prior to this I was Head of Research at the Royal College of Nursing from 1987. My research interests include; pain and its management, evidence based health care and knowledge translation, systematic reviews, RCTs, qualitative methodologies and using mixed methods. kate.seers@warwick.ac.uk Paul Kent, PA to the Director/Centre Administrator My role is to provide professional, confidential and comprehensive administrative support to the RCNRI Director and the Research Team, and to manage effective administration systems within the Research Centre. I have worked at the Royal College of Nursing Research Institute since October 2007. Prior to this post I worked for a national Charity and the Independent Police Complaints Commission. In April 2006, I left the Royal Air Force after almost 22 years service as a Personnel Administrator, serving in varied posts from the British Embassy in Washington DC, a remote Radar site in the Falkland Islands, the Ministry of Defence in London and several main operational bases throughout the world. p.d.kent@warwick.ac.uk Kathleen Gunn, Research Fellow My current research is focused on patient and public involvement in evidence-based healthcare. I am a member of the project team researching pathways to urgent care for people with diabetes. My previous work includes research on carers of people with dementia, mental health inpatient staff morale, and families and friends of people with obsessive-compulsive disorder. I am especially interested in service user and carer experiences and partnership working in mental health. Before specialising in health research, I was a practitioner and teacher of usability and information design. kathleen.gunn@warwick.ac.uk Dr Kirstie Haywood, Senior Research Fellow (Maternity Leave) I am a Senior Research Fellow at the RCN Research Institute, leading on the Patient Reported Outcome (PRO) work-stream. Prior to this role I was Co-Director of the Patient-Reported Health Instruments Group, National Centre for Health Outcomes Development, University of Oxford. My research interests include: patient reported outcomes - how the patient communicates their experience of health and healthcare; the development, appropriate use and evaluation of patient reported outcome measures (PROMs); measuring quality in healthcare; quality of life in clinical trials and routine practice; structured reviews; survey research; epidemiology – exploring the patient reported burden of disease. My current and future work aims to provide an informed and scientific focus to Version 4 – January 2015 1 Royal College of Nursing Research Institute promote and extend appropriate use of patient reported outcomes and related methods for supporting patient participation in health care evaluation within research, routine practice, and healthcare quality assessment. I am currently involved in research projects across a range of specialties including rheumatology, continence, chronic fatigue, and older people. k.l.haywood@warwick.ac.uk Dr Carole Mockford Senior Research Fellow I am a senior research fellow currently working on the SHARED study – Services after Hospital: Action to develop REcommenDations, which is a study examining patient and carer experiences of services from hospital discharge to 12 weeks post discharge where the patient has some cognitive impairment, particularly dementia. We are also including the experiences of health and social care professionals. The SHARED study has a substantial service user involvement as co-applicants, on the Project Advisory Group and as trained co-researchers. Prior to this, I have worked on systematic reviews for DNACPR orders with Professor Gavin Perkins, and Patient and Public Involvement in the Health Services (PAPIRIS study) with Dr Sophie Staniszewska. I was also part of an international project working on the FIRE study (Facilitating Implementation of Research Evidence) with PI, Professor Kate Seers. I was previously a research officer in what is now known as the Nuffield Department of Population Health at the University of Oxford. My research interests include: experiences of services for people with dementia and their family carers, carers of people with motor neurone disease, instrument design using psychometric analytical techniques, intensive health visiting programmes and parenting programmes, the use of both qualitative and quantitative methodology, RCTs, and systematic reviews. carole.mockford@warwick.ac.uk Claire New, SHARED Study Project Secretary My role is Project Secretary for the SHARED (Services after Hospital: Action to develop REcommenDations)) research study. I provide clerical support to Dr Carole Mockford, Senior Research Fellow and Project Lead. My background includes 20 years working at the University of Warwick in various administrative roles. c.e.new@warwick.ac.uk Dr Sophie Staniszewska, Senior Research Fellow Lead for Patient and Public Involvement and Experiences of Care Programme Patient and Public Involvement - I lead the Patient and Public Involvement (PPI) and Patient Experiences Programme at the RCN Research Institute, Warwick Medical School. I recently completed the GRIPP 2 study, the first international EQUATOR guidance to enhance the quality and transparency of PPI reporting. GRIPP developed from the PIRICOM systematic review that I led which focused on the impact of patient and public involvement on health and social care research, funded by the UKCRC. Until recently I chaired the Evidence, Knowledge and Learning Group of INVOLVE and was a member of the Main Group of INVOLVE. I am now an INVOLVE Associate having completed my term of office. I am a member of the NETCC PPI Reference Group. I am also a member of the Health Technology Assessment International Patient/Citizen Involvement Steering Group and co-chairs the Methods and Impact Group. I am Co-Editor in Chief of the Biomed Journal, Research Involvement and Engagement. Version 4 – January 2015 2 Royal College of Nursing Research Institute Experiences of Care – I recently chaired the NICE Patient Experiences Guideline and Quality Standard and subsequently the NICE Evidence Update. This work was informed by the scoping study I led which developed the Warwick Patient Experiences Framework. I work closely with NHS England, advising key policy makers in relation to experiences of care. I am a member of the Internal Methods Advisory Group at NICE and an expert member of the National Quality Board Patient Experiences Sub-group and an advisor to EUPATI. I led the POPPY Project which examined parents’ experiences of having a pre-term baby (www.poppy-project.org.uk) which now underpins Department of Health and UNICEF guidance on neonatal care. I was a member of the Research Excellence Framework 2014 Public Health, Health Services and Primary Care Panel. I review for a range of funding bodies and international journals, am on the editorial board of the International Journal for Quality in HealthCare, Patient Experiences Journal, The Patient: Patient Centered Outcomes Research and supervise a number of PhD students. sophie.staniszewska@warwick.ac.uk Dr Stephanie Tierney, Senior Research Fellow My research to date has focused on a range of long-term conditions; I have conducted studies with patients who have cystic fibrosis, heart failure, diabetes, eating disorders and cleft palate. My work at the Royal College of Nursing Research Institute centres on compassionate care, which I anticipate will benefit those receiving and those providing health services. My background is as a health services researcher, with a particular interest in qualitative methods, although I have also worked on published systematic reviews. I undertook a degree in Journalism Studies, followed by a MA in Disability Studies and a PhD in Medical Sciences, which focused on the care of young people with anorexia nervosa. After my PhD, I was employed for several years by the School of Nursing, Midwifery and Social Work at the University of Manchester. Whilst at Manchester, I gained a Postgraduate Certificate in Health Psychology and worked for the Research Design Service. stephanie.tierney@warwick.ac.uk Dr Liz Tutton, Senior Research Fellow I currently hold two posts, at the RCN Research Institute at the University of Warwick and at the Trauma Unit, John Radcliffe Hospital based in the Kadoorie Centre. I have spent many years in nursing practice in a range of clinical specialities and as a Principal Lecturer teaching on undergraduate and post graduate degree courses. My research interests focus on multidisciplinary staff, older people and people suffering acute traumatic injury. Patient and staff experiences of care have been explored through core concepts such as comfort, participation, and hope. A range of qualitative methodologies have been utilised such as ethnography and action research. liz.tutton@warwick.ac.uk Version 4 – January 2015 3