Policy Briefing August 2014 Maternal Mental Health in Northern Ireland: a briefing by the NI Maternal Mental Health Alliance, August 2014 Campaigning for Change: the UK Maternal Mental Health Alliance Of the 25 273 births in 2011 in Northern Ireland, 2527 women developed antenatal depression, 3790 women developed postnatal depression, 50 mothers developed puerperal psychosis and 50 were admitted as a result of relapsing (DHSSPS, 2013). A recent 32 week study found that 75 pregnant women who were admitted to an acute psychiatric ward could have instead have benefited from being treated in a mother and baby unit (Royal College of Psychiatrists, 2013). A woman may have a pre-existing mental health condition, or mental ill-health can arise during pregnancy (DHSSPS, 2013). Some women with pre-existing mental illness diagnosis may not become pregnant because they have been (incorrectly) advised by health professionals that women with a psychiatric diagnosis should, de facto, not to have a family. This briefing has been produced by the Northern Ireland Maternal Mental Health Alliance whose membership includes: professional bodies, clinicians, voluntary and community organisations, and women and their families who have been directly impacted by these issues. We are part of the UK Maternal Mental Health Campaign “Everyone’s Business” (funded for 3 years by Comic Relief until September 2016). “Everyone’s Business” aims to: raise awareness of perinatal mental illness among health and social care providers, stop the post code lottery of perinatal mental health provision and highlight best practise in health and social care (www.everyonesbusiness.org.uk, 2014). Perinatal mental health is concerned with the pregnancy and first year of a child’s life. In Northern Ireland we are campaigning for best practise services using the stepped care approach across all HSCT’s and the full implementation of policy commitments by May 2016, the end of this Assembly mandate. We are seeking the following. 1. Health professionals to focus on early intervention and act quickly in order to prevent adverse outcomes. 2. Mental health integrated within ante-natal classes in order to improve awareness about potential challenges and available support 3. Having the same midwife/health professional throughout a pregnancy in order to provide fully informed care, and build rapport/trust so that the woman feels that she can be open about her feelings. 4. Health professionals, especially midwives, trained on maternal mental health in order to recognise vulnerability, offer appropriate help and reduce stigma. 5. A care plan implemented throughout a pregnancy including an emphasis on maternal mental health and a question about mental health at first contact in order to ensure help at any stage of the pregnancy. 6. A mother and baby unit in order to allow the mother to receive specialist help and also bond with her child in the same facility. We have no mother and baby unit in Northern Ireland, and only one specialist mental perinatal psychiatrist in the Belfast HSCT (Murray and Hamilton, 2005). We have signed up to the NICE Guidelines on Antenatal and Postnatal Depression, which have 5 key themes: co-ordination of service delivery, appropriate use of medication, effective communication, promotion, prediction and detection, competencies of the multidisciplinary team (DHSSPS, 2011). The Executive has committed to a policy framework, with leadership resting with the DHSSPS (health) and OFMDFM (human rights); and published the Integrated Perinatal Mental Health Care Pathway (Public Health Agency, 2012). The Pathway recommends that women with a pre-existing mental illness should have: (i) a health professional talk through potential issues; (ii) a medical support team throughout the pregnancy; and (iii) a personalised care plan relevant to their needs. Women who become ill during 1 Policy Briefing August 2014 or after pregnancy require emergency assessment if there is a high level of concern over declining mental health. At first contact with obstetric services, women should be asked if they have a history of mental ill health, this should be recorded and communicated with staff (Public Health Agency, 2012). This briefing will cover the importance of positive maternal mental health, the Northern Ireland policy framework, underfunding and the lack of provision, and regional differences across the UK. Why Maternal Mental Health is important Positive maternal mental health is vital not only for the mother’s outcomes but also those of her baby, her partner and wider family. "Success in this long term psychological process is associated with positive life-long outcomes for both the parenting mother and the child and is essential for the normal development of children and their maturation into competent adults" (Martin, 2012: 431). A child's development is mediated through its attachment to his or her mother. Poor maternal mental health can impact a child’s development; and, conversely, intervention and secure attachments improves the child’s emotional and educational outcomes as s/he grows older (Martin, 2012) and enhances the child’s longterm cognitive, behavioural and emotional outcomes. Early intervention can help strengthen family relationships especially with their partner; ensure support through continued social contact with friends; and develop a closer mother-baby bond. Early intervention reduces the likelihood of financial pressures because the mother’s return to work is less disrupted, and family members do not need to become carers (Robson and Waugh, 2013). Investment in early intervention makes economic sense. Post natal depression can cost UK healthcare £35.7 million every year; and this figure rises when we take into account the long term health, education and employment costs for mother and child (NICE guidelines, 2007). Northern Ireland Policy Framework The policy framework within Northern Ireland is led primarily by DHSSPS. On maternal mental health the following have addressed this issue: A Strategy for Maternity Care in Northern Ireland 20122018, Bamford Taskforce Annual Report 2011, the Evaluation of the 2009-2011 Bamford Action Plan, Transforming your Care: a Review of Health and Social Care Services in Northern Ireland, Service Framework for Mental Health and Wellbeing, and Strategic Framework for Adult Mental Health Services. OFMDFM is the lead Department with regard to the progressive realisation of human rights in Northern Ireland. All UK jurisdictions have human rights obligations, which they must act on including human rights to health and family life. In 2005, a Strategic Framework for Adult Mental Health Services stated that maternal mental health issues should be tackled through a regional strategy, which would emphasise the different service levels that were required and ensured all workers were sufficiently trained. The following recommendations were made. • Regional specialist mental health services for help during the perinatal period. • Inpatient mother and baby facilities based on a regional needs assessment. • Assessment and care planning for the management of women with pre-existing mental illness during pregnancy. • Assessment of maternal health needs to include mental health. (DHSSPS) In 2010, the Service Framework for Mental Health and Wellbeing stated that pregnant women should be asked about previous or current mental health history at first contact, booking visit, final trimester visit, 6- 10 weeks after childbirth and up to first year after childbirth. When needed they 2 Policy Briefing August 2014 should have access to specialist mental health services with psychological interventions; and extra help from health visitor and inpatient care in line with NICE guidelines. (DHSSPS) One of Transforming Your Care: A Review of Health and Social Care in Northern Ireland’s main proposals was a regional plan for women with severe mental conditions (DHSSPS, 2011). The Evaluation of the 2009-2011 Bamford Action Plan Review stated its intention to improve perinatal mental health services through improved identification and treatment of mental illness during and after pregnancy. The NICE guidelines were to be implemented in all Health and Social Care Trusts, particularly in primary care. Consultation on the Review was in 2009, and implementation agreed by 2010. (DHSSPS, 2012) The Bamford Taskforce Annual Report 2011 noted that the Bamford Review had led to the establishment of a regional perinatal mental health group focussed on: early intervention, prediction, integrated care pathway, service improvement and training and awareness. In addition to the regional integrated pathway for perinatal mental health (published 2012), this group had roles around the development of a training strategy for clinicians, and the promotion of public awareness via campaigns (DHSSPS, 2011). A Strategy for Maternity Care in Northern Ireland 2012-2018 recognised that some women require inpatient mental health services and supported Transforming Your Care and the Bamford’s Action Plan’s key proposals on this area. The Strategy’s recommendations included: follow up visits for newly delivered mothers who have had pregnancy complications due to mental health issues in order to provide for early intervention and counselling for postnatal depression; personalised information on impact of pregnancy on long term conditions such as depression and usage in GP surgeries/specialist clinics; and implementation of the regional care pathway to manage mental health throughout pregnancy. (DHSSPS) Access to and provision of best practise health and social care requires a reduction in stigma amongst professionals and the public. Northern Ireland is the only area of the UK without a regional mental health anti-stigma campaign. The Equality Commission for Northern Ireland found that mental health stigma is a significant and growing problem: 1 in 4 individuals would mind if an individual experiencing mental health problems was their work colleague or neighbour; and 1 in three would mind having them as an in- law (2011). Furthermore, discriminatory attitudes among health professionals are a significant challenge for people using health services and make them reluctant to disclose and seek support. A 2011 study found that 30.4% of mental health service users felt discriminated against by health professionals despite public campaigns aiming to remove stigma and negative attitudes around mental health (Brindle, 2013). Many women report feeling patronised and dismissed by their doctor when they disclose. One woman described postnatal depression symptoms including tiredness, crying, feeling irritable: "The doctor said that I was a working mother of four and my baby was only twelve weeks old, of course you’re tired, I mean you don’t want valium, do you? I was devastated and left the surgery feeling small” (Corry, 2008: 11). 3 Policy Briefing August 2014 Underfunding/lack of provision Maternal mental health provision is often regarded as having little priority for the NHS "Mental health services, generally, are a Cinderella area of the health service and perinatal mental health is a Cinderella of the mental health services" (Moorhead, 2013: 1). In Northern Ireland the situation is stark and unacceptable. The policy framework has not delivered an acceptable level and range of care and support, by public, voluntary and community sectors, for women and their families across Northern Ireland. There is clear evidence of a postcode lottery within the limited provision that is available. New mothers requiring hospital based mental health care should not be admitted to a general mental health ward; and should not be separated from their babies. This can have a detrimental effect on the woman’s recovery from her illness and weaken her attachment to her child (Tickle, 2013). However, the absence of a mother and baby unit in Northern Ireland means that this is what is happening. The Service Framework for Mental Health and Wellbeing document noted that women are scared to ask for help for fear of being separated from their baby (DHSSPS, 2010). In Northern Ireland, the mental health sector is underfunded proportionate to need. Although in Northern Ireland women who are pregnant have higher rates of depression compared to their UK counterparts, this isn’t reflected in current expenditure levels for the mental health sector (Children and Youth Programme, 2011). In 2011 spending on mental health was just 7% of the whole health budget and 10-30% lower than English spending on this sector. This is despite our need being 44% greater compared to England. Only 3.7% was spent on maternity and child health (Appleby, 2011). Regional differences Northern Ireland has committed to following the NICE guidelines on antenatal and postnatal mental health; and implementation of the Integrated Perinatal Mental Health Care Pathway. There are currently 19 mother and baby units across the UK (2 in Scotland, 17 in England and none in Wales or Northern Ireland. In terms of specialist perinatal mental health provision this varies considerably between regions. The majority of Wales and Northern Ireland has no provision. There is only adequate provision in the middle and South of England. Scotland is varied with the most provision in the middle of the country (Maternal Mental Health Alliance, 2014). UK specialist perinatal mental health provision (MMHA, 2014) UK mother and baby units (MMHA, 2014) 4 Policy Briefing August 2014 In Scotland the Mental Health (Care and Treatment) (Scotland) Act 2003 mandates NHS Boards to provide specialist facilities for newly admitted mothers and their babies where needed. The Delivering for Mental Health report led to the first mother and baby unit in 2005. Health Boards created care pathways to deliver perinatal services including community and inpatient services (Scottish Government, 2006). A Refreshed Framework for Maternity Care in Scotland emphasises maternal and infant mental health and wellbeing through effective assessment and support services (Scottish Government, 2011). In Wales the Strategy for Maternity Services recommended that pregnant women on their first contact with a health professional be asked about any history of and treatment for mental health problems. The Government committed to follow NICE guidelines on primary and secondary care and a local care pathway delivered to each maternity area in Wales (Welsh Government, 2011). The Wales Together for Mental Health Annual Report required the use of maternity records to identify women at risk of developing postnatal depression/postpartum psychosis. A midwifery learning programme module on symptom recognition and care planning was delivered to all maternity units. The Wales Perinatal Mental Health Group oversees implementation (Welsh Government, 2013). In England the Government has committed to follow NICE guidelines on antenatal and postnatal mental health (Hogg, 2011). In 2013 Health Education England was tasked with ensuring sufficient perinatal mental health training so that specialist staff are in all birthing units in England by 2017. 1300 new midwives have joined the NHS to offer support for all vulnerable women before, during and after pregnancy; with 5000 being currently trained. 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