Information Policy Development Group 11th February 2015 Agenda Item No. CHI Seeding – Privacy Impact Assessment Report by: Wards Affected: Purpose Norman Kurzman, I.T. Services, Fife Council All This report assesses the privacy risks and compliance elements associated with Fife Council, seeding all active client SWIFT records with the NHS CHI (Community Health Index) number as a secondary identifier. Data matching involves sharing some data, including some demographics related to Fife Council clients and NHS registered patients, including the CHI number. A PIA is recommended by the statutory Data Sharing Code of Practice issued by the ICO (Information Commissioner’s Office). This PIA identifies possible privacy risks and assesses potential impacts associated with matching social and health care records via SWIFT / AIS and NHSCR (NHS Central Register). Recommendation(s) The Information Policy Development (IPD) Group is asked to: Note the contents of this Privacy Impact Assessment; Support the control measures identified; Support the initiative to match records within Fife Council and NHS Fife databases, based on patient (NHS Fife) and client (Fife Council) demographics and link the records by associating the SWIFT ID (primary ID) and CHI number (secondary ID). Resource Implications Resources will be required to define, develop, provide training and implement the necessary operational and technical controls, along with the technical capability to set up secure communications between NHS Fife, NSS ISD and Fife Council. Ongoing support will be required to review audit logs on a regular basis and monitor the data processing agreement on a regular basis. Legal & Risk Implications This PIA will be supported by a Data Processing Agreement drawn up between Fife Council and The Common Services Agency for the Scottish Health Service (commonly known as NHS Services Scotland) (Information 1 Services Division) (NSS ISD); along with guides to Social Work staff on the usage of the CHI number. Fife Council will continue to be the overall Data Controller of the SWIFT / AIS system and NHS Fife will continue to be the Data Controller of patient’s CHI numbers. NSS ISD will process CHI numbers and perform automated data matching by joint instructions from NHS Fife and Fife Council. Impact Assessment A Fife Council EqIA Checklist is not required because this report does not propose a change or revision to existing policies and practices. Employees within their respective organisation (NHS or Fife Council) will be subject to existing policies and practices as defined in their respective organisation. This project is consistent with the council’s information policies, and Scottish Governance legislation and guidance supporting the sharing of personal sensitive information of adults in regard to Health and Social Work Integration. It also complies with relevant legislation including the Data Protection Act 1998 and the Human Rights Act 1998 and is consistent with the best practice guidance on privacy produced by the Information Commissioner’s Office. Consultation A consultation workshop between NHS Fife and Fife Council Social Work staff was undertaken in November 2014 to develop the list of data attributes which are within scope for the Health and Social Work Integration Programme. The CHI number will be a multi-system identifier. There has been consultation with NSS ISD to agree CHI seeding of the Fife Council’s SWIFT / AIS system based on matching demographics. A discussion with the ICO was undertaken on CHI seeding all active SWIFT / AIS clients as opposed to adults only. The relevant Information Governance, Security, IT and legal advisors from both organisations have been involved in this assessment. 2 1.0 Background 1.1 The Public Bodies (Joint Working) (Scotland) Act 2014 (“PBA”) has introduced legislation which requires local authorities and health boards to work together in respect of the integration of health and social care (H&SC) connected with adults. 1.2 NHS and Fife Council need to share data about individuals receiving health and social care. 1.3 At the present time, staff browse through a significant number of SWIFT / AIS records to manually match health and social care records before providing a service to the client/patient. This manual exercise is prone to human error, is inefficient and time consuming. 1.4. The current process does not ensure all the relevant information is available for health and social care as and when needed through SWIFT / AIS which has a negative impact for client/patient care. 1.5. A NHS Community Health Index or CHI number is a national ten digit (date of birth + 4 other numbers) and provides a unique number for health communications related to a given patient. 1.6. By adding the CHI number, as a secondary identifier into all active SWIFT / AIS records, this is less of a privacy risk than NHS staff doing a manual search within SWIFT / AIS before accessing the detailed case file to find and then confirm matching individuals and ensures a more streamlined integrated service. DPA Principle 1 states personal information must be fairly and lawfully processed. Additionally DPA Principle 3 states personal information must be adequate, relevant and not excessive. 1.7. NSS ISD as the Data Processor processes CHI numbers on behalf of the NHS Fife the Data Controller and carries out the data matching of Fife Council SWIFT / AIS data with the CHI number on behalf of both Fife Council and NHS Fife. The processing of personal data on behalf of Fife Council is controlled by a Data Processing Agreement between Fife Council and the NSS ISD. Additionally NSS ISD provides this service to other NHS Boards in Scotland. 1.8. Supporting Privacy Notices will inform patients / clients of this arrangement to share personal information between NSS ISD and Fife Council to match health and social care records as part of the integrated H&SC. 3 2.0 PIA Screening Process 2.1 Privacy Impact Assessment Best Practice The Information Commissioner (ICO) in 2014 produced a new privacy impact assessment code of practice: http://ico.org.uk/news/latest_news/2014/privacyimpact-assessments-code-published. This guidance was utilised to identify possible privacy risks and assess potential impacts associated with matching social and health care records via SWIFT / AIS and the CHI register. 2.2 Requirement for a PIA Data matching involves sharing some data, including demographics related to Fife Council clients and NHS registered patients, including the CHI number. A PIA is highly recommended by the statutory Data Sharing Code of Practice issued by the ICO. This data matching exercise does not change the original sensitivity of the SWIFT / AIS database. The SWIFT / AIS system holds a significant volume of personal and sensitive data pertaining to all the Council’s Social Work clients. 2.3 Data matching assessment This data matching exercise will join data related to active clients of Fife Council Social Work services who are also NHS Fife patients. The data needed for the matching exercise is basic demographics from SWIFT / AIS (Table 1 below) and the corresponding data from NHS Central Register (NHSCR). This data is held electronically within the SWIFT / AIS systems and NSS ISD (on behalf of NHS Fife). The data involved in the matching exercise is not personal sensitive but is still subject to confidentiality. The data involved from the NHS is already available from the NHSCR. Appendix A provides a high level data flow. 4 Table 1 – Demographics for Matching SWIFT / AIS & CHI Records SWIFT / AIS Unique social work reference known as the SWIFT ID Surname Forename Gender Date of Birth Postcode Date of Death The sharing of demographic data cannot currently be undertaken real-time or via a web service for new clients / patients as the NSS ISD do not have this capability and also require all active client records in SWIFT / AIS to be resent for each subsequent matching exercise. 2.4 Purpose The purpose is to match the CHI number to SWIFT / AIS records, to allow NHS staff in the future to have direct access to active clients in Social Work. This supports joint adult / health & social care service under PBA 2014. The aim is to deliver integrated adult health care. Additionally matching of Council and NHS information will support analysis of management information, costs and inform strategic planning. 2.5 Legal basis for data matching and sharing Disclosure of information will be conducted within the legal framework of the Data Protection Act 1998 (DPA), the Human Rights Act 1998 and in compliance with the common law duty of confidence. For the purpose of CHI Seeding, the CHI number will be data matched with SWIFT / AIS records and added into SWIFT / AIS based on these legal conditions: Schedule 2, Paragraph 5(b) the processing is necessary for the exercise of any functions conferred on any person by or under any enactment. Schedule 2, paragraph 6(1) the processing is necessary for the purposes of legitimate interests pursued by the data controller or by the third party or parties to whom the data are disclosed, except where the processing is unwarranted in any particular case by reason of prejudice to the rights and freedoms or legitimate interests of the data subject. 5 2.6. ICO Advice and Guidance The original advice provided by Maureen Falconer, Senior Policy Officer at the ICO in November, 2014, was that CHI seeding could only be undertaken for selected adult client records. However, on the 5th December 2014 at a meeting with Maureen Falconer, ICO, she verbally indicated a risk assessment should be undertaken as part of a PIA to determine if all active clients in SWIFT could be CHI seeded and any use of the CHI number by Fife Council must be restricted to use as a secondary identifier only – it must not be used for any other purposes. This includes active adults and children; it does not include carers, medical professionals or other third parties. The justification for CHI seeding active client records in SWIFT / AIS is to minimise the risk of NHS staff having direct access to search the entire SWIFT / AIS database for patients which may or may not have a care package. Whilst SWIFT / AIS security restricts access to the underlying information such as Criminal Justice records, it is not possible to restrict the initial view of client names. The current SWIFT training recommends that wildcards should be used within each forename and surname, so occasionally more than the required client’s information could be returned when confirming manual matching. Using the CHI number will minimise such wildcard searches. Adding the CHI number as a secondary identifier into all active client SWIFT / AIS records is seen as less of a privacy risk than NHS staff doing a manual search within SWIFT / AIS prior to confirming matching individuals. Using the CHI number to access records, supports DPA Principle 2 where personal information must be processed for limited purposes and Principle 3 which states personal information must be adequate, relevant and not excessive. A Guide for Fife Council staff and NHS staff will be prepared to detail how the CHI number has to be used as an additional secondary identifier only to support information sharing. 2.7. Data Accuracy The accuracy of the data matching process relies on a scoring system depending on the number of data items (“fields”) that attract a successful match as follows: DOB up to 15 pts Surname 8-17 pts Forename 8-17 pts Gender 1 pt Postcode up to 15 pts Address up to 15 pts GP 5-8 pts CHI up to 5 pts 6 Once the automated matching is completed, a manual review of non-exact matches will take place within NSS ISD to improve the highest possible accuracy and match rate. Whether the potential match is accepted or rejected is dependent on a combination of the score and whether there are any other possible matches that compete with or rival the highest scoring match. Where exact matches are found (where two names, gender, DOB and postcode/address match exactly to the details on the CHI database) the match is auto-accepted. The result of this approach is an estimated error rate of no more than 1 in 5000 cases. Following the matching process, the output file is sent securely to Fife Council. There are two main types of output available: 2.8. Level 1 – a list of the CHI numbers matched to each record (using the unique record/client identifier) plus the match score and a flag indicating the type of match (exact, name-only mismatch, address-only mismatch etc.) Level 2 – the above plus full details of the incoming record data and the corresponding data held on CHI Fair Processing / Privacy Notices NHS Fife and Fife Council will update their existing online privacy notices and data sharing leaflets to notify members of the public that personal information, including identifiers and demographics, will be shared between partners and with NSS ISD for the purpose of providing integrated health and social care services. In addition, patients and service users will be provided with appropriate information about data sharing between agencies at the initial point of contact. For example, this could be in the form of providing a verbal explanation of shared service provision to patients when they are initially admitted to hospital. 2.9. Effect of Deletion of Data The deletion of a patient’s or client’s record for a valid purpose, including potential differences in retention schedules will need to be factored into local work instructions for the Council and NHS Fife. 2.10. Arrangements for Data Not Matched Details of how rejected or mismatched records will be processed to improve data accuracy will be detailed in supporting work instructions. 2.11. Processing via Portal (relevant for future data sharing arrangements) 7 The proposal is that once the matching exercise is completed, the NHS will be able to access social care data related to a particular patient needing a care package, by entering the CHI number into a Portal enquiry screen to bring up the matching client within the SWIFT / AIS system. Alternatively when there is no match on CHI number, NHS staff will revert to the search process described above through a Portal. NHS users will confirm that the correct person is selected by validating their address and DOB. Once this check is completed, access to the detailed record will be enabled to allow them to view and update cases notes. The Portal to manage access and viewing / updating of SWIFT / AIS client records is forecast to be ready by Q3 2015. 2.12. Other Privacy Risks Privacy Risk Will the implementation of CHI seeding involve the collection of new information by Fife Council about individuals? Response Yes, as the NHS CHI number will be added into the SWIFT record as a secondary identifier. Negligible to no distress for the data subject. Less privacy risk as access to non relevant records will be minimised compared to current manual process. No. Will individuals be required to provide additional information about themselves? Will the information collected be used for additional purposes? The CHI number will not be used for new or additional purposes beyond adult care. Guide to Fife Council staff will detail how the CHI numbers is used as an additional secondary identifier. Yes, Fife Council will have access to the CHI number which they did not have before. The CHI number will not be shared with other agencies / partners. No. Will information be shared with other agencies or people who currently do not have access to this information? Does CHI seeding involve using intrusive technologies e.g. biometrics or facial recognition? Will CHI seeding change the way that decisions will be made about individuals, or involve actions which will significantly impact on the privacy of individuals? No, since at the present time decisions are also made based on “manual” matching. However, it will improve efficiency and safety. Improved collaboration between NHS practitioners and Social Workers using a single definitive version of ‘truth’ about care packages and related client / patient information will ensure better 8 management of a client’s holistic needs and will impact positively both on the speed and quality of decision-making and service-delivery of an individual’s care package(s). Negligible. The CHI number within a record will be kept in line with Fife Council’s existing retention policies. This processing doesn’t increase the current risk of the SWIFT / AIS database. Current controls are considered satisfactory. Information kept for too long Data not held securely Data in transit for data matching will be via an approved secure method agreed between NSS ISD and Fife Council. This processing doesn’t increase the current risk of the SWIFT database. Current controls are considered satisfactory. Information disclosed to unauthorised individuals / agencies 2.13. Security and Organisational Measures All collection, processing and storage of information in SWIFT / AIS will be in accordance with the Council’s policies and procedures and relevant information legislation including the Data Protection Act 1998, Freedom of Information (Scotland Act) 2002 and the Environmental Information (Scotland) Regulations 2004. Wherever possible technical policy controls will be applied, for example access controls, automated retention schedules, version control and audit monitoring. Behavioural controls, such as employee training and provision of guidance material will be utilised where appropriate. Information held in SWIFT / AIS will be backed-up every 24 hours as a minimum requirement; this is in accordance with current business continuity arrangements. In an event where disaster recovery is required, it is expected that the Council’s DR Site will provide system continuity. During agreed annual reviews, both Fife Council and NHS Fife will discuss: Adequacy of both sets of policies, procedures and technical security controls; Reported breaches; Unlawful processing risk and mitigation; Contracts with data processors; Choice of data processors. 9 2.14. NSS ISD as Data Processor There is an agreed Data Processor Agreement with NSS ISD as the Data Processor, detailing the security the Data Processor has in place. NSS ISD also has the following agreed controls to prevent accidental data lost / damage / destruction: Backups; Data recovery procedures; Systems/data resilience; Business continuity plans; Safe destruction & data retention policy; Clean desk policy; Data in transit security arrangements. Access controls will ensure that information will be restricted only to those individuals whose role within NSS ISD requires access to perform the matching and quality process. 2.15. International Transfers No international transfers of data have been identified. 2.16. Privacy and Related Risks The key privacy risks are listed below. Privacy Issue Data used for additional, inappropriate purposes Inaccurate, insufficient or out-of-date data Information kept for too long Impact on Individuals Distress, embarrassment, damage to relationships and / or reputation. In extreme cases physical harm. Loss of entitlements or provision of inappropriate services e.g. client care package. Distress, potential for loss of status / employment e.g. spent Compliance Risk Control Measure Data Protection Act 1998 – Principle 2 Behavioural controls e.g. training & guidance materials which support Council policies and procedures. Use of single primary data source rather than multiple copies. Data Protection Act 1998 – Principle 4 Data Protection Act 1998 – Principle 5 10 Application of agreed retention / deletion schedules where this is technically criminal convictions. Data not held Anxiety caused securely by fear of disclosure. Identity theft. Distress, physical harm, damage to relationships and / or reputation. Information disclosed to unauthorised individuals / agencies Impact on client if the CHI seeding is incorrect and matches the wrong person Identity theft. Distress, physical harm, damage to relationships and / or reputation. Distress, health service not provided feasible. Data Protection Act 1998 – Principle 7 Data Protection Act 1998 – Principle 7, and potentially also Principle 8 Data Protection Act 1998 – Principle 4 Role based access control using Active Directory Groups is used to display the SWIFT / AIS icon on the desktop; however actual access is controlled separately via a SWIFT administration function. Audit monitoring. Role based access control using Active Directory Groups. Council policies and processes. Review matching from NSS ISD result set and undertake manual checks where there is any uncertainty. 2.17. Privacy Solutions Fife Council already has a number of control measures in place to reduce the privacy risks associated with the management of information, for example policies, procedures, training materials, access controls, audit monitoring and incident management. The following controls are specific to the Council’s SWIFT / AIS environment: 2.18. Fife Council Social Work Policies and Procedures Fife Council has a number of policies/procedures that all staff are governed by. Fife Council Discipline Policy & Procedures: http://publications.1fife.org.uk/uploadfiles/publications/c64_DI02Discipli naryPolicyandProcedure.pdf Fife Council Data Protection Policy: 11 http://www.fife.gov.uk/publications/index.cfm?fuseaction=publication.po p&pubid=23EA47EB-9876-C415-654E50839378E8BF 2.19. SWIFT / AIS User Access Controls User access is based on roles, where users are members of specific groups which have defined permissions. Access is controlled via a SWIFT administration function which will manage employees moving roles or leaving the Council or NHS Fife. Control is authorised by managers, who request access for designated individuals in specific roles through the Service process. 2.20. Training and Support Materials The following materials will be available to all SWIFT / AIS users: SWIFT / AIS user / training documentation; Social Work data protection training will be made available to the NHS staff accessing the SWIFT / AIS system. 2.21. These controls all support good information practices and will encourage NHS staff to effectively manage the in scope adult care data whilst complying with relevant information legislation. 2.22. Although the technical controls within SWIFT / AIS are not able to completely prevent risks; the system can provide audit reports detailing what clients were searched for and which client records were subsequently opened. This information can be used to reduce the risk of a re-occurrence, for example by targeting staff training, or in exceptional cases, disciplinary action. 2.23. Information breaches will follow the reporting mechanism within Fife Council and NHS Fife. Where this involves an information breach for instance of NHS Fife staff inappropriately accessing the SWIFT / AIS system, the Fife Council Information Policy Manager will inform the NHS Fife Information Policy Manager and vice versa. These incidents will be logged and an investigation commenced in the organisation in which the staff member is employed. Any follow-up disciplinary action will follow the relevant organisation’s defined procedure for managing such events. 12 3.0 Recommendations 3.1 The IPD Group is asked to: Note the contents of this Privacy Impact Assessment; Support the control measures identified; Support this initiative as part of the Health and Social Work integration between Fife Council and NHS Fife. Background Papers The following papers were relied on in the preparation of this report. Local Government (Scotland) Act, 1973 Local Electoral Administration and Registration Services (Scotland) Act, 2006 The Public Bodies (Joint Working) (Scotland) Act, 2014 National Health Service Central Register (NHSCR) http://gro-scotland.gov.uk/national-health-service-central-register/about-theregister/index.html Report Contact Norman Kurzman Information Policy and Standards Manager Telephone: 08451 555555 + 440536 Email – norman.kurzman@fife.gov.uk 13 Appendix A – High level data flow NHS CHI SYSTEM (hosted in NHS Tayside) Births NHSCR GPs (on behalf of the NHS) Patient registration requests NSS/ISD New CHI records Data Quality Checks National Register ISD Data Matching & CHI seeding SWIFT SWIFT demographics CHI seeded records 14 COUNCIL