Outreach Committee Board Report January 2015 Overall Objectives: 1. 2. 3. 4. Educate patient advocacy groups about the current value and future promise of molecular imaging and prepare them to be powerful allies in maintaining and expanding access to molecular imaging and therapy. Increase knowledge among referring physicians about current value and future promise of molecular imaging. Raise awareness and deepen understanding among reimbursement administrative decision makers (private health insurance, Medicare, radiology benefit managers) to balance the call to reduce care with an understanding of the benefits of appropriate care Create awareness of the power of molecular imaging and therapy in an effort to assist researchers in advancing their discoveries to the clinic. Outreach Committee The committee, led by Henry VanBrocklin, PhD and Andrei Iagaru, MD, previously consisted of the committee Co-Chairs and the chairs of the 5 working groups – brain, cardio, oncology, targeted radioisotope therapy, and patient advocacy. After careful consideration, the committee decided to scale back the number of working groups to ensure a more strategic outreach effort. The committee agreed to keep the brain, targeted radioisotope therapy and patient advocacy working groups. The oncology and cardiology groups were dissolved as the areas were too nebulous to allow for measurable objectives and concrete tasks. It was also agreed that the committee structure needed to allow for input from the various expert groups throughout SNMMI. The newly restructured committee met on December 18th, 2014 to orient the members to the purpose of the committee and their role in the implementation of the outreach program. The committee members were tasked with identifying topic areas that require outreach with the groups they represent and be prepared to present their ideas at the in-person on January 24th, 2015 at the SNMMI MWM in San Antonio to discuss new topic areas for the 2015 outreach plan and aligning with the SNMMI strategic goals. The members of this committee are: Andrei Horia Iagaru, MD Timothy Manzone, MD, JD, CCD Co-Chair and TRT Working Group Co-Chair GCNMC Representative Henry F. VanBrocklin, PhD Jonathan McConathy, MD, PhD Co-Chair Brain Imaging Working Group Chair Richard M. Benator, MD, FACR Ashley Elizabeth Mishoe, PharmD Pediatric Imaging Council Representative YPC Representative Alexandru Bageac, MD, MBA Ryan Niederkohr, MD Slosky Fellowship Appointee PET COE Representative Sharmila Dorbala, MD Neeta D. Pandit-Taskar, MD Cardiovascular Council Represntative Nuclear Oncology Council Representative Hossein Jadvar, MD, PhD, MPH, MBA, FACNM Anthony J. Sicignano, BS, CNMT, ARRT(N) TRT Working Group Co-Chair Technologist Section Representative Kathleen M. Krisak, CNMT, FSNMMI-TS Chadwick Wright, MD, PhD Technologist Section Representative Leadership Academy Appointee Josh Mailman, MBA Patient Advocacy Advisory Board Chair Page 1 of 5 Brain Imaging Outreach Chair: Jon Mcconathy, MD Dr. McConathy has been a member of this group since 2013 and was just appointed Chair. He is working to increase the number of members in the working group and advance SNMMI’s goals to reach referring physicians and patients. The FY15 brain imaging outreach plan includes arming members with tools for speaking to referring physicians and patients about the value of brain imaging in the diagnosis and treatment, partnering with the chapter leadership to create a referring physician education event in their area, and continuing to propose sessions for other professional meetings such as the American Academy of Neurology, American Academy of Geriatric Psychiatry, American Academy of Family Physicians, and American Psychiatric Association annual meetings. The group will also create materials for both referring physicians and patients to post on the audience pages of snmmi.org. In 2014, the group successfully completed an online education project with Medscape on the appropriate use of amyloid imaging. The online project consisted of three interactive activities and a library of amyloid-specific resources for referring physicians. Preliminary metrics are shown below. Overall, the program was highly successful with over 15,000 learners, over 10,700 MDs, and more than 4,300 test takers. Clinical Developments in Amyloid PET Imaging: Research Updates CME/CE Released: 09/24/2014; Valid for credit through 09/24/2015 Total Learners: 6,474 MD Learners: 3,702 Test Takers: 1,523 Amyloid PET Imaging: Appropriate Use Criteria CME CME Released: 05/30/2014; Valid for credit through 05/30/2015 Total Learners: 4,213 MD Learners: 3,260 Test Takers: 1,495 Amyloid Imaging: Understanding the Appropriate Use Criteria CME CME Released: 06/24/2014 ; Valid for credit through 06/24/2015 Total Learners: 4,423 MD Learners: 3,801 Test Takers: 1,369 The group had also planned to hold a referring physician education event at Emory University. However, due to lack of interest from the neurology department, the group decided to focus on a different academic institution. With the addition of Dr. Jacob Dubroff to the working group, the University of Pennsylvania was identified as a the location of the pilot program. Members of the group are developing the program outline to approach the UPenn Neurology and Psychiatry departments for collaboration. The working group will use the results of this pilot program to decide if this type of program can be used as a road show. Cardiovascular Outreach Prior to being dissolved, the cardiovascular outreach group planned to create a think tank to discuss the state of cardiovascular molecular imaging and determine how current technologies could be translated to address gaps in clinical care. Due to competing events and availability, the group decided to postpone this event to 2015. The SNMMI/ ASNC Cardiovascular Molecular Imaging Think Tank: Devising Strategies to Bridge the Translational Divide meeting will take place on April 16-17, 2015. The multidisciplinary program committee includes representatives from 8 cardiovascular societies - American College of Cardiology, American Heart Association, Society for Cardiovascular Magnetic Resonance, American Society of Echocardiography, Radiological Society of North America, Heart Failure Society of America, Heart Rhythm Society, and World Molecular Imaging Society. The program will address gaps in cardiovascular molecular imaging in the areas of arrhythmias, heart failure, valvular disease, vascular disease, and thrombosis. Page 2 of 5 Patient Advocacy Advisory Board Chair: Josh Mailman, MBA Due to the hard work and dedication of the Chairman, Josh Mailman, the SNMMI patient education program has been very successful. The Board currently consists of representatives from Alzheimer's Association, American Cancer Society Cancer Action Network, American Heart Association, Colon Cancer Alliance, Facing Our Risk of Cancer Empowered, Lung Cancer Alliance, Lymphoma Research Foundation, NorCal CarciNET, and Prostate Cancer Research Institute, Thyroid Cancer Survivors’ Association. Members of the PAAB, along with SNMMI members attended the Patient Hill Day on Tuesday, September 30, 2014. This lobbying day was attended by nine patient advocates, four SNMMI members, and four SNMMI staff members who met with 23 Congressional offices. The group focused on their personal stories and how nuclear medicine and molecular imaging made a significant difference in their management, and reiterated the need for continued funding from the Department of Energy (DOE), and the a reliable domestic supply of Molybdenum99 (Mo-99). The 2014 Patient Hill Lobbying Day was a great success. It is important to strengthen connections made between SNMMI members and their congressional representatives. This will ensure that there is a patient perspective on different molecular imaging and nuclear medicine affairs. The PAAB has begun planning the Patient Education Day for the 2015 Annual Meeting in Baltimore, MD. As in previous years, the program will be provided at no cost and will explain what nuclear medicine and molecular imaging is, what they need to know about radiation safety, and to explain the value of PET, SPECT, and radioisotope therapy use in 3 disease areas (to be determined). Potential disease topics for the program are lung cancer, thyroid cancer, heart disease, and lymphoma. The Chair-Elect, Betsy de Parry, will take office in June 2015. Since her recovery from non-Hodgkin lymphoma in 2002, Betsy has authored two books about the experience of cancer and written numerous essays and articles, including her popular “Candid Cancer” column for AnnArbor.com, which is read by thousands around the world. She has produced and hosted reports called “Candid Cancer” for a PBS show and, in collaboration with the Lymphoma Foundation of America, produced and hosted webcasts about cancer-related issues. She is a frequent speaker to healthcare and patient groups and a frequent participant in awareness, educational and advocacy efforts. She has been featured on NPR and in The New York Times and her experience with cancer was the subject of a documentary which aired on PBS in 2010. She is the founder of Candid Cancer, a nonprofit whose goal is to help survivors of all kinds of cancers to achieve the highest levels of emotional and physical well-being after diagnosis. Betsy serves as Heath Policy Advisor to the Lymphoma Foundation of America. She lives and works with her husband in Ann Arbor, Michigan where she is vice president of marketing and sales for their homebuilding and land development company. Betsy is excited to bring her passion for radioimmunotherapy and nuclear medicine to the role of PAAB Chair. Targeted Radioisotope Therapy Outreach Co-Chairs: Hossein Jadvar, MD and Andrei Iagaru, MD The Targeted Radioisotope Therapy working group is working to address underutilization of targeted radionuclide therapy, create updated patient materials for the website and patient education events, and educate legislators, regulatory officials, and funding bodies about the value of radionuclide therapy. Page 3 of 5 Work on the two TRT online modules has been delayed by the transition to the new learning management system. Past online modules, which were to be used as templates, were not available to Drs. Mittra and Zukotynski. Work on this project will resume once they are granted access to the migrated programs on the new system. Once complete, these modules will be made available for SNMMI members and interested nonmembers. SNMMI and the North American Neuroendocrine Tumor Society (NANETS) held their first joint symposium at the NANETS Annual Meeting on October 10,2014, in Nashville, Tenn., to provide an in-depth review of the clinical utility of the nuclear medicine technologies for NETs. The organizers, Drs. Andrei Iagaru and Pam Kunz from Stanford University, designed a comprehensive program that covered the history of somatostatin receptor imaging, current and future developments, a critical review of PRRT in current clinical trials, and the integration of PRRT into routine clinical care. The symposium was well attended and sparked significant discussion about improving the standard of care for NETs and revising the exclusion/inclusion criteria for future clinical trials. Since the area of nuclear medicine plays a significant role in the field of NETs, the NANETs program committee has requested another joint session for the 2015 program. In 2015, the group will create a new webinar series for patients. The series will consist of 5 webinars on the same topics and speakers selected for the physician series. Each webinar will have a nuclear medicine/oncology physician pair to present the disease management plan, and will be held during the respective national disease awareness month. Targeted Radioimmunotherapy for Lymphoma, Erik Mittra, MD and John Pagel, MD Therapeutic Landscape for Metastatic Prostate Cancer, Andrei Iagaru, MD and Sandy Srinivas, MD Y90 Microsphere Therapy for Liver Cancer, Ghassan El-Haddad, MD and Richard Kim, MD Peptide Receptor Radiotherapy for Neuroendocrine Tumors, Erik Mittra, MD and Edward Wolin, MD I-131 MIBG Therapy for Neuroblastoma, Ted Treves, MD and Katherine Matthay, MD In addition to webinars, the group will continue to propose educational sessions for the American Urological Association, North American Neuroendocrine Tumor Society, American College of Gastroenterology, and American Association of Clinical Endocrinologists annual meetings. The group aims to hold sessions at the subspecialty ASCO conferences in gastrointestinal and genitourinary cancers. Sessions have been accepted for American Urological Association's 110th Annual Meeting ("Update on Xofigo (Ra-223) Therapy, Post FDA Approval") as part of the plenary program. Dr. Erik Mittra, a member of this group, will be giving the talk. Joint symposia have been accepted by RSNA, ASCO and NANETS and planning is well underway. Lastly, in preparation for the approval of 177Lu-DOTA0-Tyr3-Octreotate, the group aims to hold 2 road shows to increase awareness of the newly available treatment. Industry Forum Education Working Group The education group is co-Chaired by Dr. Henry VanBrocklin and Marybeth Howlett. The group met at RSNA to finalize the objectives and begin developing tactics for each objective. The objectives are as follows: Page 4 of 5 1. 2. 3. 4. 5. Increase the knowledge of referring and imaging physicians of the appropriate use and benefits of NM/MI; thereby, increasing patient access a. Complete an inventory of educational outreach materials from each member of the group with existing materials (SNMMI, Eli Lilly, PETNet, Medscape). b. Review tactics that have been used in the past (e.g., CORAR) c. Have educational/outreach materials on the websites of referring physician organizations (ASCO, AAN, ACC, etc.); d. Work with industry to have NM/MI tests display on PACS systems. Educate payers on the clinical effectiveness and appropriate use of NM/MI procedures. Enhance patient awareness of the safety and efficacy of NM/MI procedures. Increase public awareness of the safety, value, and importance of NM/MI procedures. Educate policy makers on the value of NM/MI procedures. The group met via conference call on January 7th to discuss prior strategies for referring physician education and awareness and what types of programs worked/did not work. Another in-person meeting will be held on Friday, January 23rd at the MWM in San Antonio to finalize the plan before the full Industry Forum meeting on Sunday, January 25th. Page 5 of 5