Institute of Applied Health Sciences
University of Aberdeen
DATABASE REVIEW
Grampian University
NHS Hospitals Trust
THE SCOTTISH
UROLOGY CANCER DATABASE
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 1
Institute of Applied Health Sciences
University of Aberdeen
Contents
Contents
2
Introduction
3
History
3
Overview of Database
3
Database Structure
4
Main Table Summary
5
Patient Registration
5
Kidney
5
Renal Pelvis & Ureter
6
Bladder
6
Prostate
7
Testicular
8
Penile
9
Non-Surgical Oncology - Chemotherapy
10
Associated Publications
11
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
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Institute of Applied Health Sciences
University of Aberdeen
Introduction
History
The Scottish Urology Cancer Audit Database was created on an ACCESS Database in January 2001
under the sponsorship of the Scottish Executive, to store details of patients, across the whole of
Scotland, who have been diagnosed with a new primary urological cancer on or after 20 th January
2001. Data collection is planned over a 2 year period with a view to analysing investigations and
treatments for urological cancer patients.
Overview of Database
The Scottish Urology Cancer Audit Data is held on an ACCESS Relational Database on Personal
Computers (PC), within Aberdeen Royal Infirmary, Gartnavel General Hospital, Glasgow and
Western General Hospital, Edinburgh. The ACCESS database has been developed to allow data input
using a form layout and selection buttons to perform simple queries and produce reports. There are no
external links to any other systems and access is for single users only via a security password.
Information, currently being collected on patients across the whole of Scotland is held on 9 relational
database tables, containing basic patient information, clinical information on organs affected by
cancer and chemotherapy / radiotherapy treatments. These tables are detailed in the Main Table
Definitions Section.
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
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Institute of Applied Health Sciences
University of Aberdeen
Database Structure
CHEMOTHERAPY
studyno
PATIENT
REGISTRATION
DATA
studyno
studyno
RADIOTHERAPY
studyno
studyno
KIDNEY
RENAL PELVIS
& URETER
TESTICULAR
studyno
studyno
BLADDER
PENILE
PROSTATE
studyno
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
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Institute of Applied Health Sciences
University of Aberdeen
Main Table Summary
Patient Registration

Study Identifier

Consultant / Centre

Patient Postcode / Date of Birth / Sex

Hospital Identifier

Organ
Kidney

Study Identifier

Date / Source / Priority of Referral

Symptoms and Duration

Referral Delay

Date First seen by Hospital Clinician

Date of First Consultation with Surgeon

Date and Basis of Definitive Diagnosis

Site of Tumour / Area Affected

Number / Size / Type of Tumours

Fuhrman Nuclear Grade

Clinical Staging

Initial Treatment Intent

Radical / Partial Nephrectomy

Laparotomy Inoperable

Laparoscopy

Embolism

Other Surgery

Immunotherapy

Radiotherapy

Chemotherapy

Oncology Clinician / Hospital

Date of First Definitive Treatment

Reason for Delay

Clinical Trial Information
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 5
Institute of Applied Health Sciences
University of Aberdeen
Renal Pelvis & Ureter

Study Identifier

Date / Source / Priority of Referral

Symptoms and Duration

Referral Delay

Date First seen by Hospital Clinician

Date of First Consultation with Surgeon

Date and Basis of Definitive Diagnosis

Site of Tumour / Area Affected

Number / Size / Type of Tumours

Grade

Clinical Staging

Initial Treatment Intent

Nephroureterectomy

Partial Ureterectomy

Endoscopic Surgery

Immunotherapy

Radiotherapy

Chemotherapy

Oncology Clinician / Hospital

Date of First Definitive Treatment

Reason for Delay

Clinical Trial Information
Bladder

Study Identifier

Date / Source / Priority of Referral

Symptoms and Duration

Referral Delay

Date First seen by Hospital Clinician

Date of First Consultation with Surgeon

Date and Basis of Definitive Diagnosis

Number of Tumours / Maximum Diameter

Date of Initial Cystoscopy

Date of Initial Resection
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
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Institute of Applied Health Sciences
University of Aberdeen

Date of Complete Resection Debulking or Biopsy

Weight of Tumour Resection

Tumour Type / Grade

Clinical Staging

Initial Treatment Intent

Endoscopic Resection

Primary / Partial Cystectomy

Radiotherapy

Chemotherapy

BCG

Photo Dynamic Therapy

Oncology Clinician / Hospital

Date of First Definitive Treatment

Reason for Delay

Clinical Trial Information
Prostate

Study Identifier

Date / Source / Priority of Referral

Symptoms and Duration

Referral Delay

Date First seen by Hospital Clinician

Date of First Consultation with Surgeon

Date and Basis of Definitive Diagnosis

Basis of Histological Diagnosis

Weight of Prostate Resection

Type of Tumours / PIN

Gleason Score

Grade

Clinical Staging

Pathological Staging

Radiology for Clinical Staging

PSA

Initial Treatment Intent

TURP
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 7
Institute of Applied Health Sciences
University of Aberdeen

Radical Prostatectomy

Orchiectomy

Other Surgery

Radiotherapy Radical to Prostate

Radiotherapy Palliative to Prostate / Bone

IV Chemotherapy

LHRH

Anti-Androgen

Hormone Therapy

Oncology Clinician / Hospital

Date of First Definitive Treatment

Reason for Delay

Clinical Trial Information
Testicular

Study Identifier

Date / Source / Priority of Referral

Symptoms and Duration

Referral Delay

Date First seen by Hospital Clinician

Date of First Consultation with Surgeon

Relevant History

Other Conditions

Date and Basis of Definitive Diagnosis

Site of Tumour

Contralateral Testis

Basis of Diagnosis

Number / Size / Type of Tumours

Clinical Staging

Vascular / Lymphatic Invasion

LDH / HCG / AFP /S Category

Initial Treatment Intent

Radical Ablative Surgery

Organ Conserving Surgery / Other Surgery

Date of Surgery
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 8
Institute of Applied Health Sciences
University of Aberdeen

Approach / Technique

Contralateral Biopsy

Prosthesis

Radiotherapy

Systemic Chemotherapy

Oncology Clinician / Hospital

Date of First Definitive Treatment

Reason for Delay

Clinical Trial Information
Penile

Study Identifier

Date / Source / Priority of Referral

Symptoms and Duration

Referral Delay

Date First seen by Hospital Clinician

Date of First Consultation with Surgeon

Date and Basis of Definitive Diagnosis

Site of Tumour

Contralateral Testis

Number / Size / Type of Tumours

Grade

Clinical Staging

Initial Treatment Intent

Partial / Complete Penectomy

Inguinal Lymphadenectomy

Iliac Lymphadenectomy

Surgeon Specialty

Sentinel Node Biopsy

Other Surgery

Radiotherapy

Oncology Clinician / Hospital

Date of First Definitive Treatment

Reason for Delay

Clinical Trial Information
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 9
Institute of Applied Health Sciences
University of Aberdeen
Non-Surgical Oncology - Chemotherapy

Study Identifier

Consultant / Hospital

Oncology Identifier

Treatment Intent

Prescribed Treatment with To and From Dates

Chemotherapy Completed as Prescribed

Reason for Non-Completion

Response

Clinical Trial Information
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 10
Institute of Applied Health Sciences
University of Aberdeen
Associated Publications
None.
Scottish Urology Cancer Database
April 2001
DATABASE CODE: SUC
Page 11