DEVELOPMENT OF A NATIONAL HEALTH DATA DICTIONARY: A PALESTINIAN EXAMPLE Mazen Skeik, BSc. MPH Oct. 5th 2011 Palestinian Territories: (West Bank, Gaza Strip and East Jerusalem) Population: o o3.8 million 42.6% Refugees: o o28.5% in West Bank o71.5% In Gaza) o 1.3 M Health Care Providers : 1. 2. 3. 4. 5. Gov. (MOH) UNRWA NGO’s Private Military and Police The Health Data Dictionary (HDD) in Palestine: Health System Development Project (*HSDP) 1. Creating a HDD 2. Designing and implementing a Clinical Information System (CIS) o 3. To test the HDD Implementing a Health Insurance Information System * Financed by the International Development Association (IDA) MIS Component (Design and Proposed by Dennis Streveler (World Bank Consultant)) 1. Creating an HDD – Preparations: Preparation of data items and definitions (proposed time frame 8-10 months) Participation in several consultative meetings with representatives from: Policy Makers (MOH) Government Computer Centre Ministry of Interior (MOI) Computer Centre International projects United Nations (UN) agencies NGOs. Initiation of a National Workshop was supported and attended by the Palestinian Minister of Health 1. Creating an HDD – Groups Involved in design, implementation, and maintenance: National Health Data Dictionary Committee Coordinator (Technical Adviser) Key persons Representatives from Different departments in the MoH - - Statistics & Information Dept. Computer Dept. Health Insurance Special Treatment Dept. Hospitals Primary Health Care (PHC) Laboratories Pharmacist Dept. Financial Dept. Personnel Dept. Procurement and Purchasing Dept. Data Dictionary Specialist I Expert Working Group Representatives from MoH & Different Ministries Ministry of Health: Medical specialists, nurses, health care quality experts, management information system experts, allied health professionals, pharmacists, Computer programmers, statisticians and administrators. Ministry of Interior Government Computer Center (GCC). Palestinian Central Bureau of Statistics (PCBS). 1. Creating an HDD – Formatting data elements: Successful HDDs in other countries were investigated, and a template was created: Data Element Name Reference ID Data Element Type Definition Data Type Field Size Usage and Content Codes and Values Technical Comments 1. Creating an HDD – Involvement of Specialized groups: Collaboration between groups working on related fields: Senior Medical specialists Senior Nurses Health care quality experts Management information system experts Allied health professionals Pharmacists Computer experts Statisticians and administrators Agreements reached between each group involving definition and value of the data 1. Creating an HDD – Drafts and finalized HDD: First draft was introduced in a final national conference Final draft was reviewed by the national HDD committee Endorsed by the Ministry of Health Version 1 of HDD was published and produced Through video conferencing between WB and Gaza Distribution of hard copy of HDD in national workshop Version 2 of HDD was published in 2005 As an online PDF on the Ministry of Health website (www.moh.ps) 1. Creating an HDD – Important outcomes to the MOH: The Standardized Pharmacy: The (550) drugs in Gaza and the (700) in West Bank were merged into one list. The formulary is structured on 30 therapeutic groups. Codes and Values: (Concatenation of) A Type of healthcare product NN Name of category N Name of sub category N Name of sub-sub category NN Dosage form NN Product number For Example: (E EDL) 06 ANTI INFECTIVE DRUGS 2 ANTI BACTERIALS 1 B-LACTAM DRUGS 11 VIAL E06211107 BENZYLPENICILLIN 10 MILL IU When a dictionary can “enforce” accurate drug codes and positively identify the drug(s) being ordered, human errors and mistakes can be reduced. 1. Creating an HDD – Difficulties: Patient Identification Number (ID Number) A patient's unique number that is given at birth to facilitate retrieval of individual clinical records. Medical Record Number The number used by the Medical Records Department to identify the patient's permanent medical/health record file. 1. Creating an HDD – Difficulties: (Decision Made by Policy Maker) Decision made by H.E. Minister of Health: In MOH patient ID number and patient medical record number must be the same. 1. Creating an HDD – International Standard vs. Local Standard : Local Standard PHC Diagnosis Code The diagnosis established after study to be chiefly responsible for occasioning the patient’s episode of care in attendance at the primary health care facility. International standard (Principal Diagnosis in Hospital (ICD10) The diagnosis established after study to be chiefly responsible for occasioning the patient’s episode of care in hospital (or attendance at the health care facility). 2. Testing the HDD – Implementing the CIS: The Clinical Information System (CIS) i. ii. Registration Pharmacy Chronic Patient File To demonstrate conformance to standards as defined in the data dictionary Provide ongoing education and training for all staff in the clinic as appropriate to their use of data elements and their definitions 2. Testing the HDD – Pre/post measurement Indicators: Pre Measurement: Too many patients at one time (Registration takes too much time) Shortage of drugs for chronic patients (Unavailable accurate number of patients and schedules to get their treatment) Post Measurement: Patient registered one time, therefore resulted in fast retrieve of patient records and insurance checks Drug supplies now available for chronic patient 2. Testing the HDD – Implementation of CIS Patient Registration at the time of arrival 2. Testing the HDD – Changing to Computerized System: 2. Testing the HDD – European Gaza Hospital (EGH): Adoption of the HDD by another health organization EGH was running under European project Budget available allowed for the Implementation and Integration of HMIS in the Hospital HDD was used Training Conducted NOTE: Key representative from EGH were involved in creating the HDD Factors of Success: Political i. Support from High Level Policy Makers Organizational ii. Teamwork and close co-operation amongst the key stakeholders and senior specialists. Technical iii. Easy data module identified priorities to be included in the 1st HDD. Financial iv. All stakeholders were working volunteers Challenges: Political Situation Implementation Curfew (between and within WB and Gaza) Some un-interest and resistance from health staff to use HDD and change to a computerized system (more work!) Continuous education of new staff No commitment from other Health institutions to use the dictionary Sustainability Running cost for maintenance and updating the HDD Redesigning new forms Future Directions: Developing Countries Establish priorities and timing Sustainability (Short and Long Term Financial) Assign work to appropriate working groups Electronic Documentation and Publications Increase adoption of international standard Palestinian Health Information Centre Meeting With Health Information Centre Staff Meeting With Director of Computer Centre in the Ministry of Interior (MOI) Computer Department – European Gaza Hospital