Moving Palliative Care Upstream David E. Weissman, MD Professor Emeritus Medical College of Wisconsin Consultant, Center to Advance Palliative Care Objectives • List three benefits of integrating palliative care principles early into the course of chronic disease management. • Describe three new models of palliative care service delivery that seek to engage patients early in the disease course. • Characterize national efforts to impact health care policy concordant with palliative care principles. Historical Perspective • Phase I Hospice 1970s-80s • Phase 2 Palliative Care 1990s-2000s • Phase 3 Spread 2010s- The Palliative Care Intervention • Interdisciplinary teams – Patient-centered goals of care discussion • Realistic prognostication – Pain and symptom relief – Disposition planning reflecting patient goals – Patient/Family support – Bereavement support 4 Key Palliative Care Outcomes – Reduced ICU length of stay – Rapid symptom relief – Earlier referral to hospice services-longer – Greater patient/family satisfaction – Lower hospital cost – Prolonged survival (outpatient intervention) 5 Standards and Certification • Joint Commission Certification (2011) • NQF Palliative Care Care Standards (2012) • Commission on Cancer requirement, Cancer Center Accreditation (2011) • Board Certification, Hospice and Palliative Medicine – – – – Physicians Nurses: AP, RN, LPN Social workers Chaplains (pending) 6 What is left to accomplish? • In hospitals, at best, only 25-50% of palliative care needs are being met. – Variable penetration to areas of highest need: • ICUs, ED, Oncology, Neurology, Renal • Between hospitals and hospice there is a large gap of palliative care needs across the Continuum of health care. – Outpatient services – Long-term and Home care – Home care Hospitals • Not all hospitals have consult services • Those that do are typically overworked – High rate of stress/burnout – Many “martyrs” – Adding more staff is problematic • More staff leads to more consults The Referral Conundrum • Consults predominantly occur based on clinician values, rather than patient needs – Clinician values/attitudes inhibit provision of excellent palliative care services • My patient isn’t ready; my patient is not dying • I’m not ready for palliative care • I will not give up on my patient • Education alone will not fix this problem. Reality Check • There will never be enough palliative care specialists (all disciplines) to meet the demand. • Overall health care dollars will be shrinking. Solutions 1. Increase team efficiency: Accountability and Value 2. New team models 3. Integrate palliative care principles into high-risk locations 4. Identify unmet needs 5. Expand Generalist Palliative Care 6. Improve care across the continuum 1. Increase Team Efficiency • Close examination of the process of care delivery – Staff time studies – Determine cost/case – Use metrics to determine efficiency and value 2. New Team Models • “Counselor” Model – Med Center Central Georgia/UMDNJ • Staff – Specially trained communication “counselors” (Nursing, Mental health background) • Intervention – Manage most goal of care discussions – Work in both parallel and series with PC team 3. Integration Projects • Efforts to broaden the spread of palliative care principles into locations of high unmet needs, through … – setting collaborative goals – early patient identification (triggers) – systems change to guide right care at right time—routine family meetings – quality improvement-data driven change www.capc.org/ipal 4. Find the Unmet Needs A patient-centered approach would be to design a system where palliative care interventions are based on patient and/or disease factors, rather than clinician attitudes/values. Patients are fully informed about treatment options. Patients have equal access to all hospital resources. Patients receive only the life-sustaining treatments they desire/are appropriate to their medical condition/prognosis. Common trigger systems • ICU Length of stay Multi-organ failure Metastatic cancer Prolonged unconsciousness Nursing home admission • Emergency department • Oncology clinic • Special populations – LVAD/CHF – Nursing home admits – PEG or trach consideration 5. Generalist Pall. Care Need to imbed Palliative Care principles into the system of health care delivery – – – – – Commitment: time/$ Assessment: case finding—all patient screen Responsibility: QI Education: all clinical staff Standards: who/what/when Primary/Specialty Care • Primary Pall Care: all clinicians – Routine communication/symptom control • Specialty Pall Care – Family meetings—esp. “difficult cases” – Complex symptom management – Time management – Support for difficult decisions 6. Move into the Continuum • Outpatient Palliative Care Free-standing Co-management clinics: oncology, other Home visits IPAL-OP www.capc.org/ipal • Long Term Care Dedicated Pall Care staff Geriatric NP model Consultative external team What else is new? The Joint Commission The Joint Commission: Palliative Care Advanced Certification Program http://www.jointcommission.org/certification/palliative _care.aspx HEALTH REFORM Palliative Care is Central to the Success of Health Reform • >95% of all health care spending is for the chronically ill • 64% of all Medicare spending goes to the 10% of beneficiaries with 5 or more chronic conditions • Despite high spending, evidence of poor quality of care Palliative Care, Health Reform and Chronic Disease Care • Health reform initiatives – Reduce readmissions – Reduce cost – Improve quality/Reduce variation – Shift chronic disease care out of the hospital – Care coordination/Bundling/ACOs Palliative Care services/outcomes are perfectly aligned with all these priorities! 26 Payers are getting into Palliative Care What can you do? 1. Seek information: – What health reform initiatives are your administrators concerned about? – What committees are working on health reform topics? 2. Offer to participate; share information on palliative care role/impact – Mortality and readmission reduction – Cost control 28 What can you do? 3. Push for collaborative initiatives – ICU/ED/Cardiology/Cancer/Hospitalists – Focus on improving generalist palliative care rather than striving for more consults 4. Remind everyone about the 50%! – Seek opportunities identify patients with unmet needs 29 CONTACT ME • dweissma@mcw.edu • www.capc.org