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Choices and decisions towards the end of life

Annual Conference 2014

#sppc2014

RCPE-WIFI

Password: chiron1681

Guidelines will be available in

October at:

http://www.palliativecareguidelines.scot.nhs.uk/

Guidelines can currently be viewed at:

http://www.testing29.scot.nhs.uk/

Evidence-based clinical guidelines supports the provision of high quality palliative care by both specialists and general staff.

NHS QIS to work with Boards and SPPC to agree a national guideline for each core topic and a robust mechanism for reviewing and updating.

All Health Boards to ensure that guidance on all core topics is made available

National Palliative Care Guideline project started

Supported by Scottish Partnership Palliative Care

(SPPC) and Healthcare Improvement Scotland (HIS)

Co-chairs:

Dr Paul Baughan, GP, Dollar and clinical lead NHS FV

Dr David Gray, Consultant in Palliative Medicine Accord

Hospice, Paisley

Aim to include a mix of professionals including pharmacy, primary care and public representation

Choosing the Project Steering Group:

The Guideline Project Steering Group:

The Guideline Project Steering Group:

Not aiming for 29 sets of these:

HIS agreed to provide methodological advice

NES agreed to provide librarian support

June – August 2012 – 628 responses:

highlighted many things liked in existing guidelines

- some areas that would like to see developed

- suggestions about formatting / accessibility

Pain Assessment

Pain Management

Neuropathic Pain Management

Choosing and Changing Opioids

Anorexia/Cachexia

Bowel Obstruction

Constipation

Diarrhoea

Hiccups

Nausea and Vomiting

Oral Care

Care in last few days of life

Complex discharge for end of life care

SC hydration

Emergencies – fits/ MSCC/Bleeding

OOH Handover Information

Uncontrolled severe distress

Last days of life - Renal Disease

Delirium

Depression

Hyercalcaemia

Pruritis

Sweating

Syringe pumps

Breathlessness

Weakness/Fatigue

Cough

Produced with support of Scottish Palliative Care Pharmacists Association

Alfentanil

Fentanyl Patches

Fentanyl Nasal Spray (Pecfent)

Fentanyl Sublingual (Abstral)

Fentanyl Buccal (Effentora)

Ketamine

Levomepromazine

Lidocaine

Methadone

Methylnaltrexone

Midazolam

Naloxone

Octreotide

Oxycodone

Phenobarbital (Phenobarbitone)

Internal review of initial guidelines

Each subgroup reviewed other subgroups’ work

Steering group meetings held at GMC

Outcome of Internal Review of Guidelines

Supported by Scottish Health Council /

SIGN User Involvement Officer

Meeting in Edinburgh with carers and members of public

Helped to ensure focus and balance was right

Co-ordinated independently by Dr Paul Keeley

Experts identified from around UK

Comments to subgroups

Each comment logged and considered

Final drafts to Medical Writers for readability

Paper presented to national Directors of

Pharmacy

Letter sent to each health board ADTC recommending adoption of guidelines

Some Health Boards have already approved, others still to discuss

http://www.testing29.scot.nhs.uk/

HIS will take ownership of the guidelines

SHOW will host

App

HIS is developing a light touch process to ensure the currency of the guidelines in the future

Patient Information update – a separate project with dedicated funding and resources?

Electronic teaching modules for medical staff

Fiona Downs

http://www.testing29.scot.nhs.uk/guidelines/ab out-the-guidelines/contributors.aspx

Familiarise yourself with the guidelines

Discuss them with colleagues

Refer to them for clinical advice or when teaching

Ask your health board / MCN how they are promoting them

Choices and decisions towards the end of life

Annual Conference 2014

#sppc2014

RCPE-WIFI

Password: chiron1681

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