Manchester Hip Surveillance Pathway for Children with Cerebral Palsy 13th June 2011 Greater Manchester Cerebral Palsy Network Meeting Dr Wendy Rankin, Consultant Paediatrician Hip displacement (MP >30%) by GMFCS level Soo et al 2006 Hip Dislocation in children with CP according to GMFCS 60% 50% 40% 5 yrs 10 yrs 15 yrs 30% 20% 10% 0% GMFCS 2 GMFCS 3 GMFCS 4 GMFCS 5 Does hip surveillance work? • Haggalund [2005] showed results of first 10 years of a hip surveillance programme with early intervention surgery. – From 1992, only 2 children had dislocated hips out of 251 children with CP.. This compared to 8 in previous control group of 103 children • Dobson et al [ 2002] reported on first 3 years of Orthopaedic clinic based on early detection and surgery [total 133 children] – They showed elimination of hip dislocation and salvage surgery, at expense of rise in preventive surgery. Liverpool - Current recommendations for hip screening • Should start at 18 months [Dobson,2002, Hagglund,2005, Thomason,2002 ] • Should be repeated every 6 months in severely affected children and yearly in others children [Dobson,2002, Haggalund, 2005] • • How can this be rationalised ? All children age 18 months with bilateral spastic CP with high tone who are estimated to be in GMFCS 1V or V should have a hip radiograph in the standard position to measure migration percentage. [These children will have poor trunk and head control at this age]. This should be repeated 6 monthly. Others in GMFCS 111 with these features should have a hip radiograph at 30 months and then at yearly intervals until 8 years of age. Hip Surveillance Clinical Indicators: • All children with Cerebral Palsy* to have a standardised clinical hip assessment at every examination following diagnosis. Results to be recorded in patient’s notes. • A hip x-ray is required for: • • Children with CP* not walking independently by 30 months of age or not able to sit without support at 18 months. Children with CP* under 30 months of age presenting with: » » » » » » » » • Significant tonal abnormality Reduction of abduction range < 30 degrees Asymmetry of range of movement especially abduction Leg length discrepancy/ scoliosis Asymmetrical posterior skin crease Hip pain/ persistent disturbed sleep Parents report problem with cares DDH Children with CP* over 30 months showing clinical signs as above and not having had a hip x-ray previously, or last x- ray older than 6 months Manchester Hip Surveillance Pathway for Children with Cerebral Palsy Standard Child diagnosed with CP and notified to pathway co-ordinator Who Paediatrician or Physiotherapist Date date of diagnosis Classification completed (Appendix 1); copy to co-ordinator, main record and physiotherapy record Paediatrician with Physiotherapist date completed Examination of hips at each assessment; hip x-ray if Cause for concern (Appendix 2) Paediatrician or Physiotherapist (table) Manchester Hip Surveillance Pathway for Children with Cerebral Palsy Standard Who Date Routine hip x-ray according to severity level (appendix 3) and X-ray protocol (appendix 4) Paediatrician or Physiotherapist (table) MP > or = 30 degrees refer to orthopaedic surgeon Paediatrician (table) Manchester Hip Surveillance Pathway for Children with Cerebral Palsy Standard Who 24 hour postural management to be implemented within 3 months of referral – (i) Sleep support for GMFCS Level III – V (can be used from birth) (ii) Home seat for GMFCS Level III – V (can be used from age 3 months) (iii) Standing frame for all bilateral CP (can be used from age 12 months) Physiotherapist Date Date provided Date provided Date provided Manchester Hip Surveillance Pathway for Children with Cerebral Palsy Date What (examination, hip x-ray etc) Result Appendix 1 – CP classification • • • • • • • • • • • • • • • • • • • • CP Classification form Name of child Dob M/F NHS No Classification of cerebral palsy CP sub-type (see classification tree from SCPE) Function Motor GMFCS MACs Cognitive Vision Hearing Epilepsy Neuroimaging Cause / timing Classification under previous terminology Date completed by References 1. Revised classification. Dev Med Child Neurol 49 (2007) Supplement109 2. Surveillance of Cerebral Palsy in Europe (SCPE). Dev Med Child Neurol 42 (2000) 816-824 Appendix 2 – cause for concern suggesting need for hip x-ray • Significant tonal abnormality • Reduction of abduction range < 30 degrees • Asymmetry of range of movement especially abduction • Leg length discrepancy/ scoliosis • Asymmetrical posterior skin crease • Hip pain/ persistent disturbed sleep • Parents report problem with cares • DDH Appendix 3 –routine hip x-rays Unilateral Bilateral Others Severe* IV + V III X age 18/12 age 30/12 X • • age 30/12 annual hip x-ray until skeletal maturity I + II X X extensive plantar flexion of the ankle with limited ROM at the knee and hip during swing and stance phase X = only x-ray if cause for concern Appendix 4 – x-ray protocol correct positioning Appendix 4 – x-ray protocol migration percentage Migration percentage = (AC x 100)/AB