What We Wish You Had Told Us - Minnesota Brain Injury Alliance

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Nancy Hovila, Melinda Mast, Mandy Meyer
 Give
us hope but tell us the bad
stuff.
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

We must live with the effects of brain injury
each and every day.
Help us be better prepared.
Be honest with us.



As a parent we needed someone who would
provide RESPECT AND HOPE
I wish someone would have sat us down
and provided options: medical and nonmedical. We needed someone with a holistic
view.
In the midst of dealing with so many issues,
I wish someone would have taken us aside
and said, the body will heal as the body
heals, spend time on the spirit.


I wish that one single physician would have
said to us:
“No More Sports”

How To Find Support
Minnesota Brain Injury Alliance
Minnesota Department of Education
PACER Center
Referrals
Connections4Concussions
Terrill Foundation


How do I Map Quest the School System?
Where is the Parent and Child Handbook of
surviving 9th – 12th grades with a disability?


He probably will not be the person I married
25 years ago
◦ Personality changes
◦ Anger
◦ No filter
He will most likely have difficulty with
executive functioning
◦ Decision making
◦ Directions

Your life will never be the same
◦ I became a caregiver
◦ I became the head of the household
◦ I made all the decisions
◦ I had to check on his decisions
◦ There was no planning
◦ I didn’t have a partner any longer

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“If there are two paths, I want to be on the
one that leads to awesome”
“What will you create that will make the world
more awesome… nothing if you’re just sitting
there.”
“Create something that will make the world
awesome”
“If life is a game, aren’t we all on the same
team?”
“If everybody’s good, then it gives the world
a reason to dance…
so get to it!”


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Nancy Hovila – nancy.hovila@gmail.com
Mandy Meyer – mandy@kaoskennel.com
Melinda Mast – m.mast6106@gmail.com
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