+ Community Arts in Healthcare Program Planning Adapting Community Health Program Planning Models to the Arts in Healthcare JILL SONKE SHANDS ARTS IN MEDICINE UF CENTER FOR THE ARTS IN HEALTHCARE +Arts in Healthcare is a diverse, multidisciplinary field dedicated to transforming the healthcare experience by connecting people with the power of the arts at key moments in their lives. This rapidly growing field integrates the arts, including literary, performing and visual arts and design, into a wide variety of healthcare and community settings for therapeutic, educational and expressive purposes. Society for the Arts in Healthcare, 2009 + A rich body of research defines benefits, including: • shorter hospital stays •reduced need for medications • increased employee retention • more effective communication of health information Findings demonstrate that integration of the arts into healthcare: • helps to cultivate a healing environment • supports the physical, mental, and emotional recovery of patients • fosters a positive environment for caregivers Sonke et al., 2009 Rural Communities Higher rates of mortality are caused by preventable illnesses, including: • obesity •heart disease •diabetes, •infant and maternal death •lower respiratory diseases •suicide Poor health literacy accounts for a general lack of health-supporting behaviors and utilization of healthcare (Thomas, 2006; USDA, 2009) Rural Communities Significant factors in rural health disparities: • urban bias in health policy • poverty • limited access to healthcare • rural culture Social determinants of health, including rural culture itself, represent 50-60% of the overall influence on health outcomes in rural communities (Evans, 2004) Franklin County, Florida • One of the state’s largest counties at 545 square miles • 12,257 residents • 18% of those individuals living below the poverty level (compared with 12% in the state) • Median annual income of $26,756 (compared with $47,804 in the state) • One hospital within a 60-mile radius with 25 beds (including rehab/swing and emergency department beds) and an average daily census of 5-6 patients • One Federally Qualified Health Center (of 285 in the state) • Strong arts community due to tourism Sources: Florida Department of Health (2009) and US Census Bureau (2009) + A Basic (and insufficient) Program Planning Sequence 1.Needs Assessment 2.Clarify Goals and Objectives 3.Develop an Intervention 4.Implement the Intervention 5.Evaluate the Results + Background Information There is no perfect model Use one or find what fits/adapt elements from various models Remember the importance of responding to local populations, conditions, needs, culture, and resources Three F’s of program planning that can help with selecting the appropriate model Fluidity - steps are sequential Flexibility - adapt to needs of stakeholders Functionality - useful in improving health outcomes + Program Planning Models PRECEDE-PROCEDE MATCH CDCynergy SMART MAPP APEX-PH Healthy Communities (USDHHS) The Communication Model (NCI) Healthy Plan-IT (CDC) + Social Marketing •Social marketing seeks to influence social behaviors not to benefit the marketer, but to benefit the target audience and the general society •Used extensively in international health programs, especially for contraceptives and oral rehydration therapy, and is being used with more frequency in the United States for topics such as drug abuse, heart disease and organ donation •A good fit for Arts in Healthcare given its creative nature • Weinreich Communications: http://www.social-marketing.com/index.html Needs Assessment A systematic process of asking questions, comparing answers, and making informed decisions about what to do next to improve human or organizational performance a systematic process to guide decisions-making provide justification for decisions before they are made provide a systemic perspective for decision-makers allow for interdisciplinary solutions for complex problems offer a replicable process that can be used over and over again Focuses partners on shared understanding of issues and shared goals http://www.needsassessment.org/ Needs Assessment Maslow’s Hierarchy of Needs: Needs Assessment Normative Need The existence of standards or norms Expressed Need The level of “attempts” that have been made to meet needs/the number of people who have attempted to get help Perceived Need What people think their needs are or feel their needs to be Relative Need The gap between the level of services available in the community compared to those in similar communities or geographic areas Types of Needs Assessment Extrapolating from existing data (normative needs) Using resource inventories/community maps (normative needs) Using service statistics from social services or human services agencies (expressed need) Conducting a social survey (perceived need) Holding a public forum (expressed need) Community Mapping Identifying and understanding the “geography” of community resources in a particular area Serves as a basis for partner cultivation Inclusive in nature Sustainability Sustainability – factors influencing routinization resource stabilization – identification/commitment of human, financial, and other resources risk-taking - balance between exploitation of recognized activities and the exploration of new activities (builds confidence) Incentives - benefits outweighing costs for those involved in planning and managing adaptation of activities - the incremental adjustment of activities according to circumstances objectives fit – the level to which the program’s objectives fit with the values of the organizations and individuals involved transparent communication - helps program planners maintain a focus on a common purpose, increases trust and resource sharing, and allows members to discuss and resolve program challenges sharing of cultural artifacts - a means through which programs and organizations adapt to each other and encourage routinization integration of rules - the program’s rules are integrated into the rules of the participating organizations Pluye et al, 2005 Sustainability – guidelines for external organizations developing programs fund projects in existing agencies with some capacity to support them and to provide the expertise needed for carrying out the many facets of sustainability fund smaller scale projects that have local resources involved in order to build ownership of the project among local stakeholders identify, work with, and strengthen local champions to provide the leadership and knowledge of local organizations needed to sustain the project over time encourage planning for sustainability early in a project’s life cycle Scheirer, 2005 Meaning According to Viktor Frankl (1959), meaning is: • • • a universal human phenomenon that reflects an attitude or idea that people have about their reality the primary motivational force in humans the ultimate goal of human life Self-transcendence, Frankl an inherent characteristic of being human that leads to feelings of selfconfidence and the discovery of new purpose and meaning We self-transcend in three primary ways: by giving to the world creatively by being receptive to the world and others by choosing how to face adversity and find meaning Self-Transcendence – defined… The expansion of one’s awareness or boundaries: intrapersonally (sense of wholeness within self), interpersonally (connectedness to others and the environment) temporally (connectedness to future and past situations) transpersonally (connectedness to something greater than the self) Reed, 2003 Moving beyond the known boundaries of the self to achieve a broader perspective, which in turn helps one discover or make new meaning. Coward, 1993 The expansion of one’s conceptual boundaries inward through contemplative or introspective activities and outward through a heightened concern for the welfare of others. Vaughan, 1985 Reed’s Model of Self-transcendence Appreciative Inquiry Study of Weems Arts in Medicine Program (Sonke, 2009) Seven themes emerged in the analysis as primary categories: Meaning opportunities to help others benefits to others sense of community recognition of health benefits self-transcendence diversity (the functional coming together of diverse populations) Summary of Findings (grounded theory): program stakeholders can have experiences that lead either to selftranscendence or directly to meaning; through enhanced self-understanding, purpose and insight, selftranscendence leads to meaning; meaning, with its seven identified facets, leads to sustainability by producing excitement, commitment, collaboration; and routinization; and enhanced conditions for sustainability lead to continued involvement in the program. Thus, if a program can produce meaning, with or without selftranscendence, it has greater potential to be sustained over time. Sonke, 2009 I value the sense that I am helping people feel better… The difference that one person can make in another person’s life… It drives me. Weems Arts in Medicine Program Participant