Principle Set #3: The “if” of voice training and therapy: Factors affecting compliance Kittie Verdolini Abbott, PhD, CCC-SLP; 2011 Communication Science and Disorders School of Health and Rehabilitation Sciences Compliance • Defined: Extent to • Aspects: which patients – Seeking treatment implement health care – Behavior in health care setting instructions – Following recommendations after visit – Follow-up visits icardia.com Terminology is problematic • Compliance implies hierarchical (condescending) health care model; passive patient • Alternative terms – Adherence improves little to my thinking, but is widely used – Concordance model of health care (Bissell et al., 1997): Collaboration of pt and dr; at least in the past met resistance in practice (Bissell & Noyce, 1997) Measurement is problematic • Patients are often unreliable reporters • Physicians may overestimate (e.g. Gatchel & Baum, 1983) • Clinical outcome is not good indicator • Pharmacy refill info may be unreliable • Blood or urine assay may be best for pharmaceutical Rx, but not perfect due to different pt responses (Gatchel & Baum, 1983) Measurement updates • Electronic monitoring increasingly used effectively – E.g., compliance with isolation precautions (Ross et al., 2011) – E.g., compliance with voice therapy exercises (Doyle, personal communication; Nanjundeswaran et al., in preparation; Verdolini Abbott et al., in preparation) techfresh.net teenagelifestyle.com Factors affecting compliance DISEASE FACTORS Severity of health condition – Pt’s perception of severity increases compliance • Meds post stroke (Sappok et al., 2001) • CPAP for sleep apnea (Hui et al., 2001) • Incontinence treatments in women (Alewijnse et al., 2001) • Psychological treatment for insomnia (Morgan et al., 2003) Factors affecting compliance • Severity, cont’d – Rosenstock’s Health Belief Model (1974): Therapeutic action is related to four or more factors: • Susceptibility to disease • Perception of disease severity • Benefits of treatment • Barriers to treatment currentnursing.com Factors affecting compliance • Relevance for voice therapy? Factors affecting compliance DISEASE FACTORS Duration of illness – In some studies, negative relation to compliance – E.g. anorexia (Kahn & Pike, 2001) – Discussion? Why? http://www.helpfulhealthtips.com/wp-content/uploads/2008/04/Anorexia-Nervosa-2.jpg Factors affecting compliance PATIENT VARIABLES Demographic factors – Gender: No effect or males have an edge (Kittler, Weitzdorfer, Pehamberger, Wolff, & Binder, 2001; Maviglia, Teich, Fiskio, & Bates, 2001; Salmon, 2001) – Age: Varies across Dx (e.g. Maviglia et al., 2001; Gordillo et al., 1999; Kiortsis et al., 2000). – Race and ethnic group: Variable findings • When income and education was controlled, race did not emerge as a risk factor for mammography utilization (Rawl et al., 2000). Aside Dr. Guy Ashkenazi Department of Science Teaching Hebrew University Jerusalem • Googled “guy” • fh.huji.ac.il Factors affecting compliance • Race/culture: Study by White & Verdolini (in Verdolini & Ramig, 2001) – African-American gospel singers; Caucasian classical choral singers; about 50% of gospels singers hoarse; about 30% of classical singers hoarse on day of survey – Azjen & Fishbein mathematical model (Azjen & Fishbein, 1970, 1972, 1973, 1974; Fishbein & Azjen, 1975): B = IF + SN B = behavior (intention to seek treatment) IF = individual feelings about treatment seek SN = social norms about treatment seek Raw-Score Regression Weights are Shown, Based on 7-Point Ordinal Scale (-3 = Extreme Negative Influence; 0 = Neutral Influence; +3 = Extreme Positive Influence). Probability for Equations p Set at α = 0.10. (Data From White and Verdolini, Published in Verdolini & Ramig, 2001.) Intention to Seek Treatment Self Factor Social Factor Interaction (Self x Social) African American p = 0.08; N = 22 I= S(-0.17) SO(2.39) IN(-0.28) Caucasian p = 0.01; N = 58 I= S(0.98) SO(-0.08) IN(-0.04) Factors affecting compliance • Pt’s educational level: Little or no effect, or positive effect (CPAP for sleep apnea and heart failure; e.g. Evangelista et al., 2001; Hui et al., 2001). • Income: High-income and unemployed tend to be most compliant (e.g. al-Shammari et al., 1995; Lane et al., 2001; Pan et al., 2001; Pang et al., 2001) discussion?) dailyclipart.net Factors affecting compliance • Geography: Rural may decrease compliance (e.g. Eaker et al., 2001; Pan et al., 2001) • Transportation: Lack decreases compliance (e.g. Langkamp & Hlavin, 2001) cars-and-trees.com • In most studies, single demographic factors do not explain compliance; combinations of factors may – E.g. F, adolescent, large sibship, not accompanied by parent decreased antibiotic use following rheumatic fever (Gordis et al., 1969). Factors affecting compliance COGNITIVE, PERSONALITY, ATTITUDE FACTORS • Forgetfulness impacts negatively; remembering helps (e.g. al-Shammari et al., 1995; Chesney et al., 2000; Donohoe et al., 2001) • Some psychiatric conditions may decrease compliance (e.g. (DiMatteo, 1995; Gordillo et al., 1999; Shemesh et al., 2001) • Positive pt attitude about disease (I’m going to deal with this) increases compliance (e.g. Scherer & Bruce, 2001) • Confidence in treatment increases compliance (e.g. Donohoe et al., 2001) lost100pounds.wordpress.com Factors affecting compliance productivity501.com •Locus of control •Self-efficacy http://3.bp.blogspot.com/_7YR-Rsp2dxo/TOjKdHWkPoI/AAAAAAAAADM/4-gpgyDinjg/s1600/untitled.jpg Factors affecting compliance • Locus of control: – Men tend to have external locus for errors, internal locus for merit; women tend to have reverse (reference lost to follow-up!) – In health care, external locus of control negatively predicts compliance with medical treatment (e.g. HIV+; Gordillo et al., 1999) Factors affecting compliance • Self efficacy (Bandura, 1977) – One’s belief in one’s ability to carry out a behavior – State- not trait-specific (varies across situations; e.g. (Kaplan, Atkins, & Reinsch, 1984) – Experimentally manipulable with affective rewards in clinical environment (e.g. (McAuley et al., 1999) get-real-fitness.com Factors affecting compliance • Hundreds and even thousands of studies show positive influence of self-efficacy on compliance • E.g., osteoporosis prevention, alcoholism treatment, renal transplantation meds, treatment for atopic dermatitis, HIV retroviral meds, asthma treatment, exercise prescription, drug treatment for rheumatoid arthritis (quick lit review largely from 2001; in Titze & Verdolini, 2011) Factors affecting compliance • Self-efficacy for voice (Gillespie & Verdolini Abbott, 2011) sptimes.com • Fourteen teachers with selfdeclared voice problems • Received education about causes and treatments for common voice problems in teachers • Randomly assigned to (1) “abuse/misuse” language educational video; (2) neutral language educational video (double-blind) Factors affecting compliance • Self-efficacy for voice measured before and after exposures • Results showed subjects in “abuse/misuse” group did not show a reduction in self-efficacy for voice pre- to post-exposure • However, subjects in “neutral” group showed an increase in selfefficacy for voice with the exposure • Conclusion: Normal increases in self-efficacy, expected with patient education, was harmed by “abuse/misuse” language Factors affecting compliance • Larger-N studies needed for verification • Further studies also needed to determine effects of voicerelated self-efficacy shifts on patient compliance and treatment outcome • For now, some evidence is shown that “abuse/misuse” language may harm people’s self-efficacy for voice • We should therefore question seriously whether we should use the terms or not (I say not!) Factors affecting compliance • “Readiness” (Motivational Interviewing) – SE theory says people don’t comply because they feel they can’t – MI theory says people don’t comply because they feel they’re not ready • MI techniques help patients move through various stages to “readiness” – (For background and review relevant to voice, see Behrman, 2006) Factors affecting compliance SOCIAL VARIABLES • Social and family support enhance compliance, including HIV, diabetes, hemodyalysis (e.g. Kaplan, Atkins, & Reinsch, 1984) • Review study by White (gospel singers) (see previous discussion) Factors affecting compliance TREATMENT VARIABLES – Patient education: May or may not increase compliance (however note that often pts don’t understand what you tell them; 50% in one study; pts also forget about half of what you tell them quickly; Boyd et al. 1974; Spelman et al. (1967) – Pt’s perception of increased explanation may be the key for compliance (e.g. lipid-lowering drugs; Kiortis et al., 2000) http://bossip.files.wordpress.com/2010/10/dartmouth-old-lady-black-doctore1286646111253.jpeg?w=600&h=400 Factors affecting compliance • Information exchange: Match between pt’s desire for active participation and information may be key (e.g. Krantz et al., 1980) Factors affecting compliance • Frequency of treatment: Negative effect (e.g. depression, fertility meds; de Klerk, 2001; Kruse et al., 1993). • Complexity of treatment (dose number of time consumption): Negative impact (e.g. al-Shammari et al., 1995; hemophilia, Hacker et al., 2001; lipidlowering drugs, Kiortsis et al., 2000) • Relation to voice therapy? Factors affecting compliance • Written instructions: • Follow-up monitoring: Possibly positive Generally helps (e.g. alShammari et al., 1995; Atis et al., 2001). effect (e.g. DiMatteo & DiNicola, 1982) But note paradoxical • Asking pts to repeat results for smoking back instructions: cessation (e.g. Dornelas et al., 2000) May help (e.g. DiMatteo & DiNicola, 1982) • Self-monitoring aids may help (e.g. asthma treatment (e.g. Finkelstein et al., 2001) Factors affecting compliance • Self-management: May help (e.g. asthma; group had self-treatment strategies in case of exacerbation; greater self-efficacy and predicted self-care behavior at one-year FU; van der Palen et al., 2001) • Contracts: May help in some cases (e.g. severe personality disorders; Miller, 1990) blogs.forbes.com Factors affecting compliance TREATMENT EFFECTS • Side effects: Negative effect on compliance (e.g.Brook et al., 2001; Kiortsis et al., 2000; Lin et al., 1995) • Experiencing improvement: May help initially (“hook” in voice therapy); but then harm compliance (e.g.depression; (Demyttenaere et al.) etc.usf.edu Factors affecting compliance Clinician-patient interaction Compelling effect – Mom’s who perceived docs as business like had poorer satisfaction than if perceived as warm and caring (e.g. Korsch et al. (1968); Korsch & Negrete ; dissatisfaction led to poor compliance (1972) (e.g. (Francis et al., 1969). • Docs viewed as warm and friendly were considered nice and competent; docs seen as cold and aloof considered unfriendly and incompetent (e.g. Ben-Sira, 1976, 1980) Factors affecting compliance • Relevance in today’s referral patterns? Compliance package? zebrarug.com