Spirituality and Aging Andrea Sherman, Ph.D., President, Transitional Keys Endorsed by The George Washington Institute for Spirituality and Health (GWish). Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Learner Objectives 1. Discuss the vital role of spirituality in older adults, and in patient/caregiver relationships. 2. Distinguish between spirituality and religion and the impact of culture. 3. Discuss the relationship of spirituality and chronic disease. 4. Identify several methods for taking a spiritual history and know when it is appropriate to make such an assessment. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Learner Objectives (contd.) 5. Describe when it is helpful to connect to pastoral care, chaplains, and other spiritual advisors in different settings of care. 6. Identify and discuss interventions of spiritual care including the arts, story/reminiscence, and other therapies and modalities. 7. Understand the importance of self-care as a spiritual practice and list techniques that are useful. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality Spirituality has many meanings. Root-words (Hebrew, Latin and Greek): wind, breath, or air which gives life. Other word associations: Inspiration, meaning, beliefs and values, nature, connection, transcendent, purpose, journey, pilgrimage. Hope is an important element of spirituality. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality “Spirituality is that which allows a person to experience transcendent meaning in life…whatever beliefs and values give a person a sense of meaning and purpose in life.” (Pulchalski, 2000) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality: Relationship to Person/Patient-Centered Care Need to understand the person who has the disease and not merely the disease that the person has. Spirituality is integral to the care of the whole person. It is grounded in person/patient-centered care. Interdisciplinary team approach. Grounded in the biopsychosocial model of care. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Religion Root-word: Latin, to tie/secure/bind/fasten together to create system of attitudes and beliefs. Participation in an “organized” religion may involve: Practices Adherence to certain beliefs Participation in a religious community Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Religion Most of the research on spirituality and aging has been from a religion-oriented concept. Koenig, McCullough, and Larsen have extensively reviewed 1200 scientific papers and 400 review articles examining the relationship between religion and health outcomes such as depression, suicide, anxiety as well as heart disease, hypertension, cardiovascular disease and the brain, immune system dysfunction, cancer, mortality, pain and other somatic symptoms. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality and Religion Relationship May Change Over the Life-Span Spirituality Religion Individual Organizational Non-institutional/not organized Institutional/organized Where do I find meaning? What is true and right? Texts have personal meaning Religious text of tradition Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality, Religion, and Culture Culture frames both spirituality and religion, spirituality frames culture and religion, religion frames culture and spirituality. Culture Spirituality Religion All three impact one another. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Gerotranscendence Considered the 9th stage of lifecycle development (Erik Erikson developed 8 stages of lifecycle). Asserts that spiritual development gradually and steadily increases from middle age onward. 3 Dimensions: cosmic (life, death) self-transcendent (personal self no longer center of attention), and social selectivity (focus on close friends and family) elements. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies for Students Make a list of the words that you associate with spirituality, with religion. Compare and discuss. How do you think they relate to each other? What is the difference? Interview with a partner to learn how your spirituality has changed/grown over time. Discuss your reactions to the term Spirituality and Healthcare (as a combined term). Discuss: Have you had experiences where spirituality played a role in your healing, or a patient’s healing? (make sure to define spirituality). Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality and Suffering Suffering: “the state of severe distress associated with events that threaten the intactness of person.” (Cassel, 1991) “We need to learn to stay with suffering without trying to change it or fix it. Only when we are able to be present for our own suffering are we able to be present for the suffering of others.” (Halifax, 2008) The presence of pain compounds suffering and can result in spiritual distress. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Prayer The MANTRA project, clinical trial of cardiac patients at Duke University demonstrates the positive impact of prayer (prayed for by a religious group or receiving special bedside spiritual therapies, or both interventions) on patient outcomes, such as fewer complications, less medication needed and quicker return to health. (Krucoff, 1999) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Chronic Disease and Quality of Life . In a study examining the role of spirituality in the self-management of chronic illness among older Africans and whites, African American elders were more likely than White elders to endorse a belief in divine intervention. White elders were more likely than African American elders to merge their spirituality (self-efficacy) in various self-management practices. For both chronically ill groups, spirituality played an integral part in their health and well-being. (Harvey & Silverman, 2007) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Levin’s Research Spans Two Decades Levin’s research suggests that being involved in religious organization, with practices is correlated with improved health outcomes. For each of the 3 leading causes of death in the US : heart disease, cancer, and hypertension people with religious beliefs have lower rates of illness. Levin’s Research (each of the following offer specific health benefits): Religious affiliation Regular religious fellowship Religious beliefs Simple faith Mystical Experiences Absent prayer for others (separated from person praying for). (Levin, 2001) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality, Depression and Acute Heart Failure In an exploratory study of older persons hospitalized with acute heart failure, where depressive symptoms are often exhibited, there was a significant negative correlation between spiritual well-being and depression: those who had more depressive symptoms had a lower level of spiritual well(Whelen-Gales, et al., 2009) being. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Dementia and Spirituality In a study on Cognitive Decline in Alzheimer’s Disease: Impact of Spirituality, Religiosity and Quality of Life, 70 patients with AD were given the MMS to monitor rate of cognitive decline. Religiosity and spirituality were measured. A slower rate of cognitive decline was associated with higher levels of spirituality and private religious practices. The study concluded that higher levels of spirituality and private religious practices, but not quality of life, are associated with slower progression of Alzheimer’s Disease. (Kaufman, et al., 2007) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Dementia and Spirituality “A diagnosis of Alzheimer’s disease calls for even greater attention to be paid to spiritual well-being.” (Stuckey) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved End-of-Life This study examined resiliency factors and processes of older adults who experienced positive dying. Based on interviews with hospice patients and their caregivers, core resiliency factors identified: empowering relationships with others, spiritual beliefs and practices, ability to skillfully confront mortality, and a stable caregiving environment. Personal growth, spiritual well-being were interrelated in the dying older adult’s experience of life fulfillment. (Nakashima & Canda, 2005) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Improving Care for the End-of-Life Patient and Family Needs: Being held and comforted by loved ones. Being Listened to: sharing hopes, dreams, fears and anxiety. Having the opportunity to pray, meditate, participate in sacred rituals, listen to music. Receiving blessings form family, friends, clergy. Seeking Forgiveness form God, family and loved ones. Being at peace with themselves and others. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Case studies: Discuss in small groups: Case study: what would you do if you were asked to pray with a patient? Or to pray for them? Can you picture yourself helping someone who is dying? How? What do you have to offer that is unique? What do you fear about death? What do you think about the statement positive dying? Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Comment and discuss the following: “Of what use will I be to anyone even to God? (person newly diagnosed with Alzheimer’s Disease). “I no longer visit my father--it is a waste of time. He doesn’t remember me.” “Why should I give communion to demented elder? They don’t understand.” (Thibault, 2003) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Taking Spiritual History and Assessment The models guide the nurse in domains of questions that need to be addressed. Available tools: FICA Three Questions (social, emotional) HOPE SPIRIT Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved FICA© Developed by Christina Puchalski, MD F I FAITH: Do you have a spiritual belief that helps you cope with stress? With Illness? IMPORTANCE: What importance does your faith or belief have in your life? Does It influence how you think about your health & illness and healthcare decisions? C COMMUNITY: Do you belong to a spiritual community? Do you need to search for another community, would it help you if you found one? A ADDRESS IN CARE: How do your religious and spiritual beliefs apply to your health? How might we address your spiritual needs in your healthcare. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Three Questions Model Developed by C. Kinney, PhD, RN 1. What helps you get through the tough time? 2. Who do you turn to when you need support? 3. What meaning does this experience have for you? Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved HOPE Model Developed by Anadarajah & Hight H Sources of hope, meaning, comfort, strength, peace, O Organized Religion P Personal Spirituality E Effects on medical care and endof-life issues Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Other Sources of Spiritual Assessment Another model is the Spiritual History Model, developed by Maugans: Maugans, T.A. 1996, The SPIRITual History. Archives of Family Medicine, 5, 11-16. (Maugans, T. A. 1996) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Regarding Assessments Have students conduct spiritual assessments on each other, discuss with their partner, then in large group. Students discuss when they might use these assessments. Based on a particular spiritual assessment of a patient, develop a spiritual plan of care. Compare and contrast each model. Which one was easier to use? What is missing from the query/model, i.e. culture, Botanica uses Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Settings of Care: Spiritual Advisors Know who is available for spiritual support in all care settings -- from the home to the nursing home. Chaplains, clergy, pastoral care, or other spiritual leaders. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Healthcare Chaplains Chaplains: generic term that refers to any clergy or qualified layperson who assists patients, families and staff in addressing spiritual/religious needs. Exist in hospitals, prisons, military, mental health institutes. May come from any religious tradition, they may be certified. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved When to Refer to Chaplains Grief Isolation Major Change Difficult Ethical Issues Desire for Comfort Desire for Rituals Decision-Making Desire for “Sacred” Stress & Distress (adapted from Center for Spirituality and Healing, 2003) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Community Clergy/Community Support • Can be vital resource for home settings. • Often have the big picture of the older adult and their practical situation. • Support groups may offer support -i.e. breast cancer, grief, Alcoholics Anonymous. • May not have a degree. • May have congregational health ministry, faith community nurse, and parish nurse activities. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Discuss the role of clergy as members of an interdisciplinary team. Case study of transitioning older adult to another setting and providing continuity of spiritual care. Case study of community dwelling older adult and referral to spiritual advisor. Discuss clergy as surrogate decision maker. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Interventions of Spiritual Care: Overlap with Cultural/Psychosocial Care Creative/expressive arts Story/Spiritual Reminiscence Music Presence/listening/empathy Humor Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Creative/Expressive Arts Mastery and Control and Social Engagement through engaging arts programs yields better health outcomes. (Cohen et al., 1994) The New research on Creativity and Aging demonstrates, “The very act of engaging one’s mind in creative ways affects health directly via the many mind/body connections.” “Art is like chocolate to the brain.” - Dr. Gene Cohen - Dr. Gene Cohen Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Creative/Expressive Arts Art forms: Dance/Movement Music Visual Art is viewed as an integral component of spiritual care. Visual arts Theatre Poetry Writing Art heals dis-ease through expression, integration, imagery, symbols and imagination. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Music Studies have shown that a person’s favorite music can be a powerful distraction from pain. Music can be a bridge to connecting and to companioning. Assess for older adult’s musical preferences, mood, identification of music that produces happiness, sadness, relaxation, and the importance of music in their life. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Story “The stories people tell have a way of taking care of them. If stories come to you, care for them. And learn to give them away when they are needed. Sometimes a person needs a story more than food to stay alive.” (Bolen, 1994) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spiritual Reminiscence Focuses on gathering meaning through life story which becomes more significant with frailty, dementia, and disability. Considers past experiences and stories about: connectedness, faith context, joy, sadness. Reframes present events through reminiscence, allowing possibility for transcendence and finding hope amidst vulnerability. (MacKinlay & Trevitt, 2007) Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Compassionate Presence Deep and attentive listening connects you to the person you are caring for. “Bearing Witness” to whatever arises. “Being there” …being fully present in the moment and acknowledging deep belief systems and life world of self and (Watson, 1999) other. The word compassion means “to suffer with.” Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Humor Humor: Can be a source of spiritual uplifting and a coping mechanism during difficult times. Is viewed as transcendent. Connects and bonds people togetherconnectedness is a component of spiritual well-being. Cultural Sensitivity is an important consideration Releases endorphins and increases body’s ability to heal and to tolerate pain. Can reveal the truth about ourselves, melt barriers, and release stress. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Take a moment and think what music, poetry, dance have had an important spiritual meaning for you. Write them down and share. Discuss: if you had to bring a patient with dementia to a “place of art” which place/modality would you choose and why. Relate it to spirituality. Ask: What does art mean to you? Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Self-Care as Spiritual Practice The ANA Code of Ethics requires self-care. Know what renews and restores your spirit. Care for your body, mind and spirit. Create your home as a place to restore you. Create an “inner home” that you can go to throughout the day. Practice resilience throughout the day. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Integrating Self-Care Into Your Day How do you enter the room of your patient? Can you take a moment for yourself beforehand? How/where do you eat your lunch? How do you leave the room of your patient? Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Rituals of Self-Care Journaling Meditation Movement Music Nature Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Journal Topics Journal Topics: What made me happy today? I love work because…. • Write in the morning or before bedtime. • Write on your birthday. When I take care of older people… • Add doodles to your journal. I would like to let go of ….. • Write a poem, a song. Am I a spiritual person? I am comfortable with caring for people who are dying because… • Write for ten minutes and keep your hand moving! What restores me is …… Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Meditation Meditation is a quiet turning inward that can create relaxation, inner peace, and harmony. Stress reduction Reduce blood pressure, pain Enhance immune system Heightened connection to the sacred. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Movement, Centering, Relaxation Breathing is integral to self-care, learning to focus on the inhale and exhale of breath is key. Do something physical to get your energy moving, yoga, tai chi, dance, aerobics, swimming, walk. Take the time to stir your energies. Breathe, breathe, breathe Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Music Reduces pain Lower blood pressure Reduce stress Increase mood & positive feelings Release of emotions Healing effects Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Nature / Putting “Play” Into Your Life “Letting go” is vital to self-care. Nature is restorative, inspirational, and refreshing. Changing your environment is crucial to renewal. Nature provides a new perspective. Doing something different (known) in your environment. e.g., walk barefoot! Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Create an inventory of self-care activities in the last month and evaluate them. Perform one self-care activity each day and document them in a journal. Take moments to breathe throughout your day, while you are waiting for the elevator, climbing the stairs, or riding the bus. Think of one self-care activity/thing that you really like (need) e.g. mashed potatoes. If you had to do without it, what would you put in its place? Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Teaching Strategies Use your breaks to truly relax. Discuss the difference between “doing” and “being” as a nurse. What kind of support group would you start, at work, and why? Discuss. Distinguish between self-care as a spiritual practice and as basic psychosocial self-care activities. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality and Aging Websites: Curriculum The George Washington Institute for Spirituality and Health www.Gwish.org UTMB, Spirituality and Clinical Care, Course Syllabus 2010, http://inds.utmb.edu/Spirituality_and_Clinical_Care/default.asp University of Minnesota, Spirituality in Healthcare www.csh.umn.edu/modules/spirituality/index.htm Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality and Aging Websites www.wholistichealingresearch.com/ www.beliefnet.com/ www.new.towson.edu/sct/index.htm www.spiritualityandhealth.duke.edu www.asaging.org/networks/index.cfm?cg=FORSA Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Spirituality and Aging Websites (contd.) www.nationalconsensusproject.org/ www.professionalchaplains.org/ www.meaninginmedicine.org www.hpna.org/ http://cas.umkc.edu/casww/sa/spirituality.htm#LINKS www.parishnurses.org/ Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved Recent Studies/Reports Recent Studies and Resources are found on this slide’s Notes Page. Copyright, American Association of Colleges of Nursing and the JAHFIGN. All Rights Reserved