A Place To Be And Something To Do: Evidence-based Practices for Children with Autism Samuel L. Odom FPG Child Development Institute Goals of the Presentation • • • • Provide basic information about ASD Examine goals of inclusion Discuss forms of inclusion Describe measure of quality of programs for children with ASD • Identify comprehensive treatment models • Describe evidence-based focused intervention practices • Process of working from goal to practice selection Introduction 1 in 68 DSM 5 Diagnostic Criteria • Impairment in social communication • Restricted repetitive and stereotyped patterns of behavior • Onset prior to the age of three years Demographics • 75% are male • Multiple etiologies related to neurobiological causes • Unrelated to socioeconomic status or race • Range of IQ scores, but stretches across the continuum History of Disorder and Trends in Treatment • Kanner’s Discovery in 1940s • Psychodynamic approaches (KannerBettleheim-Greenspan) • Lovaas application of Applied Behavior Analysis • Structured psychoeducational approach (Project TEACCH) • LEAP and Walden programs among first inclusive programs Autism Mystique • Probably more than any disability, or unique set of abilities, autism has been shrouded in a treatment mystique • The etiology has gone from refrigerator mothers to epigenetics • Treatments are more diverse than any known disabilities • Treatment claims range from amelioration to recovery Defense Against the Dark Arts • Many interventions with no scientific evidence have been recommended for children with ASD Cutting Edge Interventions for Autism (Seri & Lyons, 2011) • Antifungal treatment • Aquatic therapy • Berad Auditory Integration Therapy • Chelation Removal of Toxic Metals • Craniosacral and chiropractic therapy • Dietary interventions • Hyperbaric oxygen therapy • Medicinal marajuana • Neuroimmune dysfunction and antiviral therapy • Sensory gym • Traditional and indigenous healing • Stem cell therapy • Transcranial Direct Current Stimulation Evidence-Based Practices • Translation of the intervention research literature • Most based on applied behavior analysis • Some from other theoretical perspectives What Do We Mean By Practice? Comprehensive Models vs. Focused Interventions • Focused interventions are procedures that promote individual skills or learning within a specific skill area. • Comprehensive models are multi-component programs designed to positively and systematically affect the lives of children with ASD and their families Definition of Inclusion • Placement of children with disabilities in programs with typically developing children • Inclusion defined in different ways (Odom, 2002) • Forms of inclusion – Community-based – Team teaching – School-based • Blended model Choice of Outcomes (Goals) Determine Supports Needed • Social Integration – Activities promoting social interaction with members of the class and community • IEP Objectives and Learning Outcomes – Procedures supporting learning goals Equity as a Fundamental Benchmark • Britto, Yoshikawa, & Bollers (2011) social policy report for Society for Research on Child Development • Equity is the key concept in establishing early child development programs in internation context – Access – Quality Outcomes of Inclusive Settings (Schwartz, Staub, Gallucci, & Peck, 1995) • Participation – As other classmates • Engagement – Meaningful involvement • Relationships – Formation of friendships Comprehensive Treatment Strategies • Multiple components • Broad scope • Intensity • Longevity • Manualized procedures Examples of Comprehensive Treatment Program • • • • • • • • • Lovaas Institute Pivotal Response Treatment Early Start Denver Model LEAP** TEACCH Project DATA** Princeton Child Development Institute** Walden** May Institute Features of CTMs that Focus on Inclusion • Assessment and goal development • Majority of children are typically developing • Class-wide and individual program designed for children • Naturalistic and direct instruction • Structure and predictability • Intensity • Parent program • Trained Staff A Technical Eclectic Approach • Local programs can and do create their own service models • Important to have a conceptual framework or theory of change • Necessary to have a proscribed (manualized) system of assessment, treatment selection, and evaluation • Necessary to stay close to the science in selecting interventions Influences Family & Student Priorities Goals Process Model Features • Social • Communication • Behavior Student Characteristics Current Environment Selection of EBP Program Quality Professional Development Technical Assistance & Support Future Environment Implementation Outcomes Quality is Important Interdisciplinary Teaming Program Ecology Learning Environment Structure & Schedule Positive Learning Climate Curriculum & Instruction Communication Social Competence Personal Independence Functional Behavior Assessment & IEP Transition (MHS only) Family Participation Program Quality Learner Outcomes Autism Program Environment Rating Scale (APERS) Formats • Preschool-Elementary – Inclusion preschools – Self-contained preschools – K-5 (or beginning of middle school) inclusive – K-5 self contained • Middle School-High School – Inclusive classes (assumes multiple classes) – Self-contained classes – Transition programs APERS Preschool-Elementary • • • • • Classroom Environments Class Structure/Schedule Positive Classroom Climate Assessment Curriculum and Instruction APERS Preschool-Elementary • Communication • Staff/Peer Relationships • Functional behavior (Challenging and Adaptive) • Family Involvement • Teaming Evidence-Based Practices Basing Early Intervention on Evidence-based Practices • Should draw from the current scientific information available that documents what works. – DEC Recommended Practices – National Standards Project – National Professional Development Center on ASD Systematic Reviews of the Literature for Evidence Based Practices (EBPs) • In 2009, 11 “treatments” or practices with an evidence base – Reviewed by National Standard Project from National Autism Center • In 2010, 24 EBPs – National Professional Development Center (NPDC) – Included 10 years, 1997-2007 • In 2014, 27 EBPs – Second review by NPDC – Included 22 years, 1990-2011 • 29,101 possible studies 456 studies • RCT, quasi-experimental, single case design – Strength of evidence for assessment – Based on number, type of studies using each EBP Odom, Collet-Klingenberg, Rogers, & Hatton., 2010.; Wong, Odom et al., 2014 RCT: randomized clinical trial autismpdc.fpg.unc.edu/sites/autismpdc.fpg.unc.edu/files/2014-EBP-Report.pdf Evidence – Based Practices (2014) Antecedent-based interventions Cognitive behavioral intervention* Differential reinforcement Discrete trial training Exercise* Extinction Functional behavior assessment Functional communication training Modeling* Naturalistic interventions Parent-implemented intervention Peer-mediated instruction/intervention Picture Exchange Communication System Pivotal response training Prompting Reinforcement Response interruption/redirection Scripting* Self-management Social narratives Social skills training Structured play groups* Task analysis Technology-aided intervention/instruction* Time delay Video modeling Visual supports * Added from 2014 literature review Evidence-based Practice Approach Wong, Odom et al. (2014) Selecting an Evidence-Based Practice • • • • • • • Goal: skill being promoted Your professional wisdom The learner’s learning style The learner’s temperament The learner’s interests and motivators Supports already in place* History of what has and hasn’t worked Evidence-Based Practices are Delicious Facilitators of Early Childhood Inclusion • Programs, not children, have to be ready for inclusion – Accepting philosophy – Quality of program (ECERS, ICP, CLASS, APERS) • Collaboration is the cornerstone • Specialized instruction is essential • Adequate support is necessary – Advocate in the administration – Resources for training and collaboration Delivery of Services • Initial training • Itinerant coach/ consultant in community child care or school setting http://autismpdc.fpg.unc.edu/sites/ autismpdc.fpg.unc.edu/files/NP DC_CoachingManual.pdf Elements of Successful Coaching Relationships Includes: • Trust and mutual respect • Training • Willingness to change • Professional attitude • Reciprocity • Communication Trust and Mutual Respect • Understand topic-comfort levels • Respect coaching partner’s professional skills • Use shared terminology • Express feelings honestly with compassion • Be open to each other’s belief system Issue of Program Intensity • National academy report recommended 25 hours per week of service • What do you think about this issue? • Intensity defined as engagement and opportunity to learn • Intensity directed toward learning goals: what if social integration is a goal? Questions and Comments?