Update on AAIDD Health and
Wellness Action Group
Healthcare Guidelines project
AAIDD Annual meeting
June 7, 2011
Saint Paul, Minnesota
Joseph O’Grady Jr. M.D. FAAP
Associate Professor of Clinical Psychiatry
Patient Safety and Quality Officer
Medical College of Wisconsin
jogrady@mcw.edu
414-955-8935
Medical Director
Vice President for Clinical Services
Phoenix Care Systems Inc
drogrady@phoenixcaresystems.com
414-226-1020
AAIDD
Health and Wellness Action Group HWAG
Healthcare Guidelines Workgroup
Joseph O’Grady Jr. Co-chair
Carl Tyler Co-chair
Alixe Bonardi
Tom Cheetham
Dalice Hertzberg
Sharon Oxx
Janet Reich
Bill Sullivan
Presentation goals
Know the current IDD healthcare guidelines
environment
Understand HWAG Healthcare Guidelines
project: purpose, goals, and current
status
Get feedback from AAIDD members
Presentation Outline
Introduction
Review IDD healthcare guidelines
environment
Review AAIDD HWAG Healthcare Guidelines
Workgroup project
Questions and feedback
Why is this important?
Healthcare disparities for persons with
intellectual and developmental disabilities
with increased rates of:
psychiatric disorders
medical morbidity
preventable mortality
dental disorders
‘Closing the Gap’ Dr.Satcher 2002
IDD Healthcare guidelines
environment
Currently there are 2 active IDD healthcare
guidelines projects:
Canadian project: focusing on
recommendations for primary care providers
Massachusetts DDS project: focusing on
recommendations for a broad base of
implementation
Agency for Healthcare Research and Quality AHRQ
National Guideline Clearinghouse www.ahrq.gov
National perspective
What is the role for AAIDD as a national
organization regarding healthcare
guidelines for persons with intellectual or
developmental disabilities?
HWAG Healthcare guidelines
project
Our Goal or Vision: position AAIDD as national
leader in healthcare for persons with IDD
Method: Use an expert consensus model
integrating Canadian and Massachusetts
guidelines using representatives from both
groups as well as AAIDD HWAG members
Focus: healthcare preventive screening for adults
with IDD
Target audience: persons with IDD, physicians,
providers, organizations, family/advocates
HWAG Healthcare guidelines
project
Project stages or Mission:
1. Development of guidelines/standards
2. Development of educational and
training programs based on standards
3. Development of Quality measures based on
standards
4. Generate data to guide practice based
research activities
5. Generate data to guide public policy
healthcare advocacy
HWAG Healthcare guidelines
project
Process
Planning began in 2008, meetings began in Dec 2009
monthly phone conferences
evidence based literature review
expert consensus process
assigned sections
behavioral and mental health
cancer
infectious disease
medical disorders
sensory disorders
wellness
HWAG healthcare guidelines project
Process:
section leader drafts proposals and
presents to group
group discussion
consensus recommendation written
supporting information listed: considerations,
important articles, websites, other
guidelines listed, level of evidence rating
above expert consensus
HWAG healthcare guidelines project
Process:
Section leaders as liaisons to other healthcare
organizations (will ask for organization feedback
once draft completed)
AADMD
IASSID
Special Olympics
DDNA
HWAG healthcare guidelines project
Progress:
Completed sections:
Wellness
Medical disorders
Partial completion
Cancer
Infectious disease
Pending
Sensory
Behavioral and mental health
HWAG healthcare guidelines project
Examples/handouts
HWAG healthcare Guidelines table
Wellness sample
Colorectal cancer sample
Medical disorders-osteoporosis sample
Guidelines table layout:
Guideline recommendation, considerations,
articles, links, other group recommendations,
ranking above expert consensus
HWAG healthcare guidelines project
Additional handout materials:
Massachusetts DDS guidelines
Canadian consensus guidelines 2011
Canadian tools 2011
preventive care checklist forms for
men and women
crisis plan form/ ABC form
http://www.surreyplace.on.ca/clinicalprograms/medicalservices/pages/primarycare.aspx
Summary
Review of IDD healthcare guidelines
environment with Canadian and
Massachusetts projects
Review of the AAIDD HWAG healthcare
guidelines project
Presentation of examples of current
guidelines
Feedback