A Fair Test of the IAPT LTC/MUS Pathfinders IAPT data GBU analysis? Professor Simon Jones Ms Eleni Theodorou www.clininf.eu www.surrey.ac.uk Objectives: To : • Share our outline analysis plan • What data to we have for the evaluation? • What is Good, Bad, or Ugly? www.clininf.eu www.surrey.ac.uk Subgroups of interest Long term condition Medically unexplained symptom Yes No Yes No Question: How can we identify people in the various groups? • Data sources • Fields and Codes • GBU analysis www.clininf.eu www.surrey.ac.uk Data Analysis for LTC & MUS service users For each of the subgroups • Socio-Demographics profile • Common mental health problems and other comorbidities • describe duration and type of intervention • outcomes of intervention • explore and quantify relations between independent/predictor variables • Question: Are there any other analysis which you would find useful? www.clininf.eu www.surrey.ac.uk Outcome scales • Personal Health Questionnaire (PHQ9) • Generalised Anxiety Disorder (GAD) score • Work and Social Adjustment Scale Score (W&SAS) Question: Which outcome is the most appropriate for MUS/LTC? • GBU analysis www.clininf.eu www.surrey.ac.uk Data Validation Study Validate the self-reported co-morbidities from IAPT dataset a against CHOICE (NIHR Programme Grant) data set based on routinely collected primary and secondary healthcare data sets (i.e. Doncaster and Newham). Primary care services • Use of medication • Psychotropic • Non-psychotropic • Referral rate Acute/Secondary Services • Outpatient activity • In-patient activity • Accident and Emergency activity www.clininf.eu www.surrey.ac.uk Economic analysis To ascertain the cost-effectiveness of the service in improving the outcomes of the different patient sub-groups • Convert PHQ-9 into QALYs – See Brazier, Yang , Tsuchiya , Rowen (2010) A review of studies mapping (or cross walking) non-preference based measures of health to generic preference-based measures, Eur J Health Econ. • To validate the map between PHQ-9 and EQ-5D we will also seek to identify a dataset where both PHQ-9 and EQ-5D are measured and observed and can be regressed along with interaction and polynomial effects to account for nonlinearity and other confounding variables. www.clininf.eu www.surrey.ac.uk IAPT Highlight Report www.clininf.eu www.surrey.ac.uk IAPT MDS - Personal and demographic details M/R R R M M M R M R R R R R Data Set Data Elements NHS NUMBER NHS NUMBER STATUS INDICATOR CODE LOCAL PATIENT IDENTIFIER ORGANISATION CODE (CODE OF PROVIDER) PERSON BIRTH DATE PERSON GENDER CODE CURRENT POSTCODE OF USUAL ADDRESS GENERAL MEDICAL PRACTICE CODE (PATIENT REGISTRATION) ETHNIC CATEGORY RELIGIOUS OR OTHER BELIEF SYSTEM AFFILIATION CODE SEXUAL ORIENTATION (CURRENT) EX-BRITISH ARMED FORCES INDICATOR LONG TERM PHYSICAL HEALTH CONDITION INDICATOR R (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) www.clininf.eu www.surrey.ac.uk IAPT MDS - Disability M/R R R R R Data Set Data Elements NHS NUMBER LOCAL PATIENT IDENTIFIER ORGANISATION CODE (CODE OF PROVIDER) DISABILITY CODE 01 02 03 04 05 06 07 08 09 10 XX NN ZZ Behaviour and Emotional Hearing Manual Dexterity Memory or ability to concentrate, learn or understand (Learning Disability) Mobility and Gross Motor Perception of Physical Danger Personal, Self Care and Continence Progressive Conditions and Physical Health (such as HIV, cancer, multiple sclerosis, fits etc) Sight Speech Other No DISABILITY Not Stated (PERSON asked but declined to provide a response) www.clininf.eu www.surrey.ac.uk IAPT MDS - Referral details M/R R M M M R R R R R R R R R Data Set Data Elements NHS NUMBER LOCAL PATIENT IDENTIFIER ORGANISATION CODE (CODE OF PROVIDER) SERVICE REQUEST IDENTIFIER REFERRAL REQUEST RECEIVED DATE SOURCE OF REFERRAL FOR MENTAL HEALTH SERVICE REQUEST ACCEPTANCE INDICATOR ORGANISATION CODE (CODE OF COMMISSIONER) PROVISIONAL DIAGNOSIS (ICD) YEAR AND MONTH OF SYMPTOMS ONSET (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) PREVIOUS SYMPTOM INDICATOR IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES CARE SPELL END CODE END DATE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) www.clininf.eu www.surrey.ac.uk IAPT MDS- Appointment details M/R R M M M M R M R R R R R R R R Data Set Data Elements NHS NUMBER LOCAL PATIENT IDENTIFIER ORGANISATION CODE (CODE OF PROVIDER) SERVICE REQUEST IDENTIFIER APPOINTMENT DATE CARE PROFESSIONAL ROLE CODE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) ATTENDED OR DID NOT ATTEND CODE CLINICAL CONTACT DURATION OF APPOINTMENT APPOINTMENT TYPE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) CONSULTATION MEDIUM USED THERAPY TYPE (IMPROVING ACCESS TO PSYCHOLOGICAL THERAPIES) (Up to four types may be recorded for each APPOINTMENT) EMPLOYMENT STATUS EMPLOYMENT SUPPORT SUITABILITY INDICATOR EMPLOYMENT SUPPORT REFERRAL DATE PSYCHOTROPIC MEDICATION USAGE R R R R R R R R R R R R R R STATUTORY SICK PAY INDICATOR PHQ-9 TOTAL SCORE GENERALISED ANXIETY DISORDER SCORE WORK AND SOCIAL ADJUSTMENT SCALE SCORE AGORAPHOBIA MOBILITY INVENTORY SCORE (WHEN ACCOMPANIED) AGORAPHOBIA MOBILITY INVENTORY SCORE (WHEN ALONE) AGORAPHOBIA SCORE GENERALISED ANXIETY DISORDER PENN STATE WORRY SCORE HEALTH ANXIETY INVENTORY SHORT WEEK SCALE SCORE OBSESSIVE COMPULSIVE DISORDER INVENTORY SCORE PANIC DISORDER SEVERITY SCALE SCORE POST TRAUMATIC STRESS DISORDER IMPACT OF EVENTS SCALE REVISED SCORE www.clininf.eu SOCIAL PHOBIA INVENTORY SCORE SOCIAL PHOBIA SCORE www.surrey.ac.uk Thanks for listening Simon Jones simonjones@surrey.ac.uk Acknowledgements: XXX www.clininf.eu www.surrey.ac.uk