Putting administrative data to work for child protection in Northern Ireland Dr. Trevor Spratt and Dr. John Devaney, School of Sociology, Social Policy and Social Work, Queen’s University, Belfast. Keeping Children Safe and Secure in Ireland: Maximising the use of existing data to inform Research, Policy and Practice. University College Cork, 12th – 16th September, 2011 Aims To demonstrate how research questions are generated via experience. To demonstrate how research questions are generated by developments in other fields. To demonstrate how research instruments may be adapted for use. To help you refine your own research question To identify the data sets helpful in answering our research question To describe the processes of linking such data sets To identify key lessons learnt from such processes To help you identify the types of data sets providing useful in addressing your own research questions Our first starting point - experience Practice experience indicated that children in some families were known to social workers for long periods of time. How might the needs of such children be best conceptualise? Present system built on fairly basic analysis of risk factors – often with regard to incident and frequency. We might also question the current configuration of child and family social work services – Looked After Children, Child Protection and Family Support Are there better ways to understand needs and stimulate alternative service responses? Our second starting point - Lessons from Frank – father of emergency medicine Frank Pantridge was a local Dr who was interested in how to best help people who had suffered heart attacks He designed the first portable defibrillator and in 1965 installed it in an ambulance As a result many lives were saved Obituary – ‘It was only after the usual 10-15 years of scepticism that a defibrillator was fitted in every ambulance in the UK’ Comparisons with Henry – father of emergency social work Henry Kempe is associated with the rediscovery of child abuse The battered-child syndrome 1962 Design of an interventionist child protection system Not as successful as Frank because of debate over which cases require intervention Beyond Frank Deaths from heart attacks have fallen by 40% in the UK since the early 1970s Researchers conclude that 58% of the mortality decline is attributable to reductions in major risk factors, for example, smoking Risk factors are identified by epidemiological evidence (associations between smoking and heart attacks) Reductions are achieved by public health programmes aimed at behavioural change Beyond Henry? Less children may be dying as a result of child abuse but many experience poor outcomes The common risk factors have been identified – these include the mental illness, substance abuse and domestic violence Social Workers have encountered difficulties in responding to the needs of this wider population, concentrating instead on incident led interventions. We need to move to a system that offers services to help prevent poor outcomes for children made on an analysis of risk factors and provision of services at an earlier stage alongside an ‘emergency’ response system. And yet.......... Risk still drives the system rather than support Hayes, D. and Spratt, T. (2009) Child Welfare Interventions: Patterns of social work practice. British Journal of SocialWork , 39, 1575-1597 Practitioners struggle to make a difference with families with certain types of problems Spratt, T. and Devaney, J. (2009) Identifying Families with Multiple Problems: Perspectives of Practitioners and Managers in Three Nations. British Journal of SocialWork , 39, 418-434 The focus on outcomes is still underdeveloped Davidson, G., Devaney, J. and Spratt, T. (2010) The impact of adversity in childhood on outcomes in adulthood: research lessons and limitations. Journal of SocialWork, 10, 369-390 Borrowing method - Links have been made between multiple adverse experiences in childhood and poor outcomes in adult life Research on adult populations suggests that many adult problems have antecedents in childhood Adverse Childhood Experiences (ACEs): experience of physical, sexual or psychological abuse, violence perpetrated against the mother, living in a household where there are substance abusers or mentally ill care-givers and having a parent imprisoned. Anda and Felitti (2006) found a strong graded relationship between exposure to ACEs and the development of adult diseases, including heart disease, cancer and liver disease. Other ways of seeing the issues: The Effect of Adverse Childhood Experiences on Adult Outcomes The ACE study http://www.acestudy.org Recurrent physical abuse Recurrent emotional abuse Contact sexual abuse An alcohol and/or drug abuser in the household An incarcerated household member Someone who is chronically depressed, mentally ill, institutionalised or suicidal Mother is treated violently One or no parents Emotional or physical neglect What’s My ACE Score? Prior to your 18th birthday: 1. Did a parent or other adult in the household often or very often… Swear at you, insult you, put you down, or humiliate you? or Act in a way that made you afraid that you might be physically hurt? Yes No If yes enter 1 2. Did a parent or other adult in the household often or very often… Push, grab, slap, or throw something at you? or Ever hit you so hard that you had marks or were injured? Yes No If yes enter 1 3. Did an adult or person at least 5 years older than you ever… Touch or fondle you or have you touch their body in a sexual way? or Attempt or actually have oral, anal, or vaginal intercourse with you? Yes No If yes enter 1 What’s My ACE Score? 4. Did you often or very often feel that … No one in your family loved you or thought you were important or special? or Your family didn’t look out for each other, feel close to each other, or support each other? Yes No If yes enter 1 5. Did you often or very often feel that … You didn’t have enough to eat, had to wear dirty clothes, and had no one you? to protect or Your parents were too drunk or high to take care of you or take you to the doctor if you needed it? Yes No If yes enter 1 6. Was a biological parent ever lost to you through divorced, abandonment, or other reason ? Yes No If yes enter 1 What’s My ACE Score? 7. Was your mother or stepmother: Often or very often pushed, grabbed, slapped, or had something thrown at her? or Sometimes, often, or very often kicked, bitten, hit with a fist, or hit with something hard? or Ever repeatedly hit over at least a few minutes or threatened with a gun or knife? Yes No If yes enter 1 8. Did you live with anyone who was a problem drinker or alcoholic or who used street drugs? Yes No If yes enter 1 9. Was a household member depressed or mentally ill or did a household member attempt suicide? Yes No If yes enter 1 10. Did a household member go to prison? Yes No Now add up your “Yes” answers: _______ This is your ACE Score If yes enter 1 Cumulative Effect of Adversity Number of Adverse Childhood Experiences (ACE Score) Women Men 0 34.5% 38.0% 36.1% (36.1%) 1 24.5% 27.9% 26.0% (62.1%) 2 15.5% 16.4% 15.9% (78.0%) 3 10.3% 8.6% 9.5% (87.5%) 4 or more 15.2% 9.2% 12.5% (100%) Total The Effect of Adverse Childhood Experiences on Adult Outcomes Prevalence ACE Scores vs Smoking 14 12 10 8 6 4 2 0 0 1 2 ACE Score 3 4 to 5 The Effect of Adverse Childhood Experiences on Adult Outcomes ACE Scores vs Adult Alcohol Dependence Prevalence 20 15 10 5 0 0 1 2 ACE Score 3 4 or more The Effect of Adverse Childhood Experiences on Adult Outcomes ACE Scores vs Parasuicide Prevalence 20 15 10 5 0 0 1 2 ACE Score 3 4 or more Refining our research question Our intuition from professional experience suggested that there were deeper processes at work shaping outcomes for children than those measures privileged by the system would suggest. Work in medicine demonstrated that reduction in risk factors at earlier stages had impact on outcomes. Research demonstrated previously unrecognised links between experience of multiple adversity and later outcomes Combining data sets suggested on possible solution to how we might begin to identify families with children experiencing multiple adversities Questions How might your own experience help inform your research question? What might be borrowed from other fields in terms of conceptual development and methodology? How might we approach the use of data sets in developing answers to our own research questions – trawling (seeing what comes up), or casting (purposeful fishing)? Background to Current Study Social problems are not evenly distributed across the population. They cluster within certain communities, families and individuals. Poverty, for example, is strongly associated with lower educational outcomes, alcohol and drug use, unemployment, poorer health, etc. Children from the 5% of the most disadvantaged households are more than 100 times more likely to have multiple problems at age 15yrs than those from the 50% of most advantaged households High levels of intergenerational continuity of social problems experienced in childhood Background to Current Study “Need” can be observed at the individual level (social work assessment) and the population level (epidemiology) Complex interaction between need, demand and supply at individual, family and community levels Three main ways of assessing need at the population level: - Official client records (hidden/unmet need). - Social surveys (response rates; measurement error) - Proxy indicators (wide range of methodological weaknesses) Background to Current Study Require research studies that can: assess long-term outcomes for children study rare events utilise quality data assess the impact of policy change provide real-time answers provide answers at different levels of analysis contextualise and triangulate (multiple data sets) Need for multi-sector longitudinal administrative datasets (Jonson-Reid & Drake, 2008) Study aim To assess the feasibility of constructing a longitudinal database of families and children through combining data from the CENSUS (NILS) with social services administrative data (SOSCARE) Funded by ESRC and Public Health Agency (NI) Objectives are to assess: Practicability of combining the datasets Accuracy and quality of the data Applicability of combined dataset to addressing questions on long- term multiple and complex needs The datasets Northern Ireland Longitudinal Study An anonymous sample (28%) of census returns from the NI population (similar datasets in England & Wales and Scotland) Around 500,000 individuals included within the NILS dataset Census information includes demographic, socio-economic, self-reported health, housing, household and family structure data Information is available on the selected individual AND their household Census information is also linked to other VITAL STATISTICS (births; deaths; migration; area information) Given the sensitivity of the data, analysis is undertaken within a secure setting, and is subject to increased scrutiny and heightened ethical and privacy protection protocols The datasets SOSCARE Main social services administrative dataset for recording client contact in Northern Ireland: Unique source of data on services to children within UK Universal Contains data on clients (demographic and assessment data) and activity (services received) While it does have limitations, efforts have been made to substantially improve quality Variables SOSCARE NILS i. Demographic Details - name - date of birth - address - other family members ii. Service Usage dates of referral services being provided name of staff involved date of termination of service iii. Fulfilment of Statutory Requirements dates of legal and case reviews legal orders applied for and granted completion of statutory assessments changes of placement for children looked after iv. Financial Payments - financial payments to individuals - financial payments to foster carer 2001 Census data for NILS members including data on: - Age, sex and marital status, Health & Care number - Family, household or communal establishment type - Housing, including tenure - Country of birth - Educational qualifications - Economic activity - Occupation and social class - Long-standing illness/Self-rated health - Religion - Care giving 2001 Census data for those living in the same household as a NILS member This provides contextual information about the household circumstances of NILS members Vital Events (GRO Data) - New births into the sample - Births to sample mothers - Stillbirths to sample mothers - Infant mortality of children of sample mothers - Deaths of sample members Valuations and Lands Agency (VLA) Data Advantages of this work Both NILS and SOCARE are longitudinal datasets (tracking families over time) allowing us to examine long term outcomes (1991, 2001 and 2011 census) Large sample size SOSCARE is relatively non-reactive SOSCARE provides details of clinical assessment and service utilisation Census has higher response rates amongst hard to reach populations than other social surveys NILS can track rare critical incidents (i.e. child fatalities). Provides details of family characteristics from multiple sources. Should permit individual and areal level analysis Should permit assessment of regional policy change Profiling and Comparing Populations A1: proportion and profile of children known to SOSCARE and NILS Children and families known to NILS B Children and families in deprivation A1 A2 C Children and families known to SOSCARE Note: 1. Circles are not to scale 2. Both datasets contribute cases A2: proportion and profile of children known to SOSCARE and NILS who also live in deprivation B: proportion and profile of children living in deprivation and are known to NILS but NOT to SOSCARE C: proportion and profile of children living in deprivation and are known to SOSCARE but NOT to NILS Progress Methodological Issues Legal Issues Ethical Issues Technical Issues SOSCARE Personal Identifiers Selected Variables Removed Selected Variables Northern Ireland Longitudinal Study (NILS) Health & Care Number Health & Care Number One way encryption One way encryption xyzb xyzb Matching Selected Variables xyzb removed New Dataset Selected Variables Selected Variables Personal Identifiers Removed Selected Variables Thoughts on the project so far Think of a number, any number, double it, add 10........ Legal issues involved in health data in UK Ethical issues surround administrative data sets are considerable and complex. Planning secondary analysis without the data in front of you is a challenge. Operational definitions are crucial (e.g. Differences between a family and a household) Data management issues are considerable (e.g. movers, clustering) Standard challenges of secondary analysis all apply Research and technical support is essential