Mobilizing Newcomers and Immigrants to Cancer Screening Programs Adriana Diaz, Project Coordinator, South West Regional Cancer Program Funded by Public Health Agency of Canada (PHAC) The views expressed herein do not necessarily represent the views of the Public Health Agency of Canada (PHAC). Why Do This Project? Newcomer/Immigrant populations Less likely to participate in cancer screening Have later-stage cancer diagnosis (sometimes present at stage of entry And as a result More likely to experience unfavorable outcomes from the disease Project Goal Develop, deliver and evaluate evidence-based cancer prevention and screening service delivery model Targeted to newcomer and immigrant under/never screened populations in London, Ontario Disseminate across Canada Project Deliverables Reduce barriers that limit access to cancer prevention/screening information and cancer screening programs Increase awareness about cancer prevention and screening Project Deliverables Improve cultural safety of immigrant and newcomer cancer care experience Promote participation of immigrants and newcomers in cancer screening and early detection Project Structure PHAC SWRCP Advisory Committee Members CCS LIHC MLHU Project Coordinator Focus Group Facilitators Iraqi PHE(2) SWRCP Admin Assistant Evaluator Consultant Arabic PHE (2) Spanish PHE (2) Nepalese PHE (2) Target population Immigrant communities Arabic Spanish Iraqi Health Providers Nepalese Middlesex London Health Unit PCP, Nurse practitioners and PCP office staff OBSP LRCP Peer Health Educator (PHE) Model PHEs “represent the intersection between risk and resilience, between institution and community, and between research and practice” (Landers & Stover, 2011, p.2198) The Institute of Medicine (2002) recommended that PHEs be included on multidisciplinary health care teams to address issues in serving racial and ethnic populations that face chronic barriers in accessing the health care system Peer Health Educator (PHE) Model Roles: preventative and health education interactions with other Health Human Resource (HHR) Research and health system access and navigation PHEs have strong ties, based on trust, respect, and mutual understanding, with the communities they serve PHEs understand the needs of their communities, mainly because they have lived and experienced those needs Peer Health Educator Training Phased Approach to Material Development Phased Approach to Material Development Community Evidence-Based Barrier Language “There are many brochures but they do not answer my questions. In our Latino culture we are more personal. I would like the information in person where I could ask in my own language. We do not want to read those and then look on websites or call that number” Spanish Participant Community Evidence-Based Barrier Knowledge “If I have an abnormal pap test or if I have cervical cancer, my husband should leave me…I would be disowned by my husband. I will not go… I have 4 kids” Arabic participant “Why does the doctor ask if I have relatives with cancer? Is it because it is contagious? Could I infect others?” Nepalese participant Community Evidence-based Barrier Accessibility “My mom had a medical appointment, so I had to go with her to be an interpreter. When we were in, I asked for a breast screening test – a mammogram – for my mom… …the answer was you need to book another appointment to talk about it. I do not have time and get permission…it is not easy… it is another barrier.” Spanish participant Phased Approach to Material Development Mobilizing Newcomers and Immigrants to Cancer Screening Programs Cultural differences among target populations necessitates Customized presentations Next Steps Develop test materials Evaluate and Refine Deliver KTE Focus test materials Review & Revise Phased Approach to Material Development Workshops Delivered by PHEs in their language Child care offered and refreshments Culturally-relevant/community locations Workshops Reducing cancer risk (healthy living) Breast, cervical and colorectal cancer screening programs Workshops Video – sharing personal experience in cancer screening “How to reduce your risk” form Booking mammogram and pap test appointments and arranging – “community appointments” Learning Points Peer Health Educators ‐ Approach communities in a culturally sensitive manner ‐ Build trust in communities ‐ Deliver information in own language ‐ Deliver information with understanding of culture, traditions and behaviors ‐ Find the right location Learning Points Use healthy living examples to help overcome fear and anxiety of cancer Immigrant communities participate in cancer screening programs when the purpose, access to programs, and procedures are understood Health Care Providers – Cultural Competency Workshops ABCDE Model for Cultural Competency Acknowledgements to SickKids Hospital in Toronto Grand Rounds LRCP (1) and Evening Workshops (2) Dr. Bhooma Bhayana, Schulich School of Medicine and Dentistry Dr. Jan Owen, Primary Care Lead, Southwest Regional Cancer Program Dr. Adriana Diaz, Project Coordinator Thank you