State MCH indicators of life course
Tegan Callahan, AMCHP
Caroline Stampfel, AMCHP
Andria Cornell, AMCHP
Bill Sappenfield, USF
Presentation Goals
• Share process for development of Life Course Measures
• Review summary final indicators selected
• Discuss public feedback received
• Share immediate project next steps
2
Growing focus on life course
2010
2011
2012
3
Purpose of metrics project
Develop tools to help state MCH programs and their partners emphasize a life course health perspective throughout:
• Assessment of risks, capacity, & services
• Planning programs
• Monitoring and evaluation of outcomes
• Engaging and educating partners
4
When a final set of life course indicators exists, what will the impact be for the health of moms, kids, and families throughout your communities?
“Support MCH program priorities to improve health outcomes, integrate and coordinate care systems, eliminate racism, and move toward equity.”
5
When a final set of life course indicators exists, what will the impact be for the health of moms, kids, and families throughout your communities?
“Help state health departments…come out of their silos and think outside the box to better design programs and interventions that impact the life course trajectory for mothers, children, and families.”
6
Process: Phase 1
Expert Panel convened
2012
7
How is Life Course defined for this project?
Core principles of a life course approach
A life course approach is based on a theoretical model that takes into consideration the full spectrum of factors that impact an individual’s health, not just at one stage of life (e.g. adolescence), but through all stages of life (e.g. infancy, childhood, adolescence, childbearing age, elderly age).
Life course theory shines light on health and disease patterns – particularly health disparities – across populations and over time.
Life course theory also points to broad family, social, economic and environmental factors as underlying causes of persistent inequalities in health for a wide range of diseases and conditions across population groups
Developmental Framework
Risk
• Experiences and exposures that indicate risk for future life course outcomes
Outcomes
• Outcomes that reflect or summarize an adverse life course trajectory .
Services
• Risk reduction and health promotion from services provided over time to MCH populations
Capacity
• Community and organizational capacity to address life course
9
Expert Panel convened
Expert Panel meeting
Knowledge transfer
2012
State Teams Selected
Proposed indicators
2013
Screened indicators
Write indicators
Select indicators
Public comments—Review
Final indicators
August 2013
10
Phase 2: State Teams Members
Florida North Carolina Nebraska
Iowa Michigan Louisiana
Massachusetts
11
Domain
Risk
Services
Outcomes
Capacity
Perinatal/
Infancy
Early
Childhood
Childhood/
School age
Adolescent
Young adult
Adult
12
Criteria: Data
1. Data Availability: Can the indicator be calculated in state and local public health agencies?
2. Quality: Accuracy and reliability including consistency of data quality and reporting across jurisdiction.
3. Simplicity: Level of complexity in both calculating and explaining the indicator.
13
Criteria: Life Course
1. Implications for equity: How well the indicator reflects and has implications for equity-related measures such as social, psychosocial, and environmental conditions, poverty, disparities, and racism.
2. Public health impact: Impact of a positive change in the indicator due to program or policy interventions.
3. Ability to leverage resources or realignment: How well the indicator reflects programs, services, and policies that expand beyond the traditional MCH focus?
14
Criteria: Life Course
4. Improve the health and wellness of an individual
and/or their children (intergenerational health): How well the indicator reflects the time and trajectory components of the life course theory with an emphasis on indicators that address critical and transitional periods throughout life.
5. Consistent with evidence base: How well the indicator is connected to our current, scientific understanding of life course health.
15
Selection Progress
(discussion/screening)
(scoring/voting)
Considered, not selected
59
16
Challenges
• Data availability at a state and local level
• Availability of non-traditional MCH data
• Data quality, simplicity
• Overlap with other measures
• Issues/root causes highlighted by other measures
• Research is still in the early stages
17
Public Comment Results
Changes to numerators/denominators
Alternative data sources
Confirmation of process
Delineation of FAQs
18
The Final Set
59 indicators across 12 categories
• Childhood experiences (3)
• Community health policy (2)
• Community wellbeing (6)
• Discrimination and segregation (5)
• Early life services (3)
• Economic experiences (3)
• Family wellbeing (11)
• Health care access and quality (8)
• Mental health (4)
• Organizational measurement capacity (3)
• Reproductive life experiences (8)
• Social capital (3)
19
Overlap Between Indicators
Title V measures
Preconcepti on health indicators
Healthy
People
Objectives
CDC winnable battle
Chronic disease indicators
NQF
United
Health
Rankings
16 8 36 6 14 9 6
20
Final Web-based Resource: Fall 2013
21
Final Web-based Resource: Fall 2013
22
Domain
Risk/
Outcome
Capacity/
Services
“Short List”
Indicator
Adverse childhood experiences among children (NSCH)
Experiences of race-based discrimination among pregnant women (PRAMS)
Experiences of discrimination among children (NSCH)
Households with a high level of concentrated disadvantage (ACS)
Children living in households where smoking occurs inside the home (NSCH)
Children or adults who are currently overweight or obese (NSCH, YRBSS,
BRFSS, PRAMS)
Depression among youth (YRBSS)
Household food insecurity (USDA ERS)
Preterm births (NVSS)
Stressors during pregnancy (PRAMS)
Incarceration Rate (BOJ, NPSP)
Children who receive services in a medical home (NSCH)
4 th graders scoring proficient or above on math and reading (NAEP) 23
www.amchp.org/lifecourseindicators