UPDATE on the US v. Virginia Settlement Agreement and National Enforcement Efforts U.S. Department of Justice Civil Rights Division Special Litigation Section Background • • • • • • • CRIPA investigation Expanded investigation – Apr. 2010 Findings – Feb. 2011 Negotiations – 2011-2012 Agreement – Jan. 2012 Approval by court – Mar. & Aug. 2012 Implementation / Enforcement – Now Activities of the DOJ FY 2013 • Meetings w/ Stakeholders (500+) • Families (waitlist, TC, waiver recipients) • Providers • Organizations • CSB’s • Case managers • Employment coordinators • Crisis services Activities of the DOJ FY 2013 • Reviewing Data • Meetings with Independent Reviewer • Meetings with State of Virginia • including drill downs on specific topics Topics we’ll discuss today 1. 2. 3. 4. 5. 6. 7. Waivers 8. Case Management Transition Planning 9. Access and Availability Indv. & Family Supports 10. Quality Assurance Crisis System Integrated Housing Integrated Employment and Day Activities Family-to-family and peer-to-peer programs Waivers FY 2014 • • • • 225 ID Waivers 25 DD Waivers 160 TC Waivers 40 prioritized for Youth in Nursing Homes/large ICFs • Independent Reviewer reported Virginia has allocated many more waivers than required in FY 2014 National Perspective: Youth with ID/DD in Nursing Homes Florida • 2012 Findings Letter – Found hundreds of children with significant medical needs resided unnecessarily in nursing homes & many more at-risk of entering nursing homes because lack of community alternatives and cuts to in-home supports (esp. in-home nursing) • After six months of negotiations United States filed suit in July 2013. – Lawsuit seeks a comprehensive remedy, including offering community alternative s to all children in nursing homes, effective transition planning, expansion of community-based and in-home services as alternatives to nursing home care, and changes to policies/practices re in-home supports. It also seeks damages for affected children. National Perspective: Adults with ID/DD in Nursing Homes Texas • Intervened in Steward v. Perry, a class-action regarding the unnecessary institutionalization of thousands of people with ID/DD in and at-risk of entering private nursing homes • Litigation implicates intersection of ADA and PASRR • Reached Interim Agreement (to be filed for Court approval in Aug 2013) that requires Texas to: – identify people with ID/DD in NHs, inform them about community alternatives, and establish necessary services and transition those who want to move to the community – create hundreds of new Medicaid waivers to transition people from, and divert people from entering, NHs – expand community-based medical services – establish a system to divert people from unnecessary NH admissions (including regional diversion coordinators) • Continuing to finalize a final comprehensive agreement Transition Planning FY 2014 • Individualized, person-centered plans • Essential supports and Barrier-busting • Both the DOJ and the Independent Reviewer will continue to focus on: – Adequate Community Options for those receiving waivers from the ID/DD waitlists and from Training Centers Indv. & Family Supports FY 2014 • In FY 2013 established the program and met targets of 700 individuals • Commonwealth reports that typical requests in FY 2013 were for respite, summer camps, or transportation • In FY 2014 required to support 1000 individuals • Commonwealth reports there will be an online application in addition to the paper application Crisis System FY 2014 • • • • • • • • Mobile crisis response times Crisis plans Region 4 & 5 stabilization units Transportation to the stabilization units Number of regional stabilization units Serving children with ID/DD Staffing Coordination with CSB Emergency Services Integrated Housing FY 2014 • Increased specificity of March 6, 2013 Housing Plan • Section 811 application • $800,000 Rental Assistance Pilot Program • Coordination with local housing entities • Increased development of living options National Perspective: Housing for People with Disabilities June 2013 HUD Guidance – HUD-funded affordable housing programs are a critical resource for Olmstead implementation – HUD is committed to ensuring that HUD-funded housing gives choice, self-determination, and opportunities for people with disabilities to live and interact with people without disabilities – Provides guidance on how to structure preferences that relate to state Olmstead implementation (VA has a HUD-approved preference for US v. VA implementation) National Perspective: Housing for People with Disabilities CMS Regulations re HCBS Settings – CMS finalizing regulations defining characteristics of community-based settings for HCBS authorities (1915c, 1915i, Community First Choice (1915k)) – NPRM has list of required positive characteristics for all HCBS settings, additional requirements for provider-owned settings, list of non-HCBS settings (eg, ICFs, NHs), and presumptively non-HCBS settings (eg, on grounds of or adjacent to public institution) Integrated Employment FY 2014 • December 2012 Employment First Policy • Increased specificity of November 7, 2012 Employment Implementation Plan • Sufficiency of March 29, 2013 supported employment targets • Implementation of training initiatives National Perspective: Integrated Days Rhode Island -- Investigation regarding adults with ID/DD in state’s largest sheltered workshop and pipeline of students from school-based SW to this adult SW -- Interim Settlement Agreement June 2013 • Integrated supported employment (individual placements, at least min. wage) and integrated day services for more than 200 people currently in SWs • “40-20” Integration Standard • Requirement of average of at least 20 hours a week across the group • Requirement of integrated day activities when not working, for a total of 40 hours of integrated work and non-work activities per week. National Perspective: Integrated Days Oregon • Findings Letter June 2012 – Found segregation in sheltered workshops of people who could and want to work in integrated settings – Focus on people unnecessarily in sheltered workshops and people at risk (esp. transition age students) – Seeks expansion of integrated supported employment (individual, at least min. wage) • Complaint and Motion to Intervene March 2013 – Over-reliance on segregated employment settings -- 61% of people receiving e-ment svs are in SWs; only 16% are in indiv. supp. employment – No real opportunity to leave segregated e-ment -- People remain in SWs an average of 11-12 years, up to 30 years. – Pipeline from school to segregated e-ment Family-to-family/Peer-to-peer FY 2014 • Activities of Family Recourse Consultant • Meeting with Family and Peer Mentors • Waitlist mentoring, as well as training center mentoring Case Management FY 2014 • Regular face-to-face meetings • Individual Support Plans • Enhanced case management – Safety – Increased integration • Role of case manager Access & Availability FY 2014 • Guidelines for families seeking services • Easy Access website • Transportation oversight • Access to Adaptive Equipment/ Environmental Modifications Quality Assurance & Risk Management FY 2014 • Expanded reporting: Computerized Human Rights Information System • Quality Improvement Committee • Regional Quality Council development • Quality Service Reviews development • Licensure • Process for Corrective Action Plans Independent Reviewer Next Report- Dec 2013 • Crisis Services • Case Management • Quality and Risk Management • Transition & Discharge Planning from Southside & Northern Virginia Training Center Websites • www.ada.gov/olmstead – All of DOJ’s Olmstead enforcement efforts nationally (findings letters, settlements, briefs, etc.) [includes US v. Virginia] – Guidance documents – Speeches – Faces of Olmstead • www.justice.gov/crt/about/spl/virginiaada.php • US v. Virginia specific website – Independent reviewer’s reports – Settlement agreement and summary – Findings letter Contact Information Kyle Smiddie Kyle.Smiddie@usdoj.gov 202-307-6581 Jason Hilliard Jason.Hilliard@usdoj.gov 202-353-1106 Bo Tayloe Benjamin.Tayloe@usdoj.gov 202-514-8103 Richard Farano Richard.Farano@usdoj.gov 202-307-3116 Alison Barkoff Alison.Barkoff@usdoj.gov 202-307-3216