Biology 112 : Medication and ethics – exit pass Name : _________________________ The million dollar drug that patients can't access Source : https://www.cbc.ca/news/thenational/the-million-dollar-drug-that-patients-can-t-access-1.4904458 Keywords : Lipoprotein Lipase Deficiency – Glybera – gene therapy The Science: 1. Why is the blood from people who suffer from LLD white? 2. What is the source of the disease? 3. What are the health problems associated with this disease? 4. How his the disease treated by Glybera? The Ethics: 5. Why is the medication so expensive? 6. According to you, what are reasons for the pharmaceutical company not to allow access to Glybera? 7. What would happen (to the company, to the public, to other companies, to the government…) if the pharmaceutical company did provide access to the medication? 8. Should the government (Medicare) pay for the treatment? What are the pros and the cons? Pros Cons 9. What are possible answers to these ethic issues? What are the actions that can be done? With what consequences?