Research Brief on Defining Disability for Reviews of the Literature Disability and Rehabilitation Research Project: Health and Health Care Disparities Among Individuals with Disabilities A Publication of the Institute on Disability at the University of New Hampshire Written by: Michelle L. Stransky, Ph.D. March 2014 A Summary of “Searching for disability in electronic databases of published literature” by Emily S. Walsh, Jana J. Peterson, Dolores Z. Judkins, and The Expert Panel on Health Care Disparities Among Individuals with Disabilities. (2014). Published in Disability and Health Journal, 7(1), 114-118. Introduction The variety of definitions of disability used in research has implications for conclusions about the association between disability and health.1 It is important to compare and contrast information on health using all of the definitions on disability available in the literature. Yet, doing so can be difficult because of the variety of terminology used. Overview The Institute on Disability at the University of New Hampshire was established in 1987 to provide a university-based focus for the improvement of knowledge, policies, and practices related to the lives of persons with disabilities and their families. Walsh et al. (2014)1 summarizes a process for systematically searching for research on disability in electronic databases of published literature. The Expert Panel recommended defining ‘disability’ using the World Health Organization’s International Classification of Functioning, Disability, and Health (ICF).1, 2 The ICF was chosen because it broadly defines disability in terms of personal, social, and environmental relationships.1,2 Additionally, the ICF is recommended as the model of disability by the Institute on Medicine1,3 and aligned with the goals of the National Institute on Disability and Rehabilitation Research grant that funded this project. Summary of Findings Walsh et al. (2014)1 found that: Designing a search strategy for “disability” involved creating heading and key word searches specific to the electronic database used.1 Body function impairment search terminology, such as ‘”activities of daily living”, was preferred to conditionspecific terminology because of the vast number of health conditions. Researchers also need to be sensitive to differences in terminology used in different fields, such as medicine, nursing, and psychology. This strategy worked well when assessed by quality controls and in a variety of databases. Questions/Comments: 603.862.4320 dph.iod@unh.edu www.iod.unh.edu/dph Available in alternative formats upon request. Summary of Implications The search strategy described here successfully located research using a broad definition of disability.1 Walsh et al. (2014)1 recommend that others preparing to conduct systematic reviews use this strategy to search the literature because this strategy was shown to include literature on a variety of types of disability while excluding research that was not relevant to the search terms. Conducting systematic reviews of the literature on disability and health will advance disability research and improve the lives of people with disabilities. Article Information This brief contains a brief description of the background, key findings, and implications of a published, peer-reviewed journal article. For more information on this research, please see the complete article1: Walsh, E.S., Peterson, J.J., Judkins, D.Z., & The Expert Panel on Health Care Disparities Among Individuals with Disabilities. (2014). Searching for disability in electronic databases of published literature. Disability and Health Journal, 7(1), 114-118. Available at: http:// www.disabilityandhealthjnl.com/article/S1936-6574%2813%2900164-7/abstract. The contents of this brief were developed by the Disability and Rehabilitation Research Project: Health and Health Care Disparities Among Individuals with Disabilities Project (Health Disparities Project), under a grant from the U.S. Department of Education, National Institute for Disability and Rehabilitation Research (NIDRR), grant H133A100031. The contents do not necessarily represent the policy of the U.S. Department of Education and you should not assume endorsement by the Federal Government. Endnotes Walsh, E.S., Peterson, J.J., Judkins, D.Z., & The Expert Panel on Health Care Disparities Among Individuals with Disabilities. (2014). Searching for disability in electronic databases of published literature. Disability and Health Journal, 7(1), 114-118. 2 World Health Organization. (2001). International Classification of Functioning, Disability and Health. Geneva, Switzerland: World Health Organization. 3 Institute of Medicine. (2007). The Future of Disability in America. Washington, DC: The National Academies Press. 1