The Regulation and Quality Improvement Authority Glenn Houston RQIA Chief Executive December 2015 The Role of RQIA Legislation RQIA Strategy Map: 2015-18 RQIA Stakeholder Outcomes Transforming Your Care “The policy aim for some time has been to shift care from institutional settings to home and community settings.” “Ultimately, older people want to stay at home, living independently for as long as possible, and the current model of care does not always provide the support needed to do so.” “Following from the key principle that home should be the hub of care, the Review recommends that steps are taken to support greater provision of services for older people at home and in the community.” Domiciliary Care Agencies Trust Area ‘Conventional’ ‘Supported Living’ Total BHSCT 27 34 61 NHSCT 21 52 73 SEHSCT 30 35 65 SHSCT 23 33 56 WHSCT 18 34 52 188 307 Total: 119 Domiciliary vs Residential Care Number of residential care home places Estimated weekly domiciliary care hours 2011 2015 2011 2015 224,473 250,798 4773 4210 Source: RQIA Source: DHSSPS Number of registered domiciliary care agencies and residential care homes 350 300 250 200 Number of residential care homes Number of Domiciliary Care Agencies 150 100 50 0 2011 2012 2013 2014 2015 2015-16 Domiciliary Care Inspection Themes Conventional Domiciliary Care Theme 1 – The views of service users and their carers / representatives shape the quality of services provided by the agency Theme 2 – Management systems and arrangements are in place that support and promote the quality of care services. Supported Living Domiciliary Care Theme 1 – Staffing arrangements Suitable staff are supplied to meet the assessed needs of service users Theme 2 – Service User Involvement Service users are involved in the care they receive Domiciliary Care – Service User Engagement • In 2014-15 RQIA conducted over 600 interviews of service users or their representatives • Overall, there was a high level of satisfaction from service users and their representatives A number of positive comments were received, including: However a number of issues were identified, including: Key Issues Going Forward • • • • • National Minimum / Living Wage Commissioning Arrangements Market stability Workforce retention / career structure Regulation and Quality Improvement Contact RQIA The Regulation and Quality Improvement Authority 9th Floor Riverside Tower 5 Lanyon Place Belfast BT1 3BT Web: www.rqia.org.uk @RQIANews Regional Review of Domiciliary Care A Managed Change An Agenda for Creating a Sustainable Basis for Domiciliary Care in Northern Ireland Rationale • Strategic Importance • Operational Challenges • Risk Management • Impact of Procurement Terms of Reference • Identify a more coordinated regional model for the development and procurement of the service • Compare Trust arrangements for delivery of domiciliary care to identify best practice • Examine service interfaces with domiciliary care • Consult with stakeholders about their experience of domiciliary care • Undertake an analysis of the market • Improve information relating to domiciliary care Analysis • Information - Activity/Finance data must improve • Market - Needs more detailed analysis and monitoring to manage risk effectively • Stakeholders - Focus on funding and workforce • Interfaces Domiciliary, Reablement, Self Directed Support development needs financial and strategic co-ordination to achieve service change • Trust arrangements - Scope for standardisation • Regional Model - Requires further research 1. Focus and Structure Structure - A ‘Task Force/Project’ approach to Domiciliary/Community Care development Community Care Project Group/Task Force Residential Care Domiciliary Care Nursing Care 2. Priority Tasks • Service Model - Review impact of GB based outcomes based models to inform service development • Information - Improve domiciliary care information - activity and finance • Produce an Electronic Care Monitoring System Business Case • Finance - Coordinate regional domiciliary funding to meet demographic and cost pressures and shape strategic change • Assess impact of the Living Wage and review comparative hourly costs of care for statutory and independent sectors • Contingency – Require Trust review of contingency planning arrangements 3. Joint Working • Procurement – Work with Business Services Organisation (BSO) in coordinating and managing tendering processes to move to a regional approach • Policy - Clarify Departmental view on charging for services and update practice Circular in line with recent NICE guidance 4. Participate/Influence • Workforce – Contribute to Departmental Workforce Planning Project • Liaison with NISCC to inform progress regarding workforce development Domiciliary Care in Northern Ireland A Report of the Commissioner's Summit Unknowns • Outcome of WHSCT Tendering • Registration of the Workforce • ‘Living Wage’ • Impact of HSC structural change • Impact of other market changes Making The Case for Domiciliary Care The importance of sustained lobbying Expect to be challenged Objectivity not anecdote Status quo is not an option The foundation of community based care Person-centred domiciliary care services – present experience, future challenges Maeve Hully 3rd December 2015 27 Patient and Client Council The Patient and Client Council is your voice on health and social care issues. We are here to: Listen and act on people’s views Encourage people to get involved Help people make a complaint Provide advice and information Introduction Providing high quality care enables people to have the best possible quality of life Challenges facing Health and Social Care which will impact on domiciliary care services: Increase in number of older people Growing numbers of people living with long-term conditions Health and social care budgets under increasing pressure Ageing population We are all living longer and the number of older people living in the community is set to increase. In 2035 there will be 65% more people aged 65+ compared to 2014. Anticipated greater demand for particular Health and Social Care services including domiciliary care. 2036 473,000 2014 Over 65’s 286,000 Over 65’s 65% Domiciliary care cervices in Health and Social Care Approximately 80% of recipients of domiciliary care are older people. In Northern Ireland at present Health and Social Care services provide: 250,000 hours per week of domiciliary care Domiciliary care provided for 25,000 people It is estimated that this will need to double in the next 20 years. £206m per annum for domiciliary care What people have told us 32 We’ve had thousands of conversations! People’s views have helped us write over 60 reports Reports have provided us with insight into people’s experiences of their Health and Social Care and what they would like to see in the future Person-centred care; people’s experiences “Services to fit around carer and client rather than the other way round.” “Staff are the most important factor of home based care” “Care in the community providing the dignity that people deserve.” “Improved support for people who wish to remain / be cared for in their own home.” “Treat every service user as unique.” Care at Home: Older people’s experiences of domiciliary care In 2012, we spoke to older people and their carers about their domiciliary care services. People told us domiciliary care is important because: It can enable people to remain in their home It helps maintain a sense of independence People appreciate the support of homecare workers who are kind, reliable and willing to help Carers are reassured that their relative is regularly monitored Care at Home: Older people’s experiences of domiciliary care Issues and themes which continue to be expressed to us through our work: Importance of consistency of care Older people want to know who is coming to their home People also want to have a conversation with their carers and are worried that they have too little time at each call They also want to know that homecare workers are treated well, properly trained and enjoy the job they do. Self-directed support Self directed support, through a personal budget allows individuals and families to make informed choices about the way care is provided to them. It is intended to support independent living by giving people more choice, control and flexibility over their own care. “By fully engaging with patients and their families, much can be learnt. Patients need to be involved and feel their voice can be heard.” “Direct payments (need to be) easier to access.” The future Increased demand for services. Higher proportion of older people in our society. Increased number of people with long term conditions / co-morbidities = greater and more complex needs. Supporting people in their desire to live at home will continue to be important. Work force which needs supported to deliver this care. Involving people in decisions about their care. Self directed support needed so that people are enabled to make decisions about their care. Questions? Thank you for listening www.patientclientcouncil.hscni.net 39 The right time, the right place. Making the case for homecare Colum Conway, CEO, NISCC 3 December 2015 The Role of the NISCC in the Quality Framework Registration And Regulation • Strengthen Public Protection Improving the Quality of Social Care Practice Workforce Development • Strengthen the professionalism of the workforce Standards • Raise Standards of social care practice 42 NISCC’s Register (as of Sept 2015) Currently 23,276 registered: 43 Registration of Final Groups of Social Care Workers • In June 2015, the Minister for Health, Social Services and Public Safety announced the start of compulsory registration for: Domiciliary Care Workers Social Care Workers in Supported Living Day Care Workers • Timeline – compulsory registration to be introduced by March 2017 44 Our Approach to Registration • Working directly with employers and social care workers to support the application process • Using the NISCC on-line portal for registration • Developing a Registration information pack • Developing a video guide to support the application process • Providing information workshops • NISCC has developed a section of the online portal for employers 45 46 47 • This section will give employers (endorsers) interactive views of all their staff currently registered or applying, to include: – their current registration status, including conditions – when their annual fee or renewal date is due – if they have been removed and the reason (ie nonpayment) – new applications and their status (ie waiting for ID, Fee, Endorsement) – letting NISCC know if an employee has left their organisation • Employer can export this information to a spread sheet and sort/ manipulate the data to suit their49 needs It is an employers’ responsibility to ensure their staff maintain a valid registration for the duration of their employment When compulsory registration is introduced, it will be an offence for an employer to employ a Social Care Worker who is not registered Know Understand Be able to do Standards of Practice for Social Workers Behaviour Attitudes Values Know Understand Be able to do Standards of Conduct Standards of Practice for Social Care Workers Safe and competent practice We have updated the Code (Standards of Conduct) and developed Standards of Practice They set out the universal standards expected of social workers and social care workers that they must uphold in order to be registered to practise in NI. Effective from 1 November 2015 Standards of Conduct Protect the rights of service users Earn and keep trust and confidence Help service users to be independent Help service users to protect themselves Encourage public trust and confidence in the social care services Be accountable for your work and take responsibility for professional development Understand the main duties and responsibilities of your own role within the context of the organisation in which you work Be able to communicate effectively Deliver personcentred care which is safe and effective Support the safeguarding of individuals Maintain health and safety at work Develop yourself as a social care worker Our role is to set standards of conduct and practice These are the standards that service users and the public tell us they expect Across NI, registrants are proud to uphold these standards every day The standards are of benefit to everyone who cares about social work or social care Educators can use the Standards to help students understand what it means to be a registered professional Employers can use them to support their staff in upholding standards as part of ensuring quality and safety Social workers and social care workers can use them as a way of reinforcing their professionalism Service users and carers can use them to provide feedback about the care they receive PRTL- 90 hours Workforce Development Partnership • Promotion and recruitment into the workforce Qualifications and skills to support the workforce Supporting managers in the workforce Communicating the right messages • Leadership • • • Developing resources to support practice DOMICILIARY CARE TOOLKIT IOS/Apple: https://itunes.apple.com/gb/ap p/domiciliary-caretoolkit/id844143321?mt=8 Android: https://play.google.com/store/ apps/details?id=com.learningp ool.domiciliary Caring for a person living with dementia at home. Fiona Brown Service Manager Caring • Difficult task but also rewarding • Proper support and understanding • 2/3 of people with a diagnosis of dementia live at home What is dementia? • • • • • Progressive Terminal Physical cause Affects everyone differently Affects individuals ability to think, learn, reason and remember • There is no cure • With the right support, people with dementia can live well • Dementia is caused by diseases of the brain • • • • • • 62% Alzheimer's disease 17% Vascular dementia 10% Mixed dementia 5% Rarer causes of dementia 4% Dementia with Lewy bodies 2% Frontotemporal dementia • 225,000 people develop dementia every year in UK, that's roughly one person every three minutes Common issues associated with Dementia • • • • • • • Changes in personality Changes in behaviour Difficulty in communication Fear of strange places or things Lack of insight Changes in life pattern Isolation Main concerns associated with caring for a person living with dementia in their own home. • • • • • • • • Aggression / agitation Non Compliance Lack of personal hygiene Confusion with simple tasks Lack of insight Inability to following instruction Sun downing Difficulty in time and place However there is no difference in caring for someone with dementia in their own home than any other care environment. Except? There is a need for proper training, care packages, carer support and education. Benefits of living at home • The person may be more comfortable in their own environment • They may be more secure • They may be more content Impact on Carers • Informal Carers may feel stressed and need support • Dementia is a gradual long good bye and this is emotional for the family Golden rule • People living with dementia are losing their rationale. Try and think of the situation the person with dementia finds themselves in, the fear, the uncertainty, the sheer unknown. • Jump from your reality into their reality. • How would you feel? • How would you like to be treated? • How would you deal with the unknown? Common issues and ideas how to manage the situation Bathing/ Showering Some people with dementia find the whole experience of bathing/showering terrifying. However it doesn't have to be. • Take your time • Explain what is happening short simple pointers. • If the person doesn't understand try and show them what they are to do. • Ask the family what was the person routine around personal care was there a favourite time of the day for bathing? • Remember a shower is frightening for people with no rational, it’s a cascade of water falling on them from above they are drowning. Aggression Misconception everyone with dementia becomes aggressive. Very few people living with dementia become aggressive. They may become agitated, frustrated or bored. What we may seen as aggression could be their way or expressing numerous things including 1. Pain 2. Hunger 3. Frustration 4. Infection 5. Dehydration 6. Boredom 7. Abuse/neglect Confusion with simple tasks What is a simple task? Making a cup of tea. Is it? Think of the steps to making a cup of tea. Add increased confusion, self doubt, and forgetfulness what happens? Think of other ways of demonstrating what you need the person to do simple fun ways. Singing the task, using different colours fount sizes in texts Sundowning • Common issue • Lack of stimulation. • A need to be needed to be busy • Why do people sundown? • What can we do now for the person to ease sun downing? The bookshelf model of memory storage Hippocampus memory Person with dementia • memories like books on a bookshelf • stored over time • most recent on top. • bookshelf wobbles • top shelf books affected first • progressively lower books fall. People with dementia …. • Need to feel that they still have a purpose • Need to be accepted and valued as they are • Have a right to a meaningful existence whatever their health needs • Look for ways to connect with a person with dementia • Recognise that although the brain damage and past life experiences of the person with dementia cannot be changed, we can change the way we provide care Things to remember 1. 2. 3. 4. 5. 6. 7. 8. 9. Be Calm. Be Clear. KIS Keep It Simple Maintain eye contact with the person living with dementia. People with dementia may be losing their rational and act on feelings Use different methods of communication. Explain clearly what you are doing. Support person with dementia to do what they can still do with support. Consider other reasons why a person maybe exhibit behaviours rather than just seeing it as a symptom of dementia. 10. Talk to the informal carer about likes/ dislikes/ past experiences. 11. Never force a person living with dementia to do something they don’t want to do. 12. Be truthful never try and bluff a carer or person with dementia. Don’t Panic Contact us through the National Helpline 0300 222 11 22 What services do we offer? • • • • • • • • • • • 1:1 support visits Carer support groups Dementia Information Programmes Carer Information Support Programmes (CrISP) Befriending Friendship groups Activity Groups Singing for the Brain Dementia Friendly Community workshops Helpline Advocacy services How can you help? Volunteering Opportunities • Service Support • Information support • Fundraising Campaign and media • Governance If you are interested in any of the above opportunities contact Your local volunteer Officer on 028 90387486 Empowering service users: Self-directed support and homecare UKHCA Northern Ireland Provider Forum 2015 Jonathon Holmes, Policy Officer, UKHCA 3rd December 2015 Self-directed support – beyond the jargon Simple concepts and complex language! “Placing the individual at the centre of any model by promoting a better outcome for the service user, carer and their family” (Transforming Your Care) Achieved by three mechanisms o A direct payment o An individual service fund o A managed budget Okay, but does it really matter? In short, yes. Self-directed Support fundamentally changes the way care will be purchased. Goodbye to block contracts and Hello to personal budgets The individual must be at the centre of the care plan Does the demand exist? Adults Receiving Direct Payments 3,500 3,000 2,500 2013 3,043 2012 2,895 1,000 2,704 1,500 2,608 2,000 2014 2015 500 0 Source: DHSSPS Direct Payments Quarterly Returns What are ‘outcomes’? “In social care, an ‘outcome’ refers to an aim or objective you would like to achieve or need to happen – for example, continuing to live in your own home, or being able to go out and about.” (TLAP) ? How is this any different from how we’ve always cared for people? A new commissioning framework Source: LGA and University of Birmingham, Commissioning for Better Outcomes What does good look like? o I have the information and support I need in order to remain as independent as possible. o I have opportunities to train, study, work or engage in activities that match my interests, skills and abilities. o I have care and support that is directed by me and responsive to my needs. o I have considerate support delivered by competent people. o I can plan ahead and keep in control in a crisis. o I know the amount of money available to me for care and support needs, and I can determine how this is used. Source: TLAP, Making it Real, The I Statements Concerns and opportunities Concerns o Fewer guaranteed hours o Fewer regulated providers – more personal assistants o Increased costs – actual cost and unit cost o Late payment and debt recovery Opportunities o Business diversification o An improved relationship between providers and service users o Private purchasing could be expected to grow o Incentives to integrate Group activity Group 1 Sally Group 2 Daniel Group 3 Peter All three receive a direct payment from their Health and Social Care Trust, split into groups and design a care plan for either Sally, Daniel or Peter. Try to think how you can creatively meet their needs and support them to achieve their desired outcomes. Discussion Have you worked with people who receive a direct payment or individual service fund already, what was it like? How do you think this will effect the way you deliver care? What are the implications for your business? Do you think you’re doing this already? Further Information UKHCA, Personalisation Factsheet: http://www.ukhca.co.uk/downloads.aspx?ID=470 The Centre for Independent Living: http://www.cilbelfast.org/ HSCB, Self-directed Support Index: http://www.hscboard.hscni.net/sds/index.html DHSSPS, Direct Payments: http://www.dhsspsni.gov.uk/directpaymentsabout