Oxfordshire Children’s Diabetes Service Children’s Hospital, Oxford OX3 9DU Horton Hospital, Banbury OX16 9AL Families and Diabetes It is not uncommon for family members to see things differently from each other; this can sometimes cause big problems. Teenagers in particular can find being in a family very hard at times. You may have found that you are having more arguments than you would like with your teenager, and that diabetes can be one of the things that you argue about. The aim of this leaflet is to help you and your teenager to deal with some of these “conflict” situations. When you are able to negotiate well with your teenager families can become well placed to support a young person with diabetes. Diabetes is an unpleasant condition Studies have shown that the vast majority of teenagers at some stage miss injections don’t do blood tests make up blood test results because they haven’t done any make up blood test results because the real ones are too high eat the wrong things They do these things because diabetes is a very difficult condition to have during teenage years. These are the years when children gradually seek to become more independent from their parents, however having diabetes makes this much harder for them than for their friends. Talking about diabetes Simply telling a teenager to do their injections and blood test is unlikely to work (at least not for long). You will need to have some conversations with your teenager about what they are actually doing and how they want to look after themselves. Their feelings may be a surprise to you but do LISTEN to them! Several studies have shown that the young people who do best in terms of diabetes control and psychological health are those whose parents continue to be involved and supportive with the diabetes management throughout the teenage years. Look at the following diagram Please email any comments you may have about this document to: Mary.Cheeseman@ouh.nhs.uk Paediatric Diabetes Team, May 2013 Review May 2016 2 Mum’s really mad at me! She’d be happier if my blood sugar were 7.5 or if I didn’t check at all! Mum, my blood sugar is 22.5 22.5! Why so high? What did you eat? That scares me! A high blood sugar like that could cause problems! When your teenager tells you that their blood glucose level is 22.5 it is often a natural response to make an assumption that they have done something wrong, such as eaten the wrong thing. This response will just set up a conflict situation, and may well prevent them talking to you about their diabetes at all. A better response might be the following Mum, my blood sugar is 22.5 I’m glad I told Mum. Now we can do something so I can feel better. That happens sometimes. It’s good you checked because now we can adjust your insulin dose before dinner! That’s pretty high. But the diabetes team said to expect some out of range blood sugars If you can keep this up, then you can start to allow your teenager to talk honestly to you. Agreeing about responsibilities Again, it has been shown in studies that young people do best with their diabetes if they and their parents agree on their responsibilities. For example, even doing a blood glucose test can be broken down into lots of small parts, and here is an example of how different people can be responsible for each “bit”. Please email any comments you may have about this document to: Mary.Cheeseman@ouh.nhs.uk Paediatric Diabetes Team, May 2013 Review May 2016 3 Job Remembering to do test Doing test Looking at meter to check result Writing result in book Reviewing results at weekends Who is responsible Dad/older sister Teenager Mum Mum Dad and teenager The same thing can be done with insulin injections, and it can be much more supportive for the young person to have mum or dad there, particularly when there are problems with the injections. But he should be independent now! Many parents think that once a child reaches around 13 or 14, they should be able to look after their diabetes entirely on their own. Unfortunately this is rarely the case. Look at the following examples of dependence/independence: 1. Carl’s parents take care of almost all his diabetes tasks. They’re worried that Carl isn’t able to care for his diabetes. 2. Jamie’s parents work with Jamie as a team on diabetes tasks. The discuss conflicts when they arise and work to compromise. 3. Mary does all of her own diabetes tasks and gets angry with her parents for interfering when they try to help Both 1 and 3 are not healthy situations. It is just as bad for a teenager to be entirely independent as it is to be entirely dependent, and the best option is number 2. However, this one probably takes the hardest work, as it involves discussion and compromise, neither of which are easy. Suggestions for you and your family These can be used in every aspect of life, not just the diabetes YOUNG PERSON Try to remember that when your parents remind you, it is because they love and care about you; they do not want you to become unwell. Talk to your parents about how you feel and what might be more helpful when they seem to be too involved Work to find ways for parents to help that feel comfortable and not overwhelming Find ways to compromise so that you can continue to do the things you enjoy. PARENTS Realise when your help is ‘too much’ and may be hurting rather than helping. Take a step back and discuss with your teenager how to improve the situation. Work to find ways to stay involved that your teenager is comfortable with. Remember that it is natural for teens to want more privacy and control. Please email any comments you may have about this document to: Mary.Cheeseman@ouh.nhs.uk Paediatric Diabetes Team, May 2013 Review May 2016 4 Ask for help from friends, family, your GP or your diabetes team If Conflict Happens Every family has conflict. Here are some suggestions which may help in dealing with conflict about any subject. Schedule arguments – perhaps a Sunday afternoon when everyone has time! Stay on topic – don’t allow anyone to wander off the subject I NOT U – “I get worried when you lie about your blood sugars” rather than “you lie about your blood sugars” Never say Never (or Always) – because someone will always be able to come back at you with the exception, e.g. “You never come in when I ask you to”, “You always blame me for everything!” Shut Up – Let everyone have a turn. Perhaps pass an object around the kitchen table, and only allow anyone to speak when they are holding it Mistakes Happen – and they can happen to anyone, so don’t always be quick to blame. We learn from our mistakes. Adapted from Chas Skinner, Psychologist Please email any comments you may have about this document to: Mary.Cheeseman@ouh.nhs.uk Paediatric Diabetes Team, May 2013 Review May 2016