NCI Funding Opportunities in HSR
and Outcomes Research
Steven Clauser, PhD
Chief, Outcomes Research Branch
Applied Research Program
Division of Cancer Control & Population Sciences
http://appliedresearch.cancer.gov/
Academy Health Annual Meeting
Boston, MA June 29, 2010
Session Outline
• Who We Are and What We Do
– Organizational expertise
– HSR/Outcomes priority research areas
– NCI Funding for HSR-related research
• NCI Research Resources for HSR and
Outcomes Research Investigators
– Research data and/or practice based consortia
connections for extramural investigators
• HSR/Outcomes Research Funding
A
Announcements
t iin C
Cancer
Energy Balance
and Cancer
Health Services
Research
Cancer Screening
Quality/Patterns
of Care
Program
Evaluation
Outcomes
Measurement
ARP STAFF
EXPERTISE
Health Disparities
Cost-Effectiveness
Analysis
y
Genetics and
Family
y History
y
Diet, Physical Activity,
Tobacco
http://appliedresearch.cancer.gov/about/staff/
Health Services and Economics Branch
The Branch’s mission:
•Support, conduct, and coordinate research on the
dissemination of effective cancer
cancer--related health services
into community practice.
•Study demographic,
demographic social,
social economic,
economic and health system
factors as they relate to providing preventive, screening,
diagnostic,
g
, and treatment services for cancer.
•Improve cancer outcomes, reduce cancercancer-related health
di
disparities,
ii
and
d reduce
d
the
h burden
b d off cancer to patients,
i
their families, and society.
Outcomes Research Branch
The Branch’s mission:
• Support, coordinate and conduct research to
measure, evaluate, and improve patient-centered
outcomes of cancer care delivery across the cancer
care continuum.
• ORB is particularly interested in morbidity and
mortality outcomes, patient symptoms and healthrelated quality
y of life, and patient experience of and
satisfaction with health care.
• Improve the organization and delivery of cancer ,
especially as it relates to the adherence to evidence
based practice in the diagnosis, treatment, and
palliation of cancer.
cancer
HSR/Outcomes Research is Relevant
Across the Cancer Continuum
Prevention
Detection
Diagnosis Treatment
Prevention
•Obesity diag•Cancer
•Risk
nosis
i & mgmtt Screening Assessment
•Risk Assessmnt Recommen- (Cancer
•Communication/ dations and g
genetics))
Counseling
Practices
•Timely
•Cancer chemoDiagnosis
prevention
p
and Referral
Cross Cutting Topics
Access to Care
Health Disparities
Economics of Cancer Care
Quality of Care
Q lit off Lif
Quality
Life/Patient
/P ti t Centered
C t
d Care
C
Survivorship
•End-of-Life •Follow-up
Care
of cancer
•Use of
survivors
EvidenceBased
Therapies
•Pain/Symptom
Pain/Symptom
Management
Health Services/Outcomes Research
$30,000,000
n=52
Awarded Grants - FY01 to FY09
$25,000,000
n=59
$20 000 000
$20,000,000
n=50
n=40
n=55
$15,000,000
n=22
n=45
n=18
$10,000,000
n=23
$5,000,000
$0
2001
2002
2003
2004
2005
2006
2007
2008
2009
Health Services/Outcomes Research
$60,000,000
$50,000,000
n=121
A
Awarded
d d Grants
G
t - FY01 to
t FY09
$40 000 000
$40,000,000
* Includes ARRA funding
$30,000,000
n=59
$20,000,000
n=50
n=40
n=55
n=22
n
22
n=45
n=18
$10,000,000
n=23
$0
2001
2002
2003
2004
2005
2006
2007
2008
2009 *
Data Resources for Investigators
• Cancer Registry Based Resources
– SEER
– SEER-Medicare Linked Databases
• Consumer and Healthcare Provider
Surveys
– National Health Interview Survey
y Cancer
Control Module
– California Health Interview Survey
• Public
P bli Health
H lth Research
R
h Resources
R
– Cancer Planet
• Outcomes Research Resources
– SEER-Medicare Health Outcomes Public
Research Resource
SEER-Medicare is a Growing
Research Resource
Growth in SEER-Medicare Research
Over 400 peer reivewed publications to date
120
100
80
60
40
20
0
New Requests
Manuscripts
p
reviewed
Year
2009*
2008
2007
2006
2004
2005
2003
2002
2000
2001
1999
1998
1997
1996
Published
papers
PROMIS Measure Website
http://www.nihpromis.org
What would you
like to measure
i your study?
in
t d ?
pain
fatigue
emotional
di t
distress
physical
function
Click below for:
Domain
definitions
item content
review
item
characteristics
or select a box on the right and proceed
social role
participation
NCI Health Services Research Networks
• National, multi-site research networks that
– C
Can enroll
ll large
l
cohorts
h
off individuals
i di id l
– Track receipt of cancer control services
longitudinally at the patient
patient, provider
provider, and health
system levels
– Investigate impact of interventions on patientcentered
t
d outcomes
t
• Current Examples
– Breast Cancer Surveillance Consortium (BCSC)
– Cancer Care Outcomes Research and Surveillance
Consortium (CanCORS)
– Cancer Research Network (CRN)
– NCI Community Cancer Centers Program
Relevant NCI Program Announcements
• The Effect of Racial and Ethnic Discrimination/Bias in
Health Care Delivery (R01/R21/R03)
• Cancer Surveillance Using Health Claims-Based Data
System (R01/R21/R03)
• Understanding the Effects of Emerging Cellular,
Molecular, and Genomic Technologies on Cancer Health
C
Care
Delivery ((R01/R21)
01/ 21)
• Methodology and Measurement in the Behavioral and
Social Sciences (R01/R21/R03)
• Research on the Economics of Diet, Activity, and Energy
Balance (RO1/R21/R03)
(
)
http://appliedresearch.cancer.gov/funding/
For more information on HSR and
Outcomes Research Funding
Opportunities contact:
Steven Clauser
Clauser, PhD
clausers@mail.nih.gov
or
Martin Brown, PhD
brownm@mail.nih.gov
NCI Consortium-based Research Platforms
Breast Cancer Surveillance Consortium
Cancer Research Network
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C H R
CanCORS