Chronic diseases as tracer conditions in international benchmarking of health systems: the example of diabetes Ellen Nolte1, Chris Bain2, Martin McKee1 1 2 European Centre on Health of Societies in Transition London School of Hygiene and Tropical Medicine, UK School of Population Health, University of Queensland, Australia How do countries compare? ¾ Optimal management requires ¾ Approach: ‘probe disorders’ or ‘tracer conditions’ that capture certain elements of the health care system Discrete and identifiable health problem Evidence of effective, well-defined health care intervention Natural history of condition varies with utilisation and effectiveness of health care Sufficiently common Diabetes mortality (SDR0-39) and incidence (SIR0-14) 40 1.4 35 1.2 0.6 15 0.2 0 0.0 De UK nm Au ark st ra Po lia rt u ga Sp l a E s in to ni Au a st ri Fr a an Bu ce lg a Li t h r ia un an ia Is ra el La tv ia Ja pa n 5 ¾ Can provide important insights into primary and specialist care, and into systems for communicating among them ¾ Deaths (<45) considered ‘avoidable’ by timely and effective health care Study design commonly used in cancer epidemiology as a crude indicator of cancer survival or “case fatality” may be interpreted as an indicator of the overall quality of health care 0.4 10 Fi nl an Ca d na da SIR 0-14 0.8 20 co-ordinated inputs from range of health professionals incl. primary care & specialists access to essential medicines & monitoring equipment active participation of informed patients ¾ Outcome measure: Mortality-to-incidence ratio SDR 0-39 1.0 25 ¾ Health systems are complex with multiple functions ¾ They must respond to varied health needs of the population with limited resources ¾ They involve trade-offs, e.g. between prevention & treatment or primary & specialised care ¾ It is unlikely that any system will perform well on all possible measures Diabetes as tracer condition ¾ Different models of health care provision ¾ Differences at different levels 30 Assessing health system performance SDR0-39 ¾ Age-standardized incidence rates for ages 0-14 years (WHO DiaMond study, 1990-1994) ¾ Age-standardised death rates from diabetes for ages 0-39 (WHO mortality database, 19941998) ¾ Study population: 29 industrialised countries SIR0-14 1 Diabetes: MortalityMortality-incidence ratio Russia Latvia Lithuania Japan Romania Bulgaria Estonia Poland Hungary USA Denmark Slovakia Israel Portugal Finland Slovenia Norway Germany Austria Australia Netherlands New Zeal France Canada Sweden UK Spain Italy Greece Ratio of national SDR (1994-98) Scenario Finland 30-39 Israel 20-29 United Kingdom 500 1000 1500 2000 2500 0.15 0.2 0.25 SDR-SIR ratio Next steps M/I ratio only an indicator of potential differences in health system performance & should stimulate detailed assessments to confirm whether the apparent variations are real and identify the reasons Scrutinise data Understand immediate causes of death ¾ vs. UK vs. Canada 2.0 3.3 3.2 Excess: 10% 2.4 1.8 3.0 2.9 Excess: 20% 2.1 1.6 2.7 2.6 Excess: 50% 1.3 1.0 1.7 1.6 (iii) Increase US incidence rate to 0 Death rate (100,000 person yrs) 0.1 US vs. Canada 2.6 (ii) US death rate United States 0.05 Ratio of M/I ratios US vs. UK (i) as reported (US incidence: 14.8/100,000) Japan 0 ¾ Sensitivity analysis e.g. ~50% of deaths in Estonia & Latvia due to acute complications of diabetes compared to only 22% in Finland (Podar et al. 2000) Understand processes of care a. highest regional rate (17.8/100,000) - - 2.8 2.7 b. upper 95 CI of highest regional rate (20.3/100,000) - - 2.4 2.4 (iv) (iii a) + 20% mortality excess - - 1.9 1.9 Conclusions (1) ¾ M/I ratio for diabetes provides means of differentiating countries that appear to provide differing quality of care to people with diabetes and by extension to other chronic diseases ¾ Further work is required to develop a battery of performance indicators that capture other aspects of health system performance instruments that can be used for detailed health system diagnosis once indicators suggest the presence of a problem Conclusions (2) ¾ International comparisons of health (care) systems have focused on what can most readily be measured, not what is necessarily important ¾ While indicating the existence of a possible problem they provide few insights in how to respond ¾ Tracer conditions offer approach to overcome some of these limitations ¾ This study is an attempt to show how to shift the agenda on performance assessment to disorders such as chronic disease that are critically important 2