THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL SCHOOL OF SOCIAL WORK COURSE NUMBER: SOWO 837 COURSE TITLE, SEMESTER AND YEAR: Disability Policy Spring 2010 INSTRUCTOR: Name Susan L. Parish, PhD, MSW Room 563-I School of Social Work Tate-Turner-Kuralt Building, Campus Box 3550 Email: parish@unc.edu COURSE ROOM & SCHEDULE: Room 107; Mondays 9:00a-10:30a OFFICE HOURS: By appointment COURSE DESCRIPTION: Using an advanced policy analysis framework, this course focuses on strategies for policy change, national and state policy, and legal and socio-political factors influencing financing, access and service delivery. COURSE OBJECTIVES: The student who successfully completes this course should be able to demonstrate understanding of the following issues in regard to disability policy. 1. Identify the principles, foundation and provisions of the primary social welfare programs that affect disability policies in the United States. 2. Demonstrate the analytic, theoretical and value assessment skills that enable social workers to evaluate policies and apply change strategies. 3. Apply concepts and principles of human rights, social justice, and social work ethics to policy analysis, development and change strategies. 4. Understand specific current disability policies regarding financing, ethical, and legal issues related to civil rights, income transfers, education, housing, employment and health care. 5. Explain the interrelationships among disability policies at the federal, state, and local levels. 6. Explain the intended and actual consequences of the major US disability policies. 7. Discuss ethical issues in current disability policy, including individual and family rights, issues of distributive justice, and issues of power, discrimination, oppression, culture & race? 8. Articulate both formal and informal disability policy development and strategies at multiple system levels. 9. Develop leadership strategies for planning, developing, and changing disability policies in a context of empowerment and partnership with individuals, families and communities. 1 EXPANDED DESCRIPTION: The ability to understand the complexities of disability policy development and implementation is crucial for successful professional practice in an array of fields in which social workers practice, as social workers shape policy, implement programs, respond to systemic inequities and assure that services are available for individuals and families who need them. This course will critically examine a number of relevant health and mental health policies and their effects on clients, practitioners, and systems. REQUIRED TEXTS/READINGS There are no texts for this course. Readings will be available on the internet or posted on Blackboard: http://blackboard.unc.edu/ TEACHING METHODS Class participation: In order to maximize everyone’s learning, we will rely on the contributions and insights of all students when issues are discussed. The participation of each student is essential, and responsibility for class discussion is shared. Class participation includes attendance, being prepared to discuss readings and assignments, sharing your opinions on the topic at hand, facilitating the participation of other students, and engaging with guest speakers. Attendance: Attendance is crucial to both your learning experience and the learning of your colleagues. Students with more than one absence will not earn an H. Students with more than two absences will not earn a P. Reading assignments: You are responsible for reading all assigned material before the class date for which the readings are assigned. NOTE: The instructor WILL distribute and assign additional REQUIRED readings. CLASS ASSIGNMENTS There is one written assignment for this class, in addition to the final exam. Students may independently choose a writing assignment that meets their own individual learning objectives. Some possible ideas are given below, but these are offered for illustration purposes only. All reasonable ideas will be considered. WRITTEN ASSIGNMENT IS DUE: BEFORE 9AM ON MONDAY APRIL 19 Idea #1 – Students will comprehensively and thoughtfully evaluate the accessibility of their field placement organization to people with disabilities and develop a plan to significantly improve such access. This paper should address the following questions: Does the organization serve people with disabilities? Are people with specific types of disabilities excluded? Why? What are 2 the specific steps the organization should take to improve the accessibility of its services for people with disabilities? Note that accessibility is defined broadly and should not be construed to simply represent physical access. Consider all levels of leadership in the organization, from the board of directors to the service recipients. Idea #2 – Students will write a paper that describes the impact of one state or federal policy on the health or financial well-being of people with disabilities. Students may choose to focus on a sub-group of people with disabilities (e.g., people with developmental disabilities or mothers with physical impairments or people with severe and persistent mental illnesses). This paper is expected to be a thorough and thoughtful analysis of the adequacy and efficacy of the policy, which relies on credible research evidence. Here are some examples of policies that could be analyzed: Individuals with Disabilities Education Improvement Act, Supplemental Security Income, Social Security Disability Insurance, Temporary Assistance to Needy Families, Ryan White Care Act, the Indian Child Welfare Act. Idea #3 – Students will write a history of a particular phase of the development of disability policy. Students will use standards of rigorous historical research and rely solely on primary resources. This paper is expected to be a thorough and thoughtful historical recount, which relies on credible research evidence. Idea #4 – Students will develop a series (3-4) of policy briefs that address a particular problem related to people with disabilities and social welfare services. Possible topics could include health care financing or access, housing affordability, family support services, income transfers, Idea #5 – Students will develop a comprehensive evaluation of a particular social welfare service that was not originally designed for people with disabilities (e.g., rape crisis service, homelessness support services, adult protective services) for a specific population with disabilities (e.g., people with developmental disabilities, people with severe and persistent mental illnesses, mothers with physical disabilities, children who are technology dependent). This evaluation should thoroughly appraise the efficacy, adequacy, and effectiveness of the social welfare service, and offer a set of recommendations for improvement. Idea #6 – Students will prepare a strategy for securing passage or implementation of a pending disability policy. Students may choose any relevant and current legislation (state or federal). Imagine that NASW or NC NASW has hired you to lead their advocacy effort. You will lay out the specific advocacy approach the organization should take, and you must delineate your rationale or justification of this approach. Note that you are presenting this strategy to a lay audience. Idea #7 – Students will comprehensively analyze a recent US Supreme Court decision that creates or is related to disability policy. Analysis of state Supreme Court decisions would also be appropriate. 3 Idea #8 – Students will thoroughly compare an aspect of US disability policy to that of another nation or nations. Examples of social welfare policies that might be considered: child protective services, sexual assault services, domestic violence, homeless services, poverty policy. Idea #9 – Students will thoroughly compare the impact of a facet of US social welfare policy to the impact of another nation’s social welfare policy on the same population of people with disabilities. Examples of social welfare policies that might be considered: child protective services, sexual assault services, domestic violence, homeless services, poverty policy. Final Exam – 55% of semester grade – This in-class exam will cover all of the assigned readings and material covered in class discussions, lectures and videos. GRADING SYSTEM H P L F Clear Excellence Entirely Satisfactory Low Passing Failed 94-100 points 80-93 points 70-79 points <70 points POLICY ON INCOMPLETES AND LATE ASSIGNMENTS Papers are to be submitted electronically to the instructor via email BEFORE 9am on the day they are due, without exception. Late papers, including those needing revisions to conform to APA style, will be reduced by 20% for each 24-hour period for which they are late, without exception. Paper copies of assignments will not be accepted. POLICY ON ACADEMIC DISHONESTY You are expected to complete assigned and independent readings, contribute to the development of a positive learning environment, and demonstrate your learning through written assignments and class participation. Original written work is expected and required. The University of North Carolina has a rich and longstanding tradition of honor. If you have not yet done so, carefully read the Student Code of Honor. All submitted work must conform to the Honor Code of the University of North Carolina. For information on the Honor Code, including guidance on representing the words, thoughts, and ideas of others, please see: http://instrument.unc.edu Please note that plagiarism is defined in the Code as “the intentional representation of another person’s words, thoughts, or ideas as one’s own.” Violation of the Honor Code will result in a grade of 0 points for the assignment, referral to the Honor Court. From the Code: “It is the responsibility of every student to obey and support the enforcement of the Honor Code, which prohibits lying, cheating, or stealing when these actions involve academic processes or University, student or academic personnel acting in an official capacity. 4 Students will conduct all academic work within the letter and spirit of the Honor Code, which prohibits the giving or receiving of unauthorized aid in all academic processes.” You must submit your assignments electronically (by email) with only your PID number (not your name) on them. However, I will provide an Honor Code statement for you to sign in class. Work will not be graded for which this affirmation is not submitted. The statement reads as follows: I have neither given nor received any unauthorized assistance on this assignment. POLICY ON ACCOMMODATIONS FOR STUDENTS WITH DISABILITIES To obtain disability-related academic accommodations, students with disabilities must contact the instructor and the Department of Disability Services as soon as possible. You may reach the Department of Disability Services at 919-962-8300 (Voice/TDD) or http://disabilityservices.unc.edu Pursuant to UNC policy, instructors are not permitted to give accommodations without the permission and direction of the Department of Disability Services. Students must obtain such permission in advance of the due date for the first assignment. COURSE OUTLINE UNIT 1 - WEEK 1: JANUARY 11, 2010 Introductions and course overview, Review of policy analysis framework, Disability policy in the larger context of US policy, demographic distribution of people with disabilities in the US Readings Altman, B. (2001). Disability definitions, models, classification schemes, and applications. In G.L. Albrecht, K.D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 97-123). Thousand Oaks, CA: Sage. Fujiura, G.T. & Rutkowski-Kmitta, V. (2001). Counting disability. In G.L. Albrecht, K.D. Seelman, & M. Bury (Eds.), Handbook of disability studies (pp. 69- 96). Thousand Oaks, CA: Sage. UNIT 2 - WEEKS 2-4: JANUARY 25, FEBRUARY 1 & FEBRUARY 8, 2010 Disability rights, the Americans with Disabilities Act and its foundations Readings Blanck, P., Schwochau, S. & Song, C. (2003). Is it time to declare the ADA a failed law? In Stapleton, D. C. & Burkhauser, R. V. (Eds.), The decline in employment of people with disabilities: A policy puzzle (pp. 301-337). Kalamazoo, MI: W.E. Upjohn Institute for Employment Research. 5 Switzer, J. V. (2003). Disabled rights: American disability policy and the fight for equality (pp. 90-143). Washington, DC: Georgetown University Press. UNIT 3 – WEEKS 5-6: FEBRUARY 15, FEBRUARY 22 & MARCH 1, 2010 Employment; Income transfer policy: Supplemental Security Income, Social Security Disability Insurance Readings Burkhauser, R. V. & Stapleton, D. C. (2003). A review of the evidence and its implications for policy change. In Stapleton, D. C. & Burkhauser, R. V. (Eds.), The decline in employment of people with disabilities: A policy puzzle (pp. 372-405). Kalamazoo, MI: W.E. Upjohn Institute for Employment Research. GAO. 2005. Federal Disability Assistance: Wide array of programs needs to be examined in light of 21st century challenges. United States Government Accountability Office, GAO-05626, DC. Goodman, N. & Waidman, T. (2003). Social security disability insurance and the recent decline in the employment rate of people with disabilities. In Stapleton, D. C. & Burkhauser, R. V. (Eds.), The decline in employment of people with disabilities: A policy puzzle (pp. 339-368). Kalamazoo, MI: W.E. Upjohn Institute for Employment Research. Wittenburg, D. & Favreault, M. 2003. Safety net or tangled web. Occasional paper #68. Urban Institute. UNIT 4 - WEEKS 7-9: MARCH 15, MARCH 22 & MARCH 29, 2010 Health policy: Medicaid, Medicare, Maternal & Child Health Title V; Children with special health care needs Readings Crowley, J. (2003). Medicaid’s role for people with disabilities. Washington, DC: Kaiser Family Foundation, Commission on Medicaid and the Uninsured. DeJong, G., Palsbo, S.E., Beatty, P.W. (2002). The organization and financing of health services for persons with disabilities. Milbank Quarterly, 80, 261-301. National Council on Disability (2009, September 30). The current state of health care for people with disabilities. Washington, DC: Author. Available from: http://www.ncd.gov/newsroom/publications/2009/HealthCare/HealthCare.html Shirk, C. (2003). Shaping public programs through Medicare, Medicaid, and SCHIP Waivers: The fundamentals. Washington, DC: National Health Policy Forum, George Washington University. UNIT 5 - WEEK 10: APRIL 12, 2010 Education policy; Individuals with Disabilities Education Act; Early Intervention Readings Parish, S. L., Whisnant, A. I., & Swaine, J. G. (in press). Policies and programs for children and youth with disabilities. In J. M. Jenson & M. W. Fraser (Eds.), Social policy for children and families: A risk and resilience perspective, 2nd ed. Thousand Oaks, CA: Sage. 6 US Department of Education. (2009). 28th Annual report to Congress on the Implementation of the Individuals with Disabilities Education Act. Available from: http://www.ed.gov/about/reports/annual/osep/2006/parts-b-c/28th-vol-1.pdf NOTE: Assigned pages are xvii-95. UNIT 6 – WEEK 11: APRIL 5, 2010 Housing policy Readings US Department of Housing and Urban Development. (n.d.) People with disabilities. Available from: http://portal.hud.gov/portal/page/portal/HUD/groups/disabilities Technical Assistance Collaborative & Consortium for Citizens with Disabilities, Housing Task Force (2009). Priced out 2008: The housing crisis for people with disabilities. Available from: http://www.tacinc.org/downloads/Priced%20Out%202008.pdf UNIT 7 - WEEK 12-13: APRIL 19, 2010 Poverty policy and people with disabilities and asset building policy Readings Magaña, S., Parish, S. L., & Cassiman, S. A. (2008). Policy lessons from low-income mothers with disabilities: A primer on inadequate incomes, work disincentives, and bureaucratic insensitivity. Journal of Women, Politics & Policy, 29, 181-206. Parish, S. L., Rose, R. A., & Andrews, M. E. (in press). Income poverty and material hardship among U.S. women with disabilities. Social Service Review. Parish, S. L., Grinstein-Weiss, M., Yeo, Y., Rose, R. A., & Rimmerman, A. (in press). Assets and income: Evidence of disability-based disparities in the U. S. Social Work Research. UNIT 8 – WEEK 14: APRIL 26, 2010 Course wrap-up & review for final exam Final Exam – date to be announced 7