Quality Account 2013–14 Our quality performance, initiatives and priorities Contents 01 01 02 02 04 05 06 07 08 11 14 16 18 20 22 22 22 23 23 24 24 25 38 38 39 Who we are and what we do Commendations Part one: our priorities for quality Joint statement from our Chief Executive and Chair of Trustees Our vision and values Our services map Part two: our priorities for improvement Our progress against our priorities for improvement 2013–14 Priority 1: Service user experience. To further develop tools to gain feedback on how person-centred support is delivered in our services Priority 2: Service user safety. To manage the risk of harm from medication by piloting new ways of working with technology Priority 3: Effectiveness. To further develop our activity programmes Priority 4: Service user experience. To measure our culture for care delivery and safety using a culture barometer Priority 5: Service user experience. To ensure learning from complaints and concerns and publish this information when it relates to upheld complaints regarding care delivery Priority 6: Service user experience. To measure the effectiveness of new equipment for service user and staff safety following the introduction of ‘safer sharps’ Part three: our priorities for improvement 2014–15 Priority 1: Service user involvement. To embed the use of electronic devices to gain real-time feedback from people who use our services Priority 2: Service user safety. To manage the risk of harm from falls Priority 3: Effectiveness. To continue to develop and then measure the activity standard Priority 4: Effectiveness. To develop our strategy for education and training Priority 5: Effectiveness. To deliver an accredited development programme for non-registered clinical staff Priority 6: Effectiveness. To improve and measure the quality of our end of life care Part four: indicators Part five: annexes Annex 1: Legal requirement Annex 2: Statement from Lead Clinical Commissioning Groups (CCGs)/ Commissioning Support Units, (CSUs) the Overview and Scrutiny Committee (OSC) and Health & Wellbeing Boards Cover image Elizabeth, supported receiving therapy Who we are and what we do Sue Ryder provides incredible care for people with life-changing illness. Whether it’s bringing comfort to someone’s final days or enabling them to make the most of their life, we are here for them and those important to them. We treat everyone in our care as an individual, taking the time to see the person not the condition. We enable people to live the life they want, and do everything we can to ensure their time with us is the best it can be. We do this in our hospices, neurological care centres, in the community and in people’s homes. This document, the Sue Ryder Quality Account 2013–14, demonstrates our continued commitment to improvement. It outlines our improvement measures over the last year and our priorities for the year ahead. Commendations “We are very pleased with the service, and the carers that come in have all been excellent. We also have the assurance that if there is anything different with Mum when they come they will contact us immediately.” Family of an individual we support in our homecare services “Thank you, you made the last few days of her life an experience that we shall remember with great thankfulness. The loving care you gave to all of us meant so much.” Family we supported at one of our hospices “I like it here as everyone is like my family, very friendly” A resident we support at one of our neurological care centres Sue Ryder – Quality Account 2013–14 1 Part one: our priorities for quality Position and status on quality Joint statement from our Chief Executive and the Chairman of Trustees Welcome to our annual Quality Account, a summary of our performance against selected quality measures for 2013–14 and our initiatives and measures for 2014–15. This is our fifth account and each year we use the account to celebrate some of the year’s achievements in healthcare. Change in leadership After seven years as Chief Executive Officer (CEO), Paul Woodward retired at the end of last year. After a competitive recruitment round, Heidi Travis was appointed the new CEO and took over the operational day-to-day management from Paul on 30th September 2013. Heidi joined Sue Ryder in March 2010 as Director of Retail. Since then, she has revolutionised our retail business which now delivers more than £10.5 million profit a year. We also said goodbye to our Director of Health and Social Care, Steve Jenkin in the summer of 2013 and hello to Mike Smeeton, who joined Sue Ryder in March 2014. Having worked primarily at an executive level within the NHS, Mike brings experience in commissioning, developing partnerships and technology in a care environment to the charity. Our aim for the coming year and beyond is to grow and develop our range of services. We aim to achieve this by utilising our experience in neurological and palliative care services and by giving more ownership and control to our care centres and hospices so they can maximise their local opportunities. In the Health and Social Care Leadership Team we have replaced the regional manager structure with assistant directors for palliative, neurological and Scottish services. 2 Sue Ryder – Quality Account 2013–14 Better pay and developing staff behaviours We believe our staff are our greatest ambassadors and we committed to look at our pay rates for all of our clinical staff last year. We also committed to put in place a skills and development framework. In order to achieve this we benchmarked pay against a range of providers in our competitive market, including the NHS and other private and charitable care providers. We developed a skills and competency grid for all clinical roles. We piloted this initially within one of our services and rolled out to the remaining services throughout the year with the final implementation in February 2014. Over the course of the coming year we will continue to work closely with staff to monitor the impact of this. We have also developed an organisational framework of 11 behaviours to reflect what we will see if we are living our values. ‘Doing the right thing’ might look different in other areas of the organisation, but there are some common behaviours we would expect to see, regardless of role. We are currently exploring how we use the behaviours to form part of our performance management process for 2014–15. Part one: our priorities for quality Working with the Department of Health As a result of our response to and progress in implementing the recommendations of the Francis Report there was an exciting opportunity to work alongside the Department of Health (DH). Since August 2013, we have enabled senior civil servants from the DH to undertake placements in our hospices. It’s a chance for them to shadow our frontline care staff and see the excellent standards of care we provide. The visits were part of the government’s ‘connecting’ initiative, which was designed to help DH staff become more connected to the real experiences of care. We were the first hospice provider, and the first charity, to offer placements of this kind to DH staff. In February 2014 we presented our experiences of being part of the programme at a national conference for the connecting programme. Continuing to deliver quality services Early in 2013 we received a grant of £1.2m from the DH to improve facilities at three of our hospices. We have been busy over the course of the year, completing the refurbishment of our day care facilities at Leckhampton Court Hospice in Cheltenham and Thorpe Hall Hospice1, Peterborough, as well as improving inpatient facilities at Duchess of Kent Hospice. We changed the name of our hospice in Reading from Duchess of Kent House to Duchess of Kent Hospice in an attempt to better reflect the services we provide there. Sue Ryder took over the management of the services, which includes two day therapy units and seven day a week specialist palliative care nursing services, from the local NHS Trust back in 2011. Over 2013-14 we have re-serviced the inpatient unit and the day therapy unit at Duchess of Kent Hospice. Some feedback: “I cannot remember learning so much in a single day”. Our Stirling Homecare service in Scotland received a glowing report from the Care Inspectorate back in May 2013. The Care “I was struck by the depth of knowledge about each individual Inspectorate, the independent regulator of social care – their (medical) condition, treatments, personal services in Scotland, grades services on six different areas circumstances and wishes. The degree of compassion and after an inspection. Stirling Homecare was awarded a Grade 6 consideration was exceptional”. – the highest score, representing ‘excellent’ – in four of the six areas. Grade 6 is not easily achieved and more or less unheard We also worked with the DH strategic partnership programme of in a homecare setting.* The service was re-commissioned to write some joint guidance for charities about what the in 2014 and is now reaching more people across the local Francis Report might mean for them and how they too can area. The team delivered a workshop at the Social Services improve their services. Expo & Conference in March 2014, on achieving excellence in homecare, sharing best practice with health and social care Celebrating 60 years of incredible care professionals. In July 2013, staff and volunteers from across Sue Ryder attended a reception at the House of Commons to celebrate Working in partnership our 60th anniversary. Care centre managers were asked to Partnership for Excellence in Palliative Support (PEPS) nominate people who had made a special contribution to The PEPS service was implemented as a pilot in December providing incredible care. 2011. It aims are to improve the care experience for patients in the last 12 months of life and to help co-ordinate health Kris Hopkins MP, whose Keighley constituency is home to and social care professionals to provide care in the place Manorlands Hospice, hosted the reception. He shared his where patients choose to be at the end of their lives. Liaison experience of the care we provide, which included when with the East of England Ambulance Service Trust (EEAST) has his father was cared for at Manorlands Hospice during the had a direct impact on reducing unnecessary conveyance to last days of his life. We were also joined by Norman Lamb hospital. This has been achieved by direct data input of all MP, Health Minister, and Andy Burnham MP, Shadow PEPS registered patients onto their EEAST computer system. Health Secretary. It is early days but in the first seven weeks of 2014, ambulance services were called to the homes of 27 patients who were on the PEPS register. By the ambulance services directly contacting the PEPS services, 21 (78%) of patients remained at home avoiding A&E attendances and probable admission. We are extremely excited about the future impact this could have on supporting more patients at home, where this is their choice, and reducing emergency admissions. 1 The work at Thorpe Hall Hospice is part of our wider capital appeal to raise funds to build a new hospice in Peterborough. * The service was re-inspected in April 2014 and was awarded Grade 6 in all areas. Sue Ryder – Quality Account 2013–14 3 Part one: our priorities for quality Extending our reach in Suffolk Our dementia telephone helpline in Suffolk has been running for year now, and has recently been extended to offer a 24hour service. During office hours we can offer practical support and information about dementia, along with details of other services in the local area that can help. At all other times we offer a listening ear service. Our funding for the helpline has been extended to September 2015. Sue Ryder is part of the Suffolk Dementia Partnership, which also includes Suffolk Family Carers, Age UK Suffolk and Alzheimer’s Society. Furthermore, we are extending our support for individuals with dementia for their carers in Suffolk through the rollout of Synergy Cafés. A Synergy Café provides a relaxed and safe environment where people with dementia and those that support them at home can attend together and have access to support, information and education about living with the condition and signposting to other sources of help. The service is grant funded and an extension of this grant has meant we are able to operate not only from our care centre The Chantry, but also from other external locations: Felixstowe, Haverhill, Hadleigh and Shotley. A Synergy Café has also been set up at our Thorpe Hall Hospice. We are also working in partnership with Orbit Housing Association to provide cafés in the Brandon and Newmarket area of Suffolk. “Money cannot buy what you get here.” Our vision We aspire to create a world where everyone has access to personalised and compassionate care. Our values At Sue Ryder we’re passionate about giving people the care they want, that’s why we always aim to: • do the right thing • push the boundaries • make the future together 4 Sue Ryder – Quality Account 2013–14 Befriending in Scotland Six months after of launching the Aberdeen Befriending Service for older people in July 2013 (run in partnership with four other charities) we won the Aberdeen Impact Award for Change for Older People. Over 100 people have benefited from the service to date. A recent survey showed that people who have received visits from befrienders are feeling more positive, more in control of their lives and more able to make decisions about their daily life since the scheme started. We continue to work in partnership across our services and there are many more examples of how we are doing this. To find out more, please get in touch. We hope you find our Quality Account useful. We welcome suggestions for future accounts. The Quality Account and the information it contains is accurate at the time of print; it has been reviewed via our internal governance structure and is true to the best of our knowledge. Heidi Travis Chief Executive Roger Paffard Chairman of Trustees Part one: our priorities for quality Our service map Head Office 1. Central Office, London Registered Office 2. Sudbury Office, Sudbury Extra Care 3. Sue Ryder – Heyeswood, Merseyside Aberdeen 20 22 11 17 4. 5. 6. 7. 8. 9. 10. Palliative Care Sue Ryder – Manorlands Hospice, West Yorkshire Sue Ryder – Wheatfields Hospice, West Yorkshire Sue Ryder – Thorpe Hall Hospice, Peterborough Sue Ryder – St John’s Hospice, Bedfordshire Sue Ryder – Nettlebed Hospice, Oxfordshire Sue Ryder – Leckhampton Court Hospice, Cheltenham Sue Ryder – Duchess of Kent Hospice, Reading 11. 12. 13. 14. 15. Complex neurological care Sue Ryder – Dee View Court, Aberdeen Sue Ryder – Holme Hall, East Yorkshire Sue Ryder – The Chantry, Suffolk Sue Ryder – Stagenhoe, Hertfordshire Sue Ryder – Cuerden Hall, Lancashire 18 Elderly & dementia (residential care) 16. Sue Ryder – Birchley Hall, Lancashire Homecare services (in Scotland) 17. Angus Homecare 18. Stirling Homecare Supported living 19. Supported living unit, Suffolk 20. Supported living unit, Aberdeen Leeds 4 15 5 21. 22. 23. 24. 12 Liverpool 16 3 21 Other services Befriending schemes (dementia & volunteer), Doncaster Befriending Scheme for older people, Aberdeen PEPS service, Bedfordshire Dementia Helpline, Suffolk Nottingham 6 Birmingham 23 7 9 14 Oxford 19 2 13 24 London 8 1 10 Sue Ryder – Quality Account 2013–14 5 Part two: our priorities for improvement At the Help the Hospices conference in October 2013, we launched an end of life self-assessment tool entitled Progress for Providers: End of Life. Sue Ryder, in partnership with Helen Sanderson Associates, Hull City Council and St Ann’s Hospice, developed the end of life self-assessment care tool. The tool Over the course of the last year a number of projects have shows what good end of life care should look like through a culminated in improved information relating to user series of comprehensive and evidence-based prompts and experience, incidents, complaints and compliance with Sue suggestions. Healthcare professionals can use the tool to Ryder policies and procedures. check that the care they are providing is tailored to their patient’s individual needs and wishes in their anticipated last Highlights of our activities In 2013–14 we had our highest ever number of people taking year of life, as well as using it to see how they can develop, improve and measure their current care provision. Each of part in research. The Research Governance Group (RGG) has our hospices has been working with the tool and we will had a clear commitment to improving the processes around evaluate their experiences looking at what personalisation research. The research processes have been streamlined to means in practice in the summer of 2014. reduce study approval times. In view of this, eight research studies have been approved. Recruitment to the majority of In November 2013, we ran three workshops on end of x§life these studies is not yet complete. One of the studies care. These were open to the public and healthcare recruited 270 patients in the West Berkshire area. This professionals and were run on behalf of the Leadership pharmaceutical study explored interactions between herbal supplements and conventional medicines and was led by the Alliance for the Care of Dying People (LACDP). The LACDP was established by NHS England in July 2013, to respond to University of Reading Pharmaceutical Studies Department. the recommendations of Baroness Neuberger’s independent review of the Liverpool Care Pathway. Sue Ryder is a member There has also been a focus on promoting research across of the LACDP. various centres. The RGG has been privileged to have the Associate Director of Research and Development from the For the past three years we have delivered, under licence, local NHS research consortium in Gloucestershire who has played an active role in providing external scrutiny to research the Royal College of Nursing (RCN) Clinical Leadership programme. The service improvement projects from our presented. More work has also been done to develop links 2013–14 cohort are included within this year’s account. with the Sue Ryder Centre for the Study of Supportive, Palliative and End of Life Care at Nottingham University, Our priorities for going forward We continue to improve service user and family experience in We believe everyone should be able to choose the care that they want at the end of their life, but inequalities in accessing our care, both on a local and national level. The priorities for 2013–14 and 2014–15 do not fully represent all that we are co-ordinated, personalised and quality care at the end of life still persist. ‘Dying isn’t Working’ is a campaign we launched in doing, but they give an indication of particular areas of focus. 2013; it re-examines the reasons behind these inequalities Our quality strategy focuses on the same three overarching and seeks to put the individual back at the heart of the end key areas identified in previous Quality Accounts and these are: of life care policy debate. We used our 60th anniversary • service user experience celebration at the House of Commons to launch the • service user safety campaign in parliament. • effectiveness Working with Demos, we’ve produced two research projects exploring service journeys at the end of life. Ways and means being the first. This is the first time this has been examined from an individual’s perspective. The report identifies some of the key drivers of poor service journeys and gives important insight into the inequalities in end of life care. We followed this report with ‘A time and a place’. The report identifies what people want, and priority preferences at the end of life, how they associate these with different places of death and how perceptions of care differ. Our priorities for 2013–14 were influenced by service user experience and involvement, national standards and learning from enhanced quality performance data. 6 Sue Ryder – Quality Account 2013–14 Part two: our priorities for improvement Our progress against our priorities for improvement 2013–14 The priorities for 2013–14 were: The priorities for 2014 –15 are summarised below: Priority 1 Service user experience To further develop tools to gain feedback on how person-centred support is delivered in our services Priority 1 Service user experience To embed the use of electronic devices to gain real-time feedback from people who use our services Priority 2 Service user safety To manage the risk of harm from medication by piloting new ways of working with technology Priority 2 Service user safety To manage the risk of harm from falls Priority 3 Effectiveness To further develop our activity programmes Priority 3 Effectiveness To continue to develop and then measure the activity standard Priority 4 Service user experience To measure our culture for care delivery and safety using a culture barometer Priority 4 Effectiveness To develop our strategy for education and training Priority 5 Service user experience To share learning from complaints and concerns, and publish this information when it relates to upheld complaints regarding care delivery Priority 5 Effectiveness To deliver of an accredited development programme for non-registered clinical staff Priority 6 Service user experience To measure the effectiveness of new equipment for service user and staff safety following the introduction of ‘safer sharps’ Priority 6 Effectiveness To improve and measure the quality of our end of life care Whilst we haven’t named medicines risk as a priority for 2014–15, it will continue to be a key risk area and remain on our quality action group plan. These priorities for 2014–15 have been approved by ACORNS (our service user advisory group), the Health and Social Care Governance Committee (HGC), the Executive Leadership Team (ELT) and our Board of Trustees. Sue Ryder – Quality Account 2013–14 7 Part two: Our progress against our priorities for improvement 2013–14 Priority 1: Service user experience To further develop tools to measure how personcentred support is delivered in our services We said we would explore and embed the use of handheld devices in hospice settings to gain feedback in real-time. Working closely with our information systems manager (healthcare) we have been exploring the use of hand-held devices and the possible providers we could work with. The outcome was an options paper presented to our Executive Leadership Team. Embedding the use of these devices will feed into our approach in 2014–15. We are asking our patients, carers, medical and nursing staff for their opinions and input to ensure this application meets the needs of the people we support. A series of meetings were held to demonstrate the initial prototype and actively engage this group in its development. Feedback from Dynamic Health Systems has been that through working in this way “things have been highlighted [they] hadn’t considered” and the feedback received was “like commercial gold dust”. Dynamic Health Systems working with Sue Ryder were successful in February 2014 in winning Department of Health In addition to the use of hand-held devices, we are looking at funds to implement the ‘end of life’ personalisation internet fixed devices in public places for capturing real-time feedback. application for use in the population served by three of our hospices – Manorlands, St John’s and Wheatfields. We will We said we would develop electronic tools for capturing report on progress in next year’s account. feedback consistently across all hospices. We said we would expand the skills and commitment In 2013–14 we envisaged this work would focus on capturing of our volunteers by piloting a development programme to feedback, but through looking more at this, it has evolved to equip them to gain feedback from patients and carers outside be more around patient involvement and input into their of the professional workforce. care plans. We are exploring the training needs of volunteers who we Sue Ryder is working with Dynamic Health Systems to look hope in future will help with collecting feedback from patients at how patient experience can be improved. Dynamic Health and carers. The majority of this work will take place in our Systems have developed an internet application for devices hospices. We have introduced a local volunteer orientation such as personal PCs, smartphones and tablets. The and mandatory induction workbook. application enables individuals to record and change their goals and aspirations, making these visible in real-time to We said we would enhance links with volunteer both the clinical team and chosen family members. We are co-ordinators in each hospice to deliver local education helping them test this to explore how it can improve and support. personalisation and the quality of care at the end of people’s lives, putting the individual truly at the centre of care delivery. The volunteer co-ordinators will deliver ongoing education and support for the volunteers collecting feedback when this is implemented in 2014–15. “I was asked what level of support I wanted, right down to what sort of sheets I prefer on the bed. They’re really accommodating.” A relative said: “It really is a lovely place. I don’t think we’d find anywhere better. The care is fantastic; they treat my [relative] brilliantly” Comments from people we support. These comments were captured by the Care Quality Commission as part of an inspection at one of our neurological care centres. 8 Sue Ryder – Quality Account 2013–14 Part two: Our progress against our priorities for improvement 2013–14 Mandy, Nikki and Karolina Improving communication between shifts and teams “…brilliant tool, we know what’s going on even after a week off.” Feedback from staff Sheeba, senior nurse, developed a tool to enable better communication between shifts and teams within the neurological centre in which she worked. Handovers previously happened several times during one shift, an example was given of internal (and on occasions external) appointments missed as the handover information followed no specific format. Sheeba reviewed the handover process, gathered feedback from colleagues and carried out observations by listening to how handovers were taking place. A handout prompt was developed which recorded relevant information including service users’ appointments. Evaluation has demonstrated how it has helped to improve communication amongst nursing staff working different shifts and saved time with having all the relevant information in one place. At the Chantry, Sheba estimated that by working in this way, it will have a cost saving of £6,796. Sue Ryder – Quality Account 2013–14 9 Part two: Our progress against our priorities for improvement 2013–14 Priority 1: Service user experience Creating a home from home With our client group getting younger and areas of the centre not being utilised, Zoe-Anne, a unit lead from Stagenhoe, our neurological centre in Hertfordshire, took on the task of revamping an unused communal lounge. The lounge was cold, unloved and very rarely used. Over time it had become a storage area for unused wheelchairs, instead of being an area used by our residents and their families. Zoe-Anne consulted with management, residents and families on how they would like to use the room in the short and long term. This information was shared and a consensus reached – not an easy task with so many to please, but the experience of ensuring everyone was heard and opinion valued was demonstrated throughout. The room has been modernised; it no longer feels unloved or cold, it’s now a commonly used area with a flat screen TV added to one of the walls for residents and families to watch films and play games or enjoy the extra space the lounge provides with access to the gardens. The project has brought the residents closer together by having a common shared interest and it’s also created a real buzz with the endless possibilities of what it could be shaped into in the not-so-distant future. The new lounge will be complete this summer. Person-centred care To help maintain regular interaction with patients in our inpatient ward at our hospice in Gloucestershire, we introduced care rounding. The aim of care rounding is to provide better than expected care to patients. It is based on the following six key elements of nursing care: 1. continence 2. pain control 3. position and comfort 4. nutrition 5. safety 6. wellbeing check 10 Sue Ryder – Quality Account 2013–14 Improved personal care was also identified as a key area to address and improve within the service’s quality improvement plan. Debbie, a ward manager with prior experience of care rounding introduced the new way of working with the development of a template for nurses to complete. Patient comfort is improving through regular and positive interaction between nursing staff, the patients and their families. Part two: Our progress against our priorities for improvement 2013–14 Priority 2: Service user safety To manage the risk of harm from medication by piloting new ways of working with technology We said we would review current systems available electronically in hospices for prescribing and administration. We have reviewed our current prescribing and medications management practices, the outcome of which is informing research into appropriate electronic solutions that would meet the specific needs of our hospices. Input has been gained from numerous sectors, ranging from peer organisations in the healthcare sector to the suppliers of appropriate systems, with the aim of compiling a business case for implementing an electronic solution within Sue Ryder. In addition to this, we have developed a new non-medical prescribing policy, agreed in July 2013 at our Healthcare Governance Committee (HGC) meeting. As a result of this we now have non-medical prescribers in many of our hospices. An information leaflet has been developed for each service for patients and carers. By working in this way, we aim to: • improve the timeliness and safety of prescribing medicines • help improve the care and support our patients receive from us by tailoring the care to meet their needs • provide information about the medication patients are taking, including risks and benefits • work with patients to better monitor their treatment We said we would review the medicines competencies and ensure all education leads receive reports on incidents, and include this information as standard in training. During the course of 2013, four incident management training days were delivered to managers who access the online incident reporting system (including education leads and practice educators). The learning outcomes of the day were to: • understand the importance of monitoring frontline reporting • understand the duty of candour (reference Francis Report, 2013) • increase skills with regard to incident learning • identify how incident reporting relates to managing risk • recognise incident themes to enable reporting through quality improvement groups • ensure the full functionality of Datix (our on line incident and adverse events reporting tool) is utilised • briefly run through the process of reporting complaints within Datix • remind staff of RIDDOR* reporting process and identifying a RIDDOR incident We said we would continue the specialist review of all medicines incidents. With the help of our healthcare intelligence and information analyst, a regular and more detailed incident report is now produced quarterly for the HGC. We are looking at the trends We said we would raise awareness about medicines risk in medicine incidents such as when they happen and the time for all staff by including case studies in the two-yearly of day. This is helping us to focus on day-to-day activities that might impact on our medicines practice. The review stage of competency review. medicine errors (whether this is dispensing, storage, In July 2013, we revised our nurse administration competency prescribing, administration, or disposal) has helped us to understand at what stages the highest risks sit. Adjustments framework. The revisions mean the nurse and assessor now were made to the medicines policy in March 2014, to jointly identify an area of practice, for example following a standardise the process of follow up to prescribing errors in a medicines administration incident, they would agree the similar way to our current approach to administration errors. learning outcomes. As part of this work, we have also reviewed the medicines management audit tool and carried out an audit against policy. * RIDDOR – Reporting of Injuries, Diseases and Dangerous Occurrences Regulations Sue Ryder – Quality Account 2013–14 11 Part two: Our progress against our priorities for improvement 2013–14 Priority 2: Service user safety Management of medicines Our neurological centre in Suffolk, The Chantry, was having problems with the supply of medication from their local pharmacy and had captured the issues on Datix. In summary, monthly deliveries were delayed, times were staggered or items out of stock. As a consequence nursing staff were spending a lot of time chasing up prescriptions and reordering medicines. Toni, a staff nurse on the RCN Clinical Leadership Programme reviewed the current ways of working across the centre. Working with the local GP practice, a service level agreement with a new local pharmacy was set up. The new pharmacy has taken responsibility for chasing up repeat prescriptions, saving the centre time, and outstanding prescriptions have significantly decreased. Nursing staff are not as stressed looking for medications which have not been delivered and report better medicines management. They now have more time to deliver care and more importantly it has increased resident satisfaction and access to medicines. Delivering intravenous therapy Due to the increased need for intravenous therapy at Thorpe Hall, our hospice in Peterborough, Rachel, a clinical development nurse, took on a project to look at introducing intravenous therapy (IV) within the hospice. Newly developed procedures and care plans were benchmarked with the local NHS trust. For a trial period of three months these were tested and, following a review, were implemented within the hospice. Now these procedures have been put in place, patients can have continuity of care by no longer needing to be transferred to the local hospital for IV therapy. Feedback from staff: “excellent checklist”, “user-friendly.” 12 Sue Ryder – Quality Account 2013–14 Part two: Our progress against our priorities for improvement 2013–14 My medicines – my way Through observations of care at Cuerden Hall, our neurological care centre in Lancashire, Sue, the Head of Care could see how time-consuming medicines rounds were becoming. Daily activities for residents tended to revolve around nursing tasks, making them less person-centred. Through enhancing the services re-ablement programme and exploring new ways of working, a new process for medicines management was introduced. Care support workers were trained to administer medicines, a role previously only undertaken by a registered nurse, increasing the access to timely medicines and freeing up nurses’ time. Sue Ryder – Quality Account 2013–14 Medication records and sheets were produced for recording resident medicines information. Staff training which included distance learning, in-house training and competency assessments were carried out, as well as risk assessments on the new way of working. By working differently we have recognised and enhanced the skills and abilities of our workers, providing the people we support with greater independence and improved personcentred care by a better use of staff time. At Cuerden we are set to save £2,275 per annum. 13 Part two: Our progress against our priorities for improvement 2013–14 Priority 3: Effectiveness To further develop our activity programmes We said we would review service user survey results for activity groups that run at our neurological and palliative care centres. We have reviewed the results from service user surveys to help focus the priority areas or for the activity standard. The standard has been called ‘B-Active’ and covers the following priority areas: • planning • involvement • person-centred activity • networking • creativity B – Acndtiardvsewith the aim A series of sta ingful activities of producing mean “There’s plenty of opportunity to go out to town or to go on other trips out and there’s always something going on here to keep me busy.” Person we support at one of our neurological centres 14 Sue Ryder – Quality Account 2013–14 We said we would work with service users to develop a standard which reflects our approach to person-centred care and support for meaningful activities and pursuits. The idea of the standard initially came from our ACORNS group as a result of reviewing experience reports from our neurological care centres and from the success of the ‘Our Mealtimes’ standard. Activity leads from across our services came together on 16th January to look at the role of activity provision in supporting individuals, showcasing success and setting priorities for activity provision and practice. The draft standards were presented at ACORNS in April 2014. The group approved the standard, and were pleased we were not taking a prescriptive approach to allow for personalised activity programmes at a service level. They felt the standard was clear, easy to read and liked the illustrations. ACORNS wanted to be sure that the work planned for 2014– 15 included a survey of the impact on the implementation of the standard, and this has been added to the priorities for 2014–15. Part two: Our progress against our priorities for improvement 2013–14 We said we would ensure there is a launch of the standard, bringing together staff and volunteers who facilitate activities and pursuits. Printed copies of the standard will be in centres by the end of May, with a launch of the standard in the summer. We said we would measure progress through existing surveys, audits and the ACORNS group. The results from our neurological care survey were collated in December 2013, and presented to the HGC in January 2014. Some of the results were disappointing and this helped us to make the case for real-time feedback so that we can be more responsive to issues raised. Questions about the activities standard will be included in the next survey due to be sent out in November 2014. Our hospice in Leeds is working with Leeds University to look at how an activity standard could be developed and used in a palliative care setting. This will feed into embedding the activity standard across services and will sit alongside the standard with a specialist focus. Supporting carers We support carers differently in each of our care settings. Last year, in West Yorkshire we set up a carer support group. There was little to support carers in the local area with many not knowing where to go for support. Clare, day therapy team leader and Alison, ward sister, both participants on the RCN Clinical Leadership Programme, led the set up of the group. The group is open to anyone caring for a patient known to our hospice. The group provides an opportunity for carers to share information, meet other carers and learn about local services. They also have access to complementary therapy, emotional and practical support and have the opportunity to speak to healthcare professionals such as a specialist nurse or our palliative care social worker. The group takes place on the first and third Friday of the month in a relaxed and supportive environment. Carers attending the group have said they feel less stressed as they now know where to go for support. Sue Ryder – Quality Account 2013–14 15 Part two: Our progress against our priorities for improvement 2013–14 Priority 4: Service user experience To measure our culture for care delivery and safety, using a cultural barometer We said we would report on the overview of safety culture maturity to be presented at the HGC. We said we would have a facilitated self-assessment workshop and action plan for each centre, working with their linked quality manager. A paper outlining key themes from the ‘deep dive’ quality visits and safety culture workshops was presented to the HGC in April 2014. During the course of the year the quality team have developed and used a two-day ‘deep dive’ quality visit. Prior to the visit an analysis of all information about the service (e.g. training records, electronic incident reports, response to safety alerts) informed the priority areas for the site visits by two quality managers. The ‘deep dive’ visit is then focused on talking in focus groups with staff, observing practice, attending shift handovers, including out-of-hours shift patterns, and talking with service users and those close to them. This has helped us to better understand the safety culture in each service and as a consequence we have started to run safety culture workshops. To date we have run these in four of our centres using the Manchester Patient Safety Framework (2006). In one instance we have combined this with a ‘winning team’ workshop*. Below is an outline of some of the key points made within the paper: • the overwhelming view was that the service users and their supporters e.g family members, were very complementary of the services provided by staff in all locations • quality improvement group meetings and plans in some locations need refreshing in line with the terms of reference • more work is needed in some locations to improve the timeliness of learning from incident reports • continue work on data quality incident reports is needed, supported by incident management training • continue to raise the profile of the ‘Our Mealtimes’ standard to ensure compliance and follow through on recommendations from a food standards audit • ensure the risk register is kept as a live document • the HGC agreed we could continue with this model of inspection We said we would monitor service actions via local quality improvement groups and assess through quality visits and audits. The quality improvement processes have formed a key part of the ‘deep dive’ quality visit process. * This is a workshop for a team to come together, explore best practice and identify new ways of working. 16 Sue Ryder – Quality Account 2013–14 Part two: Our progress against our priorities for improvement 2013–14 Helena, Clint and Valerie Inducting our staff “love it, the staff are keen to complete it.” Maria, ward sister from Thorpe Hall, our hospice in Peterborough, revised our employee induction process as her service development project. “well laid out and easier to follow.” The induction process was lengthy, confusing, duplicated and not fit for purpose. The aim was to have a clear induction process for all staff, appropriate to their role. Feedback from staff Staff were asked for feedback on how the process could be improved and what contents to cover. Maria met with education leads across our centres and the People Team to look at how this could be integrated within healthcare. New staff now have an induction process that is fit for their working environment, enabling them to be more knowledgeable about their place of work and the people they support. Sue Ryder – Quality Account 2013–14 17 Part two: Our progress against our priorities for improvement 2013–14 Priority 5: Service user experience To share learning from complaints and concerns and publish this information when it relates to upheld complaints regarding care delivery We said we would revise the complaints policy and associated templates (following national recommendations from the Francis Report 2013). Given the desire to be an organisation that is driven by the views and experiences of people that use our services and by recommendations in line with the Francis Report (2013), we have made our openness to complaints more visible in the following ways: • we’ve updated the complaints policy to include clearer definitions of concerns and complaints • we’ve provided details on how Sue Ryder will demonstrate publicly our response to learning from complaints with the permission of complainants • we’ve encouraged greater use of web-based complaints reporting and reviewed the complaints page on our website to make it more user friendly • we’ve developed standard letter templates to assist our staff in responding to complaints. They can be adapted locally depending on the type and contents of the complaint • we’ve added ‘duty of candour’ responsibility to all care role job descriptions • we’ve added ‘tell us what you think’ processes at each centre cern Process of raising a con int pla com a g or makin plaint immediately ve your concern or com If we are not able to resol scale for reply we will let you know a time We will come back to you concern or complaint with a time to meet to findings If you are happy with our we will and recommendations, close the complaint discuss our findings our initial If you are unhappy with ge for you response, we will arran from the ager to meet a senior man Sue Ryder head office there are If you are still unhappy, can speak other organisations you page) next see to (please 18 A new information leaflet has been developed following service user feedback. The leaflet includes a flow chart to make the process of making a complaint easier to understand. The title of the leaflet has been changed to ‘How to raise a concern or make a complaint’, recognising that not everyone will want to make a complaint but may have something they want to speak to management about. A comment card for real-time feedback has been produced and agreed at our quality action group for centre-wide rollout, complete with suggestion boxes. The comments that are submitted as a result of this initiative will be reviewed regularly at local quality improvement group meetings and this approach has already been trialed within some of our services and is working well. We anticipate this will continue even when we have real time feedback electronically. We said we would provide multiple ways through which concerns regarding care delivery can be raised and ensure these are published widely in our centres and central offices. In addition to the new information leaflet we also have information on our website, with a direct web address. We have developed a series of frequently asked questions that feature in both the leaflet and on the web page and have included information on regulatory councils. The People Team have reviewed our social media policy and we have started to deliver training to some of our leaders on safe and effective use of social media. charge e speak to the person in If you are unhappy, pleas We will investigate your We said we would revise the information for service users on how to express a concern or make a complaint. Sue Ryder – Quality Account 2013–14 Part two: Our progress against our priorities for improvement 2013–14 Improving patient communication On admission to a hospice, a patient is told lots of information and it can be hard remembering it all. Mari, a team leader at Leckhampton Court, our hospice in Cheltenham, developed a leaflet to help bridge this gap as part of her service development project. The contents of the leaflet were discussed in consultation with staff, patients and relatives. The leaflet was developed primarily for patients but it also acts as a useful source of information for relatives. It’s also proven to be a good communication tool for nurses, ensuring all patients have access to the same information. Shaping our services The PEPS service in Bedfordshire has been running since December 2012. It provides 24-hour co-ordinated care for patients, families, carers and healthcare professionals. The service occasionally gets feedback from callers about the value the service provides, but there was no formal process for collecting feedback. Tracy, lead nurse for the service, as part of her service improvement project explored how user feedback could be captured to help improve the service and quality of care delivered. A questionnaire was designed following discussions with staff, patients and relatives, to identify any issues. It was sent out to 60 patients on the PEPS system. One improvement made following feedback was to call ahead of someone visiting a patient at home, to inform them of who was visiting and an estimated time of arrival. A comment card was developed to capture feedback, suggestions and general comments about the service at regular intervals in between the questionnaire being sent out. The idea of the comment card was for it to be left in a patient’s home and completed as and when a suggestion or comment came to mind, to get more real-time feedback. Sue Ryder – Quality Account 2013–14 Tracey and her dog Ralphe 19 Part two: Our progress against our priorities for improvement 2013–14 Priority 6: Service user experience To measure the effectiveness of new equipment for service user and staff safety following the introduction of ‘safer sharps’ We said we would monitor compliance against national standards for availability of equipment and staff attendance at our vaccinations programme. We said we would conduct a specialist review of all sharps injuries throughout the year. A new occupational health contract was set up during 2013 to make available to ‘at risk’ staff a HepB immunisation programme. This immunisation programme has been trialed in a neurological care centre and hospice. The programme of immunisation is currently being rolled out across all services. Our aim was to implement the European Union directive on safer sharps by May 2013. A paper was taken to HGC on January 2014 to outline the progress to date regarding introduction of safer sharps across services, and to review needle-stick injuries across the course of the year. This paper was one of two papers that was taken to the HGC during 2013–14 to review sharps incidents. 2012–13: There were 13 incidents, five of which related to the failure to dispose of used sharps according to procedure. Human error and patient unpredictability contributed to remaining incidents. Demonstration of the latest safer sharps equipment took place at our professional forum (for heads of care) over the course of three meetings to inform decision-making at a local level. At the same meeting, decisions were made about how training would be delivered to support the introduction of this new equipment. This programme of change has been led by our infection, prevention and control lead nurse, who is a quality manager in the clinical quality team. A new safer sharps procedure was introduced and all appropriate staff were trained. A marked improvement in incident figures has been shown, with only four incidents in 2013–14. There has also been increased compliance with post exposure procedures,disposal of sharps and full use of safety-engineered equipment. “A huge thank you for all the care and love you showed my mom. Her last few days were very peaceful. Thank you for all the support that you have given me also. When mom heard she was going to Thorpe Hall Hospice she was delighted and smiled for the first time in weeks.” Relative we supported at one of our hospices 20 Sue Ryder – Quality Account 2013–14 “Having the immunisation team come to our centres, at times flexible for our staff, means that all staff that wanted to be immunised have had the option of a convenient time and way. Its been well received, and means our staff are actively supported and encouraged to be immunised.” Lead nurse Part two: Our progress against our priorities for improvement 2013–14 Improving wound management Following an internal audit of care plans at Holme Hall, our neurological care centre in East Yorkshire, Tracy, the Head of Care explored how better wound management and documentation could enhance the current service provision. Tracy collected staff and resident feedback, and set about creating an easily located tissue viability resource box,* helping staff with quick and easy access to items for wound management. An easy-to-use booklet was created and sits inside the box to act as a reminder to staff on the different wound management plans relating to particular types of wounds. New documentation was also created and all staff were trained to ensure the correct use and completion of documents. Documentation is now completed as the wound appears and is managed by planned interventions, which provides continuity of care. We have received positive feedback from our local tissue viability specialist service about the changes we have made. * A tissue viability resource box will include items such as different types of dressing, assessment tools such as tape measures, wound maps and documentation. Sue Ryder – Quality Account 2013–14 21 Part three: our priorities for improvement 2014–15 Priority 1: Service user experience Priority 2: Service user safety To embed the use of electronic devices to gain realtime feedback from people who use our services To manage the risk of harm from falls In 2014–15 we will: In 2014–15 we will: • purchase, pilot and begin to use devices for real-time feedback across all our services • train volunteers to support service users to use devices for feedback • look at the use of real-time feedback for audits • write a falls risk management strategy and implementation plan • deliver priority areas of the implementation plan • evaluate the success of strategy through incident review and a newly developed core audit Executive Leadership Team (ELT) sponsor Mike Smeeton, Director of Health and Social Care Executive Leadership Team (ELT) sponsor Mike Smeeton, Director of Health and Social Care Implementation lead Sue Hogston, Head of Clinical Quality and Nurse Lead Implementation lead Sue Hogston, Head of Clinical Quality and Nurse Lead Programme manager Angela Killip, Quality and Service User Experience Lead Mark Woodfield, IT Systems Manager (Healthcare) Programme manager Helen Press, Quality and Risk Manager 22 Sue Ryder – Quality Account 2013–14 Part three: our priorities for improvement 2014–15 Priority 3: Effectiveness Priority 4: Effectiveness To continue to develop and then measure the activity standard To develop our strategy for education and training In 2014–15 we will: In 2014–15 we will: • launch B-Active, our activity standard • support activity co-ordinators to make service improvements in line with the standard • develop a themed survey to evaluate the success and impact of the project based on recommendations by ACORNS • continue to consult with ACORNS on the delivery of meaningful activities • develop a three-year strategy for learning and development across healthcare • put in place an implementation plan for each of the strands • agree a process for measuring and monitoring plans and actions Executive Leadership Team (ELT) sponsor Mike Smeeton, Director of Health and Social Care Executive Leadership Team (ELT) sponsor Mike Smeeton, Director of Health and Social Care Implementation lead Sue Hogston, Head of Clinical Quality and Nurse Lead Implementation lead Sue Hogston, Head of Clinical Quality and Nurse Lead Programme manager Lesley Bates, Quality and Effectiveness Manager Programme manager Rudo Nyakuhwa, Quality and Learning Manager Sue Ryder – Quality Account 2013–14 23 Part three: our priorities for improvement 2014–15 Priority 5: Effectiveness Priority 6: Effectiveness To deliver an accredited development programme for non-registered clinical staff To improve and measure the quality of our end of life care In 2014–15 we will: In 2014–15 we will: • develop a programme based on the six C’s* to be delivered over the course of a year, recognising that leadership happens at the point of care • seek accreditation for the course • start the recruitment process for the first cohort • update our end of life care policy based on recommendations from the Leadership Alliance for Care of Dying People • widen our use of the End of Life Care Quality Assessment Tool (ELCQuA) from Public Health England • continue to implement person-centred care plans across our hospices Executive Leadership Team (ELT) sponsor Mike Smeeton, Director of Health and Social Care Executive Leadership Team (ELT) sponsor Mike Smeeton, Director of Health and Social Care Implementation lead Sue Hogston, Head of Clinical Quality and Nurse Lead Implementation lead Sue Hogston, Head of Clinical Quality and Nurse Lead Programme managers Rudo Nyakuhwa, Quality and Learning Manager Jo Kerridge, Practice Educator – Berkshire West Programme managers Angela Killip, Quality and Service User Experience Lead Helen Press, Quality and Risk Manager * The six Cs are based on the chief nursing officers of England’s values for nursing and care. 24 Sue Ryder – Quality Account 2013–14 Part four: indicators 1. Service user experience – all services • Service user experience is measured within the annual service user surveys in the following ways: • percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ • percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity • percentage of service users who responded ‘Yes’ when asked if they would recommend the service to family and friends (neuro and homecare services only) • NHS Net Promoter Score which measures how likely service users are to recommend the service to family and friends (hospices only) Our overall hospice score for 2013–14 was 95 Neurological services Palliative services G 2012–13 G 2013–14 G 2012–13 G 2013–14 Rated overall care Rated overall care Treated with respect and dignity Treated with respect and dignity Recommend the service Recommend the service 0 10 20 30 40 50 60 70 80 90 100 % 90 100 % 0 10 20 30 40 50 60 70 80 90 100 % Community support and homecare services G 2012–13 G 2013–14 Rated overall care Treated with respect and dignity Recommend the service 0 10 20 30 40 50 60 70 80 The response rate to our surveys is dependent upon those who are willing or able to complete the survey and therefore does not necessarily represent the experience of all. Sue Ryder – Quality Account 2013–14 25 Part four: indicators 1.1 Neurological care 2013–14 Survey Centre Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity Percentage of service users who responded ‘yes’ they would recommend the service to family and friends 100% 79% 92% 64% * 90% 78% 100% 86% 92% 71% 91% 68% 100% 77% 100% 86% 84% 82% Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe * The care centre manager is working with service user group to understand why this score is low compared to the percentage of service users that would recommend our service to others. Many of the service users using neurological care services have varying capacity and therefore the numbers who are able to take part are quite low. One of the initiatives for 2014–15 will help us to obtain real time information so that we can address any dissatisfaction as it occurs. 1.2 Palliative care 2013–14 Survey Hospice Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields * 96% 100% 100% 100% 98% 100% 100% Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity Those likely to recommend the service (Net Promoter Score) 96% 100% 100% 100% 97% 100% 100% 90 100 98 n/a* 91 92 91 St John’s did not include the net promoter score within the survey they sent out to patients. This will be included in 2014–15. 1.3 Community support and homecare services 2013–14 Survey Service Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity Percentage of service users who responded ‘Yes’ they would recommend the service to family and friends 94% 88% 100% 88% 96% 100% 100% 99% 100% Angus Homecare Heyeswood Stirling Homecare 26 Sue Ryder – Quality Account 2013–14 Part four: indicators 1.4 Formal complaints about care We define a formal complaint as ‘an expression of discontent to which a response is required’. With reference to our Complaints Policy, the complaint is considered formal when it is received orally, in writing or electronically and cannot be resolved within 24-hours of receipt. There were 19 formal complaints about care during 2013–2014. 50% (n=10) of our services had no complaints between April 2013 and March 2014. The target in the Complaints Policy for the initial holding response to complaints is three working days. Where the complaint was initially received by a service, and where the complaint was by a named complainant 100% were acknowledged within the timescale. The initial response time to a complaint within one service was not recorded, however this service did meet the final response target. The target in the Complaints Policy for the final written response to a complaint is 20 working days; however the policy does acknowledge that in some instances this is not possible. This would usually be where the investigation is complex. In these cases all services aim to maintain contact with the complainant, giving a report of progress and in all cases a holding reply was sent within 20 working days. Of those complaints where the complainant requested a formal response, in 10 out of 19 instances the 20 working day target was met. Where the target time was not met the complainant was in all cases sent a holding letter to explain the delay. All complaints were initially resolved locally however one complainant has since requested the intervention of the Health Service Ombudsmen. The complaints recorded in the tables below have been made about the delivery of care. In response to the Robert Francis Report (2013) we have altered our Complaints Policy to acknowledge the importance of learning from complaints and have committed to identify learning within the Quality Account. Having reviewed all complaints it was not possible to identify common themes for learning. Listed below are some of the changes that we have made in individual locations as a result of the complaints that have been made We have: • reviewed and further personalised individual care plans • tested out a revised nutritional assessment • developed a feedback card for meal times which is now being used in all locations • reviewed the case loads of specialist nurses in one of our locations • delivered training with regard to maintaining dignity when providing care • reminded staff teams of the importance of providing written information in support of information given verbally • applied a new system of ensuring regular nighttime checks of service users • used our specialist end of life care knowledge to train care workers to deliver high quality end of life care in an extracare* service * extracare is sometimes referred to as sheltered housing. This supports people with care needs who live in their own home with on-site care workers. Overall number of complaints 24 in 2012–2013 19 in 2013–2014 Sue Ryder – Quality Account 2013–14 27 Part four: indicators The tables below show formal complaints figures for all services for April 2013–March 2014: Neurological care Complaints about care Centre Number of formal complaints in 2012–13 Number of formal complaints 2013–14 Number of formal Number of formal complaints responded to in writing within 20 working days Upheld/ not upheld Birchley Hall The Chantry 0 1 0 3 3 2 out of 3 holding reply sent where this could not be achieved 1 upheld 1 partially upheld 1 not upheld Cuerden Hall 2 1 1 1 holding reply sent as this could not be achieved 1 not upheld Dee View Court Holme Hall Stagenhoe 0 0 0 0 0 0 Number of formal complaints in 2012–13 Number of formal complaints 2013–14 complaints aknowledged Number of formal Number of formal complaints responded to in writing within 20 working days Upheld/ not upheld Leckhampton Court 2 1 1 1 holding reply sent as this could not be achieved Not upheld (with Health Service Ombudsman) Manorlands 1 1 + 1 (CNS Service) 1 1 responded to externally by CSU Nettlebed St John’s Bedfordshire PEPS Thorpe Hall 1 0 0 2 0 1 0 2 10 2 + 2 (CNS Service) 1 0 complaints aknowledged within 3 working days Palliative care Complaints about care Hospice Duchess of Kent (West Berkshire services) Wheatfields 28 Sue Ryder – Quality Account 2013–14 within 3 working days 1 holding reply sent as Upheld this could not be Awaiting outcome achieved of external investigation 1 1 Upheld 2 2 1 partially upheld 1 not upheld 3 1 not recorded 2 2 holding replies sent as this could not be achieved 3 partially upheld 1 upheld Part four: indicators Community support and homecare services Complaints about care Service Number of formal complaints in 2012–13 Number of formal complaints 2013–14 complaints aknowledged Angus Homecare 3 3 Fourways Suffolk Heyeswood 0 0 0 1 Stirling Homecare Doncaster Befriending Service Doncaster Community Service 1 0 0 1 0 0 Sue Ryder – Quality Account 2013–14 Number of formal Number of formal complaints responded to in writing within 20 working days Upheld/ not upheld 3 2 1 holding reply sent where this could not be achieved 1 not upheld 2 upheld N/A – complaint received via Commissioners N/A 1 upheld 1 1 1 upheld within 3 working days 29 Part four: indicators 2. Safety 2.1 Incidents We commend our staff for ensuring that all accidents, incidents and near misses are appropriately reported so that we can learn from such incidents and strive to improve our care in order to minimise patient safety issues. The National Patient Safety Association recognises that high reporting is a mark of a ‘high reliability’ organisation. Research shows that providers with significantly higher levels of incident reporting are more likely to demonstrate other features of a stronger safety culture. 2.2 Number of incidents affecting service users 2013–14 Indicator Neurological care 2012–13 2013–14 Number of incidents resulting in death Number of incidents resulting in permanent or long term harm Number of service user slips, trips or falls resulting in hospital visit Number of reports under RIDDOR 0 1 2 0 0 1 11 1 Palliative care 2012–13 2013–14 0 0 4 0 0 3 6 1 Homecare 2012–13 2013–14 0 0 6 0 0 0 4 0 The four incidents described as resulting in long term harm in palliative and neurological care were incidents involving a fall resulting in a fracture and hospital admission. Within our homecare services, slips, trips and falls have been reported by the service but have not occurred during active care delivery. The increased reporting of the outcome of incidents within our on line incident reporting system could be attributed to a number of incident management training sessions delivered to managers from each location. Our health and safety team review all incidents reported by services. They have supported frontline staff to ensure guidance regarding RIDDOR* reporting is understood. There was one incident reported to RIDDOR where a bath chair appeared to collapse due to a design fault and this has been reported to MHRA. A second incident was reported to RIDDOR where a hoist sling failed. No harm occurred to any service user in either of these reported cases. * RIDDOR – Reporting of Injuries, Diseases and Dangerous Occurrences Regulations 2.3 Number of medicines incidents 2013–14 Neurological care Centre Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Minimal harm, person required extra observation or minor treatment Moderate (short term harm – person required further treatment) 3 10 5 2 1 4 0 0 0 0 0 0 The higher number of recorded medicines incident at the Chantry ‘resulting in extra observation or minor treatment’ is being addressed by a change to a new pharmacy provider that is providing tighter systems and processes and additional training to staff. 30 Sue Ryder – Quality Account 2013–14 Part four: indicators Palliative care Hospice Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields Minimal harm, person required extra observation or minor treatment Moderate (short term harm – person required further treatment) 4 9 1 7 10 1 11 0 1 0 0 0 0 1 The risk of medicines incidents occurring in our specialist palliative care settings is higher than our neurological care centres because of the complex medicines regimes, high turnover of patients and frequent review of prescriptions. We will continue with our specialist review of all medicines incidents to ensure trend analysis and learning. Community support and homecare services Service Angus Homecare Heyeswood Stirling Homecare Minimal harm, person required extra observation or minor treatment Moderate (short term harm – person required further treatment) 0 2 0 0 1 0 Extensive management of medicines training, a review of local procedures and a review of medicines audit processes has taken place over the last six months at Heyeswood. A recent review by the commissioners has demonstrated improvements in practice. Sue Ryder – Quality Account 2013–14 31 Part four: indicators 2.4 Regulatory inspection results Neurological care Centre Birchley Hall * The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Date of last check from CQC Standards of treating people with respect and involving them in their care Standards of providing care, treatment and support which meets people’s needs Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management 4 December 2013 9 August 2013 18 October 2013 ** 3 January 2014 6 December 2013 * We have taken steps to resolve the issues at Birchley Hall and have submitted our improvement plan. We are now awaiting re- inspection and are confident that the non-compliance has been resolved. ** Dee View Court is inspected by the Care Inspectorate in Scotland. Centre Dee View court Date of last quality visit Quality of care and support Quality of environment Quality of staffing Quality of management and leadership 15 May 2013 5 (Very Good) 5 (Very Good) 5 (Very Good) 6 (Excellent) Palliative care Hospice Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields 32 Date of last check from CQC Standards of treating people with respect and involving them in their care Standards of providing care, treatment and support which meets people’s needs Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management 11 Feburary 2014 September 2013 1 March 2014 21 November 2013 20 September 2013 17 Febuary 2014 31 January 2014 Sue Ryder – Quality Account 2013–14 Part four: indicators Community support and homecare services Service Fourways Suffolk Heyeswood Date of last check from CQC Standards of treating people with respect and involving them in their care Standards of providing care, treatment and support which meets people’s needs Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management 23 November 2013 19 June 2013 We have taken steps to resolve the issues at Heyeswood, submitted our improvement plan and are awaiting re-inspection. We are confident that the non-compliance has been resolved. Service Angus Homecare Striling Homecare Supported Living (House 7) Aberdeen* * Date of last quality visit Quality of care and support, 13 March 14 28 April 14 22 November 2013 Quality of environment Quality of staffing Quality of management and leadership 5 (Very Good) 6 (Excellent) 5 (Very Good) 6 (Excellent) 5 (Very Good) 6 (Excellent) 4 (Good) 4 (Good) 4 (Good) First inspection For more information about our inspection results for our palliative, neurological and community support services in England, please visit the Care Quality Commission website. For more information about our inspection results for our services in Scotland, please visit the Care Inspectorate website. Number of HCAI (2013–14) Health Care Acquired Infections (2013–14) G acquired within own service G acquired external to service Clostridium difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) Hepatitis (A, B or C) Tuberculosis Influenza 0 5 10 15 Sue Ryder – Quality Account 2013–14 20 25 new cases 33 Part four: indicators 3. Effectiveness Health Care Acquired Infections (HCAI) and pressure ulcers The number of infections and pressure ulcers across all neurological and palliative centres reflects the period between April 2013 and March 2014. Cases are identified as those that were acquired by the service user whilst under our care, and those acquired prior to the service user being admitted to one of our services. Number of HCAI (2013–14) Health Care Acquired Infections Clostridium difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) Hepatitis (A, B or C) Tuberculosis Influenza Total 34 Sue Ryder – Quality Account 2013–14 Neurological care Palliative care Acquired within own service Acquired external to service Acquired within Acquired external own service to service 0 18 0 0 0 0 0 0 0 18 0 1 1 0 0 0 0 0 0 2 2 0 0 0 0 0 0 0 0 2 10 2 5 4 0 0 2 1 0 24 Acquired within own service 2 18 0 0 0 0 0 0 0 20 Part four: indicators Number of HCAI by service (2013–14) Neurological care Centre Constridium Difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) 0 0 0 0 0 0 0 19* 0 0 0 0 0 19 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Constridium Difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) 1 5 1 0 2 0 0 1 0 0 0 0 0 0 2 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 3 0 12 0 1 2 3 0 5 2 1 4 0 0 0 0 0 0 2 0 2 0 0 1 0 0 0 Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total * Hepatitis Tuberculosis (A,B or C) 0 0 0 0 0 0 0 Influenza 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Hepatitis Tuberculosis (A,B or C) Influenza We experienced one episode of norovirus. Palliative care Hospice Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields Total  3.1 Pressure ulcers 2013–14 The number of pressure damage reports has increased over 2013–14. This increase is reflected in both those admitted to our services with pre-existing pressure damage and reports of pressure damage occurring whilst patients are within our hospice services. At present our data collection methodology is being transformed within the Datix on line incident reporting system to enable more information to be gathered centrally regarding the grade, site and origin of the pressure ulcer. This will enable us to improve identification of trends and enable more effective management of risks. During 2013–14 we reviewed our pressure ulcer prevention and treatment policy and our services are using local tissue viability nurse specialists to deliver training to staff. All service users have an assessment of their skin integrity on admission and pressure relieving equipment is available in all care settings. Patients admitted and treated within our hospices are generally at high risk of pressure ulcer development because of poor nutritional status and deteriorating physical health. In 2013–14 we had six incidents recorded as Grade 3 damage; three occurred within our neurological care centres. Two were a deterioration of an existing pressure ulcer (one because of an underlying medical condition, the other because of varying compliance with treatment). One developed shortly after a hospital admission and was a recurrence of a previous problem. Three occurred within our hospice services and of these, one patient was near to end of life, one patient had cachexia and one patient was non-compliant with treatment In 2013–14 we had one incident recorded at a hospice where a Grade 3 pressure ulcer was present on admission and this deteriorated to a Grade 4 Sue Ryder – Quality Account 2013–14 35 Part four: indicators The information within our Datix on line system is not in line with our monthly monitoring figures. This will be resolved when we apply the changes that we have developed within Datix. Where a pressure ulcer develops at Grade 3 or above we use a root cause analysis approach (one of the recommended National Patient Safety Agency tools) to review and learn from such incidents.. Pressure ulcers (2013–14)  G acquired within own service G acquired external to service Neurological care Palliative care 0 50 100 150 200 250 300 new cases Number of pressure ulcers by service 2012–13 compared to previous year Neurological care Centre 2012–13 Birchley Hall The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total 2013–14 Acquired within own service Acquired external to service Acquired within own service Acquired external to service 7 11 0 3 4 4 29 2 2 1 0 1 0 6 5M 3M 1L 2M 3M 2M 16 M 1 1 0 0 3 6 11 Palliative care Hospice 2012–13 Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields Total 36 Sue Ryder – Quality Account 2013–14 2013–14 Acquired within own service Acquired external to service Acquired within own service Acquired external to service 17 5 10 18 22 8 9 89 26 19 15 54 47 19 11 191 15 M 10 L 24 L 20 L 19 M 15 L 18 L 121 L 37 21 24 56 49 38 32 257 Part four: indicators Number of pressure ulcers (compared to last year) Pressure ulcers (acquired within Sue Ryder) G 2012–13 G 2013–14 Pressure ulcers (acquired external to Sue Ryder) G 2012–13 G 2013–14 Neurological care Neurological care Palliative care Palliative care 0 50 100 150 200 250 new cases 0 50 100 150 200 250 Neurological care Palliative care Pressure ulcers (acquired within Sue Ryder) G 2012–13 G 2013–14 Pressure ulcers (acquired within Sue Ryder) G 2012–13 G 2013–14 Centre Hospice Birchley Hall Duchess of Kent The Chantry Leckhampton Cuerden Hall Manorlands Dee View Court Nettlebed Holme Hall St John’s Stagenhoe Thorpe Hall 0 2 4 6 8 10 12 new cases Wheatfields 0 Sue Ryder – Quality Account 2013–14 new cases 5 10 15 20 25 new cases 37 Part five: annexes Annex 1 There is a legal requirement to report on this section • During the period of this report, 1 April 2013 to 31 March 2014 Sue Ryder provided NHS funded community care services in our hospices and some care centres and NHS funded nursing care in most of our centres. Sue Ryder had seven adult inpatient units within hospices, eight day hospices, one hospice at home service, three community nursing services, and five care homes with nursing. In addition to these services we also delivered care within one care home without nursing, two supported living services and one extracare service. • Sue Ryder has reviewed all the data available to it on the quality of care in all of the above services. • The percentage of NHS funding is variable depending on the nature of the service and ranges from 35% to 90% of the total cost of providing the service. The shortfall is met from Sue Ryder charitable income. • The income generated by the NHS services reviewed in the period 1 April 2013 to 31 March 2014 represents 100% of the total income generated from the provision of NHS services by Sue Ryder for the period 1 April 2013 to 31 March 2014. • During the period from 1 April 2013 to 31 March 2014 there were no national clinical audits or national confidential enquiries covering the NHS services that Sue Ryder provides – Sue Ryder sets an annual core audit programme that runs from April – March each year. • The core audit programme is risk-driven, and for hospices and neurological care centres includes record keeping, medicines management, falls prevention, manual handling, pressure ulcer assessment and management, care at end of life (neurological centres), infection prevention and control including environmental and hand hygiene audit – the monitoring, reporting and actions following these audits ensure care delivery is safe and effective. Each service reports audit findings into their local internal Quality Improvement Group. The HGC for Sue Ryder receives a twice-yearly overview of audit results and actions taken in response. Learning from audits is summarised and shared across health and social care via learning for safety memos. • From 1 April 2013 to 31 March 2014 Sue Ryder was not eligible to participate in national clinical audits. 38 Sue Ryder – Quality Account 2013–14 • 270 patients were recruited for a research study from two of our hospices in West Berkshire in a University of Reading questionnaire study on interaction between herbal supplements and conventional medicines. These patients received NHS services provided by Sue Ryder from 1 April 2013 to March 2014. They were recruited during that period to participate in research approved by a research ethics committee. In addition the following number of participants were recruited for the following trials: – Acupressure (8) – DASH (4) – OIC (9) – Sativex 0962 (6) – Sativex 0999 (4) Sue Ryder income in this reporting period for three hospices was conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment agreed via local commissioning groups. • Sue Ryder is required to register with the Care Quality Commission. Conditions of registration include the management by an individual who is registered as a manager in respect of that activity at all locations and maximum number of beds for its services in the following regulated activities: – accommodation for people who require nursing or personal care – diagnostic and screening procedures – nursing care – personal care – transport services, triage and medical advice provided remotely – treatment of disease, disorder or injury. • Sue Ryder has not participated in any special reviews or investigations by the CQC during the reporting period. • Sue Ryder was not required to submit records during the period from 1 April 2013 to 31 March 2014 to the secondary uses service for inclusion in the hospital episode statistics. • Sue Ryder is eligible to be scored for the period April 2013 to 31 March 2014 for information quality and records management, assessed using the Information Governance (IG) toolkit. The eligibility to be scored this year is due to a change in our organisation type and amendments to the IG toolkit. Previously the only option that was available to Sue Ryder, when first taking NHS services, was as a 'Commercial Third Party'. This did not focus on Information Quality and Records Management. Last year a new organisation type within the IG toolkit, ‘NHS Business Partner’, was introduced and Sue Ryder submitted evidence based on selfassessment for attainment level one (amber). Part five: annexes • Sue Ryder was not subject to the Audit Commission’s payment by results clinical coding audit during the period 1 April 2013 to 31 March 2014 • Sue Ryder will be taking appropriate actions to improve data quality through: – increased awareness in the importance of reporting – training, including how to use our documentation templates – identifying trends through a balanced scorecard reporting system – ‘learning for safety’ memos for when systems and processes change • some of the people we support may be local authority funded, depending on their needs. • Sue Ryder has a Monitor licence to provide NHS-funded services from 1 April 2014 onwards. None of Sue Ryder’s services have been designated as commissioner requested services. Sue Ryder – Quality Account 2013–14 39 Part five: annexes Annex 2 Statements from Lead Clinical Commissioning Groups (CCG)/ Commissioning Support Units,(CSU) the Overview and Scrutiny Committee (OSC) Health and Wellbeing Boards Feedback from the Leeds South and East Clinical Commissioning Group Thank you for the opportunity to review and provide a response to your Quality Account for 2013/14. We have sought views from a range of stakeholders and clinicians, and our response is as follows: Leeds South and East Clinical Commissioning Group (CCG) welcomes the opportunity to comment on Sue Ryder quality account for 2013/14. Leeds South & East Clinical Commissioning Group is providing this narrative on behalf of all three Leeds Commissioning Groups including Leeds West CCG and Leeds North CCG. We have reviewed the account and we believe that the information published, that is also provided as part of the contractual agreement, is accurate. We are supportive of the priorities that have been proposed for the forthcoming year, and pleased to note the specification of standards and thresholds. In November 2013 the Government published its response to Sir Robert Francis’s report into the events at Mid-Staffordshire hospital. This report, entitled ‘Hard Truths’, accepted the vast majority of Sir Robert’s recommendations and confirmed the need to focus on high quality health care. It is crucial that commissioners and providers work together to ensure this. We are therefore pleased to see that the organisations priorities focus on the three main elements of quality, namely clinical effectiveness, patient safety and patient experience. In addition Sue Ryder continues to use the values adopted in the NHS constitution. We are pleased to note the work undertaken to better understand the safety culture in each service and the two-day ‘deep dive’ quality visits. We are also pleased to note the use of an established tool - the Manchester Patient Safety framework - in support of the above. It is pleasing to note the focus on the development of education and training for the non-registered workforce, this highlights the organisations commitment to high quality care in line with the recent Francis recommendations. 40 Sue Ryder – Quality Account 2013–14 Sue Ryder continues to engage with service users and the public and we commend the sharing of patient experience stories and looking at ways to improve the complaints process. As identified in our response last year, it would add value if local providers or Sue Ryder as an appendix could collate a summary page per provider to highlight local patient experience and local quality initiatives It is pleasing to see the Wheatfield’s commitment for 14/15 to ELQuA and falls, which fits well with local plans around transformation and service developments this year. We note the work that has been undertaken to improve wound management, but it is concerning to note an increase in both number of pressure ulcers reported/recorded and medication incidents during 13/14 in Wheatfield’s. It would be good to know what actions are planned to manage this next year and how CCGs will be made aware of concerns, themes and trends. We continue to have a positive relationship with Wheatfield’s and we look forward to working with them in 2014/15 with the aim of delivering the highest standards of patient centred, palliative care. Ellie Monkhouse Director of Nursing and Quality, Leeds North CCG Director of Nursing and Quality, Leeds South and East CCG Our response to the comments we received: Sue Ryder welcomes this feedback. Next year’s quality account will contain a local appendix pulling out this type of information. Part five: annexes Feedback from the Airedale, Wharfedale and Craven clinical commissioning group Thank you for sending through the Sue Ryder 2013/14 Quality Accounts for review. Overall, the Sue Ryder Quality Account provides a good and thorough account of the initiatives over the last year and the priorities for the next twelve months. It is clear a tremendous amount of hard work has gone on over the last twelve months to achieve all the things you have as an organisation. I am particularly encouraged by the work Sue Ryder has undertaken around staff behaviours and development. It is great for the organisation to recognise the importance of its staff and invest time and energy into their development and behaviours. This is important as we know that motivated and engaged staff provide higher quality care for patients. I like the use of an easy read version for the public, however, even the main document is written in such a way it is easy to understand and flows well with great use of pictures and diagrams to break up the text. I particularly liked the sections where you have said what you will do and then provided the evidence of how this has been achieved. This makes it very clear to the reader what has been done. It is great to read of the new initiative around supporting carers in our area and I feel this is a big benefit to the carers and I am sure brings great job satisfaction for the staff involved as well. In the section around patient feedback and complaints it is fantastic to read about how highly service users praise Manorlands and particularly around the areas of dignity and respect and overall care where the scores were 100%. Staff should be congratulated on this as clearly they show care, commitment and respect to their patients which is firmly embedded in the care and compassion document from the chief nursing officer and the 6C’s. The priorities for 2014/15 are clearly identified and are firmly embedded in the three areas of quality; patient safety, clinical effectiveness and patient experience. Overall Sue Ryder appears to have had a great year and I feel very assured that our patients using the services provided by Sue Ryder clearly receive a very high standard of care. I look forward to continuing to work closely with Sue Ryder and in particular yourself and the staff at Manorlands over the coming year. Our response to the comments we received: We welcome this feedback. We will be working on a local summary with Manorlands to share with yourself and we look forward to a working partnership over the coming year. Feedback from NHS Cambridgeshire and Peterborough Clinical Commissioning Group – Priorities look to be in line with the general direction of travel of healthcare services. – Services look to be well received by patients – You have delivered on most areas you said you would in 13/14. – Most areas have improved – I spotted only a couple that had deteriorated. Simon Pitts Programme Manager, Borderline and Peterborough LCGs NHS Cambridgeshire & Peterborough Clinical Commissioning Group Our response to the comments we received: We will be working over the coming year to produce a local summary. At Thorpe we will be working on improvements for pressure ulcer prevention and protection. We note the increase of patients with pressure damage but as a care team we will addressing how we are managing this using a new tool to identify ulcers present on admission and documentation of their management. The following organisations received our Quality Account for 2013–14 but were unable to provide comments or feedback this year. • Bedfordshire Clinical Commissioning Group • Bradford NHS • Camden Healthwatch • Central Southern Commissioning Support Unit • Suffolk County Council ACORNS The Quality Account priorities for 2014–15 were agreed by ACORNS at their meeting in April 2014. The draft Quality Account was then circulated for comment. A summary version of the Quality Account will be developed for service users, their families and for display within our centres, as this has proved popular. Steph Lawrence Head of Clinical Quality and Governance/Executive Nurse Sue Ryder – Quality Account 2013–14 41 Sue Ryder 1st Floor 16 Upper Woburn Place London WC1H 0AF For more information call: 020 7554 5900 email: healthandsocialcare@sueryder.org visit: www.sueryder.org This document is available in alternative formats on request. incredible hospice and neurological care Sue Ryder is a charity registered in England and Wales (1052076) and in Scotland (SC039578). Ref. No. 03359/0414/B/NP/H © Sue Ryder. May 2014.