Quality Account 2014 –15 Our quality performance, initiatives and priorities Contents Quality Account 2014–15 Our quality performance, initiatives and priorities 04 08 10 12 13 14 16 18 20 22 25 27 29 32 33 Part one: our priorities for quality Position and status on quality Part two: our priorities for improvement Our progress against our priorities for improvement Priority 1: Service user experience Priority 2: Service user safety Priority 3: Effectiveness Priority 4: Effectiveness Priority 5: Effectiveness Priority 6: Effectiveness Part three: indicators Service user experience Safety Effectivness Part four: annexes Annex 1: Legal requirements Annex 2: Statements from Lead Clinical Commissioning Groups Annex 3: Feedback from service user group - Acorns Annex 4: National service offering Sue Ryder – Quality Account 2014–15 3 Part one: our priorities for quality Position and status on quality Joint statement from our Chief Executive and the Chairman of Trustees Welcome to our annual Quality Account, a summary of our performance against selected quality measures for 2014–15 and our initiatives and measures for 2015–16. This is our sixth account and each year we use the account to celebrate some of the year’s achievements in healthcare. Working towards a national service offer The aim of the Sue Ryder national service offer is to give people true choice, personalisation and control over how and where they are supported by making a defined list of services available to all people accessing our specialist palliative and neurological care. Each defined service line is detailed in a service specification which formalises our qualitative expectations i.e. what makes incredible care. We’re also using the money raised by Morrisons customers and colleagues to set up new community services and family support teams, ensuring people facing life-limiting conditions receive the best possible care. In Oxfordshire, seven day community nurse specialists are already caring for people with life-limiting conditions in their own homes, whilst in West Yorkshire, complementary therapists are now able to deliver treatments in local communities. The list of services has been developed by crossorganisational Sue Ryder professionals, and has been reviewed and agreed by our Health and Social Care Subcommittee. You can view the services in our national offer in Annex 4. New services launched in 2014-15 include an expanded homecare service in Scotland, the development of a clinical nurse specialist team at our Nettlebed Hospice, and the introduction of a Hospice at Home service at Leckhampton Court Hospice. We’ve also now completed the construction of our new purpose-built Thorpe Hall Hospice. End of life befriending service The Cabinet Office awarded £237,776 to Sue Ryder in December 2014 to help us deliver an end of life befriending service providing vital support for people and their families across England. Our charity partner, Morrisons When someone is dying, questions and emotions can be overwhelming. So it’s comforting to know support is only a click away. Thanks to the generous support of our charity partner Morrisons, from May 2015 Sue Ryder is able to help more people and their loved ones than ever before who are facing life-limiting conditions, through our new Online Community. Whether someone just wants to take a look, feels ready to join the conversation or ask a question, they’ll be able to join us from their mobile phone, tablet or computer 24 hours a day to access: • free practical information • expert advice • support from people with similar experiences 4 Sue Ryder – Quality Account 2014–15 With this funding, we’ll be able to replicate the successful end of life befriending service that we already offer in West Berkshire across other sites in West Yorkshire, Peterborough, Bedfordshire, Leeds and Cheltenham. Trained Volunteers will provide companionship and emotional support, as well as practical support to help people reconnect with their own communities. Working in partnership with Dynamic Healthcare Systems VitruCare is a digital health service enabling patients living with life-limiting conditions to record decisions about their healthcare, plan for the future and keep in touch with their support team using a computer, tablet or smartphone. Having obtained funding from NHS England’s Small Business Research Initiative, Sue Ryder and Dynamic Health Systems are working in partnership to pilot the service across three areas supported by Sue Ryder hospices: • Airedale/Wharfedale/Craven/Bradford (Manorlands Hospice) • Leeds (Wheatfields Hospice) • Bedfordshire (St John’s Hospice) ‘Dying doesn’t work 9 to 5’ campaign We are campaigning to ensure terminally ill people and their carers have immediate access to dedicated 24/7 co-ordinated expert support from a helpline. We hope this will stop the fear, isolation and distress that many people and their families are facing when services are not available out of hours. We want to push forward on what comprehensive end of life services and support look like, so we’re asking the public to sign our petition to ensure 24-hour expert support and coordination is available to everyone. We have received a huge response to this request. Sue Ryder – Quality Account 2014–15 We hope you find our Quality Account useful. We welcome suggestions for future accounts. The Quality Account and the information it contains is accurate at the time of print; it has been reviewed via our internal governance structure and is true to the best of our knowledge. Heidi Travis Chief Executive Roger Paffard Chairman of Trustees 5 Part one: our priorities for quality We have incredible colleagues and volunteers who demonstrated our values through the Sue Ryder Incredible People Awards 2014 1. Do the right thing Carmella Miller is volunteer manager and lead facilitator for 11 community Synergy Dementia Cafés spread across Suffolk with a team of facilitators and assistants working for her. In addition, she took on a temporary lead role for the Suffolk Dementia Helpline, overseeing the rota for volunteers, particularly those who work from home in the evenings. All of the volunteer teams managed by this exceptional young woman feel well supported and speak very warmly of her; she makes time for every individual and maintains a professional relationship, ensuring that they all feel valued and fulfilled. 2. Push the boundaries Dr Linda Wilson, an inspiring medical consultant at Manorlands Hospice, has been instrumental in the development of a dedicated phone line providing out of hours palliative support and guidance for patients, carers and professionals in Airedale, Wharfedale, Craven and Bradford. The Gold Line service is manned by trained and experienced staff in the Telehealth Hub at Airedale Hospital. 3. Make the future together Volunteers Ted Nickson, Michael Johnson and Geraldine Woodruff join the Cuerden Hall Neurological Care Centre activities team every Friday. Starting with a good catch-up and a brew, they ask what the residents want to do and then help them to join in. They help with dinners, assisting residents with their lunches, clearing up, and providing entertainment. Afternoons are filled with word searches and a quiz that one of the team has prepared. They are a marvellous addition to our volunteering team; patient, considerate, organised, and so eager to help in any way that they can. In response to the award, Michael said “I feel humbled to think that you can receive an award for something you love doing. I am amazed at the resilience and cheerfulness of people living under very difficult circumstances. I feel it a privilege to have the opportunity to work with so many lovely people. Long may it continue.” Linda demonstrated great passion, commitment and tenacity in working with key stakeholders to establish this service. Our vision We aspire to create a world where everyone has access to personalised and compassionate care. Our values At Sue Ryder we’re passionate about giving people the care they want, that’s why we always aim to: 1. Do the right thing 2. Push the boundaries 3. Make the future together 6 Sue Ryder – Quality Account 2014–15 Our service map Head Office 1. Central Office, London Registered Office 2. Sudbury Office, Sudbury Aberdeen 19 10 16 17 3. 4. 5. 6. 7. 8. 9. Palliative Care Sue Ryder – Manorlands Hospice, West Yorkshire Sue Ryder – Wheatfields Hospice, West Yorkshire Sue Ryder – Thorpe Hall Hospice, Peterborough Sue Ryder – St John’s Hospice, Bedfordshire Sue Ryder – Nettlebed Hospice, Oxfordshire Sue Ryder – Leckhampton Court Hospice, Cheltenham Sue Ryder – Duchess of Kent Hospice, Reading 10. 11. 12. 13. 14. Complex neurological care Sue Ryder – Dee View Court, Aberdeen Sue Ryder – Holme Hall, East Yorkshire Sue Ryder – The Chantry, Suffolk Sue Ryder – Stagenhoe, Hertfordshire Sue Ryder – Cuerden Hall, Lancashire Elderly & dementia (residential care) 15. Sue Ryder – Birchley Hall, Merseyside Homecare services (in Scotland) 16. Angus Homecare 17. Stirling Homecare Supported living 18. Supported Living Unit, Suffolk 19. Supported Living Unit, Aberdeen Leeds 3 14 4 11 Other services 20. Doncaster Community Services, Doncaster 21. PEPS service, Bedfordshire 22. Dementia Helpline, Suffolk Liverpool 15 20 Nottingham 5 Birmingham 21 6 8 13 Oxford 18 2 12 22 London 7 1 9 Sue Ryder – Quality Account 2014–15 7 Part two: our priorities for improvement Our progress against our priorities for improvement 2014-15 The priorities for 2014-15 were: Priority 1 Service user experience To embed the use of electronic devices to gain real-time feedback from people who use our services Priority 2 Service user safety To manage the risk of harm from falls Priority 3 Effectiveness To continue to develop and then measure the activity standard Priority 4 Effectiveness To develop our strategy for education and training Priority 5 Effectiveness To deliver an accredited development programme for non-registered clinical staff (our healthcare assistants) Priority 6 Effectiveness To improve and measure the quality of our end of life care 8 Sue Ryder – Quality Account 2014–15 The priorities for 2015-16 are: Priority 1 Service user safety To implement and embed the new falls strategy with reference to the implementation plan: • supporting and training staff on the use of the new falls risk assessment tool • audit and evaluation of care records to ensure assessment tools are fully utilised • monitoring all falls and ensuring harm is reduced in all circumstances Priority 2 Effectiveness To develop our leadership programme for our clinical and non clinical workforce, linking to the national RCN programme when this is relaunched later in 2015. To evaluate the leadership programme offered during 2015 which is a joint programme with other Sue Ryder directorates Priority 3 Effectiveness To review the learning from the pilot sites to further implement the use of electronic feedback across all sites. To develop our service user strategy with agreed national aims which link to local implementation plans. Priority 4 Service user experience To implement local service user involvement plans across each healthcare site. • Launch national service user strategy. • Recruit member of Trustee Board with special interest in service user involvement. • Recruit volunteer ambassadors via our service user group to influence national campaigns and policy. Priority 5 Effectiveness To review our pressure ulcer prevention policy and monitoring systems. • Increase staff education and training on pressure ulcers prevention in palliative care services. • Undertake detailed investigation of any pressure ulcer development of grade 2 and above. Sue Ryder – Quality Account 2014–15 9 Part two: our priorities for improvement Priority 1: Service user experience To embed the use of electronic devices to gain real-time feedback from people who use our services We said we would: purchase, pilot and begin to use devices for real-time feedback across all our services. We said we would: train volunteers to support service users to use devices for feedback. We did. Working with Elephant Kiosks, in 2014 we developed a pilot project to run across two hospice sites using both hand-held tablets and Elephant Kiosks to collect real-time feedback. The aim of the project was to evaluate whether collecting this feedback supports meaningful and ongoing engagement of service users. After consultation with service representatives the stand-alone kiosks were removed from the project (though remaining a possibility for the future) with use of hand-held tablets the preferred option. We did. A protocol for use of the devices was developed and a training plan for volunteers was put in place at the two pilot sites. Having a trained group of volunteers, using a common script and approach enables Sue Ryder to be certain of the quality of the feedback collected. The pilot showed that services users, families and the recruited volunteers found the devices easy to use. A working group supported and directed the pilot, recognising a variety of approaches were necessary. The working group was responsible for collating questions to ask, agreeing the processes for collection and interrogation of data and evaluating the pilot’s success. The pilot showed that collecting real-time feedback does support meaningful and ongoing engagement of service users, making sure we remain person-centered by creating and using the data collected to influence the commissioners of services and as credible evidence for inspectors. For example, the free text boxes allowed detailed feedback identifying that the night staff were noisy at times, enabling the service manager to discuss this with the service user and staff to make an immediate improvement. Authority for roll out has been given and a budget set, an implementation plan has been created and roll out across all sites will be completed by December 2015. We said we would: look at the use of real-time feedback for audits. We did. The use of real-time feedback in audits is being explored. The potential is seen for the tablet devices to make audits of the care environment, experience of mealtimes and presence of infection prevention measures a straightforward process. This is being developed slowly to make sure of a thorough evaluation. “Every week I see the nurse to have my symptoms and medication assessed and any problems are sorted immediately. The Sue Ryder doctors and nurses work well with other NHS services too.” Richard, patient at Duchess of Kent Hospice. 10 Sue Ryder – Quality Account 2014–15 Establishing if resident dependency outstrips resources Shirley, Head of Care at neurological care centre The Chantry, undertook a project to establish the answer to a question raised by a service user: ‘Does resident dependency outstrip staffing resources?’ She and the practice educator conducted an observational exercise over a four week period to monitor if processes were being followed. Shirley shadowed clinical staff, focusing on Sue Ryder – Quality Account 2014–15 observing residents’ care, handover, allocations, rota management and medication rounds. The practice educator focused on mealtimes, the shared lounge and observations of care. The exercise identified that during shifts, workloads did outweigh the resources available to deliver care. Through discussion with the service manager, a recommendation was put forward to change allocation of workload to provide equity and consistency of care based on complexity of need. This included increasing staffing levels by two support workers on each shift during the day and one support worker at night. A hostess role was also introduced at mealtime pressure points to improve the mealtime experience. 11 Part two: our priorities for improvement Priority 2: Service user safety To manage the risk of harm from falls We said we would: write a falls risk management strategy and implementation plan. We said we would: evaluate the success of the strategy through incident review and a newly developed core audit. We did. We carried out a literature search which identified common risk factors, risks associated with different care settings and interventions designed to prevent falls. This informed development of a falls risk management strategy and implementation plan along with reference to NICE guidance and the Patient Safety First Guidance on how to reduce harm from falls. Following consultation at the Quality Action Group in December 2014, we agreed the falls risk management strategy. We did. We developed a falls risk audit based on the falls risk management policy and tested compliance with policy across all of our services during May and June 2014. We then developed action plans across all of our services in response to the falls risk audit. We also developed our specialist review approach to presenting an overview of falls incidents to the Healthcare Governance Committee to include assurance from each of our services of their response to identified trends. We said we would: deliver priority areas of the implementation plan. We did. We piloted a numerical falls risk assessment with one of our hospices which identified that a multifactorial risk assessment would be the best approach to assessing risk going forward. This, along with the recommendations identified within the falls risk management strategy and implementation plan, informed revision of our falls risk management policy to include: • guidance on how to report falls • a new multifactorial falls risk assessment • a post-falls protocol • more guidance regarding environmental risk assessment • a requirement to carry out a root cause analysis investigation where there is serious harm “The friendly staff work together with input from volunteers providing fun activities. Interacting with other patients in a similar situation and sharing stories is very enjoyable.” Roy, a Nettlebed day hospice patient. 12 Sue Ryder – Quality Account 2014–15 Part two: our priorities for improvement Priority 3: Effectiveness To continue to develop and then measure the activity standard We said we would: launch B-Active, our activity standard. We did. We bought staff and service users together to identify the differences in the activities offered at each of our hospices and neurological centres. We then used this to agree a set of standard activities which should be available everywhere as well as identifying some initial improvements to the activities already on offer. To communicate what was agreed, we developed a B-Active Standards leaflet setting out the activities service users would like to see offered and how they would like to see these delivered. A newly appointed occupational therapist in one of our neurological services will collaborate in the next stages of the standard setting and evaluation process. We said we would: support activity co-ordinators to make service improvements in line with the standard. We did. Activity co-ordinators across all of our services have been involved with the meetings to review the draft of the activity standards. This has included bringing our palliative and neurological activity teams together to hear about how activities differed and learn from each other. Training opportunities were also discussed and shared. They will continue to be fully involved in the development of the activity standards framework, supported by the Quality Team to check their activities against these standards, identify any areas of improvement and achieve their improvement plans where in place. We said we would: develop a themed survey to evaluate the success and impact of the project based on recommendations by our national service user advisory group: Acorns. We did. An evaluation document is being written using the principles of person-centred planning. This priority is being completed working closely with the quality manger and data analyst working on Priority 1: service user experience. Services will be asked to evaluate current activity programmes with full service user involvement. This will produce an action plan for change which will be part of the services’ Quality Improvement Plan. Service user feedback will continue to influence service provision, particularly in our neurological care settings. Activity within palliative services continues to be very closely monitored by commissioners and CQC inspection. We said we would: continue to consult with Acorns on the delivery of meaningful activities. We did. The Acorns team have been fully involved in progressing this priority. They have signed off the standards and B-Active Standards leaflet and have been brought fully up to date on progress against the work plan. A number of service users involved in activities but not on the Acorns group were also asked to comment on the draft leaflet and the draft version of the service standards. The final version of the standards, after involvement of the newly-appointed occupational therapist, and B-Active standards leaflet will be passed through Acorns in April and introduced to all services mid-2015. e B – Activ ndards a Activity st Sue Ryder – Quality Account 2014–15 13 Part two: our priorities for improvement Priority 4: Effectiveness To develop our strategy for education and training We said we would: develop a three-year strategy for learning and development across healthcare. This has been superseded by an organisational Learning and Development strategy. We did. A cross-organisational learning strategy has been developed by the Organisational and People Development Team working in partnership with key directorates. The strategy supports the delivery of the five year plan and strategic goals. The themes have been identified as: • on-boarding and induction • improving management capability • building leadership capability • core skills development for all • improved use and access to learning and development resources • income generation We said we would: put in place an implementation plan for each of the strands which support healthcare delivery. We did. This organisational strategy was approved by the Executive Leadership Team. There is an organisational development plan which is reviewed annually and refocuses priorities to keep momentum against key organisation needs. An implementation plan has been put together to meet the needs of healthcare staff based on local learning needs analysis and feedback from each centre into the central Organisational and People Development Team. We said we would: agree a process for measuring and monitoring plans and actions. We did. The success of this strategy and the effectiveness of ongoing operational activity can only be determined through effective dialogue with people in our organisation and systematic measures of performance. This will be through a range of engagement and measurement methods and activities. Engagement activities will include: • commitment from the health and social care Learning and Development Workforce Group to lead local implementation plans for education • organisational development of key skills, across all directorates • continued working in partnership with staff for the development of policies and guidance to ensure that these reflect their needs • staff surveys as a form of evaluation and monitoring “Sue Ryder was able to co-ordinate my care so I didn’t need to go to different doctor’s appointments. When I was admitted they managed to keep my symptoms under control and I was able to go home. They look after my wife as well, she regularly goes to the carers’ support group and really enjoys it.” Chris, patient at Manorlands Hospice 14 Sue Ryder – Quality Account 2014–15 Improving communication between day and night shifts Staff nurse Janina, at neurological care centre Stagenhoe, identified that communication between day and night staff was not as good as it could be, with important information not always being passed on. An in-depth quality visit and spot checks by the practice educator confirmed her observation, so Janina made some suggestions for improvement. management to provide internet access for all night staff and preparing a night staff communication folder to be shared with other units, giving them the opportunity to pass on things that are important to the day staff when they do not get the opportunity to see or speak to them. These measures helped to ensure that night staff are not missed out from communication of important issues, helping them to feel more included in what’s happening in the centre and to feel more valued. This included introducing a night staff (including bank staff) managerial supervision list and monthly meetings, asking Sue Ryder – Quality Account 2014–15 15 Part two: our priorities for improvement Priority 5: Effectiveness To deliver an accredited development programme for non-registered clinical staff We said we would: develop a programme based on the 6 Cs of Nursing (care, compassion, competence, communication, courage, commitment) to be delivered over the course of a year, recognising that leadership happens at the point of care. We did. The Francis report and Cavendish review both identified the need to develop a workforce that supports system-wide improvements in patient care and experience across all healthcare providers. There was particular emphasis on developing the skills of support workers and healthcare assistants in leadership and management, alongside their clinical skills. This fitted well with the Chief Nursing Officer’s 6 Cs of Nursing, an initiative which was developed as a vision and strategy for nursing to make a difference. The module was designed to equip students with the knowledge and skills to translate the 6 Cs into practice; empowering them to lead in the delivery of compassionate, competent, evidence-based care. We said we would: seek accreditation for the course. We did. After careful deliberation the module was named Delivering Compassionate Care. It was presented to the accreditation board of University of West London in June 2014 by Jo Kerridge who worked tirelessly to put this module together. It was agreed / approved at the first presentation with only one minor change. We said we would: start the recruitment process for the first cohort. We did. Recruitment started for the first cohort in July 2014 and the actual module started to run in September 2014. At least 30 of our unregistered clinical workforce enrolled onto the course. The course is being run by our local Practice Educators across three areas: • Nettlebed Hospice / Leckhampton Court Hospice • St John’s Hospice / Thorpe Hall Hospice • Cuerden Hall Neurological Care Centre “We have been able to contribute our views on the recent refurbishment, have helped to get wi-fi and appropriate laptop computers for the patients, established a memory garden and sent a delegation to address a parliamentary sub-committee.” Dr John Roth, on behalf of the Duchess of Kent Hospice user group 16 Sue Ryder – Quality Account 2014–15 Our healthcare assistant course Prior to commencing the six study days for this module, we delivered a study skills day to familiarise the students with the requirements for writing and studying at a higher education (HE) level. This proved to be the most challenging aspect of the course for the delegates. ‘The six study days were themed around the 6 Cs and the content identified in the module study guide, and were delivered by the education teams in each area. This enabled the workshops to be locally driven, and the relevance to their workplace made more explicit for the students. It also allowed for collaborative working with colleagues from other local centres; something which was identified as being of great value by the students themselves. outcomes. A pass mark will give them 20 academic credits at HE level 4, which is foundation degree level. Not all the students will achieve this, and some have withdrawn from completing the full module. However, the students who decided not to submit have still attended some or all of the study days, and this has been hugely beneficial to their professional development. ‘The education teams plan to meet to review the module once the marking has been completed. It is hoped to deliver the module again in 2015, but changes will need to be made to make it more manageable from an administrative view. There will also be a recommendation that it is also opened more widely to Sue Ryder HCAs who only want to attend the study days, as the learning from these workshops is just as valuable as that achieved by academic study, and will make the module more accessible to those who may struggle with this aspect of a course.’ Jo Kerridge, Delivering Compassionate Care module leader ‘The assessment for this module consisted of three assignments which reflected on the students’ own practice, and demonstrated achievement of the module learning Sue Ryder – Quality Account 2014–15 17 Part two: our priorities for improvement Priority 6: Effectiveness To improve and measure the quality of our end of life care We said we would: update our end of life care policy based on recommendations from the Leadership Alliance for Care of Dying People We did. We updated our end of life care policy with reference to the Leadership Alliance for the Care of Dying People (LACDP)’s publication: One chance to get it right. The policy now has a link to the quick reference guides for staff based on the five priority areas (recognise, communicate, involve, support, plan and do). The approach now taken in policy is to have an individualised care plan. We agreed this revised end of life care policy at the Healthcare Governance Committee in October 2014. We said we would: continue to implement person-centred care plans across our hospices We did. We implemented a new approach to person-centred care planning across our hospices which has led to a further review of our approach. Following observations made during quality team visits we worked with nursing teams at hospices to look afresh at the Sue Ryder-designed care plans to see how further refinement could make them more personcentred. We said we would: widen our use of the End of Life Care Quality Assessment Tool (ELCQuA) from Public Health England We did. We supported all of our Hospices to join the ELCQuA website which will help us to plan our priorities for end of life care, monitor compliance with the NICE Quality Standard for End of Life Care and benchmark ourselves against other similar services. We identified gaps in our data sources that would demonstrate compliance against the standards and have taken measures to rectify this through the development of our surveys and core audits. We piloted a newly developed ‘after death audit’ in two hospices. This audit tool is designed to test our compliance with standards relating to end of life care. “In my old nursing home they didn’t understand Huntington’s. I didn’t smile anymore and I’d lost a lot of weight. Shortly after I came to Holme Hall I took up dancing. That shocked my sons the most – they were amazed at the change in me.” Graham, resident at Holme Hall Neurological Care Centre. 18 Sue Ryder – Quality Account 2014–15 Improving communication Staff nurse Joanne aimed to improve sharing of information, ideas and knowledge between units at neurological care centre Stagenhoe by putting in place a regular monthly trained staff meeting. First she discussed the idea with colleagues and the head of care, asking for their input and ideas. There were some challenges to overcome including setting a date and time for meetings within a busy shift, finding a suitable venue, encouraging staff who were not on duty to Sue Ryder – Quality Account 2014–15 attend and finding someone willing to take and distribute minutes of meetings in her absence. After two initial meetings the response from colleagues has been positive overall with some areas of improvement also noted. Trained staff are now more up to date with how other units are running and the individual needs of all the clients in the centre. This has increased confidence in staff when working on a different unit, improving client care. Clients are aware that their opinions matter and that they can influence change within the care centre. 19 Part three: indicators 1. Service user experience – all users Service user experience is measured within the annual service user surveys in the following ways: • percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ • percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity • percentage of service users who responded ‘Yes’ when asked if they would recommend the service to family and friends (neuro and homecare services only) • NHS Net Promoter Score which measures how likely service users are to recommend the service to family and friends (hospices only) 1.1 Neurological care 2014-15 Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe 2013-14 79% 92% 64% 90% 78% Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity 2014-15 89% 100% 87% 77% 95% 2013-14 86% 92% 71% 91% 68% 2014-15 89% 100% 88% 84% 95% Percentage of people likely to recommend the service 2013-14 77% 100% 86% 84% 82% 2014-15 89% 100% 93% 100% 94% 1.2 Palliative care 2014-15 Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Leckhampton Court Manorlands Nettlebed St Johns Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields 2013-14 96% 100% 100% 100% 98% 100% 100% Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity 2014-15 100% 100% 100% 98% 98% 97% 100% 2013-14 96% 100% 100% 100% 97% 100% 100% 2014-15 94% 100% 97% 98% 98% 97% 100% NHS Net Promoter Score 2013-14 90 100 98 n/a* 91 92 91 2014-15 84 94 95 100 91 83 100 *St John’s did not include the net promoter score within the survey they sent out to patients in 2013-14. 1.3 Community support and homecare services 2014-15 Percentage of service users who rated overall care as ‘Good’ or ‘Excellent’ Angus Homecare Stirling Homecare 20 Sue Ryder – Quality Account 2014–15 2013-14 94% 88% 2014-15 97% 77% Percentage of service users who responded ‘Yes, completely’ or ‘Yes, mostly’ that overall they were treated with respect and dignity 2013-14 88% 96% 2014-15 99% 96% Percentage of service users likely to recommend the service 2013-14 100% 99% 2014-15 98% 95% Part three: indicators 1. Service user experience – all users 1.4 Formal complaints about care Complaints 2014-15 We define a formal complaint as ‘an expression of discontent to which a response is required’. With reference to our complaints policy, the complaint is considered formal when it is received orally, in writing or electronically and cannot be resolved within 24hours of receipt. There were 18 formal complaints about care during 2014–2015. The target in the complaints policy for the initial holding response to complaints is three working days. Where the complaint was initially received by a service, and where the complaint was by a named complainant, 100% were acknowledged within the timescale. The target in the complaints policy for the final written response to a complaint is 20 working days; however the policy does acknowledge that in some instances this is not possible. This would usually be where the investigation is complex. In these cases all services aim to maintain contact with the complainant, giving a report of progress. In all cases this standard was met within 20 working days. Neurological care Centre Stagenhoe Formal complaints 2013-14 Formal complaints 2014-15 Acknowledged within three days Responded to in 20 days 0 3 3 2 Upheld/ not upheld Partialy upheld upheld 2 not upheld 1 Holme Hall The Chantry Dee View Court Cureden 0 0 0 0 1 0 1 1 1 agreed extension 0 1 1 1 upheld 1 Formal complaints 2013-14 Formal complaints 2014-15 Acknowledged within three days Responded to in 20 days Upheld/ not upheld Partialy upheld Nettlebed 0 3 1 2 2 agreed extension 1 2 upheld 2 Manorlands 3 holding 1 3 1 Palliative care Centre 3 upheld 2 not upheld 1 St John’s Wheatfields Thorpe Hall Leckhampton Duchess of Kent 0 0 2 1 2 2 1 1 1 1 2 1 1 1 1 2 1 agreed extension 1 1 1 upheld 2 1 1 1 1 There are no recorded complaints from any of our community support and homecare services across 2014-15 The themes are very important from complaints to assist in learning and to improve the overall experience for individuals using our services, these included communication to relatives, staff attitudes/behaviours, full respite experience, environment, bureaucracy/ non-care processes, care which did not meet the expectations of the family. Changes made • Local policy and procedural review for respite admissions: these have been updated and reviewed. • Procedural review, clarifying communication to family members regarding preferred contact details and times to ring certain numbers (land line rather than mobile or vise versa ) for all hospices. • Local procedural clarification of contacting funeral directors when the family preference is not recorded. • Review of volunteer recruitment and support and supervision. • Written information on local facilities for families staying overnight within hospice setting. Sue Ryder – Quality Account 2014–15 21 Part three: indicators 2. Safety 2.1 Number of incidents affecting service users 2014-15 Neurological care* Palliative care Homecare 2013-14 2014-15 2013-14 2014-15 2013-14 2014-15 0 0 0 0 0 1*** 0 1 0 0 0 0 4 7 7 1 0 3 0 1 1 1 0 0 Number of incidents resulting in death** Number of incidents resulting in permanent or long-term harm Number of service user slips, trips or falls resulting in hospital visit Number of reports under RIDDOR *Excludes Birchley Hall ** Incidents resulting in death 2014/15 are recorded for Chantry, Angus and Stirling – in each case the service user was found dead rather than the death being a result of care so these are not shown above. *** Four incidents at Wheatfields were recorded as permanent or long-term harm for 2013/14 relating to pressure damage but this was incorrectly recorded. 2.2 Number of medicines incidents 2014-15 Neurological care Centre The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Minimum harm, person required extra observation or minor treatment Moderate (short term) harm – person required further treatment 1 2 4 1 1 0 0 1 0 1 Minimum harm, person required extra observation or minor treatment Moderate (short term) harm – person required further treatment 1 5 6 3 5 4 5 0 0 1 0 0 3 0 Minimum harm, person required extra observation or minor treatment Moderate (short term) harm – person required further treatment 0 0 0 0 Palliative care Centre Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields Homecare services Service Angus Homecare Stirling Homecare 22 Sue Ryder – Quality Account 2014–15 Part three: indicators 2. Safety 2.3 Regulatory inspection results Neurological care In England the CQC has changed the way inspections are undertaken and moved to a rating scale – because of this move some of our inspection results are based on the previous system of compliant or non-compliant whilst others have been inspected under the new system. Holme Hall Birchley Date of last check from CQC Overall rating requires improvement Is the service safe Is the service effective Is the service caring Is the service responsive Is the service well led 2/1/15 Requires improvement Good Requires improvement Good Good Requires improvement 20/4/15 Good Good Good Good Good Good Standards of caring for people safely and protecting them from harm Standards of staffing Standards of management The following services have not been assessed under the new inspection process Centre The Chantry Cuerden Hall Stagenhoe Fourways Suffolk Sue Ryder – Quality Account 2014–15 Date of last check from CQC Standards of treating people with respect and involving them Standards of providing care treatment and support which meets peoples needs 9/8/13 18/10/13 6/12/13 23/11/13 23 Part three: indicators 2. Safety Palliative care In England the CQC has changed the way inspections are undertaken and moved to a rating scale – because of this move some of our inspection results are based on the previous system of compliant or non-compliant whilst others have been inspected under the new system. Date of last check from CQC Inspected under new process – overall rating Is the service safe Is the service effective Is the service caring Is the service responsive Is the service well led 2/1/15 Good Requires improvement Requires improvement Outstanding Good Good Standards of staffing Standards of management Nettlebed The following services have not been assessed under the new inspection process Centre Date of last check from CQC Leckhampton Court Manorlands St John’s Thorpe Hall Duchess of Kent Wheatfields Standards of treating people with respect and involving them Standards of providing care treatment and support which meets peoples needs Standards of caring for people safely and protecting them from harm 11/2/14 17/06/14 21/11/13 20/9/13 14/03/15 31/1/14 Scottish services Care Inspectorate in Scotland. Centre Dee View Court Centre House 7 – Dee View Court Service Angus Homecare Stirling Homecare 24 Sue Ryder – Quality Account 2014–15 Date of last quality visit Quality of care and support Quality of environment Quality of staffing Quality of management and leadership 19/5/14 5 Very Good 6 Excellent 5 Very Good 6 Excellent Date of last quality visit Quality of care and support Quality of environment Quality of staffing Quality of management and leadership 10/11/14 4 Good Not assessed 4 Good 4 Good Date of last quality visit Quality of care and support Quality of environment Quality of staffing Quality of management and leadership 21/1/15 28/4/14 6 Excellent 6 Excellent Not assessed Not assessed 6 Excellent 6 Excellent 6 Excellent 5 Very Good Part three: indicators 3. Effectiveness 3.1 Number of Healthcare Acquired Infections (HCAI) 2014-15 Neurological care* Clostridium difficile Norovirus MRSA (infection) MRSA (colonised) ESBL (infection) ESBL (colonised) Hepatitis (A, B or C) Tuberculosis Influenza Total Palliative care Total Acquired within own service Acquired external to service Acquired within own service Acquired external to service Acquired within own service 2013 - 14 Acquired within own service 2014 - 15 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 1 2 0 0 1 0 0 0 0 0 3 11 0 4 3 1 0 5 0 0 24 2 0 0 0 0 0 0 0 0 2 3 0 0 1 0 0 0 0 0 4 *Excludes Birchley Hall Number of Healthcare Acquired Infections (HCAI) acquired within own service 2013–2014 2 4 2014–2015 3.2 Number of Healthcare Acquired Infections (HCAI) by service 2014-15 Neurological care Centre The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total Clostridium difficile Norovirus 1 0 0 1 0 2 0 0 0 0 0 0 Clostridium difficile Norovirus 0 3 0 1 2 2 5 13 0 0 0 0 0 0 0 0 MRSA I MRSA C ESBL ESBL (infection) (colonised) (infection) (colonised) 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Hepatitis Tuberculosis Influenza (A,B or C) 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Palliative care Centre Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields Total Sue Ryder – Quality Account 2014–15 MRSA I MRSA C ESBL I ESBL (C (infection) (colonised) (infection) (colonised) 0 0 0 0 2 2 0 4 1 0 0 0 0 0 3 4 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 Hepatitis Tuberculosis Influenza (A,B or C) 0 1 1 0 0 3 0 5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 25 Part three: indicators 3. Effectiveness 3.3 Pressure ulcers 2014-15 Data now includes only grade 2 and above Total pressure ulcers 2014-15 Acquired within own service 2013 - 14 Acquired external to service 2013 - 14 Acquired within own service 2014 - 15 Acquired external to service 2014 - 15 10 92 9 207 11 122 8 260 Neurological care Palliative care Number of pressure ulcers acquired within own service (Neurological) Number of pressure ulcers acquired within own service (Palliative) 2013–2014 2013–2014 2014–2015 10 11 6 6 6 6 6 6 6 6 6 6 6 6 6 6 6 2 7 7 7 7 7 7 7 7 7 7 92 122 2014–2015 7 7 7 7 7 7 7 3 Neurological care Centre The Chantry Cuerden Hall Dee View Court Holme Hall Stagenhoe Total Acquired within own service 2013 - 14 Acquired external to service 2013 - 14 Acquired within own service 2014 - 15 Acquired external to service 2014 - 15 3 0 2 3 2 10 1 0 0 3 5 9 5 0 3 1 2 11 1 0 1 2 4 8 Acquired within own service 2013 - 14 Acquired external to service 2013 - 14 Acquired within own service 2014 - 15 Acquired external to service 2014 - 15 11 9 23 11 7 14 17 92 32 21 23 40 27 32 32 207 11 19 16 17 12 33 14 122 10 51 45 51 36 28 39 260 Palliative care Centre Leckhampton Court Manorlands Nettlebed St John’s Thorpe Hall Duchess of Kent (West Berkshire services) Wheatfields Total 26 Sue Ryder – Quality Account 2014–15 Part four: annexes Annex 1 There is a legal requirement to report on this section During the period of this report, 1 April 2014 to 31 March 2015, Sue Ryder provided NHSfunded community care services in our hospices and some care centres and NHS-funded nursing care in most of our centres. Sue Ryder had seven adult inpatient units within hospices, eight day hospices, one Hospice at Home service, three community nursing services, and five care homes with nursing. In addition to these services we also delivered care within one care home without nursing, two supported living services. Sue Ryder has reviewed all the data available to it on the quality of care in all of the above services. The percentage of NHS funding is variable depending on the nature of the service and ranges from 35% to 90% of the total cost of providing the service. The shortfall is met from Sue Ryder charitable income. The income generated by the NHS services reviewed in the period 1 April 2014 to 31 March 2015 represents 100% of the total income generated from the provision of NHS services by Sue Ryder for the period 1 April 2013 to 31 March 2014. During the period from 1 April 2014 to 31 March 2015 there were no national clinical audits or national confidential enquiries covering the NHS services that Sue Ryder provides. Sue Ryder sets an annual core audit programme that runs from April to March each year. The core audit programme is risk-driven, and for hospices and neurological care centres includes record keeping, medicines management, falls prevention, manual handling, pressure ulcer assessment and management, care at end of life (neurological centres), infection prevention and control including environmental and hand hygiene audit. The monitoring, reporting and actions following these audits ensure care delivery is safe and effective. Each service reports audit findings into their local internal Quality Improvement Group. The Healthcare Governance Committee for Sue Ryder receives a twice-yearly overview of audit results and actions taken in response. Learning from audits is summarised and shared across health and social care via learning for safety memos. From 1 April 2014 to 31 March 2015 Sue Ryder was not eligible to participate in national clinical audits. Out of the eight studies approved from April 2014, the following studies recruited participants since April 2014: exploring patients’ views and opinions on physical activity and what they would like to achieve: pilot interviews to inform the development of a new physical activity program at Wheatfields Hospice (approved in March 2013 but recruited participants from April 2014). Site: Wheatfields Hospice. Recruited: 12 participants. A multi-centre, non-interventional investigation of the relationship between pain intensity numeric rating scale scores and health status, as assessed with the EQ-5D, in patients with cancer-related chronic pain (not completed; 280 participants recruited internationally out of a total of 330). Site: Leckhampton Court Hospice. Recruited: 57 participants. Photo making in hospice: can the process of constructing images restore the changed self-image that accompanies the diagnosis of a life-limiting condition? Site: Leckhampton Court Hospice. Recruited: 8 participants. The views of nurses on the implementation of single nurse controlled drug administration in Specialist Palliative Care Units (SPCUs). Sites: St John’s Hospice, Thorpe Hall Hopsice. Recruited: 10 participants. Sue Ryder income in this reporting period for three hospices was conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment agreed via local commissioning groups. Sue Ryder – Quality Account 2014–15 27 Part four: annexes Annex 1 There is a legal requirement to report on this section Sue Ryder is required to register with the Care Quality Commission and the Scottish Care Inspectorate. Conditions of registration include the management by an individual who is registered as a manager in respect of that activity at all locations and maximum number of beds for its services in the following regulated activities: • accommodation for people who require nursing or personal care • diagnostic and screening procedures • personal care • transport services, triage and medical advice provided remotely • treatment of disease, disorder or injury Sue Ryder has not participated in any special reviews or investigations by the CQC during the reporting period. Sue Ryder was not required to submit records during the period from 1 April 2014 to 31 March 2015 to the secondary uses service for inclusion in the hospital episode statistics. Sue Ryder is eligible to be scored for the period April 2014 to 31 March 2015 for information quality and records management, assessed using the Information Governance (IG) toolkit. The eligibility to be scored this year is due to a change in our organisation type and amendments to the IG toolkit. Previously the only option that was available to Sue Ryder, when first taking NHS services, was as a ‘Commercial Third Party’. This did not focus on information quality and records management. Last year a new organisation type within the IG toolkit, ‘NHS Business Partner’, was introduced and Sue Ryder submitted evidence based on self assessment for attainment level one (amber). Sue Ryder was not subject to the Audit Commission’s payment by results clinical coding audit during the period 1 April 2014 to 31 March 2015. Sue Ryder will be taking appropriate actions to improve data quality through: • increased awareness in the importance of reporting • training, including how to use our documentation templates • identifying trends through a balanced scorecard reporting system • ‘learning for safety’ memos for when systems and processes change Some of the people we support may be local authority funded, depending on their needs. Sue Ryder has a Monitor licence to provide NHS-funded services from 1 April 2014 onwards. None of Sue Ryder’s services have been designated as commissioner requested services. 28 Sue Ryder – Quality Account 2014–15 Part four: annexes Annex 2 Statements from Lead Clinical Commissioning Groups (CCG), Commissioning support units (CSU), the Overview and Scrutiny Committee (OSC) and Health and Wellbeing Boards. Feedback from the Leeds South and East Clinical Commissioning Group Dear Helen, Re: CCG response to draft quality account Thank you for the opportunity to review and provide a response to your Quality Account for 2014/15. We have sought views from a range of stakeholders and clinicians, and our response is as follows: Leeds South and East Clinical Commissioning Group (CCG) welcomes the opportunity to comment on Sue Ryder Quality Account for 2014/15. Leeds South & East Clinical Commissioning Group is providing this narrative on behalf of all three Leeds Commissioning Groups including Leeds West CCG and Leeds North CCG. We have reviewed the account and we believe that the information published, that is also provided as part of the contractual agreement, is accurate. We are supportive of the priorities that have been proposed for the forthcoming year. In November 2013 the Government published its response to Sir Robert Francis’s report into the events at Mid-Staffordshire Hospital. This report, entitled ‘Hard Truths’, accepted the vast majority of Sir Robert’s recommendations and confirmed the need to focus on high quality healthcare. It is crucial that commissioners and providers work together to ensure this. We would like to thank you for the individual service summary for Wheatfields Hospice; which was felt to be extremely useful. This clearly evidences the active engagement in improving clinical practice, supporting patients and informing NHS England about end of life care. It would have been helpful for more detail to have been provided to review as part of the individual local summary. We are pleased to note the focused work undertaken to better understand falls risks. We acknowledge that the number of incidents resulting in harm have significantly reduced from 203/14 data, which appears to correlate with the organisations falls risk management strategy and implementation plan, which was introduced in 2014. It is pleasing to note the collaborative partnerships and external education programmes which have continued to grow and develop in 2014/15 and we are supportive of your plans to deliver more palliative care education programmes for GPs and Care Homes in 2015/16. It is concerning to note that the number of pressure ulcers acquired within palliative care services has increased since 2013-14, with significant increases being reported for the Wheatfields and Duchess of Kent centres. Previous Quality Accounts show that overall there has been a year on year increase since 2011-12 and we have expressed our concern in relation to this increase in previous comments. We would have liked to have seen an active plan to reduce this within 2015/16 plans. In addition to the four main Sue Ryder priorities for 2015/16, we support Wheatfields’ additional priority to focus on further improvements in pressure ulcer prevention. We continue to have a positive relationship with Wheatfields and we look forward to working with them in 2015/16 with the aim of delivering the highest standards of patient-centred, palliative care. Ellie Monkhouse Director of Nursing and Quality, Leeds North CCG, Director of Nursing and Quality, Leeds South and East CCG Sue Ryder – Quality Account 2014–15 29 Part four: annexes Annex 2 Statements from Lead Clinical Commissioning Groups (CCG), Commissioning support units (CSU), the Overview and Scrutiny Committee (OSC) and Health and Wellbeing Boards. Our response to the comments we received: Thank you for the considered feedback, this is the first time we have produced local summaries and this was in direct response to the feedback from Leeds CCG last year- we will continue to develop greater detail in the summaries in response to your feedback. The upward trend in pressure damage has been noted and we also recognise that there has been an increasing upward trend of pressure ulcers identified on admission to the service. Following our review across all sites we have noted that we are seeing pressure damage in non-traditional sites, such as ears and bridges of noses, therefore next years Quality account will outline pressure ulcer development by position on the body, as part of the improvement plans at Wheatfields we will look at RCA for each ulcer developed. Helen Ankrett, Wheatfields Hospice Director Feedback from Healthwatch Leeds Feedback on the 2014-2015 Quality Account Wheatfield’s Hospice, Leeds Introduction Healthwatch Leeds hosted a session for all the organisations providing NHS services in Leeds who are required to provide annual Quality Accounts and have invited Healthwatch Leeds to comment on them as a part of their statutory duty. Each organisation was invited to present their account with a focus on accessibility, evidence of links between patient feedback or engagement and priorities, the measures of planned improvement and progress and benchmarking. Healthwatch volunteers were also invited to identify areas of good practice. As the actual copies of the QA were not provided by everyone, a general recommendation is to produce a more accessible summary, possibly in easy read that has a focus on the issues identified as important and influenced by patients, service users or their carers. Healthwatch Leeds comments for the Quality Account Wheatfield’s Hospice is owned by Sue Ryder, a national provider that produces a corporate Quality Account. A part of the corporate template was shared, there were references to improvements identified through patient and carer engagement and improvement priorities relating to patient care. Benchmarking takes place and there are examples of good practice for example through supported engagement and developing volunteer roles. Following the feedback last year the hospice is now committed to providing a local section that will relate to Leeds, this is a positive development. The table presented for the national priorities was not very accessible due to font size and the corporate colour scheme, the provider may wish to consider a larger bold print or a more accessible summary. Our response to the comments we received: Thank you for the feedback - we note the general recommendation regarding summaries and easy read version. This is our first year producing a local summary and we will continue to develop this based on local feedback. Please note that all of our publications are available in alternative formats on request. I have noted your comments regarding the table presented, our final summary and full publication of the Quality Account has addressed this. Helen Ankrett, Wheatfields Hospice Director 30 Sue Ryder – Quality Account 2014–15 Part four: annexes Annex 2 Statements from Lead Clinical Commissioning Groups (CCG), Commissioning support units (CSU), the Overview and Scrutiny Committee (OSC) and Health and Wellbeing Boards. Feedback from Bedfordshire Clinical Commissioning Group Dear Mike I realised belatedly that your email did not include Vanda Prutton and Maria Laffan at the Quality Team so I have emailed the QA statement to them. Vanda will need to offer you formal feedback qualitatively. My observation will be that whilst there is indication of very good work, it would be useful to have evidence that the Quality Team can review the findings against. Furthermore, it would be useful to have St. John’s feedback for ongoing work and changes to practice to reduce further likelihood of reoccurance, e.g. the pressure ulcer findings. Tom Shyu, Senior Contracts Manager, Bedfordshire Clinical Commissioning Group, Our response to the comments we received: Thank you for the feedback. This is the first year completing local summaries and I will certainly use this feedback to further develop these. The data from St Johns includes the last five years’ figures, pressure ulcer identification has consistently improved and the upward trend is both for patients admitted to the service and those acquiring pressure ulcers in the service. We have seen an upward trend in pressure ulcer development in non-traditional sites, such as ears and bridges of noses, therefore next year’s Quality Account will outline pressure ulcer development by position on the body, as part of the improvement plans at St John’s we will look at RCA for each ulcer developed. Mike Coward, St John’s Hospice Director Feedback from NHS Bradford Districts CCG Dear Lizzie, Thanks for sharing these documents. Overall I am sure you are very pleased with your ‘results’, feedback from the patients and carers and CQC inspection. Please pass on my thanks for your continued hard work and dedication to all your staff. We can pick up one or two items in the report I know you will be working on next time we meet. Well done. Rob O'Connell Head of Integrated & Continuing Healthcare NHS Bradford Districts CCG Our response to the comments we received: Thank you for this feedback, we are delighted with the feedback from patients and families and look forward to the coming year and our ongoing plans for continued improvement, particularly supporting more individuals via our new befriending service. Lizzie Procter, Manorlands Hospice Director Sue Ryder – Quality Account 2014–15 31 Part four: annexes Annex 3 Feedback from Acorns 21 April 2015 The group welcomed the Quality Account and feel that the local summaries are a welcome addition. The group were also pleased to see progress on the real-time feedback, but outlined that the falls risk management strategy must be linked to personalisation and the right of individuals to take risks in maintaining independence. The Acorns group also would like to acknowledge the work undertaken around the service user strategy development. They highlighted that the local implementation plans could be strengthened further by identifying and working with service users to have ambassador-type roles as link to strengthening our national voice in policy and campaigns. Response from Chief Nurse Thank you for the considered review of our Quality Account, I have strengthened our priority area for service user strategy to reflect your feedback. The Falls Strategy and associated policy does include personalised approaches to managing falls risk but this will be an area we will monitor over the coming year and report back to Acorns at the November meeting. 32 Sue Ryder – Quality Account 2014–15 Part four: annexes Annex 4 National service offer for palliative care (service lines) Providing access to psychology Inpatient services: • 24/7 admissions through a range of access points and inclusive of the ‘hard to reach’ • beds managed by both consultants and community nurses • offering physiotherapy, OT, complementary therapies, social workers and a chaplaincy • delivering individual programmes of care linked to personal goals and performances 24 hour co-ordinated palliative care advice: • signposting advice and guidance • support for individuals to navigate the system • ‘one stop’ nurse clinics Hospice at Home: • enabling by technology (eg. self management applications) • domiciliary visits • medical and family support Befriending: • maximised by the use of volunteers Bereavement services: • development of a ‘best practice’ breavement model Providing transition for young adults Transport services 7/7 CNS service: • community nurse prescribers • delivering choice across the range of community services Day therapy: • delivering flexible, responsive ‘packages’ tailored to individual need • out patients • specific clinics, ‘pop in’ visits • long term conditions programmes • delivering the lymphedema service nationally • medical outpatients with interventions Patient co-ordination: • PEPS type service • delivering co-ordinated and seamless access and transition through all services and settings Hospital and care home in reach service: Respite service: • as an extension of carer support • offering a range of options: inpatient, day provision, night sleepers Carer and family support: • bereavement, spiritual and social Sue Ryder – Quality Account 2014–15 33 Part four: annexes Annex 4 National service offer for neurological care (service lines) Complex care – residential: • support for challenging behaviour via links to mental health teams • behaviour psychology provision • slow stream rehabilitation • ventilated/respiratory support • support for more complex needs (abi) • physiotherapy, occupational, speech and language therapies • providing social and recreational activities that enhance well being and quality of life • medical and pharmacy services • EOL care Neuro community nurse specialists: • care services • advice and co-ordination Patient co-ordination: • PEPS type service • delivering co-ordinated and seamless access and transition through all services and settings 24/7 day service provision Specialist day services Condition specific re-ablement programmes Provide specialist outreach services 34 Sue Ryder – Quality Account 2014–15 Self managment and preventative programmes: • telehealth • telemedicine • community services Respite provision: • clients home • resdidential centre Rapid response Befriending: • escort service • family/carer support service Care co-ordination service Supported living Community day services • neuro cafes • dementia service/cafes 35 Sue Ryder provides incredible hospice and neurological care for people facing a frightening, life-changing diagnosis. It’s not just expert medical care we provide. It’s the emotional support and practical things we take care of too. We do whatever we can to be a safety net for our patients and their loved ones at the most difficult time of their lives. Not only do we treat more conditions than any other UK charity in our hospices, neurological care centres and out in the community; we also campaign to improve the lives of people living with them. We see the person, not the condition, taking time to understand the small things that help that person live the fullest life they can. For more information about Sue Ryder call: 0845 050 1953 email: healthandsocialcare@sueryder.org visit: www.sueryder.org /SueRyderNational @sue_ryder This document is available in alternative formats on request. Sue Ryder is a charity registered in England and Wales (1052076) and in Scotland (SC039578). Ref. No. 03956 © Sue Ryder. June 2015..