Promoting Early and Lifelong Health: From the Challenge of Adverse Childhood Experiences (ACEs) to the Promise of Resilience and Well-Being (Visit Exhibit 427 to Participate) Christina Bethell, PhD, MBA, MPH Lisa Simpson, MB, MPH, FAAP Pediatric Academic Societies April 2015 “It is easier to build strong children than to repair broken men.” Frederick Douglass (1817–1895) Outline • • • • • Project scope, phases and approach Overview of ACES Impact of ACES Agenda setting and input Questions for today Project Goal (Spring 2014-Spring 2015) This goal of this project is to 1. optimize the role and capacity of children’s health services 2. to promote child and family wellbeing 3. by further catalyzing awareness, knowledge and innovation 4. to prevent, recognize and heal the impacts of adverse childhood experiences. Funding for this project has come from The Child and Adolescent Health Measurement Initiative (CAHMI) and the Robert Wood Johnson Foundation, with in-kind contributions from the California Endowment and our many research, family, policy and practice partners. Prevalence of 2+ (of 9) ACES: 16.3% (UT) – 32.9% (OK) Four Pronged Project Scope (Spring 2014-Spring 2016) Agenda • Build a coordinated child health services and policy research and action agenda Build Shared Knowledge • Publish a set of applied research papers to assess current knowledge, practice and translational research priorities Four Pronged Project Scope (Spring 2014-Spring 2016) Capacity and Resources Participation and Collective Action • Assemble and develop resources to embed awareness and support the development of capacity, advocacy and innovation at three levels: • – The clinician and family level • – The healthcare organization level, including hospitals, clinics, and health plans • – The health policy level, including system financing, organization, capacity and research support • Promote the community-wide partnerships essential to promote health and address ACEs by strengthening the presence of children’s health services research, policy and practice in these larger child well-being and ACEs collective impact efforts 1. American Academy of Pediatrics (2014) Addressing Adverse Childhood Experiences and Other Types of Trauma in the Primary Care Setting. Find: www.aap.org/en-us/Documents/ttb_addressing_aces.pdf. 2. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Health Affairs Dec; 33(12);210-2016 3. Short project meeting video: http://www.acesconnection.com/clip/we-are-the-medicine-5-min?reply=410425417487175152 4. Robert Wood Johnson Foundation: http://www.rwjf.org/en/about-rwjf/newsroom/features-and-articles/ACEs.html Project Approach Emphasizes the inherent value of and the cross-cutting importance of child well-being to population health and well-being Legitimizes the known impact of embedded and chronic stress on child development and well-being and adult health Calls Out the syndemic of adverse childhood experiences, links to early & lifelong health and the possibility of healing and prevention Recognizes Concludes that child development depends on adult development and the urgency to promote greater research and policy action that the health of children and our nation calls us to squarely address trauma and promote positive health—and the foundational role of safe, stable, nurturing relationships and neuro-repair to healing Overview of Adverse Childhood Experiences (ACES) 8 Prevalence of ACEs Among Adults in 18 States Assessing ACEs Statewide 36.10% 26.00% 15.90% 9.50% No ACEs 1 ACE 2 ACEs 12.50% 3 ACEs 4+ ACEs http://acestoohigh.com/got-your-ace-score/ 9 Prevalence Among US Children (2011-12 National Survey of Children’s Health) Prevalence of 2+ (of 9) ACES: 16.3% (UT) – 32.9% (OK) Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016 • Almost half of US children have had at least one of 9 key adverse childhood experiences – an estimated 34.8 million children nationwide National Prevalence State Range Child had ≥ 1 ACEs 47.9% 40.6% (CT) - 57.5% (AZ)s Extreme economic hardship 25.7% 20.1% (MD) - 34.3% (AZ) Family discord leading to divorce or separation Has lived with someone who had an alcohol/drug problem Has been a victim or witness of neighborhood violence Has lived with someone who was mentally ill or suicidal Witnessed domestic violence in the home 20.1% 15.2% (DC) - 29.5% (OK) 10.7% 6.4% (NY) - 18.5% (MT) 8.6% 5.2% (NJ) - 16.6% (DC) 8.6% 5.4% (CA) - 14.1% (MT) 7.3% 5.0% (CT) - 11.1% (OK) Parent served time in jail 6.9% 3.2% (NJ) - 13.2% (KY) Treated or judged unfairly due to race/ethnicity 4.1% 1.8% (VT) - 6.5% (AZ) Death of parent 3.1% 1.4% (CT) - 7.1% (DC) Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016 ACEs Data and Reports Available Online: www.childhealthdata.org ACEs Impact Multiple Outcomes Smoking Alcoholism Promiscuity Relationship Problems High perceived stress Married to an Alcoholic Difficulty in job performance Poor SelfRated Health Hallucinations High Perceived Depression Obesity General Health and Sleep Risk of HIV Social Functioning Disturbances Risk Factors for Mental Common Diseases Health Memory Disturbances Poor Perceived ACEs Illicit Drugs Anxiety Health IV Drugs Panic Reactions Prevalent Sexual Multiple Somatic Poor Anger Health Diseases Symptoms Control Cancer Liver Disease Teen Paternity Fetal Death Skeletal Chronic Lung Teen Unintended Fractures Disease Pregnancy Pregnancy Sexually Early Age of Ischemic Heart Disease Sexual Dissatisfaction Transmitted First Diseases Intercourse Multiple Impact Pathways Graphic: Sandra Bloom Impacts on chronic condition status appear early in life. 35.00% 31.60% 30.00% 25.00% 20.00% 15.00% 20.30% AOR: .44Scv 14.60% 14.60% 10.00% AOR: .68S 7.70% 4.80% 5.00% 0.00% Chronic Condition Requiring Above Routine Health Care No ACEs 1 ACE ADHD 2+ ACEs Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016 We Know Family Context Matters Mother’s Health Substantially Lower Among Children and Adolescents With ACEs No ACEs 1 ACE 2+ ACEs 80.00% 70.00% 68.30% 60.00% 50.00% 40.00% 48.60% 35.80% 30.00% 20.00% 10.00% 0.00% Mother in very good or excellent physical and mental health Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016 We Know School Success is Impacted No ACEs 1 ACE 2+ ACEs 16.00% 15.00% 14.00% 12.00% 10.00% 9.10% 8.00% 6.00% 5.60% 4.00% 2.00% 0.00% Repeated Grade(s) In School Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016 We Know Resilience Matters—And Can Be Learned! School age children with chronic conditions/special needs with 2+ ACEs do better when they demonstrate even one aspect of resilience 100.00% Never/Sometimes Resilient 80.00% 80.90% Usually/Always Resilient 60.00% 52.00% 40.00% 19.80% 20.00% 11.00% AOR: 1.66s AOR: .26s 0.00% Repated grade(s) in school Usually/Always engaged in school Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016 We Know Resilience Matters—Need for Continuous Learning and Relearning of Resilience (“every stress an ‘n of 1’ self- study”) Bethell, C, Newacheck, P, Hawes, E, Halfon, N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. (2014) Health Affairs Dec; 33(12);210-2016