A Population Health Observatory Short Course Community Health Assessment Data and Statistical Resources Population Health Observatory 1 Acknowledgements • • This course was funded by the New York State Department of Health, through grants to the School of Public Health and Health Professions, University at Buffalo (Maurizio Trevisan, P.I.) The course was developed by the Population Health Observatory (Randy Carter, Director) and presented to the public health professionals in Western New York on behalf of the New York State Department of Health and the Western New York Public Health Alliance. Primary Author: Austin Miller, MS Department of Biostatistics Co-Author: Don Rowe, PhD School of Public Health and Health Professions Contributors: Department of Biostatistics Randy Carter, PhD Jim Java, MA Wei Tan, BA 2 Background • • • • • Mission of public health – 1988 Report from the Institute of Medicine – Assuring conditions in which people can be healthy Three core functions of public health – Assessment, Policy Development and Assurance 1987: NYCRR Part 40 Article 6 makes Community Health Assessments (CHA) mandatory – Assessment is critical in the ongoing public health planning process 1997: The Public Health Agenda Committee (PHAC) proposed a more standardized format and content of the CHA 2004: The State Health Department contracted with the UB Population Health Observatory to – Strengthen the skills of the public health work force in WNY – Establish a regional approach to community health assessment activities (starting with Maternal and Child Health) Source: 2005-2010 Community Health Assessment Summary Form 3 Community Health Assessment Example and Data Sources 4 Community Health Assessment Guidance • • • • The Community Health Assessment (CHA) is the ongoing process of regular and systematic collection, assembly, analysis and distribution of information on the health needs of the community Includes statistics on health status, community health needs, gaps, problems and assets Sharing findings with key stakeholders enables and mobilizes community members to work collaboratively towards building a healthier community The CHA forms the justification for the activities conducted in the MPHSP (Municipal Public Health Services Plan) and any activities undertaken by the Local Health Department Source: 2005-2010 CHA Workgroup Checklist 5 Collaboration yields a more meaningful assessment process • • • • • • Schools After school programs Dept of Education • • • Health Departments Hospitals, clinics Private providers Not for profits Faith-based organizations • • • • Private Industry Other Gov agencies Police Fire Parks 6 Community Health Assessment Sections • • • • • • • Focus Section One: Populations at risk – Demographic descriptives, sickness and death rates, etc. Section Two: Local Health Unit Capacity Profile – Specific information about the local health department Section Three: Problems and Issues in the Community – Community resources, collaborations, discussions of unmet needs Section Four: Local Health Priorities – What they are, how they were identified, steps that have been taken, progress that has been made… Section Five: Opportunities for Action – Including roles of other community resources (schools, businesses, etc) Section Six: Report on Statewide Performance Measures – “Format to be provided later” Section Seven: Community Report Card Source: 2005-2010 CHA Workgroup Checklist 7 Community Health Report Cards • • • • Intent of the report cards – Report cards are a convenient way to distribute important health information in an easy to understand summary form meant for public consumption. They are usually done on a county by county basis. Examples below are illustrational only. Monroe County Cortland County Regional Report Card – Disease, morbidity and mortality do not respect county boundaries – Analyses that transcend county boundaries give a more refined picture of disease patterns and distribution – A regional report card sets the stage for a regional approach to assessing AND solving health problems in an evidenced based, cost effective manner – What should a Regional Report Card look like? • There is no prescribed format but we can look at Monroe and Cortland county as examples. – What value does it have? • Easy to understand, informs the “community”, develops advocacy, focuses on common problems and differences, leads to problem resolution 8 Monroe County Report Card Source: http://www.healthaction.org/ReportCards.html 9 Monroe County Report Card Progress Toward Goals Goal Responsibility Actions Source: http://www.healthaction.org/ReportCards.html 10 Monroe County Report Card Status Measures Summary measures and commentary A link to the full report Source: http://www.healthaction.org/ReportCards.html 11 Monroe County Report Card Health Action Partnership Source: http://www.healthaction.org/ReportCards.html • HEALTH ACTION is a partnership of 15 local organizations working cooperatively to improve the health of Monroe County residents • A series of report cards covering people of all ages and the quality of the environment in Monroe County have been developed and are updated periodically • After the release of each report card, the Monroe County Board of Health, with extensive community input, selects two priorities for community-wide action for the next four to five years 12 Cortland County’s Web-Based Report Card Introduction Scoring Each Metric "Cortland Counts" Cortland Counts 2004: An Assessment of Health and Well Being in Cortland County NY (Report Card only) Favorable status compared to upstate, state &/or national data Cortland Counts 2003: An Assessment of Health and Well Being in Cortland County NY (Report Card only) Cortland Counts 2002: An Assessment of Health and Well Being in Cortland County NY (full updated report) Cortland Counts 2001: An Assessment of Health and Well Being in Cortland County NY (full original report) In an effort to meet the needs of the entire community, SVHC has been working with COPC of SUNY Cortland, the County Health Department, Cortland Memorial Hospital, and the United Way of Cortland County to develop a comprehensive community assets and needs assessment. The assessment will extend beyond health issues to a "quality of life" assessment. By obtaining a broader view of the condition of the local community, individual agencies will be better able to plan for and obtain adequate resources to meet unidentified, under-served and/or emerging needs. The first two assessments are complete and are posted online. The original full report and the July 2002 Community Report Card (summary report) are also available at the Seven Valleys Health Coalition office at 10 Kennedy Parkway, at several local businesses, and at all local libraries. Source: http://www.sevenvalleyshealth.org/report04/1_3.htm A closer look is required. Change in percent or rate may be desired * 0% = best in U.S 50% = national average 100% = worst in U.S. \/ Goal is to decrease the number /\ Goal is to increase the number -- neither favorable nor unfavorable TBD To be determined AA Age adjusted to 2000 census BMI Body Mass Index * 0% = best in U.S 50% = national average 100% = worst in U.S. ** Country Music Park went from 100,000 participants in 2002 to 1,400 in 2003. 13 Cortland County’s Web-Based Report Card Snapshot of the Data Indicators of Health and Safety Healthy People 2010 Goal Upstate NYS Data Current NYS Data Nationa l Data Births to women receiving 1st trimester prenatal care (1,2,3) 83.2% (2001) 77.7% (2001) 73.0% (2001) 83.7% (2002) Hospitalization for asthma (0-4 yr. old children) 53.5/ 10,000 (19992001) 36.8 / 10.000 (19992001) 71.0/ 10.000 (19992001)) 55.4/ 10,000 (1999) 25.0/ 10,000 \/ Low birth weight babies <2500g 7.1% (2001) 7.0% (2001) 7.7% (2001) 7.8% (2002) 5% \/ Indicators (2,3) (22,16) 90% Cort.Co. Status Cort. Co. Goal Cortland Co. Data /\ The report card is not focused solely on Maternal Child Health issues. Shown is a portion of the Maternal Child Health section. The report card includes much more information on several other topics. Source: http://www.sevenvalleyshealth.org/report04/1_3.htm 14 Categories within CHA Section One Populations at Risk • • • • (A) Demographic and health status information – Descriptives: age, race, gender, prevalence of poverty, employment, education, households – Natality, morbidity, mortality – Data for smaller areas (minor civil division, zip codes, or census tracts) – Particular emphasis on interpreting demographic trends for the relationship to poor health and needs for public health services – 121 metrics (B) Access to Care – Availability of hospitals, clinic, private providers, etc. – Discussion of primary care and preventive health services utilization – Commonly-identified barriers and affected sub-groups (C) Behavioral Risk Factors – Estimates for the prevalence of health risk behaviors (D) Local Health Care Environment Source: 2005-2010 CHA Workgroup Checklist 15 The Value of a Regional Approach The problem with large-area aggregates • • In a sense, County-level Community Health Assessments are akin to County-level median income – Difficult to compare. Information is spread across different documents and different formats – Some evidence of differences between Counties – Nothing stands out as a glaring problem Not actionable – Could start with Allegany, where the median income is lowest – Cannot identify at-risk populations from this level of aggregation – Other Counties have low-income areas, but these are hidden… County Median Income Population Allegany 32,106 49,927 Cattaraugus 33,404 83,955 Chautauqua 33,458 139,750 Erie 38,567 950,265 Genesee 40,532 60,370 Niagara 38,136 219,846 Orleans 37,972 44,171 Wyoming 39,895 43,424 Overall 37,678 1,591,708 16 The Value of “Smaller Areas” Thematic Mapping to Identify Hotspots • • The benefit – Identify “high risk” areas (irrespective of County boundaries) – Find issues hidden in countylevel aggregates – Easy visualization The challenge – Smaller geographic areas = smaller populations • Lake Ontario Compromise the privacy of individuals – Volatility in the metrics • False Alarms – Software and data availability 17 The CHA is a Big Project • • • • • • • • • A big project for a Big Objective Project teams Data collection and analysis Report Writing – Format – Contents – Regional vs. County priorities Identifying priorities Developing meaningful action plans Implementing changes Working with constituents Etc. 18 Where do they expect me to find data for 121 State-recommended metrics? • A few websites that might be useful – http://www.healthypeople.gov/ • • • National and selected State data Updated Quarterly Measures progress towards the Healthy People 2010 objectives – http://www.chc.gov/nchs/healthywomen/htm • • State-level data on the health and wellbeing of women Must install the “Beyond 20/20” software (free) – http://www.cdc.gov/nchs/nhis.htm • • National Health Interview Survey Numerous national health statistics, with information on health insurance and access to care – http://www.cdc.gov/nchs/nvss.htm • • National Vital Statistics System Births, deaths, marriages, etc. – http://www.cdc.gov/nchs/sets.htm • • The Statistical Export and Tabulation System (SETS) gives data users the tools to access and manipulate large data files NHCS provides many data sets for use in SETS 2.0. Some of them include data on aging, births, deaths, and health care and service utilization 19 Where do they expect me to find data for 121 State-recommended metrics • • The majority of required data is available on the Community Health Data Set Website – http://www.health.state.ny.us/nysdoh/chac/chds.htm 18 sections, each with multiple data sets 1. Demographic & Socioeconomic Characteristics 2. Physical Activity and Fitness 3. Nutrition 4. Tobacco Use 5. Substance Abuse: Alcohol & Other Drugs 6. Family Planning 7. Violent and Abusive Behavior 8. Unintentional Injuries 9. Oral Health 10. Maternal & Infant Health 11. Child/ Adolescent/ Young Adult Health 12. Heart Disease and Stroke 13. Cancer 14. Chronic Conditions 15. HIV Infection 16. Sexually Transmitted Diseases 17. Immunization 18. Infectious Diseases … and growing Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm 20 A Screen Shot of the State’s data web site What are these? Section Heading (18 total) Datasets available Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm 21 Types of data available on the website Decoding the symbols on the datasets Symbol What you get (G) Trend graph (M) Bar chart or map (pdf format) (T) 3 year table (T+TR) 3 year table + 10 year trend plots Click on County For Detail What’s this? Year 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 Single Year 773.3 745.7 839.5 744 663.2 624.2 642.4 631.6 620.3 630.4 Upstate 3-Year New Average York 786.2 776.4 748.9 677.3 643.3 632.7 631.5 627.5 720.2 721.5 699 651.4 643.8 627.4 608.6 619.7 620.9 637 Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm LUNG & BRONCHUS CANCER - DEATHS AND DEATH RATES PER 100,000 RESIDENTS SOURCE: 1998-2002 VITAL STATISTICS DATA AS OF AUGUST, 2004 ADJUSTED RATES ARE AGE ADJUSTED TO THE 2000 UNITED STATES POPULATION REGION DEATHS POPULATION COUNTY 1998 1999 2000 2001 2002 TOTAL 2000 REG-1 WESTERN NEW YORK ALLEGANY 36 29 41 39 40 185 49,908 CATTARAUGUS 45 68 59 54 45 271 83,916 CHAUTAUQUA 71 85 99 93 102 450 139,584 ERIE 704 701 713 690 691 3,499 949,403 GENESEE 38 42 30 44 53 207 60,325 CRUDE RATE ADJUSTED RATE 74.1 64.6 64.5 73.7 68.6 67.7 56.9 53.7 61.4 61.2 22 Age Adjustment 23 What does “Adjusted” mean? The tempting conclusion may not be right • • On the State website, mortality-based indicators are presented as both crude and age-adjusted rates Usefulness of crude rates depends on your purpose – Unadjusted rates can be used to describe the health of the population – Adjusted rates can be used to compare health care systems – Age adjustment removes risk differences caused by differences in age distribution • • • • • The problem: Age disparity can lead to misleading conclusions about health care availability or quality Older people die at a faster rate. Counties with a relatively higher percentage of older people will have higher mortality rates The standard population used for adjustment is the 2000 United States population (as decreed by the Center for Disease Control) Can adjust for anything if factor-specific rates are available – Race, education, income, employment… Adjusted rates should be viewed as relative indexes rather than actual measures of risk – Adjusted rates don’t mean anything by themselves. They only have meaning in comparing risks of similarly adjusted populations. – “Adjusted rates” are also referred to as “standardized rates” 24 How to do an “age adjustment” Ischemic Heart Disease Rates for Black and White Mean (per 100,000 population) Ages 35-74 years. United States, 1986 Direct Age Adjustment Age Group Standard Pop 35 to 45 14,000 46 to 54 14,000 55 to 64 11,000 65 to 74 7,000 Total 46,000 (1) % of total 30.4% 30.4% 23.9% 15.2% 100.0% x Black Men Crude Adjusted 56.1 17.1 183.5 55.8 457.0 109.3 919.4 139.9 404.0 322.1 (2) = (3) White Men Crude Adjusted 35.8 10.9 154.3 47.0 450.1 107.6 1062.8 161.7 425.8 327.2 (4) 1. Find a Standard Population. Calculate the percentage of the standard population that falls in each age strata 2. Find the strata-specific crude rates for the target populations to be compared 3. Within each age strata, multiply the target population crude rate by the percent of the Standard population - This is an interim step. By themselves, the resulting numbers don’t mean much 4. Add up the results of step 3 to get the age adjusted rates 25 An age-adjustment example Lung cancer death rates LUNG & BRONCHUS CANCER - DEATHS AND DEATH RATES PER 100,000 RESIDENTS SOURCE: 1998-2002 VITAL STATISTICS DATA AS OF AUGUST, 2004 ADJUSTED RATES ARE AGE ADJUSTED TO THE 2000 UNITED STATES POPULATION REGION DEATHS POPULATION COUNTY 1998 1999 2000 2001 2002 TOTAL 2000 REG-1 WESTERN NEW YORK ALLEGANY 36 29 41 39 40 185 49,908 CATTARAUGUS 45 68 59 54 45 271 83,916 CHAUTAUQUA 71 85 99 93 102 450 139,584 ERIE 704 701 713 690 691 3,499 949,403 GENESEE 38 42 30 44 53 207 60,325 CRUDE RATE ADJUSTED RATE 74.1 64.6 64.5 73.7 68.6 67.7 56.9 53.7 61.4 61.2 EASY interpretation: Compared to Genesee, Erie county has a much higher lung cancer death rate • CRUDE death rates: Erie is 7% higher than Genesee BETTER interpretation: Erie County has a higher percentage of older people. Older people have higher lung cancer death rates. If this age difference did not exist, the lung cancer death rates would be the same • Relative indexes, for comparison only 26 Small differences in age structure potentially result in Big Changes in Interpretation Percent of Total Population in Each Age Group Age Group Erie Genesee 1-4 5-9 10-14 15-17 18-19 20-24 25-29 30-34 35-39 40-44 45-49 50-54 55-59 60-64 65-69 70-74 75-79 80-84 85+ Total % less than 65 % 65 or more Crude Rate Adj Rate 5.84% 6.40% 7.07% 4.17% 2.68% 6.64% 5.56% 6.45% 7.21% 8.04% 7.67% 6.75% 5.43% 4.23% 3.79% 3.84% 3.49% 2.56% 2.17% 5.62% 6.57% 7.64% 4.73% 2.62% 6.01% 5.08% 6.42% 7.72% 8.78% 7.84% 6.54% 5.53% 4.31% 3.63% 3.41% 3.16% 2.33% 2.08% 100.0% 100.0% 84.2% 15.8% 85.4% 14.6% 73.7 61.4 68.6 61.2 27 Random Numbers, Error and Confidence Intervals 28 How do we interpret these numbers? First, some esotericism about randomness • Random Number: A number is random in the sense of how it was generated – The observed rate that you see is one element of a set of possible outcomes generated by an underlying (unknown) process Process (unknown rate) Random Error Possible Outcomes Observed Rate (Random Number) 0 100 70.9 72.78 70.0 82.5 62.5 69.7 85.0 62.5 7.13 7.21 True RateErie= X per 100,000 100 0.0 True RateGenesee= Y per 100,000 3.59 87.86 61.7 44.8 85.7 26.6 45.3 30.5 Erie Lung Cancer Death Rate • 2000:= 75.10 • 2001:= 72.68 • 2002:= 72.78 Genesee Lung Cancer Death Rate • 2000:= 49.73 • 2001:= 72.94 • 2002:= 87.86 29 The Goal: Reverse the chain Make judgments about the Process that account for random error Process (unknown rate) Random Error Possible Outcomes 0 100 70.9 72.78 70.0 82.5 62.5 69.7 85.0 62.5 7.13 7.21 True RateErie= X per 100,000 100 0.0 True RateGenesee= Y per 100,000 The unknown process 3.59 87.86 61.7 44.8 85.7 26.6 45.3 30.5 show us about… Observed Rate (Random Number) Erie Lung Cancer Death Rate • 2000:= 75.10 • 2001:= 72.68 • 2002:= 72.78 Genesee Lung Cancer Death Rate • 2000:= 49.73 • 2001:= 72.94 • 2002:= 87.86 What do the Observed Results… • What is the Genesee Rate? Is it different than the Erie Rate? • Is there truly a difference, or do differences in observed rates result from randomness in the process? 30 Types of Error • Random Error – Variation due to chance • • When the number of events is LARGE, random variation is usually small When the number of events is SMALL (fewer than 100), and the probability of an event is small, random variation can be very large – Random variation affects interpretation of data • • – The number of events that actually occurred may be considered as one of a large series of possible results that could have occurred under the same circumstances. Sampling Error (Estimates from Surveys) – Different surveys yield different results – Surveys are used to “sample” a portion of the population • • High variation in observed rates makes estimates of the true rate less certain Getting information from EVERYONE is often impractical (or impossible) – Sampling Error: variation in an estimate that occurs by chance because a sample of the population is surveyed, rather than the entire population Bias – The sample does not fairly, accurately represent the population – The sample rate is systematically different from the true rate 31 Example of Bias • Consider a telephone survey in Dunkirk NY – Large migrant worker population doesn’t have phones – Presence of migrant workers depends on the timing (season) of the survey – Many phone numbers are not listed, or not available • Nationally, about 10% of households with cellphones and no land-lines 32 The Histogram Percentage of the Total Population A “picture” of the data. Shows which outcomes are more likely. 48% of the outcomes were between 6 and 8 There is a 13% probability that a randomly selected observation will be between 10 and 12. • No strict definition for the ranges • Define so they are informative • Equal ranges might be easier to explain or interpret. Group the observations into ranges 33 Comments on Histogram • • Histograms help to identify which measure of central tendency is more descriptive Which measure is the best? – The “average” may not be the best measure • The average is always mathematically correct • The average will vary considerably if – the sample size is small – there are outliers • Best for symmetric data – The “median” might be better • The median is the observed value that splits the sample in half – 50% had less than X, 50% had more • Better if the histogram is “skewed” (not symmetric) • Not as sensitive to outliers • Less common, and may be confused with the average 34 Using a Histogram to Select the Best Measure of Central Tendency Symmetric Histrogram Asymmetric Histrogram (normal distribution) (binomial distribution) 30% 25% 25% 20% 20% Percent Percent 15% 15% 10% 10% 5% 5% 0% 0% 0 1 2 3 4 5 6 7 8 9 10 0 1 2 3 Z1 Median: 3.00 Average: 3.04 4 5 6 7 8 9 10 Z2 Median: 2.0 Average: 2.8 A 40% difference 35 Confidence Intervals for Rates An estimated range for the underlying True Rate • • For confidentiality reasons, make sure you have 5 or more cases (deaths, births…) Some Definitions – c:= number of observed cases – N:= total population (e.g. in the county) – π:= the true (unknown) rate – p:= the observed rate (per person) • =c/N • – Z:= 1.96 (for a 95% confidence interval) The formula p z / 2 • p 1 p N p z / 2 The True Rate p 1 p N Interpretation: “95% of the time, the true rate lies within this range” 36 Comparing One County to Another Lung Cancer Example Rates Per Person REGION/COUNTY ALLEGANY CATTARAUGUS CHAUTAUQUA ERIE GENESEE # of Lung Cancer Cases (2002) 40 45 102 691 53 2000 Pop'n 49,908 83,916 139,584 949,403 60,325 Conf Int Conf Int 2002 Rate Lower Limit Upper Limit 0.0008015 0.0005532 0.0010498 0.0005363 0.0003796 0.0006929 0.0007307 0.0005890 0.0008725 0.0007278 0.0006736 0.0007821 0.0008786 0.0006421 0.0011150 p z / 2 p 1 p N p z / 2 Rate Per 100,000 People Conf Int Conf Int 2002 Lower Upper Rate Limit Limit 80.15 55.32 104.98 53.63 37.96 69.29 73.07 58.90 87.25 72.78 67.36 78.21 87.86 64.21 111.50 p 1 p N Allegany If the intervals DO NOT overlap, we can say that the county rates are different. Cattaraugus Chautauqua Erie If the intervals do overlap, more formal tests are required. Genesee 25 50 75 100 125 Lung cancer mortality rate per 100,000 people 37 Testing Differences Using Overlapping Confidence Intervals • Rates with confidence intervals that DO NOT overlap ARE significantly different – If two confidence intervals do not overlap, the True Rates are significantly different • Look at each pair separately • This is a conservative test for significance. Using more formal tests, the difference between two rates may be statistically significant even though the confidence intervals overlap 38 Some Notes on Confidence Intervals • • Formal interpretation: – “If repeated samples of the same population are taken, 95% of the associated confidence intervals will contain the true rate.” – Intuitively, a confidence interval is an interval of plausible values of the true rate, constructed using the sample and its corresponding standard error, given the data that was observed. Any confidence interval may or may not contain the true population rate – There is always a chance that the numbers you are using are not reliable – By purely random chance, a 95% confidence interval will NOT cover the True Rate 5% percent of the time 39 Strategies for Reducing the Effects of Random Error Strategy Combine Time Periods (eg 19982000) Combine Geographies Pros Cons Stabilizes Ignores the estimate differences between times Stabilizes Ignores the estimate differences between places 40 Comparing Counties to the Regional Average Infant Mortality Example Infant Deaths Total Births County (2000-2002) (2000-2002) Allegany 12 1,610 Cattaraugus 26 3,001 Chautauqua 29 4,623 Erie 261 32,716 Genesee 9 2,031 Niagara 57 7,402 Orleans 9 1,481 Wyoming 9 1,308 Total 412 54,172 Rates Per Person Conf Int Conf Int 2002 Lower Upper Rate Limit Limit 0.00745 0.00325 0.01165 0.00866 0.00535 0.01198 0.00627 0.00400 0.00855 0.00798 0.00701 0.00894 0.00443 0.00154 0.00732 0.00770 0.00571 0.00969 0.00608 0.00212 0.01004 0.00688 0.00240 0.01136 0.00761 0.00687 0.00834 Allegany Cattaraugus Chautauqua Erie Genesee Niagara Orleans Wyoming WNY OVERALL Rate Per 1,000 Births Conf Int Conf Int Lower Upper 2002 Rate Limit Limit 7.4534 3.2520 11.6548 8.6638 5.3480 11.9796 6.2730 3.9970 8.5489 7.9777 7.0137 8.9417 4.4313 1.5426 7.3200 7.7006 5.7092 9.6921 6.0770 2.1188 10.0352 6.8807 2.4008 11.3607 7.6054 6.8738 8.3370 • Genesee is significantly lower than the WNY Average • More formal tests needed to determine differences between counties 1 2 3 4 5 6 7 8 9 10 11 12 WNY Region Avg = 7.6 Infant mortality rate per 1000 live births 41 Comparing Counties to the Healthy People 2010 Goal • Infant Mortality in some counties (and in the WNY Region) was significantly higher than the Healthy People 2010 goal of 4.5 deaths per 1,000 live births Healthy People 2010 Goal =4.5 deaths per 1,000 births Counties with larger minority populations. Adjust for race to compare healthcare systems. Allegany Cattaraugus Chautauqua Erie Genesee Niagara Orleans Wyoming WNY OVERALL 1 2 3 4 5 6 7 8 9 10 11 12 Infant mortality rate per 1000 live births 42 Questions about Confidence Intervals? 43 Using National Survey Data To Derive Rate Estimates For Small Counties 44 Estimating Rates in Small Counties • • • Goal: To estimate how many people in your county have a given condition or behavior Challenge: Reliable and representative data for counties with small populations are hard to get – State and National surveys probably don’t have enough sampling coverage to support a reliable estimate – This gets even more difficult if sub-populations (e.g. race or age segments) are to be analyzed Strategies – Aggregate time periods – Aggregate geographic areas – Modify the sampling scheme of an existing strategy (expensive) – Conduct your own survey (time consuming/expensive) – Use results from National Surveys 45 How Many People in Wyoming County Smoke? • • • • Assumptions – Don’t know the answer already – There’s no survey in Wyoming County that contains the answer – We can’t ask everyone (not enough time or money) One possible data source = National Health Care Survey (NHCS) Uses a combination of health care provider surveys The NHCS obtains information about • the facilities that supply health care • the services rendered, and • the characteristics of the patients served – Each survey is based on a multistage sampling design that includes health care facilities or providers and patient records. – Data are collected directly from the establishments and/or their records rather than from the patients – Data for this national probability sample survey are obtained from 500 hospitals and 270,000 patient records annually 46 Using Results from a National Survey • The big assumption: That individuals with similar characteristics behave similarly in both populations – NHCS is a survey of hospital record data – What percentage of people in your county visited a hospital in the past year? – Do these people behave differently than the rest of the population? • • Yes. For example, smokers are more likely to go to the doctor Standardization Process – Apply strata-specific rates from the survey to your population – Possible stratifications • • • • Age Race Education Many others – Assumes that the strata in your population has the EXACT SAME rates is strata in the study population • • You cannot test this assumption without relatively complete health data for the County If you COULD test this assumption, you would not need this methodology!! – Collaborate with a statistician. This could be much more involved. 47 National Smoking Rates from the National Health Care Survey (NHCS) Source: http://www.cdc.gov/nchs/data/series/sr_10/sr10_225.pdf 48 Wyoming County Population Age Stratification of the NYS Health Dept Website Age Group <1 1 2 3 Wyoming Population 437 407 402 442 4 5-9 10-14 454 2,533 3,017 15-17 18-19 20-24 25-29 30-34 35-39 40-44 45-49 50-54 55-59 60-64 65-69 70-74 75-79 80-84 85+ TOTAL 1,970 1,157 2,949 2,691 3,261 3,795 3,863 3,460 2,963 2,321 1,766 1,382 1,273 1,059 847 716 43,165 There are some smokers in these age strata. So this process tends to underestimate the number of smokers in the county (an example of “bias”.) Age Group Wyoming Population 18-44 45-64 65-74 75+ 17,716 10,510 2,655 2,622 Total Check 33,503 33,503 Combine the age strata counts into ranges comparable to NHCS data Source: http://www.health.state.ny.us/nysdoh/chac/cha/pop/p2002_56.htm 49 Finishing the Estimate a Age Group • • • Wyoming Population 18-44 45-64 65-74 75+ 17,716 10,510 2,655 2,622 Total Check 33,503 33,503 x b = Nat'l Smoking Rate 25.2 22.0 12.1 5.7 Overall Rate c Smokers in Wyoming 4,464.4 2,312.2 321.3 149.5 7,247.3 21.6% Multiply the County age-strata counts (a) by the age-specific rates from the survey (b) – This yields an estimate of the number of people in each age-strata that smoke Add up the age strata counts to get an estimate of the total number of Smokers in Wyoming County (c) Calculate the overall smoking rate 7, 247.3 smokers 21.6% 33,503 population 18+ years old 50 Questions about Using National Survey Data to Estimate Rates in Small Counties 51 Trend Analysis • • • • You are regularly asked to interpret trends, and determine if a rate is improving or not Statistical methods for analyzing trends are beyond the scope of this course – Least squares regression – Logistic regression if all the rates are between 30% and 70% – Others The truth may not be apparent from a simple trend graph Help is available. Collaborate with a statistician. 52 Template for a Regional Maternal Child Health Assessment 53 Background • • • • The Problem: – Community Health assessment activities are laborious – Reporting format is highly variable, making comparison across counties difficult – Inter-county comparison would be simplified in a Regional Report Proposed Solution: Develop a Regional Report 2004 contract between the NY State Department of Health and the UB School of Public Health and Health Professions Goals of the Contract: – To strengthen the skills and competencies of the public health work force in Western New York – To establish a regional approach to community health assessment activities in Western New York • Starting with Maternal Child Health • The UB Population Health Observatory began working on the contract in November 2004 54 Contract Deliverables Summarized • • • • • Assess the MCH data used by members of the WNY Public Health Alliance – Developed a survey – Assess 14 possible MCH datasets on a several possible uses – Results to be discussed later Develop and gain consensus on a method of reporting MCH data in a consistent manner – Created a reporting template, including 70+ MCH metrics by county, by year – Approved at the Dec 22, 2004 WNY Public Health Alliance meeting Set up methodology for data transfer – Data will be gathered from the NYS Health Information Network (HIN) – A package requesting data access is being compiled for submission to the State Create map-templates for each County – Sample size/prevalence rate issues to be discussed Conduct a training session with representatives of the eight County Health Departments 55 Anticipate including about 70 maternal child health metrics for the eight Western New York Counties 56 Demographic Comparisons 57 An Executive Summary for High-Level Comparisons 58 A Page for Each Metric (the Numbers) Confidentiality requirements Watch out for small counts Five year trends by • Each county • WNY Total • Upstate Total Show • Actual number • Rate 59 A Page for Each Metric (Graphics and Explanations) 60 Maternal Child Health Data Available on the NY State Health Department Website 61 CHA Data Requirements Available at http://www.health.state.ny.us/nysdoh/chac/chds.htm Community Health Assessment Section One (Populations at Risk) General Population Description Population breakdown by age, race and ethnicity Proportion of special populations Median familiy income % unemployed High school dropout or attendence rate % of population at or below poverty level % of children in poverty Access to Quality Services % Medicaid or selfpay at delivery % of adults who could not see doctor due to cost % of children uninsured (less than 18 years) Chronic Diseases Cancer % of women with PAP in last 2-3 years % of women with mammogram in past 2 years % screened for colorectal cancer Cancer Incidence Lung Breast Cervical Colorectal Oral (age 45-74) Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm Website Data Section Healthy People 2010 Goal Demographics Demographics Demographics Demographics Demographics Demographics Demographics Demographics Cancer Cancer Cancer 97% of women 70% of women over 40 50% of adults Cancer Cancer Cancer Cancer Cancer 62 CHA Data Requirements Available at http://www.health.state.ny.us/nysdoh/chac/chds.htm Community Health Assessment Section One (Populations at Risk) Cancer Mortality Lung Breast Cervical Colorectal Oral (age 45-74) Diabetes Rates of diabetes hospitalizations/1000 diabetics Diabetes mortality Uncontrolled diabetes hospitalizations (18-64 years) Diabetes prevalence in adults Website Data Section Healthy People 2010 Goal Cancer Cancer Cancer Cancer Cancer 44.9 death per 100,000 population 22.3 deaths per 100,000 females 2.0 deaths per 100,000 females 13.9 deaths per 100,000 population 2.7 deaths per 100,000 population Chronic Conditions 45 deaths per 100,000 population Chronic Conditions Environmental Health Healthy Homes % Children screened for lead by age 2 Children ages 1-6 with blood lead levels >= 10 g/dl Water Quality % of public water supplies in compliance % of population served by acceptable water systems Family Planning % of births to teen (<18) mothers Pregnancy rate (total) Adolescent pregnancy rate, 10-14 yrs Adolescent pregnancy rate, 15-17 yrs Adolescent pregnancy rate, 15-19 yrs Induced abortion to pregnancy ratio Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm 95% of population Family Planning Family Planning Family Planning Family Planning Family Planning Family Planning 43 per 1,000 females aged 15 to 17 63 CHA Data Requirements Available at http://www.health.state.ny.us/nysdoh/chac/chds.htm Community Health Assessment Section One (Populations at Risk) Food Safety E.coli Salmonella Shigella # and rate of foodborne outbreaks in regulated facilities Heart Disease and Stroke Cardiovascular disease mortality (IDC 10 100-199) Diseases of the heart mortality (ICD 10 100-109,113,120-151) Coronary heart disease mortality Cerebrovascular disease mortality (ICD 10 160-169) BP check in the last two years Cholesterol check in the last two years % adults with high blood pressure % adults with high cholesterol Website Data Section Healthy People 2010 Goal 1 case per 100,000 6.8 per 100,000 Heart Disease Heart Disease Heart Disease Heart Disease Heart Disease 166 deaths per 100,000 population 48 stroke deaths per 100,000 population 95 percent 16% 17% HIV AIDS case rate AIDS mortality rate % of HIV positive newborns Immunizations and Infectious Diseases % 65+ with flu vaccine in last year % 65+ ever had pneumonia vaccine Pneumonia/flu hospitalizations (65+ years) Measles incidence Rubella incidence Pertussis incidence HIB incidence Hep A incidence Hep B incidence Number of TB cases per 100,000 population HIV Infection HIV Infection HIV Infection 19.5 case per 100,000 Immunization Immunization Immunization Immunization Immunization Immunization Infectious Diseases Infectious Diseases Infectious Diseases 364 nationally 9 nationally 20.3 per 100,000 20.1 cases among persons aged 2 to 18 years 64 Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm CHA Data Requirements Available at http://www.health.state.ny.us/nysdoh/chac/chds.htm Community Health Assessment Section One (Populations at Risk) Injury Prevention and Control Suicide Mortality Homicide Mortality Self-inflicted injury hospitalizations Assault hospitalizations Unintentional Injury Mortality Unintentional Injury Hospitalizations <10 years Unintentional Injury Hospitalizations 10-14 years Unintentional Injury Hospitalizations 15-24 years Unintentional Injury Hospitalizations 25-64 years Unintentional Injury Hospitalizations 65+ years Traumatic brain injury hospitalizations Indicated abuse and neglect cases (<18 years) Work related injury mortality/10,000 workers Alcohol related motor vehicle injuries and dealths Drug related hospitalizations Maternal Child Health % early prenatal care % late or no prenatal care Infant mortality rates (before 1 year) Neonatal mortality (within the first 28 days) Postneonatal mortality (between 28 days and 1 year) Spontaneous fetal deaths (20+ weeks gestation) % infants with gestational age <37 weeks (preterm) Maternal mortality SIDS mortality Spina bifida or other NTD's % Very low birth weight (<1.5k) % Low birth weight (<2.5k) % pregnant woment with anemia (low SES) Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm Website Data Section Violent/Abusive Behavior Violent/Abusive Behavior Violent/Abusive Behavior Violent/Abusive Behavior Unintentional Injury Unintentional Injury Unintentional Injury Unintentional Injury Unintentional Injury Unintentional Injury Unintentional Injury Unintentional Injury Substance Abuse Substance Abuse Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Maternal & Infant Health Nutrition Healthy People 2010 Goal 3 per 100,000 17.5 per 100,000 45 per 100,000 10.3 per 1,000 children under age 18 years 3.2 deaths per 100,000 Workers age 16+ 4.1 per 100,000 90% of live births 4.5 per 1000 live births 2.9 per 1000 live births 1.2 per 1000 live births 4.1 per 1000 live births 7.6% of live births 3.3 per 100,000 live births 0.25 per 1000 live births 3 per 10,000 live births 0.9% of live births 5.0% of live births 20% of low income pregnant women 65 CHA Data Requirements Available at http://www.health.state.ny.us/nysdoh/chac/chds.htm Community Health Assessment Section One (Populations at Risk) Nutrition and Overweight % of adults eating 5+ servings of fruit/vegetables per day % of adults overweight or obese % children underweight (0-4 years, low SES) % children overweight (2-4 years, low SES) Website Data Section Healthy People 2010 Goal Nutrition Physical Activity/Fitness Nutrition Nutrition 50% 15% Oral Health Oral health status in 3rd graders, caries experience Oral health status in 3rd graders, untreated caries Oral health status in 3rd graders, dental sealants Oral health status in 3rd graders, last dental visit Oral health status in 3rd graders, insurance coverage Oral health status in 3rd graders, regular source of dental care Physical Activity and Fitness % of adults with regular and sustained physical activity % of adults with no leisure time physical activity Respiratory Diseases Pediatric (0-4 years) asthma hospitalizations Asthma hospitalizations (0-17 years) Asthma hospitalizations (5-64 years) Asthma hospitalizations (65+ years) Asthma hospitalizations (Total) % of adults ever have asthma % of adults now have asthma Asthma mortality COPD mortality COPD hospitalizations Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm 5% of low income children 42% children aged 6 to 8 years 21% children aged 6 to 8 years 50% children aged 6 to 8 years 56% visited in the previous year Physical Activity/Fitness Childhood/Adolescence Childhood/Adolescence Chronic Conditions Chronic Conditions Chronic Conditions 30% of adults aged 18 years and older 20% adults aged 18 years and older 25 per 10,000 7.7 per 10,000 11 per 10,000 Chronic Conditions 60 per 100,000 66 CHA Data Requirements Available at http://www.health.state.ny.us/nysdoh/chac/chds.htm Community Health Assessment Section One (Populations at Risk) STD Rates of early syphilis (15-19 years) Gonorrhea (15-19 years) Chlamydia (15-24 years, male and female) Website Data Section Healthy People 2010 Goal Sex. Trans. Diseases Sex. Trans. Diseases 19.3 per 100,000 19.1 per 100,000 19.1 per 100,000 Substance Abuse Cirrhosis mortality Adult binge drinking Teen binge drinking Chronic Conditions Substance Abuse Substance Abuse 4.2 per 100,000 Tobacco % of adults smoking cigarettes Youth smoking Tobacco Use Tobacco Use 12% of adults 16% of adolescents Vision and Hearing Pediatric (0-4 years) otitis media hospitalizations Childhood/Adolescence Source: http://www.health.state.ny.us/nysdoh/chac/chds.htm 67 Glossary • • • • • • • • • • • • Adjusted: Altered to accommodate certain requirements or bring into a proper relation Confidence Interval: An interval of plausible values of the true rate, constructed using the sample and its corresponding standard error, given the data that was observed Incidence: The number of new cases of disease occurring in a population during a defined time interval Metric: A measurement Morbidity: The relative incidence of a particular disease Mortality: The ratio of deaths in an area to the population of that area; usually expressed as “per 1,000 per year” or “per 100,000 per year” Natality: The ratio of births to the general population; aka the birth rate Prevalence: The ratio of the number of cases of a disease present in a population at a specified time, and the number of individuals in the population at that specified time Random error: Changes in the environment that cause observed rates to deviate from the true rate. The source of deviation from the truth. Standard Deviation: A statistic used as a measure of the dispersion or variation in a distribution Standardization: Methods for comparing rates in different populations while effectively holding constant such characteristics as age, race, etc. Standard Error: A function of the standard deviation, used for estimating confidence interval 68 Course Evaluation Please let us know your thoughts about the short course!! Disagree • • • • • • The course provided information that will help me do my job The instructor was a clear and effective communicator The handouts were helpful The handouts were clear, and easy to understand Technology aided in the learning process Opportunities for Improvement 1. 2. 3. 4. Agree 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 1 2 3 4 5 69