Indiana Newborn Screening - National Center for Hearing
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Indiana Newborn Hearing Screening Children and Family Health Services Commission Indiana State Department of Health Weilin Long, M.A., M.P.A Director of Newborn Screening Programs Why Newborn Hearing Screening Significant hearing loss in newborns is present in approximately 250 babies per year in Indiana. Indiana Newborn Hearing Screening Law Legislative mandated program IC 16-41-17-2 “… every infant shall be given a physiologic hearing screening examination at the earliest feasible time for the detection of hearing impairments.” Mission Statement Ensure that all newborns receive state-mandated physiologic hearing screening. Collaborate with FIRST STEPS, FSSA to ensure that infants who test positive for hearing loss receive appropriate intervention/ treatment and that their parents receive appropriate support/counseling. To collect information on the incidence of hearing loss. Promote public awareness and education concerning hearing conditions. Program Goals Physically screen all infants born in Indiana prior to discharge; Perform diagnostic evaluation by three months of age; and Enroll in early intervention by six months of age. Indiana’s Progress Less than 18% hospitals with UNHS program in 1994 42% hospitals with UNHS in 1996 Indiana’s Progress Law was passed in May 1999 Program was fully implemented in July 2000 94% of the hospitals participated in 2000 100% participated in 2001 Indiana’s Progress “EXCELLENT” National Campaign for Hearing Health for the State’s Infant Hearing Screening Program Program Status 100% of the Hospitals/Birthing Institutions reported. 97% of infants born in IN were screened. 10% did not pass initial screening. 98% of those who did not pass initial screening received repeat screening. 1.7% did not pass repeat screening. 1,966 referrals were made – 1,142 to the First Steps, 535 to PCP, and 289 to specialists. Program Status 1,142 infants were referred to the First Steps 24% of them were identified with hearing loss 51% of infants identified with hearing loss were enrolled in early intervention programs by six months of age. Indiana Newborn Hearing Screening Collaboration is the key to ensure enrolling children with hearing loss to early intervention programs by six months of age. Indiana Newborn Hearing Screening Screening prior to discharge Timely referral and reporting to First Steps early intervention services Accurate and timely tracking and followup First Steps 45 calendar days time line Linkage to medical homes Key Players Advisory Committee appointed by the Governor ISDH in collaboration with First Steps, Indiana School for the Deaf, hospitals, local health Regional consultants – department funded through MCHS grant Professional sensibility/concerns Parent/consumer advocacy IPN’s subcommittee Indiana Newborn Hearing Screening Program MCHB Grant awarded allows Indiana to expand current hospital-centered hearing screening program to a statewide family centered, culturally sensitive, community based program. Lake Map of Indiana - Comm Hosp of Munster Methodist Hosp Gary Methodist Hosp Merrillville Saint Anthony Med Cen of Crown Point Saint Catherine Hosp of East Chicago Saint Margaret Mercy – Hammond Saint Margaret Mercy –Dyer Saint Mary's Med Cen Hobart Howard Howard Comm Hosp St Joe Hosp/Health Care Ctr - Kokomo LaPorte Elkhart LaGrange Steuben Cameron Elkhart Porter LaPorte HospSt. Joseph LaGrange Mem Hosp Gen Hosp Hosp Lake Portage St Anthony Goshen Comm Hosp Mich Gen Hosp Noble DeKalb Hosp City Marshall Parkview •DeKalb Porter CommHos Kosciusko Starke St Joe Hos Kosciusko Noble Hosp Mem Hosp Mem Hosp Starke Mem Marshall Co Allen Comm Hosp Whitley Jasper Hosp Whitley Lutheran Hosp Fulton Pulaski Jasper Co Mem HospParkview Mem Woodlawn Pulaski Hosp St Joe Med Cen Hosp Mem Hosp New Miami Wabash Hunt- – Ft Wayne Dukes Wabash ington White Cass ton Wells Adams Mem Co Hosp Parkview White Co Logansport •Adams Hosp Health Mem Hosp Mem Hosp Co Mem Center St. Joseph Ancilla Health Care Mem Hosp – South Bend St Joseph Med Cen – South Bend Wells Bluffton Med Center Caylor-Nickel Hosp Hosp Blackford Black Blackford Co Hosp Howard Marion Gen ford Jay Hosp Warren Jay Co Tipton Vermillion Clinton Delaware Hosp Tipton Co M St Vincent a Madison West Central Community Mem Hosp d Ball Mem Randolph Community Hosp of Anderson Fountain Montgomery Franklin Hos Hosp St Vincent Hosp St John Med Center Hamilton i St Clares V Randolph St Vincent Mercy Hosp – Elwood Riverview s Med Center Boone Morgan e o Hosp Hosp Henry r n Henry Co Wayne m Morgan Co Mem Hosp i Hendricks Marion Hancock Mem Hosp Reid Hosp St Francis Hosp & Health Parke Marion ll Hendricks Hancock Mooresville Putnam Comm Care Ctr i Mem Hosp Columbia Women's Hosp of Indpls o Fayette Putnam Co Hosp n Rush Fayette Union Community Hosp of Indpls Hosp Vigo Shelby Johnson 1-East, 2-North, 3-South Mem Hosp Clay Morgan Johnson •Major Vigo St Methodist Hosp Indpls Columbia Terre Haute Hosp Mem Franklin Nurse Midwives Vincent Union Hosp – Terre Decatur Hosp Clay Riley Hosp - Data Management Off. Haute Barthol Decatur Owen Monroe Co St Francis Hosp. Center omew Mem Hosp Dearborn Dubois Sullivan Bloom BrownColumbus St Vincent Hosp & Health Care Center Ripley ington Greene Reg Hosp Wishard Mem Hosp Sullivan Co Margaret Memorial Hosp Hosp Jennings Mary Comm Comm Hosp Greene Co University Hospital & Health Care – Jackson Gen Hosp Lawrence Hosp Jasper Ohio Memorial Bedford Jefferson St Joseph Hosp Medical Ctr Hosp Seymour Switzerland Knox Dearborn King’s – Deaconess – Dunn Mem Daviess Daughters Hosp Huntingburg Good Daviess Martin Hosp Washington Dearborn Hosp Samaritan Co Hosp Orange Wash. Co Scott Scott Bloomington Mem Hosp Hosp Clark Hosp of Scott Co Mem Hosp Clark Mem Vanderburgh Pike Orange Co Hosp Gibson Dubois Deaconess Hosp Gibson Crawford Floyd Gen Hosp St Mary’s Med Center Harrison Floyd Evansville Perry Harrison Warrick St Mary’s Riverside Perry Co Floyd Mem Hosp Co Hosp Posey Vander Hosp burgh Spencer Mem Outreach Benton Carroll Tippecanoe Lafayette Home Hosp Hosp Grant Regional Outreach Program Refine Indiana’s UNHS through outreach activities Involve community /family Ensure locally available technical assistance to providers and consumers Promote timely diagnostic evaluation and early intervention services. Challenges Integrated data system Reporting/referring to First Steps Education and training Follow-up with children who pass hearing screening but are at high risk of on set delay Program evaluation Indiana Newborn Hearing Screening Participation Team work Coordination Cooperation
