Donna Trimm, DNS, RN Associate Professor James Madison University Harrisonburg, VA Barbara Couden Hernandez, PhD, LMFT, RN Professor, Director of Physician Vitality Loma Linda University School of Medicine Loma Linda, CA Marvin and Mable Describe nursing’s responsibilities in caring for the patient’s sexual health. Analyze the impact of illness/injury/aging/disability on sexuality and sexual health. Explore communication techniques, interventions and support needed for the patient’s sexual health. “Sexuality is a central aspect of being human throughout life. Sexual health is a state of physical, emotional, mental and social well-being in relation to sexuality. It is not merely the absence of disease, dysfunction or infirmity. Sexual health requires a positive and respectful approach to sexuality and sexual relationships, as well as the possibility of having pleasurable and safe sexual experiences, free of coercion, discrimination and violence. For sexual health to be attained and maintained, the sexual rights of all persons must be respected, protected and fulfilled” (WHO, 2006, p. 5). Holistic care Accrediting organizations AACN NLN NANDA Sexual dysfunction Ineffective sexuality patterns Included in nursing textbooks Difficulty communicating sexual needs Fear of rejection (Kralik, Koch, & Telford, 2001). Alters relationship dynamics Partners become caregivers Anxiety Loss of self-esteem Grief & depression Role changes (McInnes, 2003; Model, n.d.) Negative body image (Tanyi, 2002) Increased stress 87% of cardiac nurses (N = 157) felt responsible for discussing sexuality with patients 67% of nurses thought patients would be upset 72% felt patients would be embarrassed 68% were afraid that patients would be anxious 40% of nurses were hesitant to discuss sexuality because they didn’t think they would know the answers or how to respond (Jaarsma et al., 2010) 84.8% (N = 203) said sex counseling is RN responsibility 39.1% actually do “sometimes” counsel 42% felt comfortable counseling 46.2% felt qualified to offer counseling 71.5% said they had technical knowledge of post-MI sexuality recommendations (Vassiliadou et al., 2008) Themes Sexuality is… Linked to attractiveness The Obstacles Experienced… Unable to resume the role of a satisfying sexual partner My rehabilitation experience… Did not address their specific needs. What women want: My ideal rehabilitation Group or peer discussions (Robinson, Forrest, Pope-Ellis, & Hargreaves, 2011) 58 Occupational therapists/ 72 Rehab Nurses 30.6% had no sexuality education Approached 73% of patients 60% routinely offer sexuality counseling Nurses more likely to counsel patient and significant other together Only 37.2% followed up original conversation Assumed someone else was counseling Had inadequate knowledge (Novack & Mitchell, 1988) •Sexuality not a priority by nurses (N = 148). •72.3% believed that giving patients permission to talk about sexual concerns was a nursing responsibility •1/3 made time to discuss sex with their patients •47.9% were uncomfortable discussing sexuality •74.1% thought patients were not too sick to be concerned about sexuality •Less than half of the nurses surveyed believed that discussing sexuality was essential to patient health outcomes (Magnan, Reynolds, & Galvin, 2006) “One day we convened a panel of wheelchair men for some of our residents. These men were in their twenties, and I was amazed to learn that if they had their choice between getting back their walking or their normal sexual function—they’d choose sex—it was that important to them. In the hospital we put all our effort toward the walking—we were doing nothing about this other problem” (Smith & Bullough, 1975, p. 2194). #1—Belief patient’s do not expect nurse’s to address (Magnan & Norris, 2008) Sensitive/uncomfortable subject Lack of awareness of one’s attitudes, values, & feelings Maintaining patient confidentiality (Health, 2011) Inadequate relevant information Women ‘s sexuality is considered less important (Robinson, Forrest, Pope-Ellis, & Hargreaves, 2011). Fear of being intrusive or offensive Dealing with differences (Redelman, 2008) Fear of negative reaction (Magnan & Reynolds, 2006) Lack of privacy Chronic progressive conditions Chronic pain Incontinence Limited mobility Mental health/dementia (Heath, 2011) Assessment Establish trusting relationship Use a set of questions Recognize scope of practice (Longworth, 1997). Initiate discussion Exploration of methods Teaching Referral (Julien, Thom, & Kline, 2010) 1. Verbalize understanding of sexual anatomy and function 2. Reduce anxiety and desensitize 3. Identify satisfying and acceptable alternative sexual expression practices 4. Improve communication and relationship skills 5. Identify resources for more in-depth sexual health support P=permission Li=limited information SS=specific suggestions IT=intensive therapy (Mercer, 2008; McInnes, 2003; Taylor & Davis, 2007) Routine questioning “I always ask whether patients are having any relationship or sexual problems. Your sexual health is an important part of your life. Generalizing “People with chronic renal failure often experience sexual difficulties, such as loss of desire or problems with enjoyment. How have you been affected?” Normalizing “When a woman receives a diagnosis of breast cancer it’s normal for her to be concerned about how treatment might affect her sex life. What worries have you had?” Using statistics “Over 80% of men with peripheral vascular disease report problems with sex, such as difficulty gaining and keeping an erection. What changes have you noticed?” Other open ended questions “What kinds of sexual challenges are you experiencing?” “What happens when you and your partner try to make love?” “How is your health affecting your relationship?” (McInnes, 2003, p.265). OB-GYN and urologist specializing in sexual health Sexual health nurse clinician Sex therapist Pelvic health physical therapist Marriage & family therapist Psychologist Social work sexuality specialist Counselor Rule out STDs Management of hormone levels Correction of structural impediments Management of pain-producing anatomical and physiological conditions Retrograde ejaculation Fibroids Scarring Prolapse Anal fissures Decubiti Rehabilitation of the pelvic floor Lymphadema therapy Strengthening of pelvic musculature to improve circulation and prevent venostasis Nerve mobilization Pelvic flexibility Increased mobility of reproductive tissue Spasm prevention exercises General flexibility improvement Talk therapy Attitudes that prevent sexual enjoyment Trauma recovery Homework for patient and significant other Cognitive behavioral therapy Training the body to respond in new ways Exercises for the couple to practice Skills training Sexual issues are a couple problem, not an individual issue http://www.youtube.com/watch?v=RCs-zEHnWWo (move the slider to 5:27—5:48 (the little guy talking about “a long night sit”) Ackley, B.J., & Ladwig, G.B. (2008). Nursing diagnosis handbook: An evidence-based guide to planning care (8th ed.). St. Louis, MO: Mosby. American Association of Colleges of Nursing (AACN). (2008). The Essentials of Baccalaureate Education for professional nursing practice. Washington, DC: AACN. Astbury-Ward, E. (2011). A questionnaire survey of the provision of training in human sexuality in schools of nursing in the UK. Sexual and Relationship Therapy, 3, 254-270. Heath, H. (2011). Older people in care homes: Sexuality and intimate relationships. Nursing Older People, 23(6), 14-20. Hordern, A.J., & Street, A.F. (2007). Communicating about patient sexuality and intimacy after cancer: Mismatched expectations and unmet needs. MJA, 186, 224-227. Jaarsma, T., Stromberg, A., Fridlund, B., De Geest, S., Martensson, J., Moons, P., Norekval, T.M., Smith, K., Steinke, E., & Thompson, D.R. (2010). Sexual counseling of cardiac patients: Nurses’ perception of practice, responsiblity and confidence. European Journal of Cardiovascular Nursing, 9,24-29. Julien, J.O., Thom, B., & Kline, N.E. (2010). Identification of barriers to sexual health assessment in oncology nursing practice. Oncology Nursing Forum, 37, 186-190. Kralik, D. Koch, T., & Telford, K. (2001). Constructions of sexuality for midlife women living with chronic illness. Journal of Advanced Nursing, 35, 180-187. Magnan, M.A., & Norris, D.M. (2008). Nursing students’ perceptions of barriers to addressing patient sexuality concerns. Journal of Nursing education, 47, 260-268. Magnan, M.A., & Reynolds, K. (2006). Barriers to addressing patient sexuality concerns across five areas of specialization. Clinical Nurse Specialist, 20, 285-292. Magnan, M.A., Reynolds, K.E., & Galvin, E.A. (2006). Barriers to addressing patient sexuality in nursing practice. Dermatology Nursing, 18, 448-454. McInnes, R.A. (2003). Chronic illness and sexuality. MJA, 179, 263-266. Mercer, B. (2007). Interviewing people with chronic illness about sexuality: An adaptation of the PLISSIT Model. Journal of Nursing and Healthcare of Chronic Illness in Association with Journal of Clinical Nursing 17, 341-351. National League for Nursing. (2010). Outcomes and Competencies for Graduates of Practical/Vocational, Diploma, Associate Degree, Baccalaureate, Master’s, Practice Doctorate, and Research Doctorate Programs in Nursing. New York: Author. Robinson, J., Forrest, A., Pope-Ellis, C., & Hargreaves, A.T. (2011). A pilot study on sexuality in rehabilitation of the spinal cord injured: Exploring the woman’s perspective. South African Journal of Occupational Therapy, 41(2), 13-17. Saunamaki, N., Andersson, M., & Engstrom, M. (2010). Discussing sexuality with patients: Nurses’ attitudes and beliefs. Journal of Advanced Nursing, 66, 1308-1316. Smith, J., & Bullough, B. (1975). Sexuality and the severely disabled person. The American Journal of Nursing, 75, 2194-2197. Tanyi, R.A. (2002). Sexual unattractiveness: A patient’s story. MedSurg Nursing, 11(2), 95-99. Taylor, B., & Davis, S. (2007). The extended PLISSIT Model for addressing the sexual wellbeing of individuals with an acquired disability or chronic illness. Sex Disability, 25, 135-139. Tepper, M.S. (1999). Letting go of restrictive notions of manhood: Male sexuality , disability and chronic illness. Sexuality and Disability, 17(1), 37-51. Vassiliadou, A., Toulia, G., Stamatopoulou, E., Pistolas, D., Hasioti, K., & Vardaki, Z. (2008). Sexual activity Cardiological survey among Greek cardiologists. Health Science Journal, 2(1), 25-32. WHO. (2006). Defining sexual health: Report of a technical consultation on sexual health, 28-31 January 2002. Geneva. Retrieved from World Health Organization http://www.who.int/reproductivehealth/publications/sexual_health/defining_sh/en/ Wilmoth, M.C., Hatmaker-Flanigan, E., LaLoggia, V., & Nixon, T. (2011). Ovarian cancer survivors: Qualitative analysis of the symptom of sexuality. Oncology Nursing Forum, 38, 699-708. The American Association of Sex Educators, Counselors & Therapists (AASECT) http://aasect.org/about.asp Berman Sexual Health www.bermansexualhealth.com The Sex Information and Education Council of the United States (SIECUS) http://siecus.org/index.cfm?fuseaction=Page.viewPage&pageId=472 The Journal of Sex & Marital Therapy http://www.tandf.co.uk/journals/titles/0092623X.html EmpowHer.com www.empowher.com Find a Psychologist www.networktherapy.com Find a Marriage and Family Therapist www.therapistlocator.net Find a Counselor www.psychologytoday.com Find a Physical Therapist www.apta.org Find a Specialty Therapist www.helppro.com Sexual Health & Disability Alliance www.shade.org.uk Sexuality Education for Youth with Disabilities or Chronic Illness http://www.med.umich.edu/yourchild/topics/disabsex.htm “Do you have any concerns about how your illness or treatment might affect you as a woman/man?” “Do you have any concerns about your sexual functioning?” (Magnan & Norris, 2008, p. 265) Has there been any change in your sexual functioning? How satisfied are you with your sexual activity? Has your medication (or condition) affected your sexual functioning?” (Longworth, 1997, pp. 167-168) “What physical problems or other illnesses have you had that may have had an impact on your sexuality before being told you had cancer? Please describe how your sexuality has been affected by your cancer diagnosis. What has been the most troubling change in your sexuality: Interest? Arousal? Ability to have an orgasm? Have you experience pain during intercourse? Have you discussed your concerns about your sexuality with your partner? What have your doctors and nurses shared with you about cancer and sexuality? What would you have liked to have been told? When, during treatment, is the best time for sexuality discussions to occur? (Wilmoth, Hatmaker-Flanigan, LaLoggia, & Nixon, 2011, p. 702) Include partner Teach about the anatomy & physiology r/t the illness/injury/aging/disability Join a support group Manipulate environment Use drugs effectively—pre-treat Experiment Use plenty of alternate affection