Presentation Health Education and Advocacy Experiences from Jordan Amman January 12, 2016 This document is confidential and is intended solely for the use and information of the presenter. 1 Outline Health Education The Jordan Breast Cancer Program Health Advocacy The Health Care accreditation Council Interlinkages and Impact 2 Outline Health Education The Jordan Breast Cancer Program Health Advocacy The Health Care accreditation Council Interlinkages and Impact 3 A few Definitions in the world of Health Education Health Education Health education is a social science that draws from the biological, environmental, psychological, physical and medical sciences to promote health and prevent disease, disability and premature death through education-driven voluntary behavior change activities Health education is defined by the Jordan Ministry of Health as "any combination of learning experiences designed to pre-dispose, enable, and reinforce voluntary adoption of behavior conducive to health". Health education aims to increase knowledge and awareness and is an important component of health promotion. Information, education and communication Information, Education and Communication (IEC) in health programs is an important tool that aims to increase awareness, change attitudes and bring about a change in specific behaviors. IEC means sharing information and ideas in a way that is culturally sensitive and acceptable to the community, using appropriate channels, messages and methods. It is therefore broader than developing health education materials, because it includes the process of communication and building social networks for communicating information. IEC interventions involve the active participation of the target audience and adopt channels, methods and techniques that are familiar to their world view. Health Promotion Health promotion aims to help people to live healthy lives. It involves increasing people’s knowledge and awareness, enabling them to take action to improve their health, and ensuring that their circumstances allow them to make healthy choices. Health promotion includes: •Health education •Developing personal skills •Strengthening community action •Reorienting health services •Building healthy public policy •Creating supportive environments 4 Health education takes on the lead to change a certain behavior in a strategic, systematic and targeted manner Motivating people Supported by the latest knowledge from research (medicine, sociology, psychology). A systematic, comprehensive and consistent activity. Adapted to age, gender, education and particular health, mental or social problems of an individual or community (school, entreprise, city). Encourages personal investment of an individual. Respects environment of an individual. Informing people Guiding into action 5 Health education occurs in different settings for many purposes; however, the process of what health educators do is the same Setting Primary Mission Who is Served? What kind of Services School Education Children/ adolescents • Unintentional injuries, Child abuse and neglect, Substance abuse, personal health and hygiene Worksite Produce goods and services; Make a profit (if applicable) Consumers of products and services • • • • • Hospitals Treat illness and trauma Patients • In the hospital, direct patient education is part of ongoing patient care and is typically delivered by nurses and physicians • Group health education on such topics as diabetes and prenatal care are also provided Community primary care setting Prevent, detect, and treat illness and trauma Patients • Family planning Physical activity and fitness Nutrition and weight control Stress reduction Worker safety and health Blood pressure and/or cholesterol education and control • Alcohol, smoking and drugs • Nutrition • Breast feeding Health Department Voluntary health agencies Chronic and infectious disease prevention / control Public Prevention and control targeted disease/condition Public • Non communicable diseases • School health • Mental health • Supportive of the last two examples 6 Health educator focus on the stages of change that a community or individual will go through 7 Health education is part of an overall health promotion process that is trying to impact individual or community behavioral change III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board Remarks Approaches in Public Health Regulatory approach Service approach Educational approach 8 Follow all the steps to design and implement a successful health education plan Establish the program Involve key stakeholders Identify target audiences Conduct a formative assessment Segment target audiences Define behavioral change objectives Pretest all tools Monitor and evaluate Develop communication tools and activities Design the strategy, plan and evaluation of the program Implement 9 The communication / education plan is not only about the media channels that are used Communicator Knowledgeable, effective, responsive, trained, trustworthy, influencer Message Target specific, age, culture, sensitive, comprehensible, action oriented, designed properly Audience Defined, understood, receptive, reachable, influenced by Channels Accessible, trustworthy, combination, 10 Modes of communication can be grouped into three categories Mass Group Individual T.V Lectures Individual and family sessions Radio Film and charts Door to door outreach Press Group discussion Clinic based education Films Panel discussion Health magazine Symposium Posters Workshop Health exhibition 11 All of which should be identified and measurable from the beginning 12 Outline Health Education The Jordan Breast Cancer Program Health Advocacy The Health Care accreditation Council Interlinkages and Impact 13 First we define the problem III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board 14 Breast cancer is the most common cancer among females and continues to grow on a yearly basis Ten Most Common Cancers Among Jordanian Females JNCR 1996-2006 New Cases of Breast Cancer JNCR 1996-2007 817 646 554 Number of Cases Cumulative Number of Cases 6018 1710 1228 954 925 953 674 744 t l ri d n ry ia ta as NS te oi ki c r e m va C U S r e y . e r O & B s k .M lo Th in eu pu o N a r r L C B Co Primary Site 629 448 ASR 45.6 ASR 39.2 ASR 29.4 525 1996 L h H. ac N. om St ASR 35.2 2000 2004 2007 35.3% 36.2% years % from all cases 28.5% 32.7% 15 Jordanian females are inflicted with the disease at a young age when they are at the peak of their productivity Distribution of Breast Cancer Cases by Age Group JNCR 2005 Average Age Specific Incidence Rate (ASIR) Per 100,000 Females 1996-2006 JNCR 7% 10 8. 3 92 .5 90 .4 88 .4 80 60 40 1. 1 0. 09 5. 9 20 2% 13 2. 4 57% 9 15% 100 54 .2 18% 120 23 .4 Number of Cases Percentage of Breast Cancer Cases 140 13 1. 8 26% 4 160 14 1. 3 16 5. 3 180 31% Age *Median age in developed countries = 65 years 75 + 4 70 -7 9 4 65 -6 60 -6 55 -5 50 -5 9 45 -4 9 4 40 -4 35 -3 4 9 70+ 30 -3 60 - 69 25 -2 50 - 59 4 40 – 49 20 -2 30 - 39 <2 20 – 29 0 0 Years Ave Crude Incidence Rate = 22.8/100,000 16 At the onset of JBCP, Breast Cancer used to be detected at late stages when the survival rate and treatment success are not promising Stages of Breast Cancer in Jordan based on KHCC Experience b4 JBCP Direct Correlation of Survival to Stage of Detection 120% Stage 0, 0.50% Stage 1 6.70% 100% 100% 98% Stage IV, 12.90% Stage II, 23.70% Stage III, 56.20% Percent of Survival 88% 76% 80% 60% 46% 49% 40% 16% 20% 0% 0 I II a II b III a III b IV Stage of disease at Detection 5 years relative rate of survival N=550 17 Then we look at barriers III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board 18 Awareness and services on breast cancer early detection and screening were limited, diagnosis focused and not institutionalized Capacity Building Mammography Services Lack of female technicians trained in mammography and recruited to serve the facilities Lack of availability and accessibility to screening services Absence of training facilities (other than KHCC) in Jordan to accommodate for training of technicians and radiologists Unequal distribution of services across the Kingdom Incomprehensive academic curricula that do not mandate mammography as a required course for technicians No asymptomatic screening policy; only referred symptomatic patients accepted Cumbersome regulations to screening Training manuals have not yet been implemented Quality Assurance Public Awareness Lack of protocols and standard operating policies and procedures (SOPs) to run the units No certification program to set the standards for the mammography units Negative attitudes towards subject of breast cancer (many females prefer not to know) added to cultural barriers & social taboos that extend beyond the female herself leading to fears of being ostracized by husband, family, or society No monitoring and evaluation of performance of health providers regarding guidelines for breast screening Need for more individualized and one-on-one activities in order to change behavior that require large outreach efforts Lack of awareness, buy-in & action of keyinformant & service providers supporting screening 19 Then we design the program III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board 20 Thus the Jordan Breast Cancer Program was set up in early 2007 to down stage the disease and decrease morbidity and mortality To reduce morbidity and mortality from Breast Cancer by early detection and screening; To shift the current state of diagnosis of Breast Cancer from its late stages (III- IV), to diagnosing Breast Cancer at its earliest stages (0-II) where the disease is most curable, survival rates are highest, and treatment costs are lowest; Program Objectives Program Goals To improve availability and accessibility of screening services across Jordan, especially to those with low income and those residing in remote areas with little access to healthcare services; To increase the knowledge of the public on the benefits of breast cancer prevention and to change the attitude and behavior of the target population to seek early detection services; To establish national unified protocols and guidelines that cover all processes of a comprehensive early detection and screening program. These guidelines will include best practice and quality assurance guidelines on training, medical equipment, diagnosis, and referral systems; To improve healthcare personnel education and training; and To evaluate the impact of the program by collecting data for surveillance and epidemiological analysis to record and measure success of early detection. 21 We look closely at the health education part III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board 22 JBCP designed core strategic areas to work on and developed an action plan with prioritized activities Accessibility, Availability and Usability Developing Human Resources Targeted Awareness Activities March Campaign Strategy and Data Campaigns October Development of Information & Communication Toolkits JBCP Hotline promotion Quality Assurance Public Awareness and Health Education 23 The Jordan Breast Cancer Program follow a very rigorous and scientific approach in designing their educational campaign Step One: Research Step Two: Planning Phase 2.1: Setting A Goal 2.2: Identify Target Group • Who / where are they (demographics)? • How do they obtain daily information? • Who are their role models? • What are their current perceptions, knowledge, needs, wants, preferences, and behavior in relation to the issue addressed by the campaign? • What prevents them adopting the alternative behavior promoted by the campaign? • What would motivate them to adopt the promoted behavior? • • • • A good message gives a reason. A good message is understandable. A good message is, convincing. A good message is acceptable. 2.4: Developing the Campaign Action Plan Step Three: Implementation phase Step Four: Follow up…Monitoring Step Five: Reporting and Evaluation 5.1: October Campaign report 5.2: National Survey to assess the campaign 2.3: Developing the Campaign Message /Slogan and Design • A good message is simple and clear. • A good message is true and credible. 24 The health education plan includes several channels of communication for awareness and targeted goals Mass Awareness • Audiovisual activities (TV, Radio, • Printed media (newspapers, magazines) • Outdoor branding (bridges, wall units, billboards, mupies, lamp-posts) • Social media and E-Media (FB, Twitter, instagram, Websites) Outreach • IEC Material distribution (flyers, shower cards, booklets, bookmarks, bank inserts) • Lectures • Road-shows. ( malls, schools, health centers, universities) • Open days. (auditioning performances) Screening • Free CBE • Discounted mammogram for all women • Free mammograms for underprivileged women 25 Provision of services is coupled with raising awareness among the public and driving the demand towards early detection Outreach # of Beneficiaries Clinical Breast Exam 31,813 20,067 12,133 2006 2007 2008 Women Year Mammograms 1,788 2,030 431 2006 2007 Year MoH JBCP Total Lectures 1,445 162 1,607 Attendance 13,414 5,985 19,399 SBE’s train 9,392 5,985 15,377 2008 26 Then we monitor and evaluate before going back to the drawing board III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board 27 In less than two year’s experience, preliminary indications from KHCC data already show a shift in staging of the disease Stages of Breast Cancer in Jordan based on KHCC Experience before program Stage 0, 0.50% Stage 1 6.70% Stages of Breast Cancer in Jordan based on KHCC Experience after program Stage 0 4.79% Stage I, 8.90% Stage IV, 12.90% Stage IV, 17.35% Stage II, 23.70% Stage II, 41.32% Stage III, 24.20% Stage III, 56.20% 3.42% unknown N=550 N=438 28 Year after year the message matures and changes to build on the successes of the year before and address the challenges that are still faced (1) 2006 Early detection saves lives 2009 At 40 we screen 2007 Female: a mammogram helps you 2010 We screened…did you? 2008 Detection means safety 2011 Encourage her to screen 29 Year after year the message matures and changes to build on the successes of the year before and address the challenges that are still faced (2) 2012: promise to Screen 2013: Screen we are all with you 2015: stay in my life 2014: Lets go, your health is more important 30 Outline Health Education The Jordan Breast Cancer Program Health Advocacy The Health Care accreditation Council Interlinkages and Impact 31 Advocacy is to promote or reinforce a change in policy, program or legislation rather than providing support directly to clients or users of services, advocacy aims at winning support from others. III Design and implement service provision Services I II Define and Understand the health problem Assess the barriers IV Enabling environment Evaluate and assess impact III Knowledge attitude Design and implement Health education plan V Back to the drawing board 32 In many ways, advocacy, like any other program, follows a series of steps to arrive at the intended goal Process Identify the need or the problem Pitfalls Gather data to document the need or problem Failing to effectively communicate needs to healthcare providers Identify decision-makers Taking an “all or nothing” approach Gather support Not being willing to try a service or program Develop recommendations to address the need or problem Focusing on unproductive approaches in the healthcare process Make the case Not documenting everything Areas of Advocacy Stakeholders Leadership development Beneficiaries Coalition building Decision makers Networking Allies and partners Political Lobbying Resistant groups (Adversaries) Promoting legislative change Briefing media Counteracting opposition 33 Advocacy has specific techniques and tactics Advocacy techniques and tactics Audience/Stakeholder Category Beneficiaries Partners Adversaries Decisionmakers Sensitization Mobilization Dialoguing Debating Negotiating Lobbying Petitioning Pressuring 34 Advocacy in health care is critical at the policy level and for sustainability purposes Health is a political issue Why How Individual & institutional health actions have spillover effects Measure public priorities/opinions: Citizens expect government to satisfy physical, economic & psychological needs Find priorities of legislators: Protecting public health involves moral judgments that acquire legitimacy thru political debate Healthy population is vital to economic growth & social order Measure media coverage: Categorize the salience of issue: Identify key political decision makers • Which organization? • Who? • When and how? When Documentation of scientifically & socially credible threat Agreement on who or what is responsible for the problem Social views about affected populations Who Individual Professional Interest group Lobbyers Academia community 35 Outline Health Education The Jordan Breast Cancer Program Health Advocacy The Health Care Accreditation Council Interlinkages and Impact 36 Although Jordan fairs well on many health indicators, the in depth reality of services in Jordan was challenging Weaknesses No data related to patient safety No P&Ps &/or clinical guidelines Reporting culture Lack of enforcement of Regulations and Safety regulations No medical liability law Lack of continuous credentialing and privileging system tied to continuous education Impact of crisis in the region and load on the healthcare system. 37 So the Health Care Accreditation Council (HCAC) was established in an effort to address some of the challenges PHCs accredited Surveyor training started Donor support for government of Jordan on accreditation Piloting in Hospitals Diabetes Standards & Cardiac Standards Launched ISQua accredits HCAC ISQua accredits the hospital accreditation standards First group of accredited hospitals Strategic plan MOH ISQua Reaccredits HCAC 1st Change Day 2006 2004 2003 12 members form a National Accreditation Committee was approved 2005 2008 2007 2010 2009 1st edition Primary Health Care Standards First draft of Jordanian Hospital standards was published Establishment of HCAC NQSGs launched ISQua accredits Surveyor Certification Course 2014 2012 2011 Centers of Excellence First Edition Breast imaging Units Standards Medical Transport Standards 2013 Official partnership with Ministry and stakeholder 2015 Mandatory accreditation law drafted Change Day 2015 3rd Quality Conference 38 Through the provision of two types of services Standards Development Surveyor Development Accreditor Accreditation Surveys and Standards Development Department Functions Firewall Mock Surveys Consulting for Quality Preparedness Enabler Training and Certified Courses Education and Consultation Department Consultant Development 39 So today, HCAC is not just an accreditation body, it is a nonprofit institution with the aim to raise the quality of health services Mission Objectives Stakeholders Components Accreditation Consultation Capacity Building Quality services Institutions Health Professionals Patients & Families Supportive environment Research Decision Makers Continuous Quality Improvement and Patient Safety 40 …works on different levels to support quality improvement and patient safety… Awareness Education Research Courses • Healthcare Certified Quality Practitioner • Healthcare Certified Clinical Risk Manager • Healthcare Certified Executive Leadership • Healthcare Certified Infection Preventionist 41 …and runs National Quality and Safety Goals every other year Remarks Goals 2010 Ensure compliance with hand hygiene best practice All Medical Record Entries must be Timed, Dated, and Signed 2011 Clear and Interactive Communication During "Hand Over“ Improve the Safety of Multiple Dose Vials (MDV) Use Safe Management of Central Lines to Minimize Infection and complications. 2012 Identify Patient Correctly Improve Safety of High Alert Medication Ensure Correct-Site, Correct-Procedure, Correct-Patient Patient fall Appropriate use of prophylactic antibiotics in surgery Reduce the risk of catheter associated urinary tract infections 2013 2009 Year Improve Pain Management Medication Reconciliation Zero Tolerance for Workplace Violence It is part of HCAC’s CSR Goals are developed in a consultative manner Goals are selected based on the: Potential of happening Potential impact Applicability to all sectors Applicability to all types of people Uniquely Jordanian Solutions are possible Goals must be: Valid Reliable Clear Realistic Measurable. Institutions apply voluntarily and have to demonstrate: written and implemented evidence based policy/guidelines In-service training for relevant staff Documented evidence of implementation Monitoring of the compliance With positive results Certification is awarded for one year 42 The accreditation initiative has had several impacts at the macro and micro levels in Jordan Macro Develop the expertise of quality and patient safety 8 Certified Consultants 35 Certified Quality professionals 27 Certified Infection Control professionals 14 Certified Risk Management 26 Leadership & Management Instill at the institutional level progress, change and improvement 17 hospitals accredited – four in the pipeline 90 PHC accredited – 27 in the pipeline Have a body to advocate, focus and push the agenda (become a line Institutional item in the MOH Budget) Raise level of awareness of the importance of the subject matter & develop services to ensure buy in Address needs of the country & region and respond to emerging issues Improve health care quality through standards Stimulate the management of health services to focus on quality and patient safety Improve professional’s understanding and skills on quality improvement strategies and "best practices" Radiation Safety Increased the professionalism of care providers Increased sense of responsibility towards the clients Improved communication and cooperation with client/ families Improved the level of medical services provided to clients Enhanced the confidence in the care Minimized/prevente d incidents caused by the health care process Medication management Overall Safety Infection Control Medical Record Patient and Employee Satisfaction Housekeeping Management and Leadership Committee Medical Record Committee Infection Control (IC) & Environmental Safety Committee Quality Improvement & Client Safety Committee Continuity 43 The evidence of the impact of HCAC accreditation is being generated but still needs more years of implementation 44 Accordingly the government has taken many strides to institutionalize accreditation Ministry of Health Establishment of Central Accreditation Steering Committee Headed by General Secretary Support quality management directorate with staff and other resources Assign quality coordinator in all health directorate Establishment of medical record committee Quality and accreditation on MoH strategic plan for 2014 – 2017 Recent Steps His Majesty King Abdullah II bin Al Hussein initiative for at least one accredited hospital in each governorate New private hospitals law indicates accreditation to be accomplished within 5 years from publishing Accreditation targets identified and specific in Ministry of Health strategic plan 2014-2017 Jordan 2025 indicates accreditation as a requirements for hospitals In response to a directive of His Majesty, the Prime Minister commissioned the Ministry of Health to draft a law for mandatory accreditation for all health sector in Jordan Senate has requested accreditation of institutions to follow medical liability law 45 Health workers have a very positive view of the role of accreditation on improving the work of health centers "The accreditation had a positive effect on my health center" Strongly Disagree, 0.3% Strongly Agree, 54.0% “The following department or service was mostly effected” Disagree, 0.3% Agree, 45.4% Mean Scores for 1st & 2nd Collaboratives Patient Satisfaction Surveys Courtesy of Health Systems Strengthening Project II implemented by Abt Associates and funded by USAID 46 Upward trends in several areas in accredited vs. non-accredited PHCs have been noted CYP Increase: 3rd Collaborative HCs 2500 2000 1500 1000 500 0 qtr 1/2013 qtr 2/2013 qtr 3/2013 qtr 4/2013 qtr 1/2014 Courtesy of Health Systems Strengthening Project II implemented by Abt Associates and funded by USAID 47 Sometimes pictures are worth a thousand words (before) 48 Sometimes pictures are worth a thousand words (after) Look alike medication Sound alike medication 49 So how did health care quality and patient safety become a political issue through the advocacy steps? Health is a political issue Why How Individual & institutional health actions have spillover effects Measure public priorities/opinions Citizens expect government to satisfy physical, economic & psychological needs Find priorities of legislators Protecting public health involves moral judgments that acquire legitimacy thru political debate Healthy population is vital to economic growth & social order Measure media coverage Categorize the salience of issue Identify key political decision makers • Which organization? • Who? • When and how? When Documentation of scientifically & socially credible threat Agreement on who or what is responsible for the problem Social views about affected populations Who Individual Professional Interest group Lobbyers Academia community 50 Outline Health Education The Jordan Breast Cancer Program Health Advocacy The Health Care accreditation Council Interlinkages and Impact comparison 51 Health education and health Advocacy are similar yet different in many ways however always aiming at improved health Advocacy Goal: Actively supporting a cause, and trying to get others to support it as well Process Similarities . Identify, segment audiences . Undertake research to clarify issues . Develop strategies & messages . Monitor and evaluate Health Education Goal: Change attitudes, Beliefs, values and Behavior of individuals or group of individuals Although there is a good deal of overlap between health education and advocacy, advocacy activities tend to be more deliberately persuasive and campaign oriented. 52 Comparing the JBCP and the HCAC programs Advocacy Health education aims to gain wider support ensuring educates individuals and the community about the existence and benefits of JBCP regular screening for women for the early detection of breast cancer Importance of early detection through regular exams and successful treatment HCAC Improving patient safety and quality in health care Patient rights, patient safety tools, 53 whether it is a health education issue or an advocacy issue, the systematic targeted approach is the same Understanding situation and needs Acquiring skills Implement -ing behavioral change Requiring change Doing it over and over Doing it willingly – embedding behavioral change in day to day life 54 JBCP is a bottom up participatory approach to inducing change in a the health of a population JBCP 5 4 3 2 1 Public Awareness Capacity Building Development of Services legislation Stable Funding HCAC 5 4 3 2 1 Public Awareness Stable funding Awareness and Education Legislation Capacity Building Service provision Advocacy 55 However, many education and advocacy efforts in health in the region are not institutionalized What's working? Many national programs driven by government or NGO that have positive impact on health Challenges Continuity vague Not legislated Diabetes Funding dependent Healthy lifestyles Not coordinated Family planning Working in silos Vaccination Advocacy is not well used as a science for change Road accident Politics / policy are government driven Several advocacy efforts working such as quality and patent safety, family protection and safety, women rights Lack of data Academia not involved in overall design of policy Drivers include NGOs, donor organizations and to a lesser extent government Good capacity for health promotion 56 Therefore a more concerted effort will be more cost effective and impactful for the success of advocacy and health education Maturity Consolidation Expansion Experience/ Experiential Awareness Pre-existing phases 57