A Candid Conversation among Funders about Eliminating Vertical Transmission International AIDS Conference, Vienna – July 20, 2010 BACKGROUND: Global efforts to eliminate vertical transmission of HIV from mother to child are gaining momentum. Bilateral and multilateral funding institutions are reprioritizing funds to achieve the elimination of mother to child transmission by 2015. Key stakeholders, including global agencies, governments in high-burden countries, and implementing partners from civil society, are committed to this goal. In addition, philanthropic institutions and the private sector are engaging in this global movement. These funders can play a critical role in identifying gaps and funding unmet needs to eliminate vertical transmission. PURPOSE: Johnson & Johnson hosted a meeting co-partnered by UNAIDS, Funders Concerned About AIDS (FCAA), the Global Business Coalition on HIV/AIDS, Tuberculosis, and Malaria (GBC), and the European HIV/AIDS Funders Group (EFG) to galvanize funders – both foundations and corporations – to join the global effort to eliminate vertical transmission of HIV. In addition to discussing the role that funders can play to support unmet needs through financial and non-financial contributions, the meeting also sought to strengthen and align the responses of foundations and corporations already committed to this effort. Over 70 people from private foundations and corporations, funder affinity groups, implementing organizations, and the United Nations participated. KEYNOTE SPEECH: Jan Beagle, Deputy Executive Director of UNAIDS, highlighted several key points. With HIV as the leading cause of death among women of reproductive age, nearly 16 million women living with HIV, and 1.4 million pregnant women who risk passing HIV to their child each year, Beagle urged that this is a time to scale up the response to HIV/AIDS. Although mother-to-child transmission of HIV has been almost eliminated in high-income countries, it has not yet been eliminated globally. However, with the current investment, substantial progress has been made in access to PMTCT services. Funders and corporations can provide not only financial resources, but also nonfinancial contributions such as PMTCT and family planning commodities, skills and platforms to reach out and empower community empowerment, and programs to ensure delivery and uptake of services. PANEL DISCUSSION: VOICES FROM THE FIELD: A moderated panel discussion highlighted the status of PMTCT and the highest-impact ways that funders can engage. Daniel Lee, Executive Director of the Levi Strauss Foundation, served as the moderator. Panellists represented both pioneering community service providers and acknowledged thought leaders: Dr. Mitch Besser, founder of mothers2mothers; Dr. Shaffiq Essajee, Medical Officer for Pediatric AIDS Care and Treatment at the World Health Organization; Dr. Christian Pittner, Director of the Elizabeth Glaser Pediatric AIDS Foundation’s Global Technical Policy Unit, and Ms. Morolake Odetoyinbo, Founder of Campaign to End Pediatric AIDS Nigeria and Project Director of Positive Action for Treatment Access. Panellists discussed opportunities for support at both the national government and the grassroots level. Overall, many of these suggestions encouraged linkages between Millennium Development Goals 4 (Reducing Child Mortality), 5 (Improving Maternal Health), and 6 (Combating HIV/AIDS, Malaria and Other Diseases). On a national scale, panellists suggested engaging national governments in order to reach scale with successful programs. Panellists also highlighted a need to conduct a review to identify countries that have had difficulty scaling up, and to determine the political or technical reasons for these challenges. On a local scale, outreach to women at the community level, advocacy for community mobilization, and civil society and family planning strengthening were all seen as opportunities. Although current policy focuses on pregnant women and reproductive health, there is a gap in access to treatment for children. Panellists also stressed a need to focus on cultural and religious issues to address stigma while supporting evaluation to determine what works. Innovative approaches to MTCT include empowering HIV-positive women to work in health services and impart their knowledge, using mobile technology for follow-up on treatment and care. Furthermore, panellists felt that creating gender empowerment through educating girls and focusing on a women-centred approach is instrumental, while increasing the use of dry blood testing for early infants may help reach more mothers and children. Additionally, UNICEF’s mother-baby pack, which will initially be piloted in Cameroon, Kenya, Lesotho and Zambia, may help with scaling up PMTCT service delivery. Philanthropic institutions and the private sector can bolster PMTCT program support. Private funding, particularly in the areas of monitoring and evaluation (M&E) and treatment-based paediatric programs, has been instrumental. Donors want to fund initiatives that are sustainable, have clearly defined milestones, and focus on PMTCT service delivery. Lastly, the panel highlighted that, since PMTCT strategies are available at the country level, but not all will be costed or targeted, funders should consider investing more directly in communities and people who do the work. GROUP WORK: There was also an opportunity for funders to break into working groups for more focused discussions. The groups were segmented by funder entry point: scale and measurement, advocacy and community involvement, task shifting and sharing, and integration. Within each working group, discussion surrounded three key questions related to funding for PMTCT. The highlights of the working group discussions are outlined below. Funder Entry Point Scale and Measurement Advocacy and Community involvement Task Shifting and Sharing Integration Questions Why should a funder who is new to the PMTCT space focus their resources on your sub-area? What are three approaches/strategies would you recommend as being best practice approaches? Measurement -Shows what we are doing -Develops and strengthens government structures and performance capacity -Captures benefit Measurement 1) Use qualitative and quantitative data 2) Do sentinel surveillance and operations research to identify geographic areas and gaps in scale-up 3) Have a sense of thoughtful urgency Scale -Helps countries adopt WHO guidelines -Helps attain government will -Provides mothers and babies with access to treatment Scale 1) Be conscious not to lose quality while scaling 2) Implement the comprehensive IATT PMTCT guidelines, then have the WHO 2009 guidelines 3) Strengthen government will and leadership 1) Provide core support (build capacity of organizations and individuals) 2) Adopt a women-centred approach 3) Engage new technology 1) Fund models that have shown that tasks can be shifted in a sustainable way 2) Identify training and programming needs in the field and listen rather than imposing donor desires 3) Get away from silo mentality and recognize that integrated services are ultimately more cost-effective -Strengthens sustainability -Helps with mobilization and outreach to communities -Engages program staff to provide quality services -Involves different voices and groups -Can try innovative ideas until there is a proof-of-concept for scaling -Supports staffing to support integrated health systems -Funds models that show that cost-effectiveness -Supports programs that identify HIV-positive women -Supports programs that empower HIV-positive women, which fights stigma by creating role models -Meets women’s needs -Is cost-effective and efficient -Is great for those interested in building capacity and strengthening a continuum of care -Can support a range of services from family planning through the first 24 months of a baby’s life -Addresses stigma and discrimination 1) Link antenatal care with HIV services 2) Create a strong referral system across a range of services 3) Have cultural sensitivity that allows flexibility in meeting women’s needs What do you need from each other as you develop and execute your funding strategies? -Serve as resources for each other -Share best practices -Share indicators and synthesize metrics -Communicate about what we are funding and identify gaps -Communicate more frequently -Identify alliances in-country and mechanisms for coordination -Select 2-3 projects that all funders can work on and see what can be accomplished within one year -Support innovative, technologybased programs