Learning Disabilities and
CAMHS eBulletin
www.chimat.org.uk
www.gov.uk/phe
July 2015
Elsewhere
Welcome to the monthly Learning Disabilities and CAMHS
eBulletin highlighting the latest resources relating to
children and young people with learning disabilities who
also have mental health needs which have been added to
the Mental Health and Psychological Wellbeing
Knowledge Hub over the past month.
This email includes a summary and link to each resource
below.
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National Child and Maternal Health Intelligence Network
news
Child Health Profiles 2015 published
The Local Authority Child Health Profiles 2015 have been published as an
official statistic by Public Health England (PHE). These profiles provide a
snapshot of child health and wellbeing for each local authority in England,
using 32 key health indicators which help local organisations work in
partnership to improve health in their area. They contain data on a wide
range of issues about and affecting child health, from MMR immunisation
rates, levels of childhood obesity, teenage pregnancy and underage
drinking, to hospital admissions, educational performance and youth
crime.
In addition, this year a condensed version of the profile is also available
for clinical commissioning groups (CCGS), with a spine chart similar to the
one in the local authority profiles. It contains the same indicators as the
profiles for local authorities where it is possible to publish these for CCG
boundaries. Summaries for strategic clinical networks and PHE centres
have also been published.
www.chimat.org.uk/profiles
In the news
We do not accept responsibility for the availability, reliability or
content of these news items and does not necessarily endorse the
views expressed within them.
HSCIC: Maternity and children's data set (MCDS) stakeholder
engagement workshops
The Health and Social Care Information Centre (HSCIC), as part of a
project sponsored by the Department of Health, is seeking views as part
of its work to establish the collection of three new national datasets, for
maternity, child health and mental health (child, adolescent and adults). It
is arranging a series of workshops to gain insight as to how ‘users’ would
prefer to access, analyse and visualise data. This understanding will help
to guide the future development of the viewing portal/platform available to
interested ‘users’. The workshops will be half-day, afternoon sessions
with limited spaces:
Royal Statistical Society, London on Wednesday 8th July 2015
Well Met Conferencing, Leeds on Tuesday 14th July 2015
Durham House, Washington on Wednesday 5th August 2015
If you would like further information, or would like to be involved in this
activity, please contact mcds@hscic.gov.uk
http://www.chimat.org.uk/resource/view.aspx?RID=241535&src=LD
NHS Choices: Children with autism may be supersensitive to
change
"People with autism … are over-sensitive to the world," the Mail Online
reports. This 'Behind the headlines' article examines the evidence behind
this report.
http://www.chimat.org.uk/resource/view.aspx?RID=241931&src=LD
NHS England: Learning disability week is all about listening
‘Hear My Voice’ is the theme of this year’s Learning Disability Week
which runs from 15th June 2015.
http://www.chimat.org.uk/resource/view.aspx?RID=243261&src=LD
NHS England: Why we must learn to listen
This blog post, from the National Clinical Director for Learning Disability
for NHS England, discusses the theme of this year’s Learning Disability
Week (15 - 21 June) and the importance of hearing the voices of people
with learning disability.
http://www.chimat.org.uk/resource/view.aspx?RID=243265&src=LD
NHS England: Transforming services for people with learning
disability
NHS England has established five fast-track sites that will test new
approaches to re-shaping services for people with learning disabilities
and / or autism, to ensure more services are provided in the community
and closer to home.
http://www.chimat.org.uk/resource/view.aspx?RID=243266&src=LD
NICE: Avoid medication as first resort for challenging behaviour
Antipsychotic medication should only be used in particular circumstances
and not as a first resort when managing behaviour that challenges in
people with learning disabilities, says NICE.
http://www.chimat.org.uk/resource/view.aspx?RID=243777&src=LD
NHS England: NHS launches world’s first national review of deaths
of people with learning disabilities
NHS England, the Healthcare Quality Improvement Partnership (HQIP)
and the University of Bristol have announced the world’s first national
programme to review – and ultimately reduce – premature deaths of
people with learning disabilities.
http://www.chimat.org.uk/resource/view.aspx?RID=244976&src=LD
Putting people with learning disabilities at the heart of what we do
As part of a series of blogs to mark Learning Disability Week, the Chief
Nursing Officer for England discusses NHS England’s ongoing
programme of work to transform services.
http://www.chimat.org.uk/resource/view.aspx?RID=244996&src=LD
DH: Understanding the needs of people with learning disabilities
In this article, the Minister of State for Community and Social Care
discusses the importance of listening and understanding when providing
services for people with learning disabilities.
http://www.chimat.org.uk/resource/view.aspx?RID=245136&src=LD
NHS England: Our learning disability engagement team is putting
the theme of LD week into practice
In the fourth of a series of blogs for Learning Disability Week, Bethany
Plummer, Learning Disability Network Manager for NHS England, talks
about how the Learning Disability Engagement team will be ensuring that
the theme of LD Week 2015 – Hear My Voice – is put into practice.
http://www.chimat.org.uk/resource/view.aspx?RID=246023&src=LD
BBC: Drinking in pregnancy 'significant' cause of childhood brain
damage
One of the UK's leading experts in child health is calling for stronger
warnings on alcohol to alert women to the dangers of drinking while
pregnant.
http://www.chimat.org.uk/resource/view.aspx?RID=246567&src=LD
Champions for community mental wellness: I am that parent (blog)
A blog post from a parental perspective of interest to anyone involved in
education.
http://www.chimat.org.uk/resource/view.aspx?RID=247341&src=LD
Medical News Today: Kids losing autism diagnosis may still need
educational support
A study examining children diagnosed with autism spectrum disorder
whose social and cognitive symptoms had resolved 4 years later has
found that most continued to have emotional and behavioral symptoms
that required special educational support.
http://www.chimat.org.uk/resource/view.aspx?RID=247342&src=LD
NHS England: NHS jobs pledge for people with learning disabilities
To mark Learning Disability Week, NHS Employers and NHS England
are launching a new national network providing advice, ideas and
impetus to all NHS organisations – from local hospital trusts to national
bodies – to remove barriers and take steps to accelerate employment of
people with learning disabilities in the NHS.
http://www.chimat.org.uk/resource/view.aspx?RID=248020&src=LD
BBC Ouch Blog: Independent Living Fund: What is going to happen
now?
This blog post outlines what the Independent Living Fund (ILF) is and
who will be affected when it comes to an end at the end of June 2015.
http://www.chimat.org.uk/resource/view.aspx?RID=248085&src=LD
Guides and practice
A guide for working with parents of children with special
educational needs or disabilities (SEND)
This guide aims to support all early years practitioners to reflect on how
they work in partnership with parents of children with SEND.
http://www.chimat.org.uk/resource/view.aspx?RID=242196&src=LD
SEND case studies
4Children have compiled a number of case studies which represent some
of the work going on across the country to implement the new SEND
code in the early years at local authority organisational level and also
setting level.
http://www.chimat.org.uk/resource/view.aspx?RID=242217&src=LD
Communicating the code: a resource to enable the implementation
of the SEND code of practice 0-25 years
The Communication Trust has developed this resource specifically for
people working directly with children and young people with speech,
language and communication needs (SLCN) and it should be of use to
those working in early years, schools and post 16 settings. The resource
contains practical information, case studies and links to resources to help
all those involved with children and young people with SLCN fulfil their
responsibilities effectively under the new Code of Practice.
http://www.chimat.org.uk/resource/view.aspx?RID=242221&src=LD
Youth to adult transition principles and guidance (Wales)
This document looks at how to improve the way youth offending teams
and the National Probation Service work together.
http://www.chimat.org.uk/resource/view.aspx?RID=243212&src=LD
An introduction to PBS
This short animation gives an overview of Positive Behaviour Support
(PBS) and how PBS approaches work in practice when supporting an
individual.
http://www.chimat.org.uk/resource/view.aspx?RID=243289&src=LD
Criminal justice system - information for frontline staff and
practitioners
These fact sheets have been written for mainstream frontline staff and
practitioners in the criminal justice system to help them feel better
informed in how they support people with learning disabilities.
http://www.chimat.org.uk/resource/view.aspx?RID=243292&src=LD
Hidden sentence - training
A bespoke (one-day) training course for professionals in how
imprisonment affects families of prisoners. The training is offered to
professionals in the north east of England who work with children or
families, including health workers, social workers, teachers, probation
and prison officers, and anyone working in the voluntary sector with
families.
http://www.chimat.org.uk/resource/view.aspx?RID=243390&src=LD
Challenging behaviour and learning disabilities: prevention and
interventions for people with learning disabilities whose behaviour
challenges. NICE guidelines [NG11
This guideline offers evidence-based advice on prevention and
interventions for children, young people and adults with a learning
disability and behaviour that challenges. NICE has also produced an
easy read version for people with a learning disability.
http://www.chimat.org.uk/resource/view.aspx?RID=243773&src=LD
Housing LIN: housing and health exchange
Supported by Public Health England, this free online resource for
practitioners working across housing, adult social care, public health and
primary care practitioners lists relevant policy and showcases examples
of practice that have either helped to transform people's lives and/or
improve local service delivery. You are invited to either post a question
on the discussion forum or draw attention to useful documents or
resources that have helped you better understand the important links
between health and housing.
http://www.chimat.org.uk/resource/view.aspx?RID=247249&src=LD
Disabled children and the Equality Act 2010 for early years
This resource from the Council for Disabled Children provides a short
guide to what early years professionals need to know and do in order to
address inequalities and to ensure they do not discriminate against
disabled children.
http://www.chimat.org.uk/resource/view.aspx?RID=247394&src=LD
Policy and government reports
Department for Education SEND June Newsletter
The Department for Education's 0-25 Special Education Needs and
Disability Unit has published its June Newsletter. The newsletter is for
civil servants and looks at the Implementation of the SEND system and
goes into detail on transition planning, the Local Offer and co-production.
Also discussed in this newsletter are looked after children and EHC
plans, youths in custody and a summary of the results of the February
2015 LA survey.
http://www.chimat.org.uk/resource/view.aspx?RID=247703&src=LD
Reports
Mental Elf: Can video-feedback improve outcomes for infants at risk
of autism?
This blog post summarises a cutting-edge RCT of video-feedback given
to parents for infants at risk of autism.
http://www.chimat.org.uk/resource/view.aspx?RID=241473&src=LD
Public Health England: health & justice report 2014
This report provides details of key changes in the health and justice
system and discusses the public health needs of people in Prescribed
Places of Detention (PPDs), including children and young people’s
secure estate (CYPSE). In addition to demographic details of people in
detained settings the report explores some of the key public health
initiatives developed in partnership with NHS England, NOMS, the Home
Office and the Youth Justice Board.
http://www.chimat.org.uk/resource/view.aspx?RID=243316&src=LD
Individual service funds (ISFs) and contracting for flexible support:
practice guidance to support implementation of the Care Act 2014
This guide is aimed at council commissioners and providers, and sets out
how councils can contract flexibly with a service provider to meet a
person's needs, and contract in a way that gives the person more control
over their own support.
http://www.chimat.org.uk/resource/view.aspx?RID=246049&src=LD
Keeping children in care out of trouble: an independent review public briefing
This briefing provides information on the independent review into why
looked after children are more likely than other children in England and
Wales to get involved with the criminal justice system, and what can be
done to help more children in care stay out of trouble.
http://www.chimat.org.uk/resource/view.aspx?RID=246557&src=LD
Joint health and social care self assessment framework 2014 results
This publication looks at the overall number of people with learning
disabilities in each part of England and the issues facing them, with, for
example, access to healthcare services (e.g. screening) or wider health
indicators (e.g. obesity). It includes a check on key local numbers about
health and social care for people with learning disabilities, and locally
assigned red/amber/green ratings against a series of national quality
standards, presented in two separate reports.
http://www.chimat.org.uk/resource/view.aspx?RID=246617&src=LD
CDC: What does the Queen’s speech mean for disabled children?
This briefing from the Council for Disabled Children provides further
information about the Bills laid out in the Queen’s Speech that will
specifically affect disabled children and young people and those with
SEN.
http://www.chimat.org.uk/resource/view.aspx?RID=247388&src=LD
SEN: Hearing pupils’ voices
This article reflects on the new SEND Code of Practice and the best
practice responsibilities for schools and local authorities.
http://www.chimat.org.uk/resource/view.aspx?RID=247390&src=LD
The case for play: the importance of play for children who are
deafblind and have complex needs
This report published by Sense states that parents of deafblind and
disabled children need more support in getting better access to play
opportunities for their children.
http://www.chimat.org.uk/resource/view.aspx?RID=247392&src=LD
Creating a better care system: setting out key considerations for a
reformed, sustainable health, wellbeing and care system of the
future
A report – by Ernst & Young for the Local Government Association (LGA)
– on health and social care that sets out a model for the future.
http://www.chimat.org.uk/resource/view.aspx?RID=248054&src=LD
Tools and data
Child health profiles 2015
Public Health England has published the 2015 Child Health Profiles. The
profiles provide a snapshot of child health and wellbeing for each local
authority in England using key health indicators, which enables
comparison locally, regionally and nationally.
http://www.chimat.org.uk/resource/view.aspx?RID=245130&src=LD
Joint health and social care self assessment framework 2014 results
This publication looks at the overall number of people with learning
disabilities in each part of England and the issues facing them, with, for
example, access to healthcare services (e.g. screening) or wider health
indicators (e.g. obesity). It includes a check on key local numbers about
health and social care for people with learning disabilities, and locally
assigned red/amber/green ratings against a series of national quality
standards, presented in two separate reports.
http://www.chimat.org.uk/resource/view.aspx?RID=246617&src=LD
Research
The full versions of some of these resources may only be available with a
paid subscription. For information on how you may be able to access
them please view our Accessing Knowledge Hub resources page.
Assessing the bullying and victimisation experiences of children
with special educational needs in mainstream schools: development
and validation of the bullying behaviour and experience scale
The Bullying Behaviour and Experiences Scale (BBES) was specifically
developed as a self-report measure of victimisation and bullying
behaviour for children with SEN. This study examines the initial
psychometric properties of the BBES using a sample of 348 children and
compares the incidence of both victimisation and bullying in children with
SEN to their peers, controlling for behavioural and emotional difficulties.
http://www.chimat.org.uk/resource/view.aspx?RID=241540&src=LD
Comparing service use and costs among adolescents with autism
spectrum disorders, special needs and typical development
This article describes the services and associated costs for four groups of
individuals: adolescents with autistic disorder, adolescents with other
autism spectrum disorders, adolescents with other special educational
needs and typically developing adolescents using data from a large, well-
characterised cohort assessed as part of the UK Special Needs and
Autism Project at the age of 12 years.
http://www.chimat.org.uk/resource/view.aspx?RID=242362&src=LD
Family-based obesity treatment in children with disabilities
The objective of this study was to assess the relative effectiveness of an
interdisciplinary, family-centered, tertiary-care pediatric weight
management program for the treatment of patients with and without
cognitive disabilities (CD).
http://www.chimat.org.uk/resource/view.aspx?RID=246071&src=LD
Overweight and obesity in a sample of children with autism
spectrum disorder
The objective of this study was to determine the prevalence of
overweight/obese status in children with autism spectrum disorders
(ASD), identify associated characteristics, and develop a model to predict
weight status.
http://www.chimat.org.uk/resource/view.aspx?RID=246072&src=LD
Collaborative care for children with ADHD symptoms: a randomized
comparative effectiveness trial
This study sought to test whether complementing basic collaborative care
with interventions that address common reasons for symptom
persistence improves outcomes for children with inattention and
hyperactivity/impulsivity.
http://www.chimat.org.uk/resource/view.aspx?RID=246075&src=LD
Prevalence of attention-deficit/hyperactivity disorder: a systematic
review and meta-analysis
This meta-analysis aims to: establish a benchmark pooled prevalence for
ADHD; examine whether estimates have increased with publication of
different editions of the Diagnostic and Statistical Manual of Mental
Disorders (DSM); and explore the effect of study features on prevalence.
http://www.chimat.org.uk/resource/view.aspx?RID=246077&src=LD
Consultations
Keeping children in care out of trouble: an independent review. Call
for written views and evidence
This independent review wants to hear from those who have experience
of local authority care and the criminal justice system, including children
and young people, their families and carers, social workers, youth
offending team managers, police and local authority leads, and others
who work with children in care and children in the criminal justice system.
The deadline for responses is 5pm 4th August 2015.
http://www.chimat.org.uk/resource/view.aspx?RID=246561&src=LD
Information for parents, families and carers
A guide to dealing with bullying: for parents of disabled children.
Information for families (May 2014)
This guide aims to help parents and carers understand what bullying is,
how to spot it, and the action to take to stop it. It also includes sections
for parents and carers on managing their own feelings, and tips for
building their child's self confidence and self esteem.
http://www.chimat.org.uk/resource/view.aspx?RID=142176&src=LD
Champions for community mental wellness: I am that parent (blog)
A blog post from a parental perspective of interest to anyone involved in
education.
http://www.chimat.org.uk/resource/view.aspx?RID=247341&src=LD
Let's stop bullying for all: advice from disabled young people for
disabled young people (YouTube video)
This short film from the Anti-Bullying Alliance was created for disabled
young people about bullying. It includes messages that disabled young
people thought were important.
http://www.chimat.org.uk/resource/view.aspx?RID=247382&src=LD
Events
For details of these and many other events see the calendar of events on
our website.
National Portage Association conference 2015: moving forward with
Portage
The conference is an opportunity for children, parents and practitioners to
share ideas and practice, to explore the future of early years and the
opportunities this presents for Portage.
Location: Northampton
Start date: Friday, 2nd October 2015
http://www.chimat.org.uk/resource/view.aspx?RID=242178&src=LD
Transition - developmentally appropriate care for young people with
long term conditions
This one-day conference will provide delegates with an overview of
transition from paediatric to adult services in 2015. Sessions and
workshops will tackle developmentally appropriate healthcare,
involvement of young people and mental health among other areas.
Location: London
Start date: Monday, 12th October 2015
http://www.chimat.org.uk/resource/view.aspx?RID=241415&src=LD
Next steps for SEND: implementing the code of practice, broadening
provision and improving outcomes from 0-25 years
The focus for this conference will be the future for Special Educational
Needs and Disability (SEND) policy and follows the introduction of the
new SEND Code of Practice in September 2014.
Location: London
Start date: Thursday, 22nd October 2015
http://www.chimat.org.uk/resource/view.aspx?RID=241922&src=LD
Tackling long term conditions: working in partnership to effect real
change
This conference includes a high level programme of speakers discussing
the future of health and social care, debating the personalisation agenda,
and detailing practical examples which are effecting real change.
Location: London
Start date: Tuesday, 27th October 2015
http://www.chimat.org.uk/resource/view.aspx?RID=246884&src=LD
eBulletins
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