Pre-Service Training for Volunteer Ombudsmen Applicants Welcome! Greetings • What is your name? • Where are you from? • What experience (if any) do you have in long-term care? 2 The Program Coordinators Merea Bentrott Direct (515) 344-0052 Toll Free (866) 236-1430 Merea.Bentrott@iowa.gov Sarah Hinzman Direct (515) 657-1479 Toll Free (866) 236-1430 Sarah.Hinzman2@iowa.gov 3 Our Mission The mission of Iowa’s Office of the State LongTerm Care (LTC) Ombudsman is to protect the HEALTH, SAFETY, WELFARE, and RIGHTS of individuals residing in long-term care by • investigating complaints, • seeking resolutions to problems, and • providing advocacy with the goal of enhancing quality of life and care. 4 Origin of Ombudsman Programs • Older Americans Act (OAA) (1965) requires each state to have a Long Term Care Ombudsman Program. • Demonstration programs began in 1972. • Iowa receives federal, state, and special grant funding. 5 Origin of Ombudsman Programs • Ombudsman Programs exist in all states, the District of Columbia, Puerto Rico, and Guam. • Each is led by a full-time State LTC Ombudsman. • In Iowa the State LTCO is Deanna Clingan-Fischer. 6 Long-Term Care What types of facilities are considered long-term care? 1. Residential Care Facilities (Residents are ill, but don’t require RN/LPN services, barring emergency) 2. Skilled Nursing (Rehabilitation) 3. Nursing Homes (Highest level of care required) 4. Elder Group Home (Smaller setting, 3-5 tenants) 7 Local Ombudsman Regions 8 The Long Term Care Ombudsman • Is an advocate for residents and tenants of nursing homes, residential care facilities, assisted living programs , elder group homes. • Investigates and resolves complaints that may affect the health, safety, welfare, or rights of LTC residents/tenants. • Makes a difference in the lives of residents and tenants in LTC facilities through individual contact with residents and systemic advocacy. 9 The Long Term Care Ombudsman • Resolves complaints made by or on behalf of residents/tenants. • Advocates for residents' rights and quality care. • Provides information to the public about long-term care services, residents' rights, legislation, and policies. 10 The Long Term Care Ombudsman • Educates consumers and long-term care providers about residents' rights and good care practices. • Promotes community involvement. • Promotes the development of citizen organizations, family councils, and resident councils. 11 Ombudsmen can help everyone Residents and tenants Residents’/Tenants’ family and friends Individuals and families considering facility placement Individuals or organizations interested in resident welfare Long-term care professionals 12 How the Ombudsman can help • Anyone with an inquiry about long-term care can contact an Ombudsman. Inquirers can remain anonymous. • Investigate concerns about a facility. • At the request of the resident/tenant or family, Ombudsmen may visit/call the facility, review records, meet with staff, and put a plan in place to address concerns. 13 How the Ombudsman can help • Provide assistance in situations where a resident/tenant is facing involuntary discharge/transfer. • Answer questions about standard practices and clarify state and federal guidelines for long-term care. • Obtain information about choosing a care facility. • Provide general information and education about long-term care. 14 Volunteer Ombudsman Program The Volunteer Ombudsman Program (VOP) was designed to place trained and certified volunteers in long-term care facilities to assist Local Ombudsman in carrying out the duties described in the Older Americans Act. “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, It is the only thing that ever has.” Margaret Mead 15 VOP Facts • Most states have a similar volunteer program. • Our program is written into Iowa Code and receives an annual state appropriation. • Our first volunteer began in September 2013. • As of June 30, 2014 there were 83 volunteers serving in 71 facilities across 32 counties. 16 VOP Facts • Unique volunteer achievements: • Establishment of a family council • Establishment of a veterans visitation program • Assisting with facility closure 17 Who are the VOP volunteers? • Community members over 18 years of age (currently includes college students through retirees). • Have a strong appreciation for older adults. • Some with professional experience in areas of health, human services, or long-term care. • Some with experience as family members or caregivers of a long-term care resident. 18 Who are the VOP volunteers? • Good listeners and objective problem solvers. • Able to demonstrate an understanding of program practices. • Do not have a conflict of interest as defined by the OAA. 19 Conflicts of Interest* • Currently employed by or receive payment from a long-term care facility. • Fiduciary relationship with a resident of the facility at which they hope to volunteer (guardian, conservator, attorney-in-fact, etc.). • Financial interest in long-term care facilities (owner, operator, Board member, etc.) • Involvement in licensing or certification of facilities. 20 Conflicts of Interest* • Service provider to residents in facility (insurance, ministry, etc.). • Former employee of a facility or a competing facility within the past year. • Resident of a long-term care facility. • Current facility volunteers (unless they plan to drop those duties in favor of the VOP). * Conflicts of interest generally extend to immediate family. 21 The VOP Enrollment Process 1. 2. 3. 4. 5. 6. 7. 8. Application Telephone interview Training Individual manual review Follow-up consultation Background check Certification & facility placement Facility orientation with local ombudsman 22 VOP Orientation The facility administrator will receive an announcement of your placement and the Local Ombudsman will arrange a date and time that works best for all parties to conduct the orientation. 23 VOP Orientation 1. Meeting with administrator, Local Ombudsman, and certified Volunteer Ombudsman (VO). – – – – Volunteer materials distributed Point of contact is established Expectations of all parties are outlined Communication and information sharing practices discussed 2. Tour of the facility. 3. Local Ombudsman shadowing. Then you’re visiting solo! 24 Ongoing VOP Certification • For new volunteers, certification is granted for one year. • Volunteer will complete 10 hours of continuing education during their first year. • Volunteer will regularly submit monthly reports and visit their facility a minimum of three hours per month. 25 Ongoing VOP Certification • Volunteer will abide by program practices. • At the time of recertification, the volunteer will be evaluated by the program and the program evaluated by the volunteer. • Recertification may be granted for a period of two years, with six hours of continuing education required each year. 26 Our volunteers make a difference Volunteer Ombudsmen: • Empower residents to speak up for themselves. • Visit with residents who are new admissions to a facility. • Make a resident’s day by involving them in conversation and listening to their concerns and opinions. 27 Our volunteers make a difference Volunteer Ombudsmen: • Attempt to resolve resident concerns at the facility level. • Work cooperatively with facility staff, encouraging them to take resident concerns seriously. • Help break down barriers between the community and long-term care facility. 28 Long-term care advocacy tips • Be friendly. • Be aware of your body language, gestures, and non-verbal communication signals. • Listen carefully and seek an accurate understanding of the situation. 29 Long-term care advocacy tips • Remember that we advocate only for the residents. • Focus on residents concerns—not your personal concerns or other’s concerns. • Focus on a few residents during each visit to avoid being overwhelmed. 30 Ethical Principles of Volunteer Ombudsmen • Ethics are guidelines and standards of conduct for a profession • Our ethics are all about the resident! • You may experience an ethical dilemma in your volunteer role. Do not hesitate to seek an objective opinion from your VOP Coordinators. 31 Ethical Principles of Volunteer Ombudsmen We support the following: • Autonomy (Encouraging selfadvocacy) • Non-maleficence (Do no harm) • Beneficence (Seek to do good) • Justice (Fairness) • Fidelity (Trust) • Veracity (Truthfulness) 32 Top Five Resident Complaints (2013) 20% 18% 16% 14% 12% 10% 8% 6% 4% 2% 0% Residents Rights Care Admission, Transfer, Discharge System, Etc. Environment & Safety 33 Common resident concerns • Meal temperature, taste, and timely service. • Availability and accessibility of fresh water. • Short staffing: what are the consequences of short staffing? • Environmental safety and cleanliness including equipment. • Misplaced, lost, or stolen property. 34 Common resident concerns • Scheduling of baths and showers. • Appropriateness of activities. • Timely acquisition and repair of wheelchairs and other important equipment. • Conflicts with staff members or roommates. 35 Volunteers may also… • Conduct initial inquiries regarding resident complaints received by our office at the request of the Local Ombudsman. • Provide follow-up visits on cases investigated by the Local Ombudsman and monitor facility progress. 36 Volunteers may also… • Attend Resident and Family Council meetings at the request of council members. • Provide general information to residents and families. 37 Volunteer interaction with families • You will encounter residents’ family members and friends who have their own opinions about the resident’s care. • Remember that we are advocates for the resident. 38 Volunteer interaction with families Scenario: Resident and Daughter • What does the resident want? • Are family members imposing their wishes on the resident? • Does the family need information/resources? 39 Are there things volunteers should not do? YES! 40 VOP Volunteers Do Not • Act like “nursing home police”. • Have the same role and status as Local LTC Ombudsmen. • Represent themselves as anything other than a Volunteer Ombudsman while in their assigned facility. • Act as a Volunteer Ombudsman for any facility other than the one to which they are assigned. • Train and monitor other Volunteer Ombudsmen. 41 VOP Volunteers Do Not • Disclose resident concerns to the point-ofcontact (or other staff) unless resident permission has been given. • Discuss issues of confidentiality inside or outside the facility. • Investigate complaints or provide advice to residents or staff regarding health care, legal issues, financial, or discharge/transfer. • A VO may be the first person to identify these concerns. 42 VOP Volunteers Do Not • Have access to residents information on file. • Establish friendships with residents or staff that will affect their advocacy role. 43 Boundaries • A boundary is a limit to a professional relationship that promotes programmatic integrity and protects the welfare of the resident. • Why do volunteers need boundaries? • Respect for the resident. They probably have friends. What they probably do not have is an advocate. 44 Boundaries • The advocate/resident relationship is planned and purposeful. Unlike friendships, advocates and residents do not need to share similar experiences, viewpoints, or personality qualities to be successful. • The utility and efficiency to solve resident concerns without social complications make our services more valuable. • Your role as a volunteering professional is probably quite different than your social identity among friends—it should be! 45 VOP Volunteers Do Not • Serve as a facility volunteer or organize, lead, or take an active role in facility activities. • You may attend activities to observe and visit with residents. • Receive payment or accept gifts (including meals) over $2.99 in value from families, residents, or facility staff. 46 VOP Volunteers Do Not • Perform any type of hands-on personal care, activity, transportation, or treatment for residents. • This is to protect everyone’s safety and liability. • Have any regulatory authority. 47 Long-Term Care Regulators • The Iowa Department of Inspections and Appeals’ (DIA’s) Health Facilities Division is the designated state surveyor and certification agency for inspecting, licensing and certification of long-term care facilities. • DIA investigates complaints alleging a violation of law. 48 Long-Term Care Regulators • DIA survey teams conduct unannounced on-site inspections to assess quality of care/services provided to residents and tenants. • If problems are discovered, DIA can initiate corrective and/or disciplinary action to assure a facility's compliance with state and federal laws and rules. • Nursing home report cards: DIA and Medicare 49 Volunteer Interaction with DIA • Identify self as a Volunteer Ombudsman to DIA surveyors. • DIA may ask a volunteer questions regarding a resident/situation. • General information relating to direct observation & conversation with residents may be discussed. 50 Volunteer Interaction with DIA • Volunteers may not communicate residentspecific information directly to the surveyors unless the resident has given permission. • Volunteers should not give surveyors a copy of their notes, even if requested. • Volunteers may attend the surveyor’s exit meeting. 51 Why do residents value our volunteers? • They keep them connected to the community. • They serve as an empathetic ear for day-today concerns. • They provide assurance that they are being heard and provide hope that their concerns will be addressed to their satisfaction. • They help decrease relocation stress for new residents knowing they have an advocate from day one. 52 Why do residents value our volunteers? • Residents will often share personal fears and needs with them that they may not feel comfortable sharing with staff. • They can serve as a “constant” during times of change in a facility (renovation, ownership and staffing changes). 53 Why do facilities value our volunteers? • Another set of eyes and ears to enhance their services. • Smaller issues resolved without further involvement from Ombudsman’s office or DIA. • All Volunteer Ombudsmen are trained the same and have the same expectations and practices. 54 Why do facilities value our volunteers? • Improves communication between facilities and the Long-Term Care Ombudsman’s office. If they’re in the business for the right reasons, they will see you as an asset! 55 Why do we value our volunteers? • They increase our ability to serve more residents and have a regular presence in more facilities. • They serve as a liaison of our office in their home community—more people will know what we do. • The LTC Ombudsman’s office is able to monitor more facilities with greater frequency. 56 Why do we value our volunteers? • Increased awareness of long-term care issues. • Because we know the rewards and challenges of this role, and uniqueness of this opportunity. Good volunteers are hard to find! 57 But what’s in it for you? • Satisfaction knowing you’re making a difference in the lives of others. • Being connected to residents as a community member impacts the overall community. • Increased social ties and advocacy skills. • Learn more about the long-term care system. • Ongoing support and education from the LTC Ombudsman’s office. • Fun, fulfilling, and rewarding. 58 Typical Nursing Home Organizational Chart Governing Body Administrator Social Service Director Chaplain Bookkeeper/ Business Manager Director of Maint. & Housekeeping Other Housekeeping Personnel Food Service Supervisor Director of Nursing (DON) Dietician Assistant (DON) Cooks Charge Nurses Helper/ Dishwasher Staff Nurses CNAs 59 Activity Therapist Volunteer Coord. Facility Volunteers *Ancillary Medical Personnel *Therapists (PT, OT, Speech) *Pharmaceutical consult *Psychiatry Psychology Consult *Dental *Podiatry Infection Prevention and Control • If you are ill, don’t visit. • Wash your hands before and after visits. • Use and check hand sanitizers. • Advocate for residents to be able to wash their hands and have clean clothing, especially before and after meals. 60 Infection Prevention and Control • Pay close attention to any infection procedure signs on residents’ room doors and follow the protocols. • What if there is a flu outbreak? • Vaccinations are not required for volunteers. • TB tests 61 The Art of Observation • Sometimes we spend so much time in a facility we become unaware of what is happening around us. • Avoid making assumptions. • When we advocate for residents, sometimes we have to increase our “lens” to identify the root of a problem. • Observation Skills • Are my observations statements of fact or statements of opinion? 62 How observant are you? 63 How observant are you? Count the Passes! 64 Visiting the facility • Volunteers conduct unannounced, varied visits (minimum of 3 hrs/mo). • Volunteers are not to be restricted from visiting the facility or any specific individual. • Wear state-issued identification badge. • Notify point of contact when entering and exiting the facility. 65 Visiting the facility • Observe, listen, interact with residents and record concerns. • Observe general conditions of the facility and note observations. • Speak with point-of-contact regarding resident concerns with resident permission. 66 Starting the conversation • • • • Knock and wait for response. Ask for invitation to enter and visit. Introduce yourself and your role. Try to converse with residents at eye-level, adjusting whatever environmental elements (lights, sound) necessary to communicate effectively. 67 Starting the conversation • Be friendly. • Be aware of non-verbal communication. • If you’re unsure how to communicate with a resident, ask staff how best to communicate. • “Break the ice”. 68 Taking a resident concern Collect as much detail as possible. Be empathetic, understanding, and professional. Ask the following questions: Who/what/where/when/why/how (open ended questions). Would you be comfortable speaking up to a staff person about this? Have you told anyone about this before? What happened? Would you like my help to resolve this concern? What do you see as a solution to this issue? May I bring your concern to the attention of my point of contact (name)? They may be able to help resolve your concern. Provide a reasonable expectation for when you will follow up. Interviewing skills 69 Confidentiality & permission • Maintaining resident confidentiality and obtaining permission to resolve concerns on their behalf is among the most crucial elements of the LTC Ombudsman program. • Confidentiality is the nondisclosure of information except to another authorized person. 70 Confidentiality & permission • We must always ask for a resident’s permission to talk to staff or others about their concerns. • Does the resident wish to be personally identified in the complaint, or would they prefer to remain anonymous? 71 A path to resolution Things to establish before working toward resolution. • What happened? • How did it happen? • Who was involved? • When did it happen? • Why did it happen? • How often does it happen? • Did it really happen, or was it perceived? 72 A path to resolution • Has the resident told anyone about this concern before? What happened? • What does the resident see as a resolution? • What could be the root cause of this issue? • How can this issue be prevented in the future? 73 Subjectivity in communication Show Me Your Bug! 74 A path to resolution Ask yourself: Did the resident give permission to discuss their concern? If no, STOP. At this point your options include: o Empowering the resident to speak up for themselves. o Providing education to resident about your limitations to resolving their concern without their permission. o Note the concern in your monthly report without identifying the resident. 75 A path to resolution o Ask other residents if they have a similar concern (if so, you may be able to bring the concern to your point of contact in a general sense without having to identify specific residents). o Share any serious or immediate concerns only with the VOP Coordinator and/or your Local Ombudsman right away. 76 Investigating a concern If resident permission was granted, follow these steps: • Bring the concern to the attention of your point of contact verbally either in person or on the phone. • Note the concern in your monthly report. Any serious or immediate concerns can be shared immediately with VOP Coordinator and/or Local Ombudsman. • Follow up with resident and/or point of contact during future visits to see if the concern is improved or resolved. 77 Investigating a concern Sometimes, a concern may require more assistance than the volunteer can provide: • If the investigation or resolution would require a review of personal/medical records or may require medical, legal, health, or financial advice, it should be handed off to the Local Ombudsman. • If the concern continues to be unresolved or escalates, contact the VOP Coordinator and/or Local Ombudsman for guidance. 78 Investigating a concern • The Local Ombudsman may conduct further investigation and provide follow up to volunteer. The volunteer should continue to visit with the resident to listen and provide reassurance. • Depending on the individual concern, other entities may need to be called upon for assistance. This will be done at the Local Ombudsman's discretion. 79 Reporting • Monthly reports should be submitted by the last business day of the month. • Use resident initials only on written reports (no nicknames, room numbers, etc.). • You do not have to provide a response to each item in the report. We will assume that anything not noted in the report is satisfactory. • Include notes about progress to resolution. • Do not make copies. 80 Scenarios! 1) When you attempt to visit with a resident they become defensive, call you a stranger, and refuse to visit with you. 2) A resident expresses that they would like to go to chapel service, but no one ever tells her when it is and staff are usually too busy to take them anyway. 3) You observe that residents who are more dependent are left lingering, some asleep, at the dining room tables for more than an hour after dinner is complete. 81 We all want what’s best for the resident Community/ Family Facility/ Staff RESIDENTS’ RIGHTS Residents State, Local, and Volunteer Ombudsmen 82 Culture change • “Culture change” is a movement developed by the Pioneer Network in 1997 (www.pioneernetwork.net) • Campaigns for the “provision of high-quality nursing home care, individualized to meet each residents’ needs in a setting that maximized self-determination and wellbeing.” 83 Resident centered care 84 Culture change • Campaigns for transformation of attitudes and behaviors in long-term care settings. • It starts with language… o Person first! o Avoiding ageist labels, value judgments, and putdowns • “The Bucket List” 85 Residents’ Rights • Residents have rights guaranteed to them by state and federal laws • Facilities are required to protect and promote residents’ rights • Each resident has the right to exercise all of their rights free from interference, coercion, discrimination, or reprisal 86 Foundation: Residents’ Rights 87 Foundation: Residents Rights 88 Common legal rights issues Paige Thorson, J.D. Legal Assistance Developer Iowa Department on Aging Residents also have the right to: • Self-administer medications • Accept or refuse care and treatment • Reasonable access to personal funds held by facility • Not be involuntarily discharged without due process • Private and unrestricted visits with any person of their choice 89 Self-Administered Medications Federal Law An individual resident may self-administer drugs if the interdisciplinary team… has determined that this practice is safe. 42 CFR 483.10(n) 90 Self-Administered Medications Iowa Law Attending physician must certify that resident is mentally and physically capable of selfadministering. Once certified, resident may keep the medications in locked storage in their bedroom. 481 IAC 58.21(14)(m-n) 91 Acceptance or Refusal of Care and Treatment Federal Law A resident has the right to: • Refuse treatment • Refuse to participate in experimental research • Formulate an advance directive (POA, Living Will) 42 CFR 483.10(b)(4) 92 Acceptance or Refusal of Care and Treatment Iowa Law Each resident has the right to refuse treatment. If resident is not able, the legal decision maker may participate in the planning of the resident’s total care and medical treatment. 481 IAC 58.39(9) 93 Personal Funds Federal Law Upon written authorization of a resident, facility must hold, safeguard, manage, and account for the personal funds of the resident deposited with the facility. No co-mingling of funds. Financial record must be available through quarterly statements and on request to resident or legal representative. 42 CFR 483.10(c) 94 Personal Funds Iowa Law Resident has right to manage their own personal financial affairs. If resident authorizes facility to manage finances: • Resident shall be given funds upon request with receipts maintained by facility; or • Legal decision maker shall designate method of disbursing resident’s funds. 481 IAC 58.42 95 Involuntary Discharge: Due Process Federal Law Transfer or discharge only appropriate when: • Necessary for resident’s welfare and resident’s needs cannot be met in facility • Resident’s health has improved sufficiently so the resident no longer needs the services provided by the facility • Safety/health of individuals in the facility is or would otherwise be endangered • Failure to pay • Facility closes 42 CFR 483.12(a)(2) 96 Involuntary Discharge: Due Process Federal & Iowa Law Facility must notify resident (and family member/legal representative) in writing of the transfer/discharge and include reasons for the move in a language and manner they understand 30 days before planned transfer. Written notification must include: • • • • • Reason for transfer/discharge Date Location to which resident is transferred/discharged Statement re: right to appeal Name, address and telephone number of ombudsman 42 CFR 483.12(a)(4)-(6) 97 Visitation Federal Law The resident has the right and the facility must provide immediate access to any resident by immediate family, other relatives, or other visitors subject to the resident’s right to withdraw consent at any time. 42 USC 1396(r)(3)(c) 42 CFR 483.10(j)(viii) 98 Visitation Iowa Law A visitor may be restricted by the facility when: • The resident refuses to see the visitor • The resident’s physician documents specific reasons why such a visit would be harmful to the resident’s health; • The visitor’s behavior is unreasonably disruptive to the functioning of the facility. Iowa Code 135C.14(8) (2013) 481 IAC 58.47(2) 99 Power of Attorney Is the Power of Attorney… A document OR An actual person? 100 Power of Attorney Responsibility of Attorney-in-Fact as a fiduciary: • Act consistently with the desires as stated in the document or otherwise made known by the principal. • Where Principal’s wishes are unknown, act in his or her best interest. Iowa Code 144B.6(2)(2013) 101 Power of Attorney Fiduciary (adjective): involving trust, especially with regard to the relationship between a trustee and a beneficiary. Principal (noun): a person who employs another to act as his agent. Iowa Code 144B.6(2)(2013) 102 Power of Attorney (POA) POA for Health Care Decisions • A document authorizing an attorney-in-fact to make health care decisions for the principal if the principal is unable, in the judgment of the attending physician, to make health care decisions. POA for Financial Management Decisions • A document authorizing an agent to make financial management decisions for the principal immediately or if the principal is unable. Iowa Code 144B.1(2013) 103 Visitation Resident’s Right to Refuse Visitor • This right to refuse a visitor does NOT transfer to the attorney-in-fact. • Why? The decision to allow access to a resident is not a health care decision. • “Health care decision”: the consent, refusal to consent, or withdrawal of consent to health care. • “Health care”: any care, treatment, service, or procurement to maintain diagnose, or treat an individual’s physical or mental condition. Iowa Code 144B.1(5)(2013) 104 Competency v. Capacity • Competency: Competency is a legal finding. Competency proceedings (guardianship and conservatorship hearings) are conducted to allow the court to determine mental capacity. 105 Competency v. Capacity • Incompetency: Lack of ability to implement or understand either health care or financial management decisions. Incompetence is declared by the court when an individual is in need of a guardian or conservator. This determination is made only after the individual meets the proper “standards” under Iowa law. 106 Competency v. Capacity • Capacity: The ability to understand the nature and effect of one’s acts. • Capacity to consent to medical procedures is determined by the criteria of informed consent. Does the patient have the ability to: • Understand the medical procedure and specifically understand a description of the procedure, its risks, its benefits, and its alternatives? • Voluntarily consent because he/she is competent (meaning, he/she does not have a guardian)? 107 Residents’ Rights Review BINGO! 108 Sexual Activity in Older Adulthood • Sexuality: It’s an important component of wellbeing throughout life! • Backseat Bingo • Decrease in sexual functioning; not in desire/interest • Intimacy may be more valued than sexual activity 109 Sexual Activity in Older Adulthood • Barriers to intimacy in Long-term care • Lack of privacy, family attitudes, negative past experiences, fear of staff reaction/ostracism, embarrassment, differences in beliefs/values/sexual preference 110 Depression is not a normal part of aging • A person who is clinically depressed experiences an unusually sad mood and/or loss of enjoyment and interest in activities that used to be enjoyable nearly every day for at least two weeks. They may also experience: • Lack of energy • Feelings of guilt and worthlessness • Difficulty concentrating or making decisions • Sleep difficulties • Changes in eating habits • Thinking often about death or wishing to be dead Mental Health First Aid USA, 2009 111 Depression: What to do • If the resident is stating or hinting they are suicidal, seek help immediately. • Listen nonjudgmentally. • Give reassurance/information. • Encourage appropriate professional help. • Encourage self-help and other support strategies. Mental Health First Aid USA, 2009 112 Depression and Cognitive Impairment • A correlation: Depression and Dementia • Increasing stages of dementia severity associated with higher risk for depression (Volicer et al., 2012) • A few options: • Evaluation by a physician • Identify and incorporate favorite pastimes/hobbies • Family and friendships • Physical & social activity where possible • Diet 113 The Dementia Umbrella • Dementia is not a normal part of aging • Dementia is a group of symptoms that may be present in certain conditions or diseases • Results in a decline of cognitive function so severe it interferes with daily activities including: • Memory loss (especially short term) • Personality changes • Mood swings • Confusion • Decline in problem-solving skills 114 The Dementia Umbrella Alzheimer’s Disease • Accounts for 60-80% of dementia cases • Progressively robs individual of memory, learning ability, communication skills, capacity for self care • Typically, symptoms appear after age of 60 • Seven stages 115 The Dementia Umbrella Vascular Dementia – 10%; impaired decision making Lewy Body – powerful hallucinations Parkinson's Disease Dementia – problems with movement Frontotemporal Dementia – symptoms develop at younger age 116 Residents’ Rights in CCDI Units Residents in Chronic Confusion or Dementing Illness (CCDI)/memory care units have the same rights as other residents. • Right to citizenship • Right to privacy and confidentiality • Right to dignity and respect • Right to make independent choices • Right to visits 117 Communication tips we already know! Use the same concepts for communication w/other residents Approach from the front Introduce yourself Visit at eye-level Speak to adults as adults 118 Communication tips we already know! Use the resident’s name Avoid outside noise and glare Be aware of your body language If unsure, ask staff how to communicate best 119 Additional communication strategies • Do not debate or disagree with the resident. It’s real for them. • Allow more time for a response: • If repeating is necessary, use exactly the same words • The third time, try other words • Supply words you think they mean as a last resort 120 Additional communication strategies • For residents who are difficult to understand, a few words can help you understand what they’re trying to tell you—reflect that you are trying to and want to understand them. • Promote reassurance by confirming the emotional message even if you can’t understand what is being said. 121 When words fail…observe • Is the resident comfortable, clean, and cared-for? • Is this a calm and happy place to call home? • Does staff take time to get to know each resident on a personal level so residents’ wants and needs can be understood? • Does staff make appropriate adaptations to their speech and body language to help each resident? 122 When words fail…observe •Does it appear residents are given the opportunity to be active/engaged? •Could changes in the environment make a difference? •Does there appear to be enough staff to meet residents’ needs? 123 Scenarios! 1) A resident tells you that there is a man who comes into his room at night and makes a lot of noise. 2) A resident tells you they have to sometimes wait an hour for their call light to be answered, and so they have accidents. 3) A female resident tells you that they are upset that sometimes a male aid assists with her personal cares. 124 Abuse and Neglect “Every person-no matter how young or how old-deserves to be safe from harm by those who live with them, care for them, or come in day-to-day contact with them.” (American Psychological Association) 125 Prevalence of Elder Abuse Elder Abuse is grossly under-recognized and underreported • 2.1 million older Americans are victims of physical, psychological, other forms of abuse and neglect (APA, 2012) • Estimated that more than 80% of cases go unreported • 40% of all elder abuse involves some form of financial exploitation • Older adults with impairments are at greater risk for becoming victims of abuse and neglect 126 Prevalence of Abuse • 2/3 of elder abuse perpetrators are adult children or a spouse; 90% are other family members • An adult child can financially exploit a parent if they assume their parent’s money ultimately goes to them anyway • An “inheritance” is not an “inheritance” until the person to whom the money or other assets belong passes away AND it is willed to that child • Elder abuse and dependent adult abuse can occur within a long-term care facility just as it can in a person’s home 127 Elder Abuse Legislation In 2014, Iowa Law now provides a definition for elder abuse, as well as a process to establish a protective order for victims or potential victims of elder abuse. “Elder abuse” means any of the following: (1) Physical injury…unreasonable confinement, unreasonable punishment, or assault of a vulnerable elder… (2) The commission of a sexual offense… (3) Neglect which is the deprivation of the minimum food, shelter, clothing, supervision, or physical or mental health care, or other care necessary to maintain a vulnerable elder’s life or health by a caretaker. (4) Financial exploitation. SF 2239 128 Elder Abuse vs. Dependent Adult Abuse • Elder Abuse • Age 60+ • Definition and protective order process in Iowa Code • No registry as of yet • Court civil action/protective order (no state agency to report to yet) • Area Agencies on Aging can be contacted for resources 129 Elder Abuse vs. Dependent Adult Abuse • Dependent Adult Abuse (DAA) • • • • • Age 18+ Victim must be dependent Caretaker must be perpetrator Registry Report to Dept. of Human Services or DIA 130 Am I a Mandatory Reporter? • No, you are a permissive reporter, meaning: • People in the community, family, and friends who aren't required by law to report abuse. • There are no specific guidelines about what you have to do or don't have to do. 131 Am I a Mandatory Reporter? • We are permissive reporters because our utmost concern is the resident’s right to confidentiality and we always seek their permission to advocate for them. • However, we don’t ignore abuse. If you see or suspect abuse, neglect, or exploitation contact the VOP Coordinator immediately! 132 Possible signs of Abuse in LTC While one sign does not necessarily indicate abuse, some tell-tale signs that there could be a problem are: • Bruises, pressure sores, broken bones, abrasions, burns • Unexplained withdrawal from normal activities, sudden change in alertness, unusual depression • Behavior such as belittling, threats, and other uses of power and control Ask open-ended questions if you notice any of these signs. 133 Possible signs of neglect in LTC • Staff ignore personal hygiene requirements (e.g., not helping a resident get to a bathroom) • Staff ignore a resident’s call light or not responding in a timely manner • Staff fail to contact a resident’s physician when necessary 134 Possible signs of neglect in LTC • Resident is dehydrated or malnourished— extreme weight loss • Unsafe or unsanitary living conditions • Unsupervised wandering • Untreated health conditions 135 Possible signs of Financial Exploitation in LTC • Resident is inaccurate, confused, has no knowledge of finances • Others express unusual interest in the amount of money being expended for the care of the resident • Unpaid bills when resources should be adequate 136 Your role… Be alert! The suffering is often in silence. If you notice changes in a resident’s personality or behavior, you should start to question what is going on. Remember, it is not your role to verify that abuse is occurring, only to alert the VOP Coordinator of your suspicions as soon as possible. 137 Federal Volunteer Protection Act (Public Law 105-19) The Volunteer Protection Act (VPA) provides immunity for volunteers serving nonprofits/ governmental entities for harm caused by their acts or omissions if: • The volunteer was acting within the scope of his or her responsibilities • If appropriate or required, the volunteer was properly licensed, certified or authorized to act. • The harm was not caused by willful, criminal or reckless misconduct or gross negligence. • The harm was not caused by the volunteer operating a motor vehicle, vessel, or aircraft. 138 Federal Volunteer Protection Act (Public Law 105-19) Exceptions to liability limitation include misconduct that is a(n): • Crime of violence • Hate crime • Sexual offense • Violation of federal or state civil rights law • Act committed under the influence of alcohol or drugs In short—follow our program rules and you should be fine! 139 Two Men Meet on the Beach -“Good evening. What are you doing?” -“I’m throwing starfish back in the ocean. If I don’t they’ll die here on the sand.” -“But there must be a thousand starfish on this beach. You can’t possibly get to enough of them to make a difference.” -Smiling, the man picked up another starfish and threw it into the ocean, saying, “well, I made a difference to that one.” 140 Wrap up and next steps… Before you leave! • Confidentiality agreement • Background check forms • Photos Next steps… • Review your manual • Take “The Aging Process” quiz • Follow up phone call with VOP Coordinator • Certification • Orientation 141