Memory Day
Missouri State Capitol
Facts to Know
National
• 5+ million Americans are living with Alzheimer’s
• Every 67 seconds, another person is added
• 6th leading cause of death
Missouri
• 110,000 people have Alzheimer’s
• 130,000 by 2025
• $4 billion, the value of unpaid care by family caregivers
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Memory Day Agenda
11:00
Buses arrive at the Capitol
11:00-2:00
Group visits to legislators
12:00-1:30
Box lunches, 3rd floor rotunda
2:00 – 2:20 Memory Day Ceremony, 1st floor rotunda
2:20
Group photo on south Capitol steps
2:30-2:45
Departure
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2:15 Photo Session
South Capitol Steps
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Missouri Legislature
Republicans have a “super majority” in the Senate
and the House
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Group Visits
Groups are organized by Senate district
• Everyone will be assigned to a group with a group
coordinator
• Entire group makes the Senate visit
• Small groups may make visits to Representatives,
depending on the size of your group
For each visit, there should be a designated
spokesperson(s)
• Constituent
• Individual with a compelling personal story
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Visiting With Your Legislator
• State your name, where you are from, and that you are a
constituent
• You are speaking today on behalf of the
• Missouri Coalition of Alzheimer’s Association Chapters
• 110,000 individuals in Missouri with Alzheimer’s and their families
• Share your personal story
• Make the pitch
• 3 minutes
• 3 points
• 1 page summary
• Close by asking for support
• Follow up with a thank you
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1st Public Policy Priority
Fully fund Alzheimer’s grants that provide Respite
Care Assistance to Missouri families
$450,000 in the budget for the
Department of Health and Senior Services (HB10)
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$450,000 for Alzheimer’s grants that provide
respite care assistance
What:
• Alzheimer’s grants provide critical respite care
assistance to help families care for a loved one at home
• 70% of people with Alzheimer’s are living at home
because of the support families provide
• The value of unpaid support provided by these Missouri
families is more than $4 billion
• Families cannot do it alone
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Respite offers choice and flexibility to Missouri
families caring for a loved one at home
Who:
• Families receive up to $500 annually
• Person with dementia must live with the caregiver seeking
respite assistance
• Families select the care that best meets their needs
• Respite: Home care, adult day services, short-term
respite at a residential care facility
• Supplies: Incontinence, nutritional, medical equipment
• Available across the state
• Priority to those in greatest need
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Alzheimer’s is a long and costly disease and
caregivers need support
Why:
• 110,000 people in Missouri have Alzheimer’s
• 6th leading cause of death and has no cure
• Disease trajectory is lengthy, spanning 8 to 20 years.
Individuals will require steadily increasing assistance
• Caregiving is stressful – physically, mentally, and
financially
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Respite assistance could save the state
millions
Why:
• Missouri spends more than $158 million* annually to care
for people with Alzheimer’s in nursing homes
• 99% of families surveyed stated that respite assistance
helped them keep their loved one at home, delaying the
move to a nursing home
• Delaying nursing home placement for just one month for
800 respite families could save the state more than $2
million in Medicaid nursing home costs
*SFY 2011, Missouri Alzheimer’s State Plan Task Force, Interim Report
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How this works
$147
average
nursing
home
Medicaid
cost / day
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800
30
60%
respite
program
families
days
delayed in
moving to a
nursing
home
of nursing
home
residents
on
Medicaid
$2.1
million
savings
Memory Day Ask
Fully fund Alzheimer’s grants that provide Respite
Care Assistance to Missouri families
$450,000 in the budget for the
Department of Health and Senior Services (HB10)
Three committees must approve this funding:
• House Appropriations Committee for Health,
Mental Health and Social Services
• House Budget Committee
• Senate Appropriations
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House Appropriations-Health, Mental Health, and
Social Services
Representative
Party
Marsha Haefner (Chair)
Rep.
095: STL
David Wood (Vice Chair)
Rep.
058: Morgan, Moniteau, Miller
Michael Butler
Dem.
079: STL
Courtney Allen Curtis
Dem.
073: STL
Keith Frederick
Rep.
121: Phelps, Pulaski
Jeanne Kirkton
Dem.
091: STL
Bonnaye Mims
Dem.
027: Kansas City, Jackson
Jim Neely
Rep.
008: Caldwell, Ray, Clay, Clinton
Holly Rehder
Rep.
148: Scott, Mississippi
Becky Ruth
Rep.
114: Jefferson
John Wiemann
Rep.
103: St. Charles
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District
House Budget Committee
Representative
Party
District
Tom Flanigan (Chair)
Rep.
163: Jasper
Scott Fitzpatrick (Vice Chair)
Rep.
158:Lawrence, Stone, Barry
Sue Allen
Rep.
100: STL
Justin Alferman
Rep.
061: Osage, Franklin, Gasconade
Marsha Haefner
Rep.
095: STL
Kurt Bahr
Rep.
102: St. Charles
Cloria Brown
Rep.
094: STL
Eric Burlison
Rep.
133: Greene
Kathie Conway
Rep.
104: St. Charles
Lincoln Hough
Rep.
135: Greene
Caleb Jones
Rep.
050: Cole, Cooper, Moniteau, Boone
Nick King
Rep.
017: Clay
Shelley Keeney
Rep.
145: Perry, Madison, Bollinger
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Representative
Party
District
Jeanne Kirkton
Dem.
091: STL
Jeremy LaFaver
Dem.
025: Kansas City
Donna Lichtenegger
Rep.
146: Cape Girardeau
Kirk Mathews
Rep.
110: STL, Franklin
Gail McCann Beatty
Dem.
026: Kansas City
Kevin McManus
Dem.
036: Kansas City
Jeffrey Messenger
Rep.
130: Greene
Craig Redmon
Rep.
004: Knox, Adair, Schuyler, Scotland, Clark
Karla May
Dem
084: STL City
Genise Montecillo
Dem.
092: STL
Caleb Rowden
Rep.
044: Randolph, Boone
Robert Ross
Rep.
142: Texas, Howell, Phelps, Pulaski
Kathryn Swan
Rep.
147: Cape Girardeau
Stephen Webber
Dem.
046: Boone
John Rizzo
Dem.
019: Kansas City, Jackson
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Senate Appropriations
Senator
Party
District
Kurt Schafer (Chair)
Rep.
019: Boone, Randolph
Ryan Silvey (Vice-Chair)
Rep.
017: Clay County
Dan Brown
Rep.
016: Phelps, Pulaski
Mike Kehoe
Rep.
006: Cole, Gasconade, Maries, Miller, Moniteau, Morgan
and Osage
Mike Parson
Rep.
028: Benton Cedar, Dallas, Hickory, Laclede, Pettis, Polk
and St. Clair
David Pearce
Rep.
021: Caldwell, Carroll, Howard, Johnson, Lafayette,
Livingston, Ray and Saline
David Sater
Rep.
029: Barry, Lawrence, McDonald, Stone and Taney
Rob Schaaf
Rep.
034: Buchanan, Platte
S. Kiki Curls
Dem.
009: Jackson
Jamilah Nasheed
Dem.
005: St. Louis City
Gina Walsh
Dem.
013: St. Louis County
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2nd Public Policy Priority
Protect seniors against financial exploitation
Senior Savings Protection Act
SB244 and HB636
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Senior Savings Protection Act
What:
• Provides financial industry professionals with a path to
voluntarily reach out to state agencies and family
members when they suspect their senior clients are
being exploited
• Allows them to refuse disbursements for up to 10 days
so the state may review the situation
• Protects the growing senior population to ensure more
are able to fully utilize savings they have built throughout
a lifetime
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Missouri’s senior population is
rapidly growing
Who:
• Including the growing number of people with Alzheimer’s
who may be vulnerable to financial exploitation
• 110,000 people in Missouri have Alzheimer’s. That
number will grow to 130,000 by 2025
• Nationally, it is estimated that seniors loss $2.6 billion
annually because of financial exploitation
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SB244 and HB636 give professionals the tools
they need to help protect senior investors
Why:
• Financial professionals are often the first to identify
suspected financial exploitation
• Currently, they can not risk potential liability for holding
suspect disbursements or breaching industry privacy
obligations by reaching out to family members or the
state. This bill addresses these concerns
• Bill supporters include leaders in the financial industry
and other senior advocacy groups
• If passed, it will make Missouri a national leader in senior
investor protection laws
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Memory Day Ask
Protect seniors against financial exploitation
Senior Savings Protection Act
HB636 and SB244
HB636 sponsored by Representative Barnes (Jefferson City)
• House Banking Committee
SB244 sponsored by Senator Schmitt (Kirkwood)
• This bill has not been assigned to a committee
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House Banking Committee
Representative
Party
District
Sandy Crawford, Chair
Rep.
129 Laclede, Dallas
Jeff Pogue, Vice Chair
Rep.
143: Oregon, Shannon,
Reynolds, Dent
Jack Bondon
Rep.
56: KC, Cass, Bates
Wanda Brown
Dem.
57: Cass, Benton, Bates,
Henry
Don Gosen
Rep.
101:STL
Alan Green
Dem.
067: STL
Dave Hinson
Rep.
119: Franklin, Washington
Bill Kidd
Rep.
020: Jackson
Mary Nichols
Dem.
072: STL
Bill Otto
Dem.
070: STL
Craig Redmon
Rep.
004: Knox, Adair, Schuyler,
Scotland, Clark, Lewis
Noel Shull
Rep.
016: KC
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Questions
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Alzheimer’s Service Grants
R: I serve on the Budget Committee. Remind me, what is
the appropriations request and what is it used for?
AA: We are asking for $450,000 for Alzheimer’s grants that
provide respite care assistance.
These critically important funds support Missouri families
caring for a loved one at home that has Alzheimer’s or a
related dementia.
The request is in the budget for Health and Senior
Services (HB10).
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Alzheimer’s Service Grants
R: You mentioned that this respite program can save the
state money. Please explain that to me.
AA: Missouri spends more than $150 million annually to
care for people with Alzheimer’s in nursing homes.
99% of the families in this program stated in a recent
survey that respite assistance helped delay nursing
home placement.
If nursing placement was delayed by just one month
for the people in the respite program, the state could
save more than $2 million in Medicaid nursing home
costs.
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Alzheimer’s Service Grants
R: Do you have suggests about where the state can get
this money?
AA: Representative, as a volunteer with the Alzheimer’s
Association I do not know the answer. I do know about
the heroic sacrifices families make caring for their loved
ones at home and the $4 billion value of that
uncompensated care.
Additionally, when respite helps families keep their loved
ones at home for a longer period of time, the state saves
dollars paying for Medicaid nursing home care.
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Alzheimer’s Service Grants
R: I don’t serve on the budget committee so I can’t help
you with this request.
AA: Representative, we ask that you talk with your
colleagues that serve on the appropriations and budget
committees. Let them know how important this program
is to the families in your district.
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Alzheimer’s Service Grants
R: I know the Governor withheld respite funding for this
year. What is the status of that funding?
AA: We are extremely pleased that the funding has been
released and will provide respite assistance to the more
than 350 families currently on the waiting list.
I’d like to talk about funding for next year. Can we count on
your support to ensure funding is in the budget for this
critically important program?
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Senior Savings Protection Act
R: I am not familiar with the Senior Savings Protection Act.
What specifically does the legislation do?
AA: When a financial industry professional suspects that
their senior client is being exploited, this legislation gives
them the tools to slow down the process and investigate.
It allows them to refuse disbursements for up to 10 days so
the state may review the situation.
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Senior Savings Protection Act
R: So why is the Alzheimer’s Association supporting this?
AA: 110,000 people in Missouri have Alzheimer’s. That
number will grow to 130,000 by 2025. We want to ensure
that protections are in place for individuals that may be
vulnerable to financial exploitation including those with
Alzheimer’s and related dementias.
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Senior Savings Protection Act
R: What other groups are supporting this legislation?
AA: Leaders in the financial industry including Wells Fargo,
Edward Jones, and SIFMA, the national trade association.
Additionally, the Area Agencies on Aging and Silver Hair
Legislature have made this a priority.
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Chapter Services
R: At times, I get calls from constituents who are struggling
with the care of a family member with dementia. What
support services are available?
AA: The Alzheimer’s Association offers a comprehensive
array of services including our Helpline that provides
support to families 24/7/365.
If you have a constituent in need, know that we are
always available to offer support.
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What we are asking for:
Fully Fund Alzheimer’s grants that provide Respite
Care Assistance to Missouri families
$450,000 in the Budget for Department of Health
and Senior Services (HB10)
Protect seniors against financial exploitation
Support Senior Savings Protection Act
Senior
Savings
Protection
Act
SB244
(Schmitt)
and
HB636 (Barnes)
HB636 and SB244
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Together, we are making a difference!
Thank you!
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